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The power of mobile phone
support groups in improving
mental health outcomes
Anna Kydd
26 January, 2016
The scale of the global
mental health problem
The scale of the global mental health problem
0
1.5
3
4.5
6
2010 2030
A recent publication by the World Economic Forum shows that
mental illness cost the global economy $2.5 trillion in 2010 and
is estimated to rise to at least $6.0 trillion by 2030.
The scale of the global mental health problem
‘No Health Without
Mental Health’
- World Health Organisation
Low-Cost Accessible Scalable
Mechanisms
The scale of the global mental health problem
Providing psychosocial support for those facing chronic,
stigmatised and often social isolating conditions
$
The power of
support groups
The power of support groups
The SHM Foundation’s extensive research with those living
with HIV in Mexico, UK and South Africa showed the need
that many had to be connected to others living with the same
condition to help them navigate living with their condition and
deal with the impact of social isolation
The power of support groups
There were however barriers that were preventing them from
taking part in a support group: stigma and discrimination,
finding the time to attend, finding a group that met their needs
and having the necessary funds to attend
The power of support groups
Accessible
Immediate
Tailored
Khuluma was set up by the SHM Foundation to address
these barriers to taking part in a support group by
developing a mobile phone support group model that is:
The power of support groups
Mental health and HIV
positive adolescents
Mental health and HIV positive adolescents
Aged 15-24 in South Africa are infected with
HIV (UNAIDS, 2010)
15%
Young Women
5%
Young Men
Mental health and HIV positive adolescents
‘HIV positive adolescents
are at increased risk of
mental health problems’
- Abdallah S. Daar, 2014
HIV positive adolescents require counselling
and other psychosocial services but in many
instances the services are overburdened
Mental health and HIV positive adolescents
Mental health and HIV positive adolescents
Hospitals and clinics that are keen to provide the
support are faced with the following challenges:
Finding an
appropriate space
Trained
staff onsite
How does
Khuluma work?
How does Khuluma work?
Khuluma provides facilitated and interactive support to closed
groups of 10-15 participants. Participants are able to communicate
amongst themselves and with a facilitator via mobile phone about
any topic that they deem important to discuss
How does Khuluma work?
The support groups run for  a period of three months, each day
after school hours, the facilitator will bring up a ‘topic of the day’ to
generate a conversation within the group
How does Khuluma work?
1. Adolescents are
recruited at
different clinics
2. They are then assigned a
support group with 10-15 other
members and a facilitator
3. The support groups
run for three months
and in that time
6. The adolescents meet in
person and find ways to
continue to stay in touch
4. Conversation topics such
as careers advice, sexual
health or medication
5. Guest speakers such as a
nutritionist, psychologist or
careers advisor join the talk.
3Months
What we’ve
found out
What we’ve found out
Our participants send a large volume of messages
a day, uptake has been very successful
averaging 6 text
messages a day
per person
Results from an evaluation conducted with our university partners
Yale School of Medicine and the University of Pretoria with 99 HIV
positive adolescents have found the following outcomes:
Increase
in social
support
What we’ve found out
Decrease in
feelings of
internalised stigma
Increased
levels of
knowledge
What next?
We would love to continue to see this model expand to provide the
mental health support that these HIV positive adolescents need but
also to apply this model to other global health conditions that
feature the following characteristics:
Social
isolation
What next?
Chronic health
condition
Affected by
stigma
The scale of the global mental health problem
‘We would love to see a time when those affected
by a health condition who are in need of regular
support will have access to their own tailored
support group via mobile phone so that they can
receive the support that they desperately need.’
Questions
So wat get AIDS
in our body?
I sometimes find it difficult to
drink medicine when I am angry
I feel like I dnt deserv to live
I feel more comfortable talking to
people in this group because we call
have HIV – I am not the only one
Guys I am HIV and eat
with my friends my frnd
going to be HIV too?
The hard part about living with hiv is the fact that us have it and u
r scared that some day people might hate u because u have hiv
and ur also scared that u might say it and then be ashamed.
When am with my frendz and
we are having so much fun I
cant disappoint them
They were making me vomit so I stopped but now I drink
them. I didn’t take them for two months..I was then
admitted into hospital … I am dirkg them with yogurt now.

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The power of mobile phone support groups in improving mental health outcomes

  • 1. The power of mobile phone support groups in improving mental health outcomes Anna Kydd 26 January, 2016
  • 2. The scale of the global mental health problem
  • 3. The scale of the global mental health problem 0 1.5 3 4.5 6 2010 2030 A recent publication by the World Economic Forum shows that mental illness cost the global economy $2.5 trillion in 2010 and is estimated to rise to at least $6.0 trillion by 2030.
  • 4. The scale of the global mental health problem ‘No Health Without Mental Health’ - World Health Organisation
  • 5. Low-Cost Accessible Scalable Mechanisms The scale of the global mental health problem Providing psychosocial support for those facing chronic, stigmatised and often social isolating conditions $
  • 7. The power of support groups The SHM Foundation’s extensive research with those living with HIV in Mexico, UK and South Africa showed the need that many had to be connected to others living with the same condition to help them navigate living with their condition and deal with the impact of social isolation
  • 8. The power of support groups There were however barriers that were preventing them from taking part in a support group: stigma and discrimination, finding the time to attend, finding a group that met their needs and having the necessary funds to attend
  • 9. The power of support groups Accessible Immediate Tailored Khuluma was set up by the SHM Foundation to address these barriers to taking part in a support group by developing a mobile phone support group model that is:
  • 10. The power of support groups
  • 11. Mental health and HIV positive adolescents
  • 12. Mental health and HIV positive adolescents Aged 15-24 in South Africa are infected with HIV (UNAIDS, 2010) 15% Young Women 5% Young Men
  • 13. Mental health and HIV positive adolescents ‘HIV positive adolescents are at increased risk of mental health problems’ - Abdallah S. Daar, 2014
  • 14. HIV positive adolescents require counselling and other psychosocial services but in many instances the services are overburdened Mental health and HIV positive adolescents
  • 15. Mental health and HIV positive adolescents Hospitals and clinics that are keen to provide the support are faced with the following challenges: Finding an appropriate space Trained staff onsite
  • 17. How does Khuluma work? Khuluma provides facilitated and interactive support to closed groups of 10-15 participants. Participants are able to communicate amongst themselves and with a facilitator via mobile phone about any topic that they deem important to discuss
  • 18. How does Khuluma work? The support groups run for  a period of three months, each day after school hours, the facilitator will bring up a ‘topic of the day’ to generate a conversation within the group
  • 19. How does Khuluma work? 1. Adolescents are recruited at different clinics 2. They are then assigned a support group with 10-15 other members and a facilitator 3. The support groups run for three months and in that time 6. The adolescents meet in person and find ways to continue to stay in touch 4. Conversation topics such as careers advice, sexual health or medication 5. Guest speakers such as a nutritionist, psychologist or careers advisor join the talk. 3Months
  • 21. What we’ve found out Our participants send a large volume of messages a day, uptake has been very successful averaging 6 text messages a day per person
  • 22. Results from an evaluation conducted with our university partners Yale School of Medicine and the University of Pretoria with 99 HIV positive adolescents have found the following outcomes: Increase in social support What we’ve found out Decrease in feelings of internalised stigma Increased levels of knowledge
  • 24. We would love to continue to see this model expand to provide the mental health support that these HIV positive adolescents need but also to apply this model to other global health conditions that feature the following characteristics: Social isolation What next? Chronic health condition Affected by stigma
  • 25. The scale of the global mental health problem ‘We would love to see a time when those affected by a health condition who are in need of regular support will have access to their own tailored support group via mobile phone so that they can receive the support that they desperately need.’
  • 26. Questions So wat get AIDS in our body? I sometimes find it difficult to drink medicine when I am angry I feel like I dnt deserv to live I feel more comfortable talking to people in this group because we call have HIV – I am not the only one Guys I am HIV and eat with my friends my frnd going to be HIV too? The hard part about living with hiv is the fact that us have it and u r scared that some day people might hate u because u have hiv and ur also scared that u might say it and then be ashamed. When am with my frendz and we are having so much fun I cant disappoint them They were making me vomit so I stopped but now I drink them. I didn’t take them for two months..I was then admitted into hospital … I am dirkg them with yogurt now.