Medical Ethics is what every physician and healthcare worker should know. We need to understand Ethics and its application in various cultures, societies and its changes according to norms and values. Once society will be given health education regarding Medical Ethics many issues can be resolved in a decent manner. It ultimately gives a very positive impression of all the actions which a healthcare worker performs otherwise at times seems inappropriate by society. This is not for the sake of healthcare worker or for the patients it is primarily for the whole community.
What are the rights of patient? role of ethical committee and parameters of a physician all need to be addressed properly.
This is the course on Medical/clinical ethics presented to the MBE (Master of Bioethics) students at Prince Sattam bin Abdulaziz University. It includes the main topics only. Please note that the sources of almost all slides are listed as links at the bottom of the slide itself.
Medical Ethics is what every physician and healthcare worker should know. We need to understand Ethics and its application in various cultures, societies and its changes according to norms and values. Once society will be given health education regarding Medical Ethics many issues can be resolved in a decent manner. It ultimately gives a very positive impression of all the actions which a healthcare worker performs otherwise at times seems inappropriate by society. This is not for the sake of healthcare worker or for the patients it is primarily for the whole community.
What are the rights of patient? role of ethical committee and parameters of a physician all need to be addressed properly.
This is the course on Medical/clinical ethics presented to the MBE (Master of Bioethics) students at Prince Sattam bin Abdulaziz University. It includes the main topics only. Please note that the sources of almost all slides are listed as links at the bottom of the slide itself.
This presentation mainly explains about the type of patients that are encountered in day to day practice as well as how each of them should be handled to improve the communication between a doctor and the patient.
Now-a-days public are expecting Skills, Knowledge as well as Ethical behaviour from Doctors. This PPT gives the 2 basic principles of Bio-ethics in brief & apt form
Ethical issues in medicine and research:Special reference to IndiaJishnu Lalu
A detailed discussion on Ethical consideration concerning physician, patient, co-workers and research. It also discusses publication ethics and Ethics in India
OUTLINE:
Introduction: Doctor’s relationship and roles
Professionalism and Professional Attributes
Doctor’s duties towards himself/herself
Doctor’s duties towards his/her colleagues
Doctor’s duties towards his/her profession
Doctor’s duties towards his/her community
This presentation mainly explains about the type of patients that are encountered in day to day practice as well as how each of them should be handled to improve the communication between a doctor and the patient.
Now-a-days public are expecting Skills, Knowledge as well as Ethical behaviour from Doctors. This PPT gives the 2 basic principles of Bio-ethics in brief & apt form
Ethical issues in medicine and research:Special reference to IndiaJishnu Lalu
A detailed discussion on Ethical consideration concerning physician, patient, co-workers and research. It also discusses publication ethics and Ethics in India
OUTLINE:
Introduction: Doctor’s relationship and roles
Professionalism and Professional Attributes
Doctor’s duties towards himself/herself
Doctor’s duties towards his/her colleagues
Doctor’s duties towards his/her profession
Doctor’s duties towards his/her community
This presentation covers the fundamentals of medical billing, coding, and reimbursement by explaining how all of these components work together. Emphasis is placed on the practical application of the latest industry knowledge and standards, with the goal of helping those who work with medical claims and claims data stay ahead of the game.
The Code of Ethics for Healthcare Practitioners, published by the Saudi Commission for Health Specialties, Department of Medical Education & Postgraduate Studies.
The book was translated by me and edited and formatted by Vittoriana Crisera.
Presentation given at the HEA Social Sciences learning and teaching summit 'Teaching ethics: The ethics of teaching'
A blog post outlining the issues discussed at the summit is available via http://bit.ly/1lndTnX
Ethical Issues in Obtaining Informed Consent.pptxAhmed Mshari
Medical ethics is a set of moral principles, beliefs and values that guide decisions about patient care.
It is an integral part of good medical practice.
The health care professional uses knowledge, experience, and judgment and considers the ethical principles to make decisions on management recommendations.
Ethics Grand Rounds presented at Providence Health Care on 9/29/15 regarding questions and dilemmas in psychiatric care, particularly in the hospitalized medical patient
The goal of this webinar was to help hospice and healthcare professionals understand the ethics and application of artificial nutrition and hydration (ANH) for patients near the end of life.
When Decision-Making Is Imperative: Advance Care Planning for Busy Practice S...VITAS Healthcare
Complex, chronically ill patients present an opportunity to discuss and implement hospice and palliative care. Many elderly patients who present to the ED and other busy practice settings are hospice-eligible because of functional decline and multi-morbidity. Key tools can quickly facilitate goals-of-care (GOC) conversations, advance care planning, and hospice referrals amid time constraints and high-acuity challenges.
Assessment and Management of Disruptive Behaviors in Persons With DementiaVITAS Healthcare
This webinar helps physicians conduct a systematic evaluation for behavioral changes
in persons with dementia. It offers approaches for developing a comprehensive care plan for
disruptive behaviors. These methods incorporate caregiver education and non-pharmacologic
interventions followed by pharmacologic management.
Pain Management in the Context of an Opioid Epidemic: Considerations and Tool...VITAS Healthcare
This presentation details how to conduct a comprehensive pain assessment, considerations when prescribing analgesics, and when opioids may be appropriate.
Understanding Pain Management and Daily Practice ManagementVITAS Healthcare
Supported by evidence-based data, this webinar helped physicians and healthcare professionals gain greater understanding of the multifaceted applications of pain management in the context of palliative hospice care.
The goal of this webinar was to educate healthcare professionals about advance directives and advance care planning,
including the types and purposes of legal documents that govern patients’ decisions and
preferences.
The goal of this webinar was to help healthcare professionals improve care coordination for patients with advanced illness and to reduce hospital readmissions and length of stay (LOS).
The goal of this webinar was to educate physicians and healthcare professionals about hospice eligibility and the benefits of hospice for patients with advanced cardiac disease (ACD).
The goal of this webinar was to educate healthcare professionals about the differences between palliative and curative care while exploring the history and philosophy of the hospice movement.
The goal of this webinar was to equip healthcare professionals with an understanding of military veterans’ unique medical, emotional, and spiritual needs as they near the end of life.
The goal of this webinar was to equip healthcare professionals with an understanding of military veterans’ unique medical, emotional, and spiritual needs as they near the end of life.
Advanced Lung Disease: Prognostication and Role of HospiceVITAS Healthcare
The goal of this webinar was to educate physicians and healthcare professionals about the medical management of advanced lung disease (ALD), the value of advance care planning (ACP) and the benefits of hospice for end-of-life patients.
The clinical case study of a patient with advanced COPD who has multiple comorbid conditions and develops sepsis provideD the backdrop for two potential clinical pathways—sepsis and post-sepsis syndrome.
Understanding Pain Management and Daily Practice ManagementVITAS Healthcare
Supported by evidence-based data, this webinar helped physicians and healthcare professionals gain greater understanding of the multifaceted applications of pain management in the context of palliative hospice care.
The goal of this webinar was to help hospice and healthcare professionals understand the ethics and application of artificial nutrition and hydration (ANH) for patients near the end of life.
Key tools can quickly facilitate goals-of-care (GOC) conversations, advance care planning, and hospice referrals amid the ED’s time constraints and high-acuity challenges.
ABDOMINAL TRAUMA in pediatrics part one.drhasanrajab
Abdominal trauma in pediatrics refers to injuries or damage to the abdominal organs in children. It can occur due to various causes such as falls, motor vehicle accidents, sports-related injuries, and physical abuse. Children are more vulnerable to abdominal trauma due to their unique anatomical and physiological characteristics. Signs and symptoms include abdominal pain, tenderness, distension, vomiting, and signs of shock. Diagnosis involves physical examination, imaging studies, and laboratory tests. Management depends on the severity and may involve conservative treatment or surgical intervention. Prevention is crucial in reducing the incidence of abdominal trauma in children.
Integrating Ayurveda into Parkinson’s Management: A Holistic ApproachAyurveda ForAll
Explore the benefits of combining Ayurveda with conventional Parkinson's treatments. Learn how a holistic approach can manage symptoms, enhance well-being, and balance body energies. Discover the steps to safely integrate Ayurvedic practices into your Parkinson’s care plan, including expert guidance on diet, herbal remedies, and lifestyle modifications.
NVBDCP.pptx Nation vector borne disease control programSapna Thakur
NVBDCP was launched in 2003-2004 . Vector-Borne Disease: Disease that results from an infection transmitted to humans and other animals by blood-feeding arthropods, such as mosquitoes, ticks, and fleas. Examples of vector-borne diseases include Dengue fever, West Nile Virus, Lyme disease, and malaria.
Muktapishti is a traditional Ayurvedic preparation made from Shoditha Mukta (Purified Pearl), is believed to help regulate thyroid function and reduce symptoms of hyperthyroidism due to its cooling and balancing properties. Clinical evidence on its efficacy remains limited, necessitating further research to validate its therapeutic benefits.
Rasamanikya is a excellent preparation in the field of Rasashastra, it is used in various Kushtha Roga, Shwasa, Vicharchika, Bhagandara, Vatarakta, and Phiranga Roga. In this article Preparation& Comparative analytical profile for both Formulationon i.e Rasamanikya prepared by Kushmanda swarasa & Churnodhaka Shodita Haratala. The study aims to provide insights into the comparative efficacy and analytical aspects of these formulations for enhanced therapeutic outcomes.
Here is the updated list of Top Best Ayurvedic medicine for Gas and Indigestion and those are Gas-O-Go Syp for Dyspepsia | Lavizyme Syrup for Acidity | Yumzyme Hepatoprotective Capsules etc
Recomendações da OMS sobre cuidados maternos e neonatais para uma experiência pós-natal positiva.
Em consonância com os ODS – Objetivos do Desenvolvimento Sustentável e a Estratégia Global para a Saúde das Mulheres, Crianças e Adolescentes, e aplicando uma abordagem baseada nos direitos humanos, os esforços de cuidados pós-natais devem expandir-se para além da cobertura e da simples sobrevivência, de modo a incluir cuidados de qualidade.
Estas diretrizes visam melhorar a qualidade dos cuidados pós-natais essenciais e de rotina prestados às mulheres e aos recém-nascidos, com o objetivo final de melhorar a saúde e o bem-estar materno e neonatal.
Uma “experiência pós-natal positiva” é um resultado importante para todas as mulheres que dão à luz e para os seus recém-nascidos, estabelecendo as bases para a melhoria da saúde e do bem-estar a curto e longo prazo. Uma experiência pós-natal positiva é definida como aquela em que as mulheres, pessoas que gestam, os recém-nascidos, os casais, os pais, os cuidadores e as famílias recebem informação consistente, garantia e apoio de profissionais de saúde motivados; e onde um sistema de saúde flexível e com recursos reconheça as necessidades das mulheres e dos bebês e respeite o seu contexto cultural.
Estas diretrizes consolidadas apresentam algumas recomendações novas e já bem fundamentadas sobre cuidados pós-natais de rotina para mulheres e neonatos que recebem cuidados no pós-parto em unidades de saúde ou na comunidade, independentemente dos recursos disponíveis.
É fornecido um conjunto abrangente de recomendações para cuidados durante o período puerperal, com ênfase nos cuidados essenciais que todas as mulheres e recém-nascidos devem receber, e com a devida atenção à qualidade dos cuidados; isto é, a entrega e a experiência do cuidado recebido. Estas diretrizes atualizam e ampliam as recomendações da OMS de 2014 sobre cuidados pós-natais da mãe e do recém-nascido e complementam as atuais diretrizes da OMS sobre a gestão de complicações pós-natais.
O estabelecimento da amamentação e o manejo das principais intercorrências é contemplada.
Recomendamos muito.
Vamos discutir essas recomendações no nosso curso de pós-graduação em Aleitamento no Instituto Ciclos.
Esta publicação só está disponível em inglês até o momento.
Prof. Marcus Renato de Carvalho
www.agostodourado.com
Knee anatomy and clinical tests 2024.pdfvimalpl1234
This includes all relevant anatomy and clinical tests compiled from standard textbooks, Campbell,netter etc..It is comprehensive and best suited for orthopaedicians and orthopaedic residents.
Title: Sense of Smell
Presenter: Dr. Faiza, Assistant Professor of Physiology
Qualifications:
MBBS (Best Graduate, AIMC Lahore)
FCPS Physiology
ICMT, CHPE, DHPE (STMU)
MPH (GC University, Faisalabad)
MBA (Virtual University of Pakistan)
Learning Objectives:
Describe the primary categories of smells and the concept of odor blindness.
Explain the structure and location of the olfactory membrane and mucosa, including the types and roles of cells involved in olfaction.
Describe the pathway and mechanisms of olfactory signal transmission from the olfactory receptors to the brain.
Illustrate the biochemical cascade triggered by odorant binding to olfactory receptors, including the role of G-proteins and second messengers in generating an action potential.
Identify different types of olfactory disorders such as anosmia, hyposmia, hyperosmia, and dysosmia, including their potential causes.
Key Topics:
Olfactory Genes:
3% of the human genome accounts for olfactory genes.
400 genes for odorant receptors.
Olfactory Membrane:
Located in the superior part of the nasal cavity.
Medially: Folds downward along the superior septum.
Laterally: Folds over the superior turbinate and upper surface of the middle turbinate.
Total surface area: 5-10 square centimeters.
Olfactory Mucosa:
Olfactory Cells: Bipolar nerve cells derived from the CNS (100 million), with 4-25 olfactory cilia per cell.
Sustentacular Cells: Produce mucus and maintain ionic and molecular environment.
Basal Cells: Replace worn-out olfactory cells with an average lifespan of 1-2 months.
Bowman’s Gland: Secretes mucus.
Stimulation of Olfactory Cells:
Odorant dissolves in mucus and attaches to receptors on olfactory cilia.
Involves a cascade effect through G-proteins and second messengers, leading to depolarization and action potential generation in the olfactory nerve.
Quality of a Good Odorant:
Small (3-20 Carbon atoms), volatile, water-soluble, and lipid-soluble.
Facilitated by odorant-binding proteins in mucus.
Membrane Potential and Action Potential:
Resting membrane potential: -55mV.
Action potential frequency in the olfactory nerve increases with odorant strength.
Adaptation Towards the Sense of Smell:
Rapid adaptation within the first second, with further slow adaptation.
Psychological adaptation greater than receptor adaptation, involving feedback inhibition from the central nervous system.
Primary Sensations of Smell:
Camphoraceous, Musky, Floral, Pepperminty, Ethereal, Pungent, Putrid.
Odor Detection Threshold:
Examples: Hydrogen sulfide (0.0005 ppm), Methyl-mercaptan (0.002 ppm).
Some toxic substances are odorless at lethal concentrations.
Characteristics of Smell:
Odor blindness for single substances due to lack of appropriate receptor protein.
Behavioral and emotional influences of smell.
Transmission of Olfactory Signals:
From olfactory cells to glomeruli in the olfactory bulb, involving lateral inhibition.
Primitive, less old, and new olfactory systems with different path
Introduction to Medical Ethics: Informed Consent & Advance Directives | VITAS Healthcare
1. Introduction to Medical Ethics
Informed Consent & Advance Directives
Developed by:
Barry M. Kinzbrunner, MD
Chief Medical Officer
VITAS Healthcare
Miami, FL
2. Goals
• To provide an overview of medical ethics
• To demonstrate how informed consent and advance directives serve
to allow health care decision making to be carried out in an ethical
fashion
3. Objectives
At the end of this presentation, the participant will be able to:
• Define medical ethics and its various principles
• Articulate the legal and ethical bases for informed consent
• Comprehend the legal and ethical bases for advance directives
• Demonstrate an understanding of the legal and ethical bases for
surrogate decision making
4. Medical Ethics
Medical ethics is the discipline of evaluating the merits, risks
and social concerns of activities in the field of medicine. Many
methods have been suggested to help evaluate the ethics of a
situation. These methods tend to introduce principles that
should be thought about in the process of making a decision.
http://www.wordiq.com/definition/Medical_ethics
5. Medical Ethical Values
• Autonomy
• Beneficence
• Non-maleficence
• Justice
- Social
- Distributive
6. Medical Ethical Values (Cont.)
• Autonomy
– The right of an individual to choose among various options of treatment
free of coercion
• Beneficence
– The obligation to provide therapy with intent of doing good for the
individual
• Non-maleficence
– Providing therapy without intent of causing harm. Since all interventions
have risks, the basis of this is to minimize the potential risks and
avoidable harms
7. Justice
• Social Justice
– Provision of therapies realizing that all resources in a society are
limited and not everything is available to everyone
• Distributive Justice
– Interventions are provided as equitably as possible
Medical Ethical Values (Cont.)
8. Principle of Double Effect
Attributed to St. Thomas Aquinas
• The act itself must be morally good or at least indifferent
• While there is a risk of the bad effect occurring, it is not
guaranteed to occur
• The good effect must come from the intervention, NOT from the
bad effect
• The good effect must be sufficiently desirable as to outweigh the
potential risk of the bad effect
Connell, FJ: “Double Effect, Principle of,” New Catholic Encyclopedia (Vol 4),
New York: McGraw-Hill, 1967, pp. 1020–2.
9. Withdrawing vs. Withholding Care
Withdrawing care
• Decision to remove an active intervention that is already
being provided to a patient
Withholding care
• Decision not to provide an active intervention to a patient
10. Withdrawing vs. Withholding Care (Cont.)
• In medical ethics today, there is no distinction made between withdrawing
and withholding care in reference to the patient with a terminal illness
• In the past, withholding was considered ethically superior to withdrawing
• Most recently, ethicists are espousing the position that withdrawing is
ethically superior to withholding, since a trial of treatment gives information
on its efficacy for the particular patient
11. A Hypothetical Case
Mrs. H
• 83-year-old Hispanic female
• Alert and oriented
• Terminal advanced COPD
• Family agrees to hospice care for patient provided:
– Patient not be told she is dying and on hospice
– Hospice staff remove name badges when visiting
– Hospice staff not tell patient why they have come to see her
Question:
• Does this violate the concept of informed consent?
12. A Hypothetical Case (Cont.)
During the initial visit by hospice staff:
• Patient is given hospice papers and signs them without reading them
• Patient is told by family to sign papers without reading them,
which she does
• Family member signs papers for patient without the patient even knowing
this was done
Question:
• Which of these scenarios, if any, violate the concept of informed consent?
13. Informed Consent
• Implementation of the ethical principle of autonomy
• Accords individuals the option of accepting or refusing medical treatment
• Informed consent doctrine confers two separate and connected rights:
– The right to receive adequate information to make an intelligent choice about
whether to accept or refuse a proposed treatment
– The right to refuse medical treatment for any reason, including quality of life
based on the specific individual’s judgmenta
• To be considered legally valid, refusal of treatment must be based upon an
informed decision of the patient, after s/he has received all information material to
making such a decision
14. Informed Consent (Cont.)
Origins of the Informed Consent Doctrine
• Right to be free from nonconsensual interference with one’s person
• Morally wrong to force one to act against his or her will
• Serves six functions
– Protect individual autonomy
– Protect patient status as human being
– Encourage physicians to carefully consider decisions
– Avoid fraud or duress
– Foster rational decision-making by patients
– Increase public involvement in medicine
15. Informed Consent (Cont.)
Legal framework for Informed Consent
• Historically was based on “Battery Theory”
– Unwanted touching
– Not operative today in almost all jurisdictions
– May be operative if there is no consent at all (i.e. operating on the wrong knee)
• Negligence: Operative in virtually all jurisdictions
– Prima facie case based on:
• Duty to disclose information
• Failure to disclose (unless statutory exception met)
• If information had been disclosed, patient would not have consented to procedure
Injury and damages
16. Informed Consent (Cont.)
Duty to disclose standards
• Professional standard
– Physician has disclosed information that a reasonable or prudent doctor
would have disclosed under similar circumstances
• Patient-need standard
– What a reasonable person would want to know; information that would
be material to a patient
• States with statutes usually adopt the “Professional Standard”
• Case law is split 50-50 on which standard to follow
17. Informed Consent (Cont.)
What must be disclosed
• The condition or diagnosis
• Nature and purpose of treatment
• Risk of treatment
• Treatment alternatives which includes:
– Things that are already known
– Things that everybody should know
– Option of no treatment
– All alternatives do not have to be disclosed
18. Informed Consent (Cont.)
Exceptions to the General Rule of Disclosure
• Patient is unconscious or otherwise incapable of consenting
(emergency treatment)
– Harm from failure to treat is imminent
– Outweighs any harm threatened by proposed treatment
• Therapeutic privilege
– Risk disclosure poses such a threat of detriment to a patient as to become
unfeasible or contraindicated from a medical point of view
– Does not accept the paternalistic notion that the physician may remain silent
because divulgence might prompt the patient to forego therapy the doctor
believes the patient must receive
19. Informed Consent (Cont.)
Causation issues
• Disclosure of information would have caused the patient to refuse to
undergo the treatment
– Subjective: The patient states that if s/he had known, s/he would have
refused the intervention. This standard is impossible to prove because
anyone could say they would have refused if they had known
something they claim was not disclosed
– Objective: One must prove that a reasonable patient would not have
agreed to the intervention if s/he had known
• Most states have adopted the objective standard
20. Informed Consent (Cont.)
Hospice and Informed Consent
• Federal – Hospice §COP 418.62 Condition of Participation: Informed Consent
“A hospice must demonstrate respect for an individual’s rights by ensuring that an
informed consent form that specifies the type of care and services that may be
provided as hospice care during the course of the illness has been obtained for
every individual, either from the individual or representative as defined in §418.3”
• Representative
An individual who has been authorized under state law to terminate medical care or
elect or revoke the election of hospice care on behalf of a terminally ill individual
who is mentally or physically incapacitated
21. Informed Consent (Cont.)
Hospice and Informed Consent
General Provisions for Valid Medical Consent
Florida State Law §766.103 Fla. Stat.
• Consistent with accepted medical practice standards among similar trained and
experienced medical professionals
• Based on information provided by the medical profession, a reasonable person
would have a general understanding of the procedure, medically acceptable
alternatives, substantial risks and hazards.
• Based on all surrounding circumstances, a reasonable person would have
undergone the treatment
• The consent is validly signed by the patient (if mentally and physically competent
to give consent) or by another authorized person
22. A Hypothetical Case
Mrs. H
• 83-year-old Hispanic female
• Alert and oriented
• Terminal advanced COPD
• Family agrees to hospice care for patient provided:
– Patient not be told she is dying and on hospice
– Hospice staff remove name badges when visiting
– Hospice staff not tell patient why they have come to see her
Question:
• Does this violate the concept of informed consent?
23. A Hypothetical Case (Cont.)
During the initial visit by hospice staff:
• Patient is given hospice papers and signs them without reading them
• Patient is told by family to sign papers without reading them, which she does
• Family member signs papers for patient without the patient even knowing
this was done
Question:
• Which of these scenarios, if any, violate the concept of informed consent?
24. A Hypothetical Case (Cont.)
Mrs. H
• 83-year-old Hispanic female
• Unresponsive
• Terminal dementia
• Patient is referred for hospice care
Questions:
• Is this patient medically competent to make a decision?
• Who gets to decide and provide “informed consent” for the patient?
• Is the decision consistent with what the patient would have wanted if she was
able to make her own decisions?
• How could we know?
25. Informed Consent (Cont.)
When can a “representative” be substituted for a patient in the decision
making process?
Determining a patient’s competence
• Addressed by state law
• In Florida it is the primary responsibility of the attending physician
• A second physician evaluation may be obtained if the attending is unsure
• If there is a dispute, a judicial hearing may be scheduled although this is rarely
if ever required
• If a determination is made—either in the clinical setting or judicially—that a patient lacks
decision-making capacity, the patient cannot make decisions about his or her medical
treatment
26. Case of Karen Ann Quinlan
Early to mid 1970s
• The patient, Karen Ann Quinlan, a woman in her early 20s, suffered irreversible anoxic
brain damage resulting in a state of permanent unconsciousness now known as
permanent (or persistent) vegetative state (PVS)
• Her life was sustained for just over a year on a ventilator, with artificial nutrition and
hydration and other forms of medical and nursing care
• Her family came to the conclusion that being kept alive artificially was not what she
herself would have wanted done
• Physicians refused to honor the wishes of the family
27. Case of Karen Ann Quinlan (Cont.)
• Judicial relief was sought
• Landmark 1976 decision of the NJ Supreme Court
– As her legal guardian, Mr. Quinlan had the authority to have the ventilator withdrawn
– The legal basis for this decision was Ms. Quinlan’s constitutional right to privacy
– The fact that Ms. Quinlan was unconscious and unable to decide for herself did not mean that
she forfeited these rights, the New Jersey Supreme Court held
– It only meant that these rights would have to be exercised by someone else in this case her
father
• This was the first time that an individual’s right to refuse life-sustaining medical treatment was
affirmed by an American appellate-level court
• Also supports concept of “representative” decision making when a patient is medically
incompetent
28. Case of Nancy Cruzan
Mid-1980s
• A young woman named Nancy Beth Cruzan fell into a PVS after a devastating anoxic brain
injury
• The family requested that artificial nutritional support and hydration be discontinued
• The Missouri Supreme Court ruled
– Guardians did not have the authority to terminate life-sustaining medical treatment on the
basis of indirect or hypothetical reasoning about what the patient would have wanted
– Surrogate treatment decisions must be based on clear and convincing evidence of what
the patient would have wanted
– If there is no clear and convincing evidence of a patient’s wishes, the guardian is obligated
to act in the patient’s best interests, and for the Missouri Supreme Court, this meant the
continuation of life and of medical life support
29. Case of Nancy Cruzan (Cont.)
• The Cruzan family appealed to the United States Supreme Court
• The Court ruled that U.S. Constitution confers a right (“liberty interest”) to refuse
medical treatment, even life-prolonging medical treatment (including artificial
nutrition and hydration)
• However, it also held that states did not violate this constitutional right by requiring
clear and convincing evidence of the patient’s wishes when the patient lacked
decision-making capacity
• The Cruzan case marked the end of a period of legal consolidation because this
was the first time that the U.S. Supreme Court had addressed end-of-life medical
decision making in the light of the Constitution and established a right to refuse
medical treatment
30. Advance Directives
The requirement of the Missouri Supreme Court,
upheld by the US Supreme Court, that allowed
the need to establish “clear and convincing
evidence” of the patient’s wishes when the
patient lacked decision-making capacity led to
the development of advance directives and the
state and federal laws defining them
31. Advance Directives
• Advance directives are documents that tell your physician and
other health care providers what kind of care you desire or do not
desire to receive if you become unable to make medical decisions
• Advance directives can be designed to delineate what care you do
or do not wish based on the severity of illness and/or the likelihood
of recovery
32. Advance Directives (Cont.)
Types of Advance Directives
• Living will
– Instructions by the patient on interventions s/he desires or does not desire
should s/he be in a terminal condition or a PVS or other irreversible neurological
condition (in some states) and cannot express his or her wishes
• Durable Power of Attorney for Health Care
– Designates who will make health care decisions if one becomes
unconsciousness or otherwise incompetent to make medical decisions
(also known as a Health Care Proxy)
• Combination of both
• Each state has its own set of laws governing advance directives
33. A Hypothetical Case (Cont.)
Mrs. H:
• 83-year-old Hispanic female
• Unresponsive
• Terminal Dementia
• Patient is referred for hospice care
Questions:
• Is this patient medically competent to make a decision?
• Who gets to decide and provide “informed consent” for the patient?
• Is the decision consistent with what the patient would have wanted if she was
able to make her own decisions?
• How could we know?
34. Advance Directives
What happens if there is no advance
directive document and a patient is
incompetent and unable to make a medical
decision?
Who gets to decide, and how is the
decision made?
35. Case of Terri Schiavo
1990
• Terri Schiavo, a 26-year-old female, suddenly collapsed in her apartment and
suffered a cardiac arrest
• Despite being resuscitated successfully from the point of view of
cardiopulmonary function, she suffered significant anoxic brain damage
• Due to an inability to swallow, a percutaneous gastrostomy (PEG) feeding tube
was placed
• Lack of a neurologic recovery led to a diagnosis of persistent
vegetative state
• As Mrs. Schiavo did not have an advance directive (either a living will or durable
power of attorney) her husband was granted legal guardianship, without
objection from her parents
36. Case of Terri Schiavo (Cont.)
Mid-1990s to about 2000
• Attempts at aggressive rehabilitation were unsuccessful and it became
clear to the husband that his wife’s condition was permanent and would
not improve
• He also believed that she would not have wanted to live in a persistent
vegetative state
• On that basis, Mr. Schiavo decided that he wanted his wife’s feeding tube
removed
• Mr. and Mrs. Schindler, the parents of Terri Schiavo, disagreed with her
husband’s decision
37. Case of Terri Schiavo (Cont.)
• Because consensus could not be reached, Mr. Schiavo petitioned the Florida
courts to appoint a health care “proxy” in order to make an independent decision
on his wife’s medical condition and whether or not it would be reasonable to
discontinue feeding her through the PEG tube
• The court proxy decided that the patient’s condition was irreversible
• The husband demonstrated to the satisfaction of the court that his
wife would not have wanted to be kept alive in this state. The court therefore
agreed with the husband’s position that the feeding tube
could be removed
• The patient was admitted to an inpatient hospice facility for this purpose
38. Case of Terri Schiavo (Cont.)
• However, the parents appealed this decision at every level within the
Florida court system, leading to the feeding tube removal being
postponed numerous times so the case could be adjudicated. In all
instances, the initial decision was upheld
• This led, in 2003, to the removal of Terri Schiavo’s feeding tube
• The parents appealed to the Florida legislature, and a law was passed
and signed by the state governor granting him the authority to order
Terri’s feeding tube replaced, which was done
39. Case of Terri Schiavo (Cont.)
• Over the next 15 months, continued appeals and stays were granted at the
state level, leading to the finding by the Florida Supreme Court that the law
allowing the feeding tube to be replaced was unconstitutional
• The parents attempted to appeal to the US Supreme Court, and special
legislation was passed by the US Congress and signed by the President of
the United States to allow the US Supreme Court to hear the case
• However, the US Supreme Court refused to hear the case and the original
court, standing by its prior decision, ordered the feeding tube removed on
March 18, 2005
• Terri Schiavo passed away on March 31, 2005
40. What was the central issue in the Terri Schiavo case?
• Right to live vs. right to die
or
• Who gets to decide when there is no advance directive
Case of Terri Schiavo (Cont.)
41. Health Care Surrogate
• Surrogate: As referenced in U.S. law, a person who makes decisions foran other
• In the context of health care it is the term used to refer to a person who has the legal
authority to make decisions for an incompetent patient
• Surrogates may be determined in one of several ways:
– Patient-designated surrogate: through a DPOA type of advance directive
– Judicially-designated surrogate: appointed by a judge and known as a “Court-
Appointed Guardian”
– Statutorily-designated surrogates: lists family members and other persons, in
order of priority, who are authorized to make medical decisions for an incompetent
patient who has not designated a surrogate, and for whom there is no court-
appointed guardian
42. Health Care Surrogate (Cont.)
Florida Surrogate Statute Order of Priority
• Judicially appointed guardian of the patient if already named
– Appointment not required if not named
• The patient’s spouse
• An adult child of the patient
– If the patient has more than one adult child a majority of the adult children who are
reasonably available for consultation
• A parent of the patient
• The adult sibling of the patient
– If the patient has more than one sibling, a majority of the adult siblings who are
reasonably available for consultation
43. Health Care Surrogate (Cont.)
• An adult relative of the patient
– who has exhibited special care and concern for the patient
– who has maintained regular contact with
the patient
– who is familiar with the patient’s activities, health and religious
or moral beliefs
• A close friend of the patient
44. Health Care Surrogate (Cont.)
• A clinical social worker licensed pursuant to chapter 491, or who is a graduate of a
court-approved guardianship program
– Chosen by the provider’s bioethics committee (or another committee if the
provider does not have one) and not employed by the provider
– The proxy will be notified that, upon request, the provider shall make available a
second physician, not involved in the patient’s care to assist the proxy in
evaluating treatment
– Decisions to withhold or withdraw life-prolonging procedures will be reviewed by
the facility’s bioethics committee
– Documentation of efforts to locate proxies from prior classes must be recorded
in the patient record
45. Health Care Surrogate (Cont.)
Standards for Surrogate Decision Making
• Informed consent must be obtained from the patient’s surrogate
• Since the goal of informed consent is to protect patient autonomy, the
surrogate must determine what the patient’s wishes are about treatment,
not what treatment is best for the patient in the surrogate’s opinion
• What is the standard as to the degree of certainty the surrogate should
have regarding the decisions made? This differs from state to state
46. Health Care Surrogate (Cont.)
Standards for Surrogate Decision Making
• Subjective standard
– Also known as “Clear and Convincing Evidence” standard
– Surrogate should be virtually certain that this is what the person
would have wanted
– Surrogate is acting as a conduit for expressing those wishes
– Written document preferred
– Oral evidence may be acceptable
47. Health Care Surrogate (Cont.)
Standards for Surrogate Decision Making
• Substituted Judgment Standard
– Pennsylvania Supreme Court ruled that simply because a surrogate was a
patient’s mother she would know what he wanted even though he had never
expressed any views on the subject
• Best Interest Standard
– In the absence of any clear knowledge or any knowledge of what the patient would
have wanted, the surrogate is empowered to make a decision that the surrogate,
in good faith, believes is in the best interests of the patient rather than one that
effectuates the patient’s own wishes
48. Case of Terri Schiavo (Cont.)
What was the central issue in the Terri Schiavo case?
• Right to live vs. right to die
or
• Who gets to decide when there is no advance directive
49. A Hypothetical Case (Cont.)
Mrs. H
• 83-year-old Hispanic female
• Unresponsive
• Terminal dementia
• Patient is referred for hospice care
Question:
• Who gets to decide and provide “informed consent” for the patient?
• Is the decision consistent with what the patient would have wanted if she was
able to make her own decisions?
• How could we know?