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Alternative approaches
to working with crisis
Leeds Survivor Led Crisis Service
Why is the quality of crisis
care important?
“Crisis is often where people start in the mental health
system. ………..we had a particular interest in what
happens in those initial stages of crisis because of its
impact on how people progress and recover, and
their willingness to seek help in the future should they
need to do so.”
Listening to Experience, an independent inquiry into
acute and crisis mental health care, Mind 2011
Why does crisis care need to
be improved?
“many people told us about poor, even
traumatic mental health experiences. We should not,
as a society, be leaving people with urgent mental
health needs isolated, frightened and unsupported in
impersonal hospital settings.”
“A worrying number of people had nothing good to
say about acute care”.
Listening to Experience, an independent inquiry into
acute and crisis mental health care, Mind 2011
Who we are
Established in 1999 by a group of
campaigning service users
An alternative to hospital and statutory
services for people in acute mental
health crisis.
The service is governed and managed
by people with direct experience of
mental health problems.
What we do
• Connect: Helpline open every night of the year, 6-10.30
• Dial House: Place of sanctuary and support, 6pm – 2am
Monday, Wednesday and Friday-Sunday
• Dial House @ Touchstone: Crisis Service for people from
BME groups, 6-11pm Tuesday and Thursday
• Range of group work: Peer and social support, lesbian,
gay, bisexual and transgender groups, coping with crisis
group
• Leeds Suicide Bereavement Serivice
24 Hour Response
“People wanted 24/7 services that
respond quickly and are effective in
helping prevent further deterioration or
escalation of crisis”
Listening to Experience, an
independent inquiry into acute and
crisis mental health care, Mind 2011
Who we work with
During 2014:
214 people made 1474 visits to Dial House
There were 4392 calls to Connect
Self Injury was a presenting issue in 46% of visits to
Dial House.
Suicide was a presenting issue in 60% of visits to Dial
House.
Abuse, past or present, rape/sexual violence a
presenting issue in 59% of visits.
Funding
3 Leeds Clinical Commissioning Groups
Leeds City Council
Leeds and York PFT
National Lottery
Charitable Trust funding
Donations
Consultancy fees
Therapeutic Approach
Person Centred Approach
• The human organism tends to
actualise
• The worker supports the visitor/caller’s
direction
• The worker and visitor/caller co create
certain facilitative conditions
An Accessible Service
In the voluntary sector without
statutory powers
Taxis transport people to and from
Dial House
Childcare provided
Self Referral
The value of self-referral
“We urgently need more direct access
options. This means that people can self-
refer, and there should be an explicit
acknowledgement that individuals know
what they need”.
Listening to Experience, independent
inquiry into crisis and acute mental
health care, Mind 2011.
The importance of attitude
“Attitude is a strong therapeutic tool. It can have a bigger
impact than any clinical intervention.”
Louise Pembroke, founder, National Self Harm Network.
Quoted in Pure Madness, how fears drives the mental health
system.
(Jeremy Laurance, Routledge 2003)
“The needs people described – care, safety, someone to listen,
something to do – did not require a medically dominant
response”.
Listening to Experience, independent inquiry into crisis and acute
mental health care, Mind 2011.
Collecting Feedback
• Visitors Books in Dial House
• Questionnaires in Dial House
• Comments from Connect callers
• Reviews with regular visitors
• Narrative work
• Poetry
• Evaluation of group work
• Postal questionnaires
• Visitor and caller focus group
First Impressions
“My impression of Dial House, they are very
friendly and don’t judge you which is very
nice indeed as other places usually judge
you; race etc.”
“I’ve only been here twice and what I’ve
seen so far is fantastic. I’ve felt shit for ages
and since coming here I always leave with a
smile, coz that’s all I wanted; someone to sit
down with me and listen, so can all the staff
keep up the excellent work, thank you for
being there.”
Outcomes
Reducing Risk/Preventing
Worse Happening
Supporting people to resolve
or better manage crisis
Reducing Risk
“I haven’t taken an overdose since January. Last year I had 18
overdoses – 18 hospital admissions. Since using Dial house I
haven’t taken one. I haven’t been in hospital once.”
“My CPN wanted to have me sectioned on Friday – she found
me trying to hang myself. However, we talked it through and
agreed I’d contact Dial House over the weekend instead.”
“Before coming to Dial House tonight. I was on the verge of
hanging myself, but by visiting the house, and having support,
my life was turned around, and even though I still feel really
depressed, I think I will be able to get through the night.”
“You have saved my life and given me the will to live”
Supporting people to resolve or
better manage crisis
“Leeds Survivor Led Crisis Service has had a drastic effect on
the person I am today and has given me other coping
strategies to consider.
“Trust, by coming here I’ve learnt to trust .You in turn help me
to trust others outside Dial House for support when I need it,”
“The help I have had to deal with my immediate crisis I try to
use with regards to things long term. I have attended the
coping with crisis group which helped me identify coping
strategies and I now try to put them in place.”
“I am learning to cope differently but I am so used to cutting
or taking overdoses.”
The five elements of effective
support
Listening
Treating People with warmth, kindness
and respect
People don’t feel judged or assessed
Being in a different and calm
environment
Peer support.
Listening
“It’s ace here, you really listen, understand and
respect me.”
“It has made me feel wanted. I can talk to
someone who listens. I leave feeling warm, rather
than with a cold heart as if I’ve got nowhere.”
“You listen, you don’t judge, you don’t tell me what
to do.”
“I felt so safe, comforted & listened to”
Treating people with warmth,
kindness and respect
“The staff are without question some of the kindest, warmest,
most caring, understanding, genuine, friendliest people I've
ever had the pleasure of meeting. I consider myself very lucky
to have been supported by such people and believe that on
more than one occasion either a member of staff or the house
has made a significant difference to me and my life”.
“Just a short note to say thanks to Katharine for helping me to
wash my hair. It seems like such a simple thing to help with, but
it is the fact that Dial House are there to help with everything
including simple things which makes Dial House such a unique
and fantastic place.”
People don’t feel judged or
assessed
“Dial House is mint! It’s proper ace, it’s decent, proper nice.
Staff are really good, they listen and people are well nice to
be around. It’s cool to be around people who know what you
have been through and who understand you – people who
don’t judge you.”
“It is different to other services – it is easier to talk to staff. Staff
are nice. They don’t judge you or put a label on you – saying
‘that’s what’s wrong with you.’”
“People don’t judge you, which helps when everybody else
does.”
Being in a different and calm
environment
“Thank you for getting me away from the funny farm for a
couple of hours, the peace and quiet was a nice change
from the noisy, hectic, crazy ward.”
“It gets me out of the environment I am in, where I am alone,
my mind’s racing with impulsive thoughts. It gives me a break
from all of that and I return home and can go to sleep, a
decent sort of sleep.”
“Its like a sanctuary here, I calmed down as soon as I walked
in, feel safe and more like me again”
“A welcome haven and a place of safety which has really
helped me cope tonight, as I felt so isolated in my flat on my
own tonight.”
Peer Support
“It has given me comfort to know there are others with similar
problems to me.”
“It gives me a break. By being around people in the same
situation as you; you are not having to feel ashamed.”
“Social time has helped my confidence. I couldn’t trust
strangers before coming here and now I have made some
friends and met some lovely people.”
“It is helpful and inspiring to see other visitors with their own
problems and ways of coping with them”
“A safe, calming environment has
been created, where the workers are
exceptionally aware of the state
people are in whilst they are in crisis
and they are able to receive people in
a personal yet un-invasive way and
give time and space to people,
recognising them as human beings in
distress rather than a number to be
dealt with or get seen to. If it were not
for this service many people would
return to the hell realm of a hospital
environment and otherwise take their
lives through utter desperation of
having nowhere to turn which can
provide the level of support Dial House
can offer”
How is it different to other
services?
“The atmosphere at Dial House is much more positive than in
hospital.”
“Self referral rather than going through a damaging NHS
system.”
“it’s less judgemental, open when other services aren’t. A
friendlier team, who don’t come from a medical
background.”
“Staff caring, house calming, you feel welcome &
respected.”
How is it different to other
services?
“Arrive in a crisis/panic before you need a drink/tablets etc.
(other services won’t take you until you have self-harmed or in
real emergency i.e. police turn up)”
“Gaining access to crisis help – or preferably help before
reaching crisis point- was a very strong theme.
‘It feels like I literally have to have one foot off the bridge
before I can access services.’”
Listening to Experience, an independent inquiry into acute
and crisis mental health care, Mind 2011
A&E and Crisis
Only 40% of general hospitals have a Psychiatric Liaison Team
Where they exist, they are highly valued
Listening to Experience, an independent inquiry into acute
and crisis mental health care, Mind 2011
The challenge of multiple assessments
Restraint by security staff
Long waits in a busy area
An inappropriate place
“Walking into an A&E department and
asking to speak to the duty on-call
psychiatrist and, then, having to wait in a
crowded, noisy waiting room for hours is
enough to push me over the edge.”
Listening to Experience, an independent
inquiry into acute and crisis mental health
care, Mind 2011
A&E - Recommendations
24 hour access to Psychiatric Liaison Teams
One initial assessment, so people do not
have to keep repeating their history
Another walk in service for people in acute
mental health crisis
Priorities in improving crisis
care
“It is not just about changes to systems, service
reconfigurations and legislative programmes – it is
more fundamental than that. It is about:
• ensuring humanity in services
• reducing the medical emphasis in acute care
• increasing choice and control for people using
acute care”.
Mind Report Listening to Experience, 2011
The need for humanity
“What people overwhelmingly want is to be
treated in a warm, caring, respectful way,
irrespective of the circumstances in which
they come into contact with services. In other
words, all of us would like to be treated with
humanity”.
Mind Report, Listening to Experience, 2011.

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Fiona Venner

  • 1. Alternative approaches to working with crisis Leeds Survivor Led Crisis Service
  • 2. Why is the quality of crisis care important? “Crisis is often where people start in the mental health system. ………..we had a particular interest in what happens in those initial stages of crisis because of its impact on how people progress and recover, and their willingness to seek help in the future should they need to do so.” Listening to Experience, an independent inquiry into acute and crisis mental health care, Mind 2011
  • 3. Why does crisis care need to be improved? “many people told us about poor, even traumatic mental health experiences. We should not, as a society, be leaving people with urgent mental health needs isolated, frightened and unsupported in impersonal hospital settings.” “A worrying number of people had nothing good to say about acute care”. Listening to Experience, an independent inquiry into acute and crisis mental health care, Mind 2011
  • 4. Who we are Established in 1999 by a group of campaigning service users An alternative to hospital and statutory services for people in acute mental health crisis. The service is governed and managed by people with direct experience of mental health problems.
  • 5. What we do • Connect: Helpline open every night of the year, 6-10.30 • Dial House: Place of sanctuary and support, 6pm – 2am Monday, Wednesday and Friday-Sunday • Dial House @ Touchstone: Crisis Service for people from BME groups, 6-11pm Tuesday and Thursday • Range of group work: Peer and social support, lesbian, gay, bisexual and transgender groups, coping with crisis group • Leeds Suicide Bereavement Serivice
  • 6. 24 Hour Response “People wanted 24/7 services that respond quickly and are effective in helping prevent further deterioration or escalation of crisis” Listening to Experience, an independent inquiry into acute and crisis mental health care, Mind 2011
  • 7. Who we work with During 2014: 214 people made 1474 visits to Dial House There were 4392 calls to Connect Self Injury was a presenting issue in 46% of visits to Dial House. Suicide was a presenting issue in 60% of visits to Dial House. Abuse, past or present, rape/sexual violence a presenting issue in 59% of visits.
  • 8. Funding 3 Leeds Clinical Commissioning Groups Leeds City Council Leeds and York PFT National Lottery Charitable Trust funding Donations Consultancy fees
  • 9. Therapeutic Approach Person Centred Approach • The human organism tends to actualise • The worker supports the visitor/caller’s direction • The worker and visitor/caller co create certain facilitative conditions
  • 10. An Accessible Service In the voluntary sector without statutory powers Taxis transport people to and from Dial House Childcare provided Self Referral
  • 11. The value of self-referral “We urgently need more direct access options. This means that people can self- refer, and there should be an explicit acknowledgement that individuals know what they need”. Listening to Experience, independent inquiry into crisis and acute mental health care, Mind 2011.
  • 12. The importance of attitude “Attitude is a strong therapeutic tool. It can have a bigger impact than any clinical intervention.” Louise Pembroke, founder, National Self Harm Network. Quoted in Pure Madness, how fears drives the mental health system. (Jeremy Laurance, Routledge 2003) “The needs people described – care, safety, someone to listen, something to do – did not require a medically dominant response”. Listening to Experience, independent inquiry into crisis and acute mental health care, Mind 2011.
  • 13. Collecting Feedback • Visitors Books in Dial House • Questionnaires in Dial House • Comments from Connect callers • Reviews with regular visitors • Narrative work • Poetry • Evaluation of group work • Postal questionnaires • Visitor and caller focus group
  • 14. First Impressions “My impression of Dial House, they are very friendly and don’t judge you which is very nice indeed as other places usually judge you; race etc.” “I’ve only been here twice and what I’ve seen so far is fantastic. I’ve felt shit for ages and since coming here I always leave with a smile, coz that’s all I wanted; someone to sit down with me and listen, so can all the staff keep up the excellent work, thank you for being there.”
  • 15. Outcomes Reducing Risk/Preventing Worse Happening Supporting people to resolve or better manage crisis
  • 16. Reducing Risk “I haven’t taken an overdose since January. Last year I had 18 overdoses – 18 hospital admissions. Since using Dial house I haven’t taken one. I haven’t been in hospital once.” “My CPN wanted to have me sectioned on Friday – she found me trying to hang myself. However, we talked it through and agreed I’d contact Dial House over the weekend instead.” “Before coming to Dial House tonight. I was on the verge of hanging myself, but by visiting the house, and having support, my life was turned around, and even though I still feel really depressed, I think I will be able to get through the night.” “You have saved my life and given me the will to live”
  • 17. Supporting people to resolve or better manage crisis “Leeds Survivor Led Crisis Service has had a drastic effect on the person I am today and has given me other coping strategies to consider. “Trust, by coming here I’ve learnt to trust .You in turn help me to trust others outside Dial House for support when I need it,” “The help I have had to deal with my immediate crisis I try to use with regards to things long term. I have attended the coping with crisis group which helped me identify coping strategies and I now try to put them in place.” “I am learning to cope differently but I am so used to cutting or taking overdoses.”
  • 18. The five elements of effective support Listening Treating People with warmth, kindness and respect People don’t feel judged or assessed Being in a different and calm environment Peer support.
  • 19. Listening “It’s ace here, you really listen, understand and respect me.” “It has made me feel wanted. I can talk to someone who listens. I leave feeling warm, rather than with a cold heart as if I’ve got nowhere.” “You listen, you don’t judge, you don’t tell me what to do.” “I felt so safe, comforted & listened to”
  • 20. Treating people with warmth, kindness and respect “The staff are without question some of the kindest, warmest, most caring, understanding, genuine, friendliest people I've ever had the pleasure of meeting. I consider myself very lucky to have been supported by such people and believe that on more than one occasion either a member of staff or the house has made a significant difference to me and my life”. “Just a short note to say thanks to Katharine for helping me to wash my hair. It seems like such a simple thing to help with, but it is the fact that Dial House are there to help with everything including simple things which makes Dial House such a unique and fantastic place.”
  • 21. People don’t feel judged or assessed “Dial House is mint! It’s proper ace, it’s decent, proper nice. Staff are really good, they listen and people are well nice to be around. It’s cool to be around people who know what you have been through and who understand you – people who don’t judge you.” “It is different to other services – it is easier to talk to staff. Staff are nice. They don’t judge you or put a label on you – saying ‘that’s what’s wrong with you.’” “People don’t judge you, which helps when everybody else does.”
  • 22. Being in a different and calm environment “Thank you for getting me away from the funny farm for a couple of hours, the peace and quiet was a nice change from the noisy, hectic, crazy ward.” “It gets me out of the environment I am in, where I am alone, my mind’s racing with impulsive thoughts. It gives me a break from all of that and I return home and can go to sleep, a decent sort of sleep.” “Its like a sanctuary here, I calmed down as soon as I walked in, feel safe and more like me again” “A welcome haven and a place of safety which has really helped me cope tonight, as I felt so isolated in my flat on my own tonight.”
  • 23. Peer Support “It has given me comfort to know there are others with similar problems to me.” “It gives me a break. By being around people in the same situation as you; you are not having to feel ashamed.” “Social time has helped my confidence. I couldn’t trust strangers before coming here and now I have made some friends and met some lovely people.” “It is helpful and inspiring to see other visitors with their own problems and ways of coping with them”
  • 24. “A safe, calming environment has been created, where the workers are exceptionally aware of the state people are in whilst they are in crisis and they are able to receive people in a personal yet un-invasive way and give time and space to people, recognising them as human beings in distress rather than a number to be dealt with or get seen to. If it were not for this service many people would return to the hell realm of a hospital environment and otherwise take their lives through utter desperation of having nowhere to turn which can provide the level of support Dial House can offer”
  • 25. How is it different to other services? “The atmosphere at Dial House is much more positive than in hospital.” “Self referral rather than going through a damaging NHS system.” “it’s less judgemental, open when other services aren’t. A friendlier team, who don’t come from a medical background.” “Staff caring, house calming, you feel welcome & respected.”
  • 26. How is it different to other services? “Arrive in a crisis/panic before you need a drink/tablets etc. (other services won’t take you until you have self-harmed or in real emergency i.e. police turn up)” “Gaining access to crisis help – or preferably help before reaching crisis point- was a very strong theme. ‘It feels like I literally have to have one foot off the bridge before I can access services.’” Listening to Experience, an independent inquiry into acute and crisis mental health care, Mind 2011
  • 27. A&E and Crisis Only 40% of general hospitals have a Psychiatric Liaison Team Where they exist, they are highly valued Listening to Experience, an independent inquiry into acute and crisis mental health care, Mind 2011 The challenge of multiple assessments Restraint by security staff Long waits in a busy area
  • 28. An inappropriate place “Walking into an A&E department and asking to speak to the duty on-call psychiatrist and, then, having to wait in a crowded, noisy waiting room for hours is enough to push me over the edge.” Listening to Experience, an independent inquiry into acute and crisis mental health care, Mind 2011
  • 29. A&E - Recommendations 24 hour access to Psychiatric Liaison Teams One initial assessment, so people do not have to keep repeating their history Another walk in service for people in acute mental health crisis
  • 30. Priorities in improving crisis care “It is not just about changes to systems, service reconfigurations and legislative programmes – it is more fundamental than that. It is about: • ensuring humanity in services • reducing the medical emphasis in acute care • increasing choice and control for people using acute care”. Mind Report Listening to Experience, 2011
  • 31. The need for humanity “What people overwhelmingly want is to be treated in a warm, caring, respectful way, irrespective of the circumstances in which they come into contact with services. In other words, all of us would like to be treated with humanity”. Mind Report, Listening to Experience, 2011.