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FOCUS AREA CLUSTERSPATIENT AND EXPERT TAKEAWAYSTRANSCRIBED DATA
Patient 01 Patient 02
SME 01 SME 02
Focus Area 3
Focus Area 2
Focus Area 1
Opportunity 3
Opportunity 2
Opportunity 1
OPPORTUNITY RECOGNITIONRAW DATA OUTCOMES
Interview Notes
Workgroup Minutes
Observations
Opportunities
Ideas
Patient Journey
Patient Journey
QDM/HCAHPS/Grievance
s
Patient & SME Interviews
1 2 3
4 5 6
7 8 9
The cystectomy journey seems simple when
viewed as a series of touch points at which
patients interact directly with UCLA.
SYMPTOMS
TURBT
CANCERDIAGNOSIS
INFORMATIONSEEKING
DISCUSSIONOFSURGERY
PREAUTHORIZATION
SCHEDULESURGERY
NEOADJUVANTCHEMOTHERAPY
PREOPERATIVECLEARANCE
URINARYDIVERSIONTEACHING
PERSONALAFFAIRS
BOWELPREP/NPOSTATUS
PREOPERATIVEHOLDING
FAMILYINWAITINGROOM
ROBOTICOROPENCYSTECTOMY
PACUHOLD
PAINMANAGEMENT
AMBULATION
HOSPITALRECOVERY
STOMA/CATHETERTEACHING
TOLERANCEOFDIET
DISCHARGEHOME
CANCERCURED
FATIGUE/WEIGHTLOSS/FTT
URINARYCONTROL
DEPENDENCEONOTHERS
ERVISIT/READMISSIOM
BOWELRECOVERY
REGAINFUNCTIONALITY
RETURNTONORMALACTIVITIES
But the actual journey includes many more steps
for patients…
SYMPTOMS/TURBT
CANCERDIAGNOSIS
INFORMATIONSEEKING
DISCUSSIONOFSURGERY
PREAUTHORIZATION
SCHEDULESURGERY
NEOADJUVANTCHEMOTHERAPY
PREOPERATIVECLEARANCE
URINARYDIVERSIONTEACHING
PERSONALAFFAIRS
BOWELPREP/NPOSTATUS
PREOPERATIVEHOLDING
FAMILYINWAITINGROOM
ROBOTICOROPENCYSTECTOMY
PACUHOLD
PAINMANAGEMENT
AMBULATION
HOSPITALRECOVERY
STOMA/CATHETERTEACHING
TOLERANCEOFDIET
DISCHARGEHOME
CANCERCURED
FATIGUE/WEIGHTLOSS/FTT
URINARYCONTROL
DEPENDENCEONOTHERS
ERVISIT/READMISSIOM
BOWELRECOVERY
REGAINFUNCTIONALITY
RETURNTONORMALACTIVITIES
That positively and negatively impact the overall
experience
Cancer Toll
SUPPORT
(PATIENT-
FACING)
reluctance, guilt,
fear, essential,
family, friends
NEOBLADDE
R
leakage, tubes,
maintenance,
satisfaction
STOMA
body image, odor,
leakage, lifestyle
change, support,
education
(timing/duration/qua
lity), appliance,
supplies
CAREGIVER
ROLES
coach, advocate,
nurse, coordinator,
cheerleader, teacher,
head of house
CAREGIVER
BURDEN
housing, full time,
cost, worry, fear,
eased by others,
assumed roles
RECOVERY
home support, function,
independence, hobbies,
weight, nutrition, sexual
function, energy, family,
job, mood
DISCHARGE
timing,
information, point
of contact
HOME NURSE
variability,
stoma, invested,
immediate
MEDICAL CARE
variation, evidence-
based, expert,
thorough, consistent,
cancer control,
appropriate,
CHEMOTHERAP
Y
benefit vs. toxicity,
delivery, stigma
COMPLICATIONS
bowel, anemia,
infection, informed,
dx / tx, setback,
ER, readmission
MOBILITY
delayed, PT,
resources, orders
PAIN
control, NG,
epidural vs. IV,
side effects,
non-narcotic
CARE
ENVIRONMENT
chaotic, disruptive,
alarms, sleep trouble,
PACU hold, limited
resources, computer
time, work arounds
NURSING
efficiency, empathy,
competence, stoma
comfort, turnover,
handoffs, morale
STAFF
timeliness,
variability in
CICARE,
PHYSICIANS
coach, advocate,
nurse, coordinator,
cheerleader,
teacher, head of
house
CARE COORDINATION
point of contact,
connectedness, MD
access, myUCLAhealth,
confidence in UCLA,
thorough, convenience,
timeliness, fragmentation,
duplication
UCLA BRAND
research, trust,
academic,
personalized
KNOWLEDGE
GAPS
nutrition, “prehab”,
recovery, neobladder,
stoma, risks, lifestyle
impact
INFORMATION
accuracy, timeline, goals,
expectations,
completeness, decision-
making, regret, stickiness,
honest, relatable
EDUCATION
type, source,
perspective,
accessibility
empowering
through
education
Cancer Toll
coordinating
care across the
journey
fostering a
healing
environment
preparing
patients for
lifestyle change
accelerating
functional
recovery
bolstering
patient support
mechanisms
12
13frogThink © 2013 frog. Confidential & Proprietary.
Opportunity to Idea
Contests & Culture Building
I don’t eat all that other stuff…
I thought I was only supposed
to eat lettuce and tomatoes…
Elderly
LEP patient
‘intoxicado’ = $71 million
8Bedside RNs
Subject Matter Experts
3NPs
4 Cardiologist
4 Fellows
10 Residents
6Medical Student, Clinical & industrial
psychologist, Social Worker, Care
Partners, Patient Expert
Cardiac Observation Unit (COU) General Internal Medicine & Health
Services Research
Cardiac Care Unit (CCU) Bilingual Cultural Initiative Medical
Psychology Assessment Center at Semel
Institute for Neuroscience and Human
Behavior
Cardiology UCLA Innovation in Health
Interpreter Services ValU/Quality
Nursing Department Leadership Performance Excellence
Pediatric Voice
I have to tell my parents that
I’m not getting any better…
I don’t want to be reminded
of my disease…
16 year old
patient
Mother of a
hospitalized infant,
who is a nurse
herself, stated that
she “loves bedside
rounds” but the nurse
was present on
rounds only about
half of the time.
Mother of 6 year old child hospitalized
for leukemia had concerns that her
child kept getting woken up in the night
for trash being removed from the room.
Mother of 6 year old
admitted multiple times
with leukemia, who is
unclear of the roles of the
medical students/doctors
on the team.
Innovation Shark Tank 2016
“The Patient Voice
project changed how I
view the care I deliver
on a routine basis…
Our Department discovered a spectrum of actions we could take to
enhance the value of care we deliver to our patients…
It all started with asking them
about their care.”
Christopher Saigal MD, MPH

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HXR 2016: Human Focused Innovation in a Clinical Setting -Jennie Kung, UCLA Health

Editor's Notes

  1. UCLA Health aims to rank among the best‐performing programs for care nationally and internationally. Value projects help to achieve this aim by analyzing program performance from all perspectives – cost, quality, and patient experience – to gain a deep understanding of the value embedded in the care pathway, and by using this understanding to make improvements that yield greater value on all fronts. The Patient Voice Toolkit is part of this broader Value initiative that seeks to match financial and outcome measures to what UCLA patients are really seeking in their care. It facilitates deep learning of the current state of care through heavy patient engagement and input, thus providing insights from the patient perspective. The Patient Voice focuses on the patient journey, both from the patient perspective and the care team perspective. Initially, the process relies heavily on interviews with patients and providers to provide helpful data that is used to uncover themes and, finally, possible interventions to improve the care pathway.
  2. UCLA Health aims to rank among the best‐performing programs for care nationally and internationally. Value projects help to achieve this aim by analyzing program performance from all perspectives – cost, quality, and patient experience – to gain a deep understanding of the value embedded in the care pathway, and by using this understanding to make improvements that yield greater value on all fronts. The Patient Voice Toolkit is part of this broader Value initiative that seeks to match financial and outcome measures to what UCLA patients are really seeking in their care. It facilitates deep learning of the current state of care through heavy patient engagement and input, thus providing insights from the patient perspective. The Patient Voice focuses on the patient journey, both from the patient perspective and the care team perspective. Initially, the process relies heavily on interviews with patients and providers to provide helpful data that is used to uncover themes and, finally, possible interventions to improve the care pathway.
  3. UCLA Health aims to rank among the best‐performing programs for care nationally and internationally. Value projects help to achieve this aim by analyzing program performance from all perspectives – cost, quality, and patient experience – to gain a deep understanding of the value embedded in the care pathway, and by using this understanding to make improvements that yield greater value on all fronts. The Patient Voice Toolkit is part of this broader Value initiative that seeks to match financial and outcome measures to what UCLA patients are really seeking in their care. It facilitates deep learning of the current state of care through heavy patient engagement and input, thus providing insights from the patient perspective. The Patient Voice focuses on the patient journey, both from the patient perspective and the care team perspective. Initially, the process relies heavily on interviews with patients and providers to provide helpful data that is used to uncover themes and, finally, possible interventions to improve the care pathway.
  4. Idea Generation
  5. Idea Prioritization
  6. The “Yo Entiendo” Patient Voice project was designed to help us better understand health literacy and cultural barriers faced by the Spanish-speaking heart failure patients in 7N/7CCU.
  7. I want to share with you another project… One that used the Patient Voice to better understand the needs of our Limited English Proficient patients…
  8. An elderly Chinese speaking man having chest pain was transferred from a community based hospital over the weekend to UCLA for an emergent left heart cath. He came with his English speaking daughter who agreed with the outside hospital for her father to have an emergent cath. When they arrived to the cath lab at UCLA, as they were rolling the patient into the procedure room, he yelled and screamed waiving his hands in the air. UCLA staff weren’t sure what was happening. They called the interpreter services number only to find out that the patient did not want to have the procedure. How did this happen? 1. The daughter spoke/interpreted on behalf of the patient Inaccurate language preference documentation
  9. In 1984, a 22 y/o Spanish speaking male told his girlfriend he felt ‘intoxicado’ and collapsed. When she repeated the term, hospital personnel took it to mean intoxicated, though the intended meaning was ‘nauseated.’ His brain clot was misdiagnosed as a drug overdose. A jury later awarded a $71 million malpractice settlement against the hospital. [Shutts, S. (Feb 25 2008) Ohio medical students train with interpreters to improve minority care.]
  10. 8 Bedside RNs 3 NPs 2 Care Partners 1 Social Worker 1 Patient Expert 4 Cardiologist 4 Fellows 10 Residents 1 Medical Student 1 Clinical and industrial psychologist
  11. Collaborators
  12. Malka Sierra- Senior Multicultural Director American Heart Association “Caring for Your Heart: Living Well with Heart Failure” – Developers: San Francisco General Hospital; University of North Carolina; Northwestern University Feinberg School of Medicine
  13. The American Academy of Pediatrics endorses bedside rounds, with the family present, as the standard of care. At Mattel Children’s Hospital UCLA, inpatient teams round on their patients at the bedside. Family centered bedside rounds with the nurse present improves family satisfaction. We have room to improve our family satisfaction data, especially focusing on doctor communication. We had the honor of listening to the voices of our hospitalized children and their families to find out how we could improve the bedside rounding experience, and improve overall communication at Mattel Children’s Hospital UCLA.
  14. 16 year old patient admitted to the pediatric floor. She speaks English and Spanish, and her parents speak Spanish only. She told us that she is “often” used as the translator for medical information during rounds, and throughout her stay. This causes her “stress” because she “doesn’t want to be reminded of her disease.” Every time she has to translate, she is reminded of how sick she is. Her mother added “nobody wants to be reminded of their disease.” Spanish Speaking Families – Unfortunately, we are using hospitalized children as translators often on rounds due to lack of regularly-available in-person translators. Our family that had been inpatient for months had never seen an in-person interpreter prior to this project. The family also said that the translator phone service “glitches” and “cuts out.”
  15. RN joining bedside rounds on all patients. This is complicated because multiple teams round at the same time and RN’s are often busy in isolation rooms and cannot answer the phone or participate in rounds. RN will have specific role on rounds – reading vitals, I/O’s, nursing plan of care. Could we bring in a relief nurse during morning rounds who could free up the bedside nurse if he/she is busy during rounds? Families not understanding the roles of the medical team. Doctors to have role on ID badge – similar to flu badge – (resident, fellow, attending) Distribute a welcome packet which explains the roles of the medical team to all inpatients. Role of families on bedside rounds Door hanger – Give families choice of “I do / do not want to join rounds. Please wake /do not wake me for rounds. Please round inside/outside the room. I speak English/Spanish/Other.”
  16. Nearly 4,000 children are admitted to inpatient pediatrics at Mattel Children’s Hospital UCLA and Santa Monica UCLA each year. It is exceedingly difficult for patients and their families to achieve the amount and quality of sleep needed during this period of illness and stress. It has been known that critically ill patients experience poor sleep quality with severe sleep fragmentation and disruption of sleep architecture. Poor sleep while hospitalized is one of the most common complaints of patients who survive severe illness. Phase 1: children slept for a longer amount of time sleep scores improved Everyone benefits from a good night’s rest, but sleep is especially important in healing and strengthening children in the pediatric intensive care unit (PICU) at Mattel Children’s Hospital UCLA. Unfortunately, catching some Z’s at a hospital that operates 24/7 isn’t always easy. “We knew from talking to parents that their children’s slumber here wasn’t restful,” says Myke Federman, MD, medical director of the cardiothoracic PICU. “It seemed counterproductive that we were providing a high level of medical care to these children, yet we weren’t addressing something as fundamentally important as sleep. We wanted to see what we could do to improve the patient and family experience by providing a more comforting and quiet place to rest.” Thanks to a patient-experience award from the UCLA Institute for Innovation in Health, Dr. Federman, along with PICU physician Yonca Bulut, MD, and PICU clinical nurse specialist Theresa Kirkpatrick, CCRN, launched a sleep-hygiene initiative in March 2015 called Supporting Sleep for Health and Healing (SSHH). “We began by surveying nurses and parents to pinpoint the biggest sleep stealers in the unit and worked with day- and night-time staff to make certain improvements,” says Dr. Bulut. “We had to educate the staff about the unique sleep needs of infants, children and teens because a teen’s sleep needs and patterns are going to be different than a toddler’s, so it’s important to take these into account.” Since these sleep hygiene steps were imple-mented, PICU patients and their parents are resting easier. “Before this initiative, parents reported that their kids were averaging about six hours of nightly sleep in the hospital,” says Dr. Federman. “Our PICU kids today get an average of 7.5 hours of sleep every night. We hope that the extra rest will translate into better health outcomes for them.” Thanks to another award from the UCLA Institute for Innovation in Health, the team is expanding the SSHH initiative to all of Mattel Children’s Hospital UCLA, as well as the pediatrics unit at UCLA Medical Center, Santa Monica. “We believe adult patients could benefit from this program as well,” says Dr. Bulut. “One day we hope to see SSHH in place throughout UCLA Health. After all, everyone feels better after a good night’s rest.”
  17. Improvements for a Good Night’s Rest: Creating and displaying signage that designates the unit as a sleep-friendly zone. Implementing a 10 pm lights-out policy. Lubing squeaky wheels on medical carts. Placing silencers on the doors to the PICU so they don’t bang shut. Equipping each patient room with a white-noise machine. Supplying foam earplugs and eye masks to patients and their families. Installing a noise detector that flashes yellow or red when sound levels in the unit exceed set noise limits. Creating signs for parents to hang on their children’s doors that let staff know to come back later because a child is resting, or to enter because a child is awake. Combining nighttime medical procedures when possible. Silencing the ice makers that nurses use to store bloodwork.
  18. $10K: The team will use new technology to reduce multiple needle sticks often required to obtain IV access due to poor vein visibility.  
  19. So we think that in order for our hypothesis to hold true, the thinking needs to change around lean and around innovation. Read quote