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Who Are Blossomers? Children With Autism Who
Blossomed Through ABA Parent Training
Ruby Jamil, Marcia N. Gragg, & Shawna A. Scott.
The University of Windsor, The Summit Centre for Preschool Children with Autism
Introduction
• Autism is a pervasive developmental disorder that affects
social-communication skills, narrow interests, and repetitive
behaviours (APA, 2013).
• Applied behaviour analysis (ABA) is the first-line treatment
for children with Autism Spectrum Disorders (ASDs).
• Gotham et al. (2012) & Venker et al. (2013) identified four
developmental trajectories based on changes in autism
symptoms over time (improving, worsening, persistent high,
and persistent moderate).
• Fountain et al. (2012) identified six developmental trajectories
based on staff ratings (high functioning, bloomers, medium-
high functioning, medium functioning, low-medium
functioning, and low functioning).
• There remains a need for in-depth description of children
who bloom or improve (Fountain et al., 2012; Gotham et al.,
2012).
Objectives of Present Study:
1. To identify developmental pathways of preschool children
with autism who completed a 3- month ABA parent training
program
2. To identify “Blossomers,” i.e., children who made rapid
progress in intellectual and adaptive skills in the program
3. To provide a rich description of the Blossomers during the
program and at follow-up
This study used archival data for 37 child participants. Children
who “blossomed” during parent training, and their parents
participated in the present follow up study.
Method
Archival Participants: N = 37
• Children, 81% male, mean age 3 years, 5 months.
• Parents, 89% mothers, 75% college/post graduate
education.
• Age; 50% were 35-44, 44% were 18-34, & 5.5% were
45-54.
Follow up Participants: n = 4
• Children, 75% male, mean age 7 years, 8 months.
• Parents, 50% mothers, 100% college/post graduate
education.
• Age; 75% were 35-44, 25% were 45-54.
Senior Staff: N = 2
• 100% female between ages 35-44 with college/post graduate
education
Procedure
• Archival IQ and adaptive behaviour scores were used to
identify developmental pathways.
• Blossomers = those who made most progress in IQ and
adaptive behaviour scores over a 3-month parent training
program.
• Senior staff at the Summit Centre were interviewed about
which children they believe “Blossomed.”
• Blossomer children and parents attended a follow up session
• Interviews and questionnaires for parents.
• Updated IQ and adaptive behaviour assessment for
children.
Results
• Nine developmental pathways emerged based on intellectual
and adaptive behaviour scores (see Figure 1). A cross
tabulation was used.
• 38% were in the Stable pathway.
• The Blossomer group was defined as the 13.5% in the
three pathways with the most progress in IQ, Adaptive
Behaviour, or both (outlined in red; see Figure 1).
• At follow-up, four Blossomers were in the average IQ
range and three were in the average adaptive behaviour
range (see Figure 2).
Case Study 1: Andy, 7 year follow-up
• an affectionate 10 year old boy who loves to learn science
and languages.
• His peers and teachers are fond of him, and he earns A’s
and B’s in most subjects with little support in the
classroom.
• His parents are patient and always willing to advocate on
his behalf.
• Andy received speech and language therapy as a toddler.
• “He actually did so well in the Unity program that he
advanced too far for us to get into [gov’t funded ABA].”
“ABA was very effective for him.” - Parent
• The Chinese letter symbolizes his love of languages. Andy
knows the alphabet in 20 languages and gets up early to
learn languages on Youtube.
Case Study 2: Ben 3 year follow-up
• an easy-going 7-year old boy who enjoys school and
receives little support.
• “He’s the best reader and best at math in his class.” “He’s
constantly improving.” - Parent
• Ben has a close bond with his parents, and his rivalry and
socialization with his siblings contributes to his progress.
• “I’m the primary influence in his life as far as advancing
his autism to a more typical behaviour” - Parent
• At follow up, Ben hesitated to guess on tests for fear of
being wrong. He loved earning “guessing jewel” stickers,
which enticed him to guess.
Case Study 4: Dan 2 year follow up
• an outgoing 5 year old who is doing well in
kindergarten.
• His parent attributes his success to the use of
ABA.
• “Being social has really helped his progress
especially now that he’s in school…he’s more
eager to learn.” – Parent
• Engaging with his sibling “gives him the
opportunity to be more social and show his
brother what to do and how to play”.
• Dan’s pineapple represents his love of being
silly; he often answered “pineapple” to questions
like “what is your name?”
Case Study 3: Cindy 5 year follow up
• an inquisitive 7 year old who does well in school
with minimal support.
• Her family is dedicated, loving, and continued
to do formal ABA programs with her after
Unity.
• “I quit my job, I was with her full time--
completely dedicated to doing whatever had to
be done for her” -Parent
• “When she first came in…I thought she was one
of the lowest kids we’d ever seen.” - Staff
• “She most closely lies with the high functioning
group [now].” - Parent
• Cindy’s beaker represents her love of science.
She watches Nova on TV, and spontaneously
drew a picture of plate tectonics as a gift for her
parent.
0
20
40
60
80
100
120
Pre-Unity Post-Unity Follow-Up
StandardScores
Figure 2. IQ and adaptive behaviour from pre-ABA
training to follow-up.
Andy IQ Andy Adaptive
Ben IQ Ben Adaptive
Cindy IQ Cindy Adaptive
Dan IQ Dan Adaptive
• Nine developmental pathways were identified. Five
children (13.5%) were identified as Blossomers. All
four Blossomers participating in the study were in the
average IQ range, and three were in the average
adaptive behaviour range.
• Previous studies identified four to six developmental
pathways, 7-14% bloomers/ improvers, and a
regression pathway. (Fountain et al., 2012; Gotham et
al., 2012; Venker et al., 2012). Previous studies used
changes in staff rating scales and ADOS scores over
time to identify pathways (Fountain et al., 2012;
Gotham et al., 2012; Venker et al., 2012). The
present study identified 9 pathways and 13.5%
Blossomers, using changes in IQ and adaptive
behaviour scores over 3 months to identify
developmental pathways. The discrepancy between
results is likely a result of the small sample size,
differing statistical analyses, use of different variables
to identify pathways, and
a highly selected parent
sample in this study.
• Case studies suggest that
a subset of children with
autism benefitted greatly
from early intensive
behaviour intervention
with lasting substantial
improvement.
Discussion
Thank you to:
 the parents and children who participated
♥ Research Assistant Gorana Miljevic
 Summit Centre program secretary Jackie Ferriss
♥ Parent advisors
Undergraduate Thesis Conference 2014
Questions?
jamil2@uwindsor.ca

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IMFAR 2014 Jamil Blossomers

  • 1. Who Are Blossomers? Children With Autism Who Blossomed Through ABA Parent Training Ruby Jamil, Marcia N. Gragg, & Shawna A. Scott. The University of Windsor, The Summit Centre for Preschool Children with Autism Introduction • Autism is a pervasive developmental disorder that affects social-communication skills, narrow interests, and repetitive behaviours (APA, 2013). • Applied behaviour analysis (ABA) is the first-line treatment for children with Autism Spectrum Disorders (ASDs). • Gotham et al. (2012) & Venker et al. (2013) identified four developmental trajectories based on changes in autism symptoms over time (improving, worsening, persistent high, and persistent moderate). • Fountain et al. (2012) identified six developmental trajectories based on staff ratings (high functioning, bloomers, medium- high functioning, medium functioning, low-medium functioning, and low functioning). • There remains a need for in-depth description of children who bloom or improve (Fountain et al., 2012; Gotham et al., 2012). Objectives of Present Study: 1. To identify developmental pathways of preschool children with autism who completed a 3- month ABA parent training program 2. To identify “Blossomers,” i.e., children who made rapid progress in intellectual and adaptive skills in the program 3. To provide a rich description of the Blossomers during the program and at follow-up This study used archival data for 37 child participants. Children who “blossomed” during parent training, and their parents participated in the present follow up study. Method Archival Participants: N = 37 • Children, 81% male, mean age 3 years, 5 months. • Parents, 89% mothers, 75% college/post graduate education. • Age; 50% were 35-44, 44% were 18-34, & 5.5% were 45-54. Follow up Participants: n = 4 • Children, 75% male, mean age 7 years, 8 months. • Parents, 50% mothers, 100% college/post graduate education. • Age; 75% were 35-44, 25% were 45-54. Senior Staff: N = 2 • 100% female between ages 35-44 with college/post graduate education Procedure • Archival IQ and adaptive behaviour scores were used to identify developmental pathways. • Blossomers = those who made most progress in IQ and adaptive behaviour scores over a 3-month parent training program. • Senior staff at the Summit Centre were interviewed about which children they believe “Blossomed.” • Blossomer children and parents attended a follow up session • Interviews and questionnaires for parents. • Updated IQ and adaptive behaviour assessment for children. Results • Nine developmental pathways emerged based on intellectual and adaptive behaviour scores (see Figure 1). A cross tabulation was used. • 38% were in the Stable pathway. • The Blossomer group was defined as the 13.5% in the three pathways with the most progress in IQ, Adaptive Behaviour, or both (outlined in red; see Figure 1). • At follow-up, four Blossomers were in the average IQ range and three were in the average adaptive behaviour range (see Figure 2). Case Study 1: Andy, 7 year follow-up • an affectionate 10 year old boy who loves to learn science and languages. • His peers and teachers are fond of him, and he earns A’s and B’s in most subjects with little support in the classroom. • His parents are patient and always willing to advocate on his behalf. • Andy received speech and language therapy as a toddler. • “He actually did so well in the Unity program that he advanced too far for us to get into [gov’t funded ABA].” “ABA was very effective for him.” - Parent • The Chinese letter symbolizes his love of languages. Andy knows the alphabet in 20 languages and gets up early to learn languages on Youtube. Case Study 2: Ben 3 year follow-up • an easy-going 7-year old boy who enjoys school and receives little support. • “He’s the best reader and best at math in his class.” “He’s constantly improving.” - Parent • Ben has a close bond with his parents, and his rivalry and socialization with his siblings contributes to his progress. • “I’m the primary influence in his life as far as advancing his autism to a more typical behaviour” - Parent • At follow up, Ben hesitated to guess on tests for fear of being wrong. He loved earning “guessing jewel” stickers, which enticed him to guess. Case Study 4: Dan 2 year follow up • an outgoing 5 year old who is doing well in kindergarten. • His parent attributes his success to the use of ABA. • “Being social has really helped his progress especially now that he’s in school…he’s more eager to learn.” – Parent • Engaging with his sibling “gives him the opportunity to be more social and show his brother what to do and how to play”. • Dan’s pineapple represents his love of being silly; he often answered “pineapple” to questions like “what is your name?” Case Study 3: Cindy 5 year follow up • an inquisitive 7 year old who does well in school with minimal support. • Her family is dedicated, loving, and continued to do formal ABA programs with her after Unity. • “I quit my job, I was with her full time-- completely dedicated to doing whatever had to be done for her” -Parent • “When she first came in…I thought she was one of the lowest kids we’d ever seen.” - Staff • “She most closely lies with the high functioning group [now].” - Parent • Cindy’s beaker represents her love of science. She watches Nova on TV, and spontaneously drew a picture of plate tectonics as a gift for her parent. 0 20 40 60 80 100 120 Pre-Unity Post-Unity Follow-Up StandardScores Figure 2. IQ and adaptive behaviour from pre-ABA training to follow-up. Andy IQ Andy Adaptive Ben IQ Ben Adaptive Cindy IQ Cindy Adaptive Dan IQ Dan Adaptive • Nine developmental pathways were identified. Five children (13.5%) were identified as Blossomers. All four Blossomers participating in the study were in the average IQ range, and three were in the average adaptive behaviour range. • Previous studies identified four to six developmental pathways, 7-14% bloomers/ improvers, and a regression pathway. (Fountain et al., 2012; Gotham et al., 2012; Venker et al., 2012). Previous studies used changes in staff rating scales and ADOS scores over time to identify pathways (Fountain et al., 2012; Gotham et al., 2012; Venker et al., 2012). The present study identified 9 pathways and 13.5% Blossomers, using changes in IQ and adaptive behaviour scores over 3 months to identify developmental pathways. The discrepancy between results is likely a result of the small sample size, differing statistical analyses, use of different variables to identify pathways, and a highly selected parent sample in this study. • Case studies suggest that a subset of children with autism benefitted greatly from early intensive behaviour intervention with lasting substantial improvement. Discussion Thank you to:  the parents and children who participated ♥ Research Assistant Gorana Miljevic  Summit Centre program secretary Jackie Ferriss ♥ Parent advisors Undergraduate Thesis Conference 2014 Questions? jamil2@uwindsor.ca