This document discusses children and young people's involvement in research. It defines key terms like consultation, participation, and involvement. It explores models of involvement from being research subjects to collaborators. Practical and ethical considerations for involving children and young people are discussed. Examples of children's advisory groups for health research are provided. The document challenges myths about young people's ability to be involved and provides tips for planning their involvement.
Presentation to Centre for Studies of Childhood and Youth5th International Conference. "Researching children's everyday lives: socio-cultural contexts "
Presentation to Centre for Studies of Childhood and Youth5th International Conference. "Researching children's everyday lives: socio-cultural contexts "
Learning Disabilities: Share and Learn Webinar – 18 May 2017NHS England
This webinar focuses on the Model Service Specification for Community Based Forensic Support and aims to explain core functions that need to be in place locally in order to provide effective specialist Community-based Forensic Support to meet the needs of adults with a learning disability, autism or both who display behaviours that challenge which have led to contact with the criminal justice system, or where there is risk of this.
The Centre for Children and Young People’s Participation, University of Central Lancashire. Presentation for seminar Series 2014, Children and Social Justice, May 2014
'Embedding children and young people’s participation in health services and research'
Transforming Care: Share and Learn Webinar – 26 October 2017NHS England
Topic One: Developing support and services for children and young people: introducing new guidance for Transforming Care Partnerships
Guest speakers: Phil Brayshaw (Clinical Lead) and David Gill (Learning Disability Advisor), NHS England
This webinar introduces new guidance for Transforming Care Partnerships developed by NHS England and supported by the Local Government Association. This guidance supports commissioners in planning joined-up support and services for children and young people with learning disabilities, autism or both (in line with the national service model).
David Gill shares his experience of growing up with Asperger’s syndrome and talks about how getting the right support is critical to young people’s lives.
Topic Two: Creating a positive behaviour support organisational and workforce development framework for Transforming Care Partnerships and service providers
Guest speaker: Sarah Leitch, British Institute of Learning Disabilities (BiLD)
This webinar describes the Positive Behaviour Support workforce development framework Black Country Transforming Care Partnership commissioned from BiLD and provides other Transforming Care Partnerships with a model that can be taken into other organisations.
Learning Disabilities: Share and Learn Webinar – 11 May 2017NHS England
This webinar focuses on the Model Service Specification for Enhanced/Intensive support and aims to explain the core functions that need to be in place in the community in order to support people with a learning disability, autism or both who display behaviours that challenge which place themselves or others at risk of serious harm; or for whom the nature or degree of risk might otherwise lead to exclusion, placement breakdown, and admission to inpatient services.
The webinar includes real life examples of how some Transforming Care Partnerships have approached the development of these functions.
Learning Disabilities: Share and Learn Webinar – 29 June 2017NHS England
Topic One : Violence or behaviour that challenges in children with learning disabilities and autism – how you can help to make a difference
Guest speaker: Yvonne Newbold, World Health Innovation Summit Ambassador - Learning Disabilities, Autism and their Families
Around 25% of children who are diagnosed with a learning disability or autism will develop violent and challenging behaviour yet there is very little understanding or awareness of this issue. This means that affected families, who are already coping with frightening and dangerous situations every day at home, are often met with disbelief, judgement and blame from the people they turn to for help. Yvonne Newbold talks through some simple strategies that could make all the difference.
Topic Two : Positive Behaviour Support – Supporting people with behaviours of concern in their communities
Guest speaker: Tom Evans, PBS Development Lead, British Institute of Learning Disabilities
This webinar focuses on Positive Behaviour Support and how it can support children and adults who are at risk of being excluded or experiencing restrictive practices because they have behaviours that are considered to be challenging or concerning.
Let's talk people in research sept 2014Simon Denegri
This slide-deck covers the main components of current NIHR approaches towards public involvement in research; its ongoing strategic review of the area and; its current policy towards engaging patients through the NHS.
Transforming Care: Share and Learn Webinar – 29 March 2018NHS England
Topic One: "The ERIN Initiative"
Guest speakers: Susan Holloway, NHS Chorley & South Ribble CCG and NHS Greater Preston CCG and Sheila Roberts, Lancashire Care NHS Foundation Trust
The aim of "The ERIN (Education, Resources, Interventions and Networking) Initiative" is to provide a local, accessible, responsive, early assessment and intervention service for children aged 0-5 years who may be placed on the pre-school Autism Spectrum Disorder (ASD) pathway.
This webinar reports on the progress made during a pilot which commenced on 1st October 2017 to implement a service which deals with complex/challenging behaviors of children who may or may not go on to have a diagnosis with autism.
Topic Two: An introduction and brief overview of the Source4Networks platform
Session led by Rob Cockburn, Sustainable Improvement Team, NHS England
This topic provides an introduction and brief overview of the Source4Networks platform and its potential to support the Transforming Care Programme.
Learning Disabilities: Share and Learn Webinar Thursday 27 October 2016Paul Goulding
Topic one: What helps makes a successful Care and Treatment Review?
Guest speakers:
Anne Webster, Clinical Lead, Learning Disability Programme, NHS England
Gavin Harding, MBE, Learning Disability Advisor, Learning Disability Programme, NHS England
Maggie Graham, Learning Disability Programme, NHS England
The presentation focused on everyone’s role in a Care and Treatment Review and explored the vital role of the chair of the panel, the expert advisers and also people who attend a panel, for example the role of an advocate at a CTR.
The presentation was also provided an update on the policy refresh, what is happening and when, and a discussion about the role of the learning disability advisers in the programme.
Topic Two: Guidance for TCPs in relation to Children and Young People
Guest Speaker: Phil Brayshaw, NHS England
The presentation considered how Transforming Care Partnerships can plan and deliver local support and services for children, young people and their families. This is ahead of the publication of “Developing support and services for children and young people with learning disabilities and/or autism” later this year (November).
The presentation also considered each of the 9 principles of the Service Model: Supporting people with a learning disability and/or autism who display behaviour that challenges, including those with a mental health condition: Service model for commissioners of health and social care services, how they relate specifically to children and young people and what this will mean in terms of local commissioning intentions going forwards.
Learning Disabilities Share and Learn Webinar – 25 May 2017 - Children and yo...NHS England
Guest Speakers: Sue North and Maureen Banda, Children and Young People's Team, NHS England
The Children and Young People’s team at NHS England share the updated Care, Education and Treatment Review Policy, highlighting what is new. They also talk about the team’s focus and priorities for 2017/18 and the supplementary guidance for commissioners from the new service model. A parent carer who was involved in its development also joins the panel.
Learning Disabilities: Share and Learn Webinar – 30 March 2017NHS England
Topic: How can we meet the needs of children with complex behavioural challenge?
Guest speakers: Dame Christine Lenehan, Director,
Council for Disabled Children and Sue North, Acting Lead for Children and Young People Workstream, Transforming Care, Learning Disabilities Programme, NHS England
This webinar focuses on the work of the Lenehan Review which looked at children and young people with a diagnosis of learning disability, autism, mental health, challenging behaviour. Why does the system struggle currently and what could be done to change it so that children and young people have better outcomes.
Transforming Care: Share and Learn Webinar – 30 November 2017NHS England
Topic One: “What does good look like: Person-centred support to promoting positive outcomes for people with learning disability and autism”.
Guest speaker: Professor Julie Beadle-Brown, Professor in Intellectual and Developmental Disabilities at the Tizard Centre, University of Kent
This presentation introduces an evidence based practice framework for promoting positive outcomes for people with a learning disability, autism or both, including those who may display behaviours described as challenging. It considers what is needed for successful implementation, with a particular focus on practice leadership and introduce a tool for assessing and monitoring implementation. Participants can download the “What does good look like” guide and tool from https://www.unitedresponse.org.uk/what-does-good-look-like
Topic Two: High Impact Actions for service improvement and delivery by Transforming Care Partnerships.
Guest speaker: Emma Stark, Improvement Manager, Sustainable Improvement Team, NHS England
This presentation gives an in-depth reminder of the High Impact Actions for service improvement and delivery by Transforming Care Partnerships (TCP). Published a year ago this month, the High Impact Actions aim to help TCPs make the biggest strides forward in supporting people of all ages with a learning disability, autism or both to have a home within their community, be able to develop and maintain relationships and get the support they need to live health, safe and rewarding lives, thereby reducing the number of people in inpatient settings.
Guest speakers: Siobhan Gorry and Sarah Jackson - NHS England and Carl Shaw and David Gill – Learning Disability advisors
Understand about unnecessary admission to hospital and avoid lengthy stays, ensuring treatment has clearly defined outcomes, planning for discharge from admission (CTR policy)
Learn about specific pathways that will enable children and young people to remain with or near to family and get the support they need aligned to the service model
Hear about innovative ideas to be tested/evaluated of supporting CYP and families through a grants process
Understand how children and young people with LD and/or autism can leave school with a good education, health and care plan or other transition plan that supports their transition to adulthood leading to better outcomes for them and their families.
This talk was given to the Alberta Cancer Foundation in Calgary, January 2015. It looks at different approaches to public involvement in research funding by UK charities. It also includes some updated slides on the results of the Breaking Boundaries review.
Patient Engagement for Data Science, Technology & EngineeringCHICommunications
Learn the necessities and relationship between patient engagement and data science, engineering and technology.
Presented by Trish Roche, CHI's Knowledge Translation Practice Lead, this presentation is geared towards professionals in data science looking to hone their skills in patient engagement.
Learning Disabilities: Share and Learn Webinar – 18 May 2017NHS England
This webinar focuses on the Model Service Specification for Community Based Forensic Support and aims to explain core functions that need to be in place locally in order to provide effective specialist Community-based Forensic Support to meet the needs of adults with a learning disability, autism or both who display behaviours that challenge which have led to contact with the criminal justice system, or where there is risk of this.
The Centre for Children and Young People’s Participation, University of Central Lancashire. Presentation for seminar Series 2014, Children and Social Justice, May 2014
'Embedding children and young people’s participation in health services and research'
Transforming Care: Share and Learn Webinar – 26 October 2017NHS England
Topic One: Developing support and services for children and young people: introducing new guidance for Transforming Care Partnerships
Guest speakers: Phil Brayshaw (Clinical Lead) and David Gill (Learning Disability Advisor), NHS England
This webinar introduces new guidance for Transforming Care Partnerships developed by NHS England and supported by the Local Government Association. This guidance supports commissioners in planning joined-up support and services for children and young people with learning disabilities, autism or both (in line with the national service model).
David Gill shares his experience of growing up with Asperger’s syndrome and talks about how getting the right support is critical to young people’s lives.
Topic Two: Creating a positive behaviour support organisational and workforce development framework for Transforming Care Partnerships and service providers
Guest speaker: Sarah Leitch, British Institute of Learning Disabilities (BiLD)
This webinar describes the Positive Behaviour Support workforce development framework Black Country Transforming Care Partnership commissioned from BiLD and provides other Transforming Care Partnerships with a model that can be taken into other organisations.
Learning Disabilities: Share and Learn Webinar – 11 May 2017NHS England
This webinar focuses on the Model Service Specification for Enhanced/Intensive support and aims to explain the core functions that need to be in place in the community in order to support people with a learning disability, autism or both who display behaviours that challenge which place themselves or others at risk of serious harm; or for whom the nature or degree of risk might otherwise lead to exclusion, placement breakdown, and admission to inpatient services.
The webinar includes real life examples of how some Transforming Care Partnerships have approached the development of these functions.
Learning Disabilities: Share and Learn Webinar – 29 June 2017NHS England
Topic One : Violence or behaviour that challenges in children with learning disabilities and autism – how you can help to make a difference
Guest speaker: Yvonne Newbold, World Health Innovation Summit Ambassador - Learning Disabilities, Autism and their Families
Around 25% of children who are diagnosed with a learning disability or autism will develop violent and challenging behaviour yet there is very little understanding or awareness of this issue. This means that affected families, who are already coping with frightening and dangerous situations every day at home, are often met with disbelief, judgement and blame from the people they turn to for help. Yvonne Newbold talks through some simple strategies that could make all the difference.
Topic Two : Positive Behaviour Support – Supporting people with behaviours of concern in their communities
Guest speaker: Tom Evans, PBS Development Lead, British Institute of Learning Disabilities
This webinar focuses on Positive Behaviour Support and how it can support children and adults who are at risk of being excluded or experiencing restrictive practices because they have behaviours that are considered to be challenging or concerning.
Let's talk people in research sept 2014Simon Denegri
This slide-deck covers the main components of current NIHR approaches towards public involvement in research; its ongoing strategic review of the area and; its current policy towards engaging patients through the NHS.
Transforming Care: Share and Learn Webinar – 29 March 2018NHS England
Topic One: "The ERIN Initiative"
Guest speakers: Susan Holloway, NHS Chorley & South Ribble CCG and NHS Greater Preston CCG and Sheila Roberts, Lancashire Care NHS Foundation Trust
The aim of "The ERIN (Education, Resources, Interventions and Networking) Initiative" is to provide a local, accessible, responsive, early assessment and intervention service for children aged 0-5 years who may be placed on the pre-school Autism Spectrum Disorder (ASD) pathway.
This webinar reports on the progress made during a pilot which commenced on 1st October 2017 to implement a service which deals with complex/challenging behaviors of children who may or may not go on to have a diagnosis with autism.
Topic Two: An introduction and brief overview of the Source4Networks platform
Session led by Rob Cockburn, Sustainable Improvement Team, NHS England
This topic provides an introduction and brief overview of the Source4Networks platform and its potential to support the Transforming Care Programme.
Learning Disabilities: Share and Learn Webinar Thursday 27 October 2016Paul Goulding
Topic one: What helps makes a successful Care and Treatment Review?
Guest speakers:
Anne Webster, Clinical Lead, Learning Disability Programme, NHS England
Gavin Harding, MBE, Learning Disability Advisor, Learning Disability Programme, NHS England
Maggie Graham, Learning Disability Programme, NHS England
The presentation focused on everyone’s role in a Care and Treatment Review and explored the vital role of the chair of the panel, the expert advisers and also people who attend a panel, for example the role of an advocate at a CTR.
The presentation was also provided an update on the policy refresh, what is happening and when, and a discussion about the role of the learning disability advisers in the programme.
Topic Two: Guidance for TCPs in relation to Children and Young People
Guest Speaker: Phil Brayshaw, NHS England
The presentation considered how Transforming Care Partnerships can plan and deliver local support and services for children, young people and their families. This is ahead of the publication of “Developing support and services for children and young people with learning disabilities and/or autism” later this year (November).
The presentation also considered each of the 9 principles of the Service Model: Supporting people with a learning disability and/or autism who display behaviour that challenges, including those with a mental health condition: Service model for commissioners of health and social care services, how they relate specifically to children and young people and what this will mean in terms of local commissioning intentions going forwards.
Learning Disabilities Share and Learn Webinar – 25 May 2017 - Children and yo...NHS England
Guest Speakers: Sue North and Maureen Banda, Children and Young People's Team, NHS England
The Children and Young People’s team at NHS England share the updated Care, Education and Treatment Review Policy, highlighting what is new. They also talk about the team’s focus and priorities for 2017/18 and the supplementary guidance for commissioners from the new service model. A parent carer who was involved in its development also joins the panel.
Learning Disabilities: Share and Learn Webinar – 30 March 2017NHS England
Topic: How can we meet the needs of children with complex behavioural challenge?
Guest speakers: Dame Christine Lenehan, Director,
Council for Disabled Children and Sue North, Acting Lead for Children and Young People Workstream, Transforming Care, Learning Disabilities Programme, NHS England
This webinar focuses on the work of the Lenehan Review which looked at children and young people with a diagnosis of learning disability, autism, mental health, challenging behaviour. Why does the system struggle currently and what could be done to change it so that children and young people have better outcomes.
Transforming Care: Share and Learn Webinar – 30 November 2017NHS England
Topic One: “What does good look like: Person-centred support to promoting positive outcomes for people with learning disability and autism”.
Guest speaker: Professor Julie Beadle-Brown, Professor in Intellectual and Developmental Disabilities at the Tizard Centre, University of Kent
This presentation introduces an evidence based practice framework for promoting positive outcomes for people with a learning disability, autism or both, including those who may display behaviours described as challenging. It considers what is needed for successful implementation, with a particular focus on practice leadership and introduce a tool for assessing and monitoring implementation. Participants can download the “What does good look like” guide and tool from https://www.unitedresponse.org.uk/what-does-good-look-like
Topic Two: High Impact Actions for service improvement and delivery by Transforming Care Partnerships.
Guest speaker: Emma Stark, Improvement Manager, Sustainable Improvement Team, NHS England
This presentation gives an in-depth reminder of the High Impact Actions for service improvement and delivery by Transforming Care Partnerships (TCP). Published a year ago this month, the High Impact Actions aim to help TCPs make the biggest strides forward in supporting people of all ages with a learning disability, autism or both to have a home within their community, be able to develop and maintain relationships and get the support they need to live health, safe and rewarding lives, thereby reducing the number of people in inpatient settings.
Guest speakers: Siobhan Gorry and Sarah Jackson - NHS England and Carl Shaw and David Gill – Learning Disability advisors
Understand about unnecessary admission to hospital and avoid lengthy stays, ensuring treatment has clearly defined outcomes, planning for discharge from admission (CTR policy)
Learn about specific pathways that will enable children and young people to remain with or near to family and get the support they need aligned to the service model
Hear about innovative ideas to be tested/evaluated of supporting CYP and families through a grants process
Understand how children and young people with LD and/or autism can leave school with a good education, health and care plan or other transition plan that supports their transition to adulthood leading to better outcomes for them and their families.
This talk was given to the Alberta Cancer Foundation in Calgary, January 2015. It looks at different approaches to public involvement in research funding by UK charities. It also includes some updated slides on the results of the Breaking Boundaries review.
Patient Engagement for Data Science, Technology & EngineeringCHICommunications
Learn the necessities and relationship between patient engagement and data science, engineering and technology.
Presented by Trish Roche, CHI's Knowledge Translation Practice Lead, this presentation is geared towards professionals in data science looking to hone their skills in patient engagement.
Why Patient Engagement Matters in Data Science, Engineering and TechnologyCHICommunications
This presentation, delivered on February 28, 2024, discusses and defines patient-oriented research as it relates to the fields of data science, engineering and technology.
Participants also learned about CHI's annual Preparing for Research by Engaging Patient and Public Partners (PREPPP) award.
chimb.ca
This presentation was delivered as part of a seminar to the Child Health Evaluative Sciences (CHES) Research Group, based at The Hospital for Sick Children (SickKids) in Toronto, ON, Canada. The presentation focused on the importance and some of the practicalities of involving young people in research.
Cihr guest presentation and webinar afternoon talk - january 2014Simon Denegri
Presentation on public involvement and engagement in health research: why, how and what next? Given to the staff of the Canadian Institutes for Health Research (CIHR), Ottawa, Canada, 2014
Let's Talk Research Annual Conference - 24th-25th September 2014 (Simon Denegri)NHSNWRD
"Let's talk patients and the public in research": Simon Denegri's talk looked at the key roles of patients, carers and the public in making research of public benefit happen.
Paving the way for a brighter future: Opportunities to involve young people ...Simon R. Stones
A presentation delivered at The University of Manchester's Child Health Research Network's workshop on devolution in Greater Manchester. The aim of the overall workshop was to explore the implications and opportunities for child health and wellbeing research in Greater Manchester. Here, I discussed the importance of involving young people and their families in co-designing services and research.
Isn't this about me? The role of patients and the public in implementing evid...NEQOS
Master Class, led by Professor Richard Thomson- focusing on the role of patients and public in implementing evidence-based healthcare- including shared decision making
Dr Patricia Gillen presents at the Doctoral Midwifery Research Society Alcohol & Medication in Pregnancy Conferene about 'Public & Practioner Engagement & involvement in Health & Social Care Research: Theory & Practice'
IPH Director of Research, Professor Kevin Balanda made a presentation entitled 'Some personal reflections on trans-disciplinary research for better population health & wellbeing' at the Irish Research Councils Horizon 2020 ‘Creative Connections’ workshop held on the 11 February 2014. He argued that comprehensive systems-wide solutions are needed to meet complex public health challenges and that these can only be supported by research that genuinely brings together the contributions of many disciplines and perspectives
The value off engaging patients in researchSimon Denegri
This is a talk I gave at the Council of Academic Hospitals of Ontario (CAHO) 'Healthier Wealthier, Smarter' conference in Toronto on 1st June 2015. Do visit their new website: http://caho-hospitals.com/
INVOLVE perspectives on learning and development (Sarah Buckland, INVOLVE)Nowgen
"INVOLVE perspectives on learning and development", presented by Sarah Buckland, INVOLVE, at the EUPATI-UK Network Conference on 6 March 2014 in Leeds, UK
Patient Engagement in Health Economic and Outcomes Research: Current and Future ISPOR Initiatives, presentation from the ISPOR 20th International meeting Philadelphia, May 2015, by the Patient Centered Special Interest Group
Similar to APA 2015_LM Brady involving cyp in research_03.15 (20)
Empowering ACOs: Leveraging Quality Management Tools for MIPS and BeyondHealth Catalyst
Join us as we delve into the crucial realm of quality reporting for MSSP (Medicare Shared Savings Program) Accountable Care Organizations (ACOs).
In this session, we will explore how a robust quality management solution can empower your organization to meet regulatory requirements and improve processes for MIPS reporting and internal quality programs. Learn how our MeasureAble application enables compliance and fosters continuous improvement.
One of the most developed cities of India, the city of Chennai is the capital of Tamilnadu and many people from different parts of India come here to earn their bread and butter. Being a metropolitan, the city is filled with towering building and beaches but the sad part as with almost every Indian city
CRISPR-Cas9, a revolutionary gene-editing tool, holds immense potential to reshape medicine, agriculture, and our understanding of life. But like any powerful tool, it comes with ethical considerations.
Unveiling CRISPR: This naturally occurring bacterial defense system (crRNA & Cas9 protein) fights viruses. Scientists repurposed it for precise gene editing (correction, deletion, insertion) by targeting specific DNA sequences.
The Promise: CRISPR offers exciting possibilities:
Gene Therapy: Correcting genetic diseases like cystic fibrosis.
Agriculture: Engineering crops resistant to pests and harsh environments.
Research: Studying gene function to unlock new knowledge.
The Peril: Ethical concerns demand attention:
Off-target Effects: Unintended DNA edits can have unforeseen consequences.
Eugenics: Misusing CRISPR for designer babies raises social and ethical questions.
Equity: High costs could limit access to this potentially life-saving technology.
The Path Forward: Responsible development is crucial:
International Collaboration: Clear guidelines are needed for research and human trials.
Public Education: Open discussions ensure informed decisions about CRISPR.
Prioritize Safety and Ethics: Safety and ethical principles must be paramount.
CRISPR offers a powerful tool for a better future, but responsible development and addressing ethical concerns are essential. By prioritizing safety, fostering open dialogue, and ensuring equitable access, we can harness CRISPR's power for the benefit of all. (2998 characters)
Antibiotic Stewardship by Anushri Srivastava.pptxAnushriSrivastav
Stewardship is the act of taking good care of something.
Antimicrobial stewardship is a coordinated program that promotes the appropriate use of antimicrobials (including antibiotics), improves patient outcomes, reduces microbial resistance, and decreases the spread of infections caused by multidrug-resistant organisms.
WHO launched the Global Antimicrobial Resistance and Use Surveillance System (GLASS) in 2015 to fill knowledge gaps and inform strategies at all levels.
ACCORDING TO apic.org,
Antimicrobial stewardship is a coordinated program that promotes the appropriate use of antimicrobials (including antibiotics), improves patient outcomes, reduces microbial resistance, and decreases the spread of infections caused by multidrug-resistant organisms.
ACCORDING TO pewtrusts.org,
Antibiotic stewardship refers to efforts in doctors’ offices, hospitals, long term care facilities, and other health care settings to ensure that antibiotics are used only when necessary and appropriate
According to WHO,
Antimicrobial stewardship is a systematic approach to educate and support health care professionals to follow evidence-based guidelines for prescribing and administering antimicrobials
In 1996, John McGowan and Dale Gerding first applied the term antimicrobial stewardship, where they suggested a causal association between antimicrobial agent use and resistance. They also focused on the urgency of large-scale controlled trials of antimicrobial-use regulation employing sophisticated epidemiologic methods, molecular typing, and precise resistance mechanism analysis.
Antimicrobial Stewardship(AMS) refers to the optimal selection, dosing, and duration of antimicrobial treatment resulting in the best clinical outcome with minimal side effects to the patients and minimal impact on subsequent resistance.
According to the 2019 report, in the US, more than 2.8 million antibiotic-resistant infections occur each year, and more than 35000 people die. In addition to this, it also mentioned that 223,900 cases of Clostridoides difficile occurred in 2017, of which 12800 people died. The report did not include viruses or parasites
VISION
Being proactive
Supporting optimal animal and human health
Exploring ways to reduce overall use of antimicrobials
Using the drugs that prevent and treat disease by killing microscopic organisms in a responsible way
GOAL
to prevent the generation and spread of antimicrobial resistance (AMR). Doing so will preserve the effectiveness of these drugs in animals and humans for years to come.
being to preserve human and animal health and the effectiveness of antimicrobial medications.
to implement a multidisciplinary approach in assembling a stewardship team to include an infectious disease physician, a clinical pharmacist with infectious diseases training, infection preventionist, and a close collaboration with the staff in the clinical microbiology laboratory
to prevent antimicrobial overuse, misuse and abuse.
to minimize the developme
R3 Stem Cells and Kidney Repair A New Horizon in Nephrology.pptxR3 Stem Cell
R3 Stem Cells and Kidney Repair: A New Horizon in Nephrology" explores groundbreaking advancements in the use of R3 stem cells for kidney disease treatment. This insightful piece delves into the potential of these cells to regenerate damaged kidney tissue, offering new hope for patients and reshaping the future of nephrology.
Leading the Way in Nephrology: Dr. David Greene's Work with Stem Cells for Ki...Dr. David Greene Arizona
As we watch Dr. Greene's continued efforts and research in Arizona, it's clear that stem cell therapy holds a promising key to unlocking new doors in the treatment of kidney disease. With each study and trial, we step closer to a world where kidney disease is no longer a life sentence but a treatable condition, thanks to pioneers like Dr. David Greene.
Medical Technology Tackles New Health Care Demand - Research Report - March 2...pchutichetpong
M Capital Group (“MCG”) predicts that with, against, despite, and even without the global pandemic, the medical technology (MedTech) industry shows signs of continuous healthy growth, driven by smaller, faster, and cheaper devices, growing demand for home-based applications, technological innovation, strategic acquisitions, investments, and SPAC listings. MCG predicts that this should reflects itself in annual growth of over 6%, well beyond 2028.
According to Chris Mouchabhani, Managing Partner at M Capital Group, “Despite all economic scenarios that one may consider, beyond overall economic shocks, medical technology should remain one of the most promising and robust sectors over the short to medium term and well beyond 2028.”
There is a movement towards home-based care for the elderly, next generation scanning and MRI devices, wearable technology, artificial intelligence incorporation, and online connectivity. Experts also see a focus on predictive, preventive, personalized, participatory, and precision medicine, with rising levels of integration of home care and technological innovation.
The average cost of treatment has been rising across the board, creating additional financial burdens to governments, healthcare providers and insurance companies. According to MCG, cost-per-inpatient-stay in the United States alone rose on average annually by over 13% between 2014 to 2021, leading MedTech to focus research efforts on optimized medical equipment at lower price points, whilst emphasizing portability and ease of use. Namely, 46% of the 1,008 medical technology companies in the 2021 MedTech Innovator (“MTI”) database are focusing on prevention, wellness, detection, or diagnosis, signaling a clear push for preventive care to also tackle costs.
In addition, there has also been a lasting impact on consumer and medical demand for home care, supported by the pandemic. Lockdowns, closure of care facilities, and healthcare systems subjected to capacity pressure, accelerated demand away from traditional inpatient care. Now, outpatient care solutions are driving industry production, with nearly 70% of recent diagnostics start-up companies producing products in areas such as ambulatory clinics, at-home care, and self-administered diagnostics.
Deep Leg Vein Thrombosis (DVT): Meaning, Causes, Symptoms, Treatment, and Mor...The Lifesciences Magazine
Deep Leg Vein Thrombosis occurs when a blood clot forms in one or more of the deep veins in the legs. These clots can impede blood flow, leading to severe complications.
Health Education on prevention of hypertensionRadhika kulvi
Hypertension is a chronic condition of concern due to its role in the causation of coronary heart diseases. Hypertension is a worldwide epidemic and important risk factor for coronary artery disease, stroke and renal diseases. Blood pressure is the force exerted by the blood against the walls of the blood vessels and is sufficient to maintain tissue perfusion during activity and rest. Hypertension is sustained elevation of BP. In adults, HTN exists when systolic blood pressure is equal to or greater than 140mmHg or diastolic BP is equal to or greater than 90mmHg. The
CHAPTER 1 SEMESTER V PREVENTIVE-PEDIATRICS.pdfSachin Sharma
This content provides an overview of preventive pediatrics. It defines preventive pediatrics as preventing disease and promoting children's physical, mental, and social well-being to achieve positive health. It discusses antenatal, postnatal, and social preventive pediatrics. It also covers various child health programs like immunization, breastfeeding, ICDS, and the roles of organizations like WHO, UNICEF, and nurses in preventive pediatrics.
2. Consultation is the process by which children
and young people are asked their opinions – on a
specific issue or broader agenda (eg as research
participants)
Participation/involvement is the process by
which individuals and groups of individuals can
influence decision-making and bring about
change (eg through involvement in the planning
and process of research)
Participation Works
What do we mean by
involvement?
3. INVOLVE definitions
Involvement: Where members of the public are
actively involved in research projects and in
research organisations
Participation: Where people take part in a research
study
Engagement: Where information and knowledge
about research is provided and disseminated
INVOLVE (2012). Briefing notes for researchers. www.invo.org.uk
4. Defining public involvement
INVOLVE define ‘public involvement as:
“research being carried out ‘with’ or ‘by’ members of
the public rather than ‘to’, ‘about’ or ‘for’ them”
The public are defined as including:
“patients, potential patients, carers and people who
use health and social care services as well as people
from organisations that represent people who use
services… [as distinct from] people who have a
professional role in health and social care services”
INVOLVE (2012). Briefing notes for researchers. www.invo.org.uk
5.
6. Article 12 . Every child and young person has the
right to express his or her views freely in all matters
affecting them
Article 13. CYP have the right to freedom of
expression, including the right to all kinds of
information and ideas
Article 24: CYP have the right to
good quality health care and
information to help them stay
healthy
UN Convention on the Rights
of the Child (UNCRC)
7. General comment on Article 24
Article 12 highlights the importance of children’s participation...This
includes their views on all aspects of health provisions, including, for
example, what services are needed, how and where they are best
provided, barriers to accessing or using services, the quality of the
services and the attitudes of health professionals, how to strengthen
children’s capacities to take increasing levels of responsibility for their
own health and development, and how to involve them more effectively
in the provision of services, as peer educators. States are encouraged
to conduct regular participatory consultations, which are adapted to the
age and maturity of the child, and research with children, and to do this
separately with their parents, in order to learn about their health
challenges, developmental needs and expectations as a contribution to
the design of effective interventions and health programmes” (UN,
2013).
8. Rights in legislation, policy and
practice
1989 Children Act
2014 Children and Families Act
Children’s Health Outcomes Forum
YP’s participation in national NHS structures and
processes
Tools and quality criteria: Hear by Right, You’re
Welcome, Young People Friendly
Continued NIHR commitment to public involvement
& increasing interest in public involvement with CYP
Campaigning work of organisations working with
CYP and young people’s groups
9. “This expectation for patient and public
participation has no age limit. Children and
young people…should be encouraged and
facilitated to participate in decisions about their
own care and, more broadly, about the health
and social care services and policies that
affect them”.
Annual Report of the Chief Medical Officer
2012 - Our Children Deserve Better:
Prevention Pays (DH, 2013).
11. What we aspire to:
A dynamic partnership between
the public, researchers and others,
to advance NHS, public health and
social care research and improve
the health and well being of the
population
A national advisory group funded
by, and part of, the National
Institute for Health Research.
What is INVOLVE?
Simon Denegri
Chair of INVOLVE &
NIHR National Director for
Public Participation and
Engagement in Research
How we do it:
INVOLVE Strategy 2012–15
Annual operating plans
INVOLVE Members
INVOLVE Coordinating Centre
Annual Budget approx £750k
12. 29 current INVOLVE members
service users
carers
members of the public
researchers
public involvement specialists
research managers
health and social care practitioners
people from voluntary sector
organisations
INVOLVE members
INVOLVE members 2013
See: www.involve.nihr.ac.uk/about-involve/who-are-involve/
13. LEAD across
the National
Institute for
Health Research
Build and
share the
EVIDENCE
BASE
Develop
CAPACITY
and
CAPABILITY
Influence
research
POLICY and
PRACTICE
WORKING IN PARTNERSHIP
Work of INVOLVE
14. LEAD on public involvement across the NIHR
INVOLVE supports shared learning
groups for public involvement with:
NIHR Research Programmes
NIHR Collaborations for Leadership
in Applied Health Research and Care
Sharing knowledge
and experience
INVOLVE’s
mailing list
4,000+ people
40+ countries
Responding to individual
enquiries from members
of the public, researchers
and others
15. Build and share the EVIDENCE BASE
Evidence Library
www.involve.nihr.ac.uk/resource-
centre/evidence-library/
An on line database of nearly 300
summaries of reports on the nature,
extent, impact and reflections on public
involvement in research.
invoNET
www.involve.nihr.ac.uk/invonet/
A network of 200+ people with a
shared interest in researching public
involvement in research.
invoNET 2012
16. Develop CAPACITY and CAPABILITY
Briefing Notes for Researchers:
www.involve.nihr.ac.uk/resource-
centre/resource-for-researchers/
INVOLVE Conference
www.involve.nihr.ac.uk/news/confe
rence/
Visit: www.involve.nihr.ac.uk
17. Influence research POLICY and PRACTICE
•facilitating and leading on coordination of
public involvement across the NIHR
•developing new and existing partnerships
and alliances to promote public involvement
in research.
•improving accessibility of research to the
public
18. 3 things you can do:
1. Sign up to receive our newsletter
and email alerts: www.involve.nihr.ac.uk/about-
involve/keep-in-touch/sign-up-for-mailing-list/
1. Explore our websites:
www.involve.nihr.ac.uk
www.peopleinresearch.org
2. Contact us INVOLVE:
Telephone: 023 8065 1088
Email: admin@invo.org.uk
19. Editors-in-Chief:
Sophie Staniszewska (UK)
Richard Stephens (UK)
researchinvolvement.com
biomedcentral.com
• High visibility – permanent,
unrestricted, free online access
• Respected Editorial Board
committed to the values of
Involvement and Engagement
• Rapid and thorough peer review
• Only international journal
co-produced by patients and
researchers
20. Why involve children and YP in
research?
Involving those on whom
research is focused can have
a positive impact on what is
researched, how research is
conducted and the impact of
research findings (Staley, 2009)
Increasing recognition that involving children and young
people in research is not the same as involving adults
Debates in patient and public involvement about who
does, and who doesn’t, get involved in research
Tom’s story: http://www.invo.org.uk/thisismystory/
21. How we see children and YP
Objects of inquiry, vulnerable,
adults-in-waiting or ….
social actors + childhood a social
space in which children can
and do have agency?
Development of research with children and young
people has coincided with the development of the
children's rights movement , reflected in policy,
legislation and practice
Increasing interest in children’s involvement in
research, both as sources of data and through their
active involvement in the research process
22. A model of children and young people’s
involvement in research (NCB, 2011)
CYP have increasing control of the research process
CYP have
ownership of
the research
CYP are
sources of
research
data
CYP are actively involved in aspects of the
planning and process of research
CYP are
research
participants
CYP are
collaborators in
the research
CYP are
consulted about
the research
23. Practical and ethical considerations
Recruitment
Gatekeepers and role of parents and carers
Consent and data protection
Availability
Communication
Induction, training and support
Reward and recognition
Child protection, safeguarding and safety
25. Clinical Research Network
Children
•Learn about health/clinical research in monthly meetings
•support and work in partnership with researchers in the
delivery of health research
•provide input and collaborate with key organisations
such as National Research Ethics Service (NRES), Royal
College Paediatrics Child Health (RCPCH), NIHR Clinical
Research Facilities (CRFs), R&D within Hospitals,
Academic Health Science Networks (AHSNs) to promote
the research agenda and more importantly the
involvement and engagement of young people in their
processes
•Video: http://www.crn.nihr.ac.uk/children/pcpie/young-
persons-advisory-group/
Role of the group
26. Clinical Research Network
Children
Key Achievements
Improving
the quality of
studies
Ethical
Guidance
Outreach
& Awareness
in the
Community –
Science Fairs,
Conferences, School
visits
Awareness
Raising &
Education
27. www.decipher.uk.net
ALPHA – Advice Leading to Public
Health Advancement
The work was undertaken with the support of The Centre for the Development and Evaluation of
Complex Interventions for Public Health Improvement (DECIPHer), a UKCRC Public Health Research
Centre of Excellence. Joint funding (MR/KO232331/1) from the British Heart Foundation, Cancer
Research UK, Economic and Social Research Council, Medical Research Council, the Welsh
Government and the Wellcome Trust, under the auspices of the UK Clinical Research Collaboration, is
gratefully acknowledged.
28. www.decipher.uk.net
DECIPHer has infrastructure funding for public involvement. Benefits to this
model are:
• Employment of staff specifically to support public involvement.
• Finances to resource public involvement (paying for transport etc.) and
incentives.
• Develop long term relationships between young people and researchers.
• Engage in reflective practice so continuously learning about involvement.
• Involve public during project bid development which is often hard to
finance. So researchers get a FREE session during bid development but
must cost group into bid for on-going sessions to ensure sustainability of
group.
• Video and more info: http://decipher.uk.net/public-involvement/young-
people/
29. www.decipher.uk.net
• 15-25 young people aged 14-21 from South Wales advise on public
health projects.
• Recruited through youth clubs and youth development projects.
• Meet on Saturdays at Cardiff University for 10 months of the year and
have a weekend residential. Do not meet May to middle of June due to
exams.
• Initial training about public health and research. On-going training as
needed/requested by young people.
• Since April 2012 had 28 meetings with an average of 9 attendees.
• Involved in 19 projects, several on two or more stages of the research
cycle.
• Worked with Welsh Government on an International Survey and NIHR as
reviewers.
• Co-authored 4 DECIPHer blogs, 1 article for INVOLVE and produced 3
films.
30. www.decipher.uk.net
Example Project – Exposure to alcohol advertising through social media
February 2013 (bid development free session) – 11 young people – issues with
confidentiality; seemed a lot of hassle to upload software onto computer;
incentives important.
June 2014 – 10 young people - Developing up the name and
mascot for the study – Digi Booze Ad; expressed how
important the study recruitment materials would be.
October 2014 – 6 young people - helped to write and design
the consent forms, participant information booklet and
leaflet. Currently these are with ethics committee.
Future work – Money to include more sessions with young people as
needed for example with recruitment and retention.
31. : our voices, our health
A Wellcome-funded project by NCB Research Centre
with the Public Health Research Consortium, supporting
20 young people to contribute to UK public health
research and policy
Worked with public health researchers, policymakers and
research bodies
Produced research summaries and
guidance
Spoke at events and conferences
Commissioned own research project
Organised a conference
Website with more info & evaluation
(www.ncb.org.uk/PEAR)
32. Supporting young people’s involvement in an
adaptation and feasibility study of an intervention
for young people who misuse alcohol and drugs
Initial aim: set-up & run a national advisory group
(YP with experience of alcohol/drug services) to
work with researchers throughout the project
Best laid plans! – this model did not work
as we hoped so we have developed a
more flexible & localised model
YPAGs are not the only model
33. YP’s involvement has been extremely helpful and has
informed key elements of the intervention
Need YP with specific experience but this is a group who
can be difficult to access and to keep engaged
The support and engagement of services has been crucial
Traditional advisory group model in one location hasn’t
been effective or accessible, and also not been possible
for many YP to have l/t, on-going involvement
Flexible, local and YP-centred engagement has worked
better – starting where YP are if possible
But YP also want to meet the whole team and each other
Managing sensitive nature of topics discussed and
personal nature of the work.
What we’re learning
34. Challenging the myths – young people’s views
Research is too difficult for young people to understand
– give us training and support and think about how you can
make information clear and accessible. Then we can understand
a lot more!
Young people don’t have the skills and knowledge that adult
researchers have
- but adults can assume that they know what matters to young
people, and what questions to ask them. We have expertise in
being young people, and you may learn something from us!
My boss/ the person funding the research will like it
– don’t do it just because you think it looks good! Be clear about
the benefits for the research and us, and be really committed to
involving us properly
35. Planning involvement
Are there particular groups of CYPFs you could or
should involve?
What type or model of involvement would be
appropriate for your research/the CYPFs you wish to
involve?
Is it possible to consult other CYPFs on your
proposed plans?
And what stages of the research, and in what roles,
could CYPFs be involved?
Is involvement adequately resourced (costs, staff
time etc) or is the involvement planned possible
within available resources?
Do you have sufficient involvement expertise within
the team, or know where to access this?
36. More information
INVOLVE webpages on CYP’s involvement:
http://www.invo.org.uk/find-out-more/involving-children-and-
young-people/
+ Spring 2015 newsletter focused on CYP involvement
Young Health Participation: Blog about CYP’s
participation in health services and research, including
presentations, guest posts from young people and further
information: www.younghealthparticipation.com
@louca_mai