The document summarizes presentations from a 2015 National Conference on Health Statistics. It discusses the role of the National Committee on Vital and Health Statistics (NCVHS) in advising the Department of Health and Human Services (HHS) on health data policy and standards. Key points include the NCVHS providing recommendations to improve community access to and use of health data, as well as guidance on a framework for stewardship of community health data. The document also discusses efforts to increase the usability, accessibility, and utility of federal health data resources.
Updates on the BioSense Program Redesign: 2011 Public Health Preparedness SummitTaha Kass-Hout, MD, MS
Most state and local health departments are involved in on-going traditional disease surveillance and are beginning to access information through health information exchange with clinical partners. Biosurveillance initiatives offer the opportunity to leverage these existing initiatives while providing important data to protect community health. Building on these existing activities and relationships is key to the success of national initiatives such as BioSense Redesign and meaningful use of electronic health records as a component of the evolving nationwide health information network (NHIN). During this session/workshop, the National Association of County and City Health Officials (NACCHO) and the Association of State and Territorial Health Officials (ASTHO) in association with the Centers for Disease Control and Prevention will address discuss the BioSense redesign effort and provide opportunities for extended engagement of local and state health officials. This workshop encourages the participation of public health emergency responders, and local public health personnel involved in bio-surveillance for emergency preparedness and response within their jurisdictions.
FTC Spring Privacy Series: Consumer Generated and Controlled Health DataBrian Ahier
Increasingly, consumers are taking a more active role in managing and generating their own health data. For example, consumers are researching their health conditions and diagnosing themselves online. Consumers are also uploading their information into personal health records and apps that allow them to manage and analyze their data, and utilizing connected health and fitness devices that regularly collect information about them and transmit this information to other entities.
The movement of health data outside the traditional medical provider context has many potential benefits; however, it also raises potential privacy concerns. The seminar will address questions such as:
What types of websites, products, and services are consumers using to generate and control their health data, and how are consumers using them?
Who are the companies behind these websites, products, and services, what are their business models, and what does the current marketplace look like?
How can consumers benefit from these companies’ websites, products, and services?
What actions are these companies taking to protect consumers’ privacy and security?
What do consumers expect from these companies regarding privacy and security protections?
Do consumers differentiate between these companies and those that offer traditional medical products and services that are covered by HIPAA?
What restrictions, if any, do advertising networks and others impose on tracking of health data?
Big Data and VistA Evolution, Theresa A. Cullen, MD, MSBrian Ahier
Presentation to Open Source Electronic Health Record Alliance (OSEHRA) Architecture Work Group by Theresa A. Cullen, MD, MS
Chief Medical Information Officer
Director, Health Informatics
Office of Informatics and Analytics
Veterans Health Administration
Department of Veterans Affairs
Updates on the BioSense Program Redesign: 2011 Public Health Preparedness SummitTaha Kass-Hout, MD, MS
Most state and local health departments are involved in on-going traditional disease surveillance and are beginning to access information through health information exchange with clinical partners. Biosurveillance initiatives offer the opportunity to leverage these existing initiatives while providing important data to protect community health. Building on these existing activities and relationships is key to the success of national initiatives such as BioSense Redesign and meaningful use of electronic health records as a component of the evolving nationwide health information network (NHIN). During this session/workshop, the National Association of County and City Health Officials (NACCHO) and the Association of State and Territorial Health Officials (ASTHO) in association with the Centers for Disease Control and Prevention will address discuss the BioSense redesign effort and provide opportunities for extended engagement of local and state health officials. This workshop encourages the participation of public health emergency responders, and local public health personnel involved in bio-surveillance for emergency preparedness and response within their jurisdictions.
FTC Spring Privacy Series: Consumer Generated and Controlled Health DataBrian Ahier
Increasingly, consumers are taking a more active role in managing and generating their own health data. For example, consumers are researching their health conditions and diagnosing themselves online. Consumers are also uploading their information into personal health records and apps that allow them to manage and analyze their data, and utilizing connected health and fitness devices that regularly collect information about them and transmit this information to other entities.
The movement of health data outside the traditional medical provider context has many potential benefits; however, it also raises potential privacy concerns. The seminar will address questions such as:
What types of websites, products, and services are consumers using to generate and control their health data, and how are consumers using them?
Who are the companies behind these websites, products, and services, what are their business models, and what does the current marketplace look like?
How can consumers benefit from these companies’ websites, products, and services?
What actions are these companies taking to protect consumers’ privacy and security?
What do consumers expect from these companies regarding privacy and security protections?
Do consumers differentiate between these companies and those that offer traditional medical products and services that are covered by HIPAA?
What restrictions, if any, do advertising networks and others impose on tracking of health data?
Big Data and VistA Evolution, Theresa A. Cullen, MD, MSBrian Ahier
Presentation to Open Source Electronic Health Record Alliance (OSEHRA) Architecture Work Group by Theresa A. Cullen, MD, MS
Chief Medical Information Officer
Director, Health Informatics
Office of Informatics and Analytics
Veterans Health Administration
Department of Veterans Affairs
Individuals’ digital health data—and data with implications for health—is nearly everywhere, collected in electronic medical records, claims records, government health databases, and from consumers and patients using devices, mobile apps, and internet-connected tools. This digital health explosion provides unprecedented opportunities for secondary use (or “re-use”) of this data to improve individual and population health. This panel will explore the ethical and legal challenges raised by re-use of health data for a range of purposes and consider potential solutions to meet these challenges and build trust in responsible re-uses of health data to improve health and well-being.
• Deven McGraw - Partner, Manatt, Phelps & Phillips, LLP
• Julia Bernstein - Business Development & Strategy, Ginger.io
• David Goldsmith - Executive Director, Dossia
• Raffaella Hart, CIP - Vice President, IRB and IBC Services, Biomedical Research Alliance of New York
• Arthur Levin - Co-Founder and Director, Center for Medical Consumers
• Patrick Roohan - Director of the Office of Quality and Patient Safety (OQPS), New York State Department of Health
New York eHealth Collaborative Digital Health Conference
November 17, 2014
Webinar: Information Technology: How to achieve interoperability across the c...Modern Healthcare
Visit the webinar information page:
http://www.modernhealthcare.com/article/20140507/INFO/305079925/
About the Webinar
For most healthcare providers, clinical interoperability remains more of a goal than a reality. This year, the feds are ratcheting up the pressure on providers to incorporate information exchange as part of their daily clinical workflows. To do it, they've built several interoperability requirements into the Stage 2 meaningful use criteria of the electronic health record incentive payment program. We'll explore how to leverage meaningful use interoperability as a basis to improve clinical communications between affiliated and non-affiliated providers, increase patient satisfaction and ramp up for the future with value-based, consumer-focused care.
Join us for this one-hour webinar to learn:
- The basic requirements for interoperability in the Stage 2 meaningful use criteria
- Strategies for implementing a compliant data collection and reporting program
- Pitfalls to avoid and data interpretation issues that need to be addressed
Panelists:
Dr. Clifford Martin
Chief Medical Officer
St. Joseph Physician Network
Dr. Richard Schrieber
Chief Medical Information Officer
Holy Spirit Hospital
Erica Galvez
Interoperability and Exchange Portfolio Manager
Office of the National Coordinator for Health IT
Moderator:
Joseph Con
Health Information Technology Reporter
Modern Healthcare
As new payment models emerge that emphasize value over volume, providers are being compelled to look more closely at how to motivate patients—especially those with multiple chronic conditions—to actively manage their care, make better decisions and change behaviors. This editorial webinar will explore the relationships between engagement and improved health outcomes, greater patient satisfaction and better resource utilization. Our panel of experts will share proven strategies for building patients' confidence, disseminating self-management tools and making the best use of your care team.
Development and implementation of a system to support prediction of suicide risk in the Department of Veterans Affairs - DR. Robert Bossarte and Paul Bradley
Real-Time Biosurveillance Program Pilot - India & Sri LankaNuwan Waidyanatha
The Biosurv program was tailored for a range of functions. Its main objective program was the rapid detection and
notification of any possible health outbreak using cutting edge information processing technology. The
mHealthSurvey application takes a few seconds to enter each patient's disease information. This rich dataset is sent over the existing commercial GPRS channels to
a centralized database. With such techniques, the
incoming health data can be automatically monitored for unusual changes in the numbers of reported disease
cases. The same data is also used to characterize statistical relationships between all available combinations of reported genders, locations, ages, symptoms and signs, etc., even if the number of such combinations is
prohibitively large for humans to process. That enables epidemiologists to pin down a potential outbreak of, for
instance, a gastrointestinal disease among children living in the Southwestern suburbs of the city, before it
spreads to other areas or to other demographic groups. T-Cube Web Interface (TCWI) and its underlying disease
outbreak detection algorithms are capable of reducing time-intensive calculations involved in such analyses from
hours or days down to as quick as turning on a light switch.
Presentation 90-10-funding-opportunity-for-health-infomation-exchangesOrion Health
How can HIEs access 90/10 and Federal funding and expand their exchange
We examined the opportunities to capture funding from CMS to develop core HIE services, public health infrastructure, electronic Clinical Quality Measurement (eCQM) infrastructure, and provider onboarding.
This webinar demonstrated how to some innovative HIEs are leveraging these grants and have elected multiple funded activities to boost growth, expand regional interoperability, and upgrade to higher performing technology stacks.
George Beckett, Chief Business Development Officer at the Cedar Bridge Group and Orion Health’s Director, Laura Young, about the process to request funding for health information exchange (HIE) infrastructure.
In this webinar, we explained:
1. The CMS 90/10 funding opportunities for private and public HIEs
2. The funding strategy used by NDHIN and their 5-year business plan
3- How NDHIN has created a solid data foundation for their data strategy and how they are expanding their infrastructure
Delivered by Craig Brammer at CITIH 2011. Focus on discussion of regional and national initiatives and opportunities for regional partners to leverage them for driving healthcare improvements, public health and research.
This session will provide a broad perspective on the many initiatives related to HIT. Experts from the regional and national level will discuss data models, privacy concerns and adoption strategies from their different perspectives. Also addressed will be planning for NHIN direct adoption as a complimentary strategic to full HIEs.
Individuals’ digital health data—and data with implications for health—is nearly everywhere, collected in electronic medical records, claims records, government health databases, and from consumers and patients using devices, mobile apps, and internet-connected tools. This digital health explosion provides unprecedented opportunities for secondary use (or “re-use”) of this data to improve individual and population health. This panel will explore the ethical and legal challenges raised by re-use of health data for a range of purposes and consider potential solutions to meet these challenges and build trust in responsible re-uses of health data to improve health and well-being.
• Deven McGraw - Partner, Manatt, Phelps & Phillips, LLP
• Julia Bernstein - Business Development & Strategy, Ginger.io
• David Goldsmith - Executive Director, Dossia
• Raffaella Hart, CIP - Vice President, IRB and IBC Services, Biomedical Research Alliance of New York
• Arthur Levin - Co-Founder and Director, Center for Medical Consumers
• Patrick Roohan - Director of the Office of Quality and Patient Safety (OQPS), New York State Department of Health
New York eHealth Collaborative Digital Health Conference
November 17, 2014
Webinar: Information Technology: How to achieve interoperability across the c...Modern Healthcare
Visit the webinar information page:
http://www.modernhealthcare.com/article/20140507/INFO/305079925/
About the Webinar
For most healthcare providers, clinical interoperability remains more of a goal than a reality. This year, the feds are ratcheting up the pressure on providers to incorporate information exchange as part of their daily clinical workflows. To do it, they've built several interoperability requirements into the Stage 2 meaningful use criteria of the electronic health record incentive payment program. We'll explore how to leverage meaningful use interoperability as a basis to improve clinical communications between affiliated and non-affiliated providers, increase patient satisfaction and ramp up for the future with value-based, consumer-focused care.
Join us for this one-hour webinar to learn:
- The basic requirements for interoperability in the Stage 2 meaningful use criteria
- Strategies for implementing a compliant data collection and reporting program
- Pitfalls to avoid and data interpretation issues that need to be addressed
Panelists:
Dr. Clifford Martin
Chief Medical Officer
St. Joseph Physician Network
Dr. Richard Schrieber
Chief Medical Information Officer
Holy Spirit Hospital
Erica Galvez
Interoperability and Exchange Portfolio Manager
Office of the National Coordinator for Health IT
Moderator:
Joseph Con
Health Information Technology Reporter
Modern Healthcare
As new payment models emerge that emphasize value over volume, providers are being compelled to look more closely at how to motivate patients—especially those with multiple chronic conditions—to actively manage their care, make better decisions and change behaviors. This editorial webinar will explore the relationships between engagement and improved health outcomes, greater patient satisfaction and better resource utilization. Our panel of experts will share proven strategies for building patients' confidence, disseminating self-management tools and making the best use of your care team.
Development and implementation of a system to support prediction of suicide risk in the Department of Veterans Affairs - DR. Robert Bossarte and Paul Bradley
Real-Time Biosurveillance Program Pilot - India & Sri LankaNuwan Waidyanatha
The Biosurv program was tailored for a range of functions. Its main objective program was the rapid detection and
notification of any possible health outbreak using cutting edge information processing technology. The
mHealthSurvey application takes a few seconds to enter each patient's disease information. This rich dataset is sent over the existing commercial GPRS channels to
a centralized database. With such techniques, the
incoming health data can be automatically monitored for unusual changes in the numbers of reported disease
cases. The same data is also used to characterize statistical relationships between all available combinations of reported genders, locations, ages, symptoms and signs, etc., even if the number of such combinations is
prohibitively large for humans to process. That enables epidemiologists to pin down a potential outbreak of, for
instance, a gastrointestinal disease among children living in the Southwestern suburbs of the city, before it
spreads to other areas or to other demographic groups. T-Cube Web Interface (TCWI) and its underlying disease
outbreak detection algorithms are capable of reducing time-intensive calculations involved in such analyses from
hours or days down to as quick as turning on a light switch.
Presentation 90-10-funding-opportunity-for-health-infomation-exchangesOrion Health
How can HIEs access 90/10 and Federal funding and expand their exchange
We examined the opportunities to capture funding from CMS to develop core HIE services, public health infrastructure, electronic Clinical Quality Measurement (eCQM) infrastructure, and provider onboarding.
This webinar demonstrated how to some innovative HIEs are leveraging these grants and have elected multiple funded activities to boost growth, expand regional interoperability, and upgrade to higher performing technology stacks.
George Beckett, Chief Business Development Officer at the Cedar Bridge Group and Orion Health’s Director, Laura Young, about the process to request funding for health information exchange (HIE) infrastructure.
In this webinar, we explained:
1. The CMS 90/10 funding opportunities for private and public HIEs
2. The funding strategy used by NDHIN and their 5-year business plan
3- How NDHIN has created a solid data foundation for their data strategy and how they are expanding their infrastructure
Delivered by Craig Brammer at CITIH 2011. Focus on discussion of regional and national initiatives and opportunities for regional partners to leverage them for driving healthcare improvements, public health and research.
This session will provide a broad perspective on the many initiatives related to HIT. Experts from the regional and national level will discuss data models, privacy concerns and adoption strategies from their different perspectives. Also addressed will be planning for NHIN direct adoption as a complimentary strategic to full HIEs.
are increasing the importance of environmental ethics has started to take pre...KhalidMdBahauddin
are increasing the importance of environmental ethics has started to take precedence making its global issue. as this issue do not respect National boundaries
MEASURE Evaluation’s Health Information System Strengthening ModelMEASURE Evaluation
This PowerPoint presentation provides an updated overview of MEASURE Evaluation’s Health Information System Strengthening Model, or the HISS Model. The slides describe the purpose of the model and each of the model’s areas and sub-areas.
NCompass Live - April 6, 2022
http://nlc.nebraska.gov/ncompasslive/
Answering your patrons’ health questions can be daunting. It requires expertise and being able to break through literacy and language barriers. However, as the past two years have shown us, libraries’ involvement in health education has never been more important than it is today. As a Catalysts for Community Health Fellows through the Institute of Museum and Library Services and The University of Missouri-Columbia, we’ve spent the last two years developing knowledge of community health resources for Nebraska public libraries and researching ways to support public library staff with health reference and education to their communities.
With the guidance of Region 3 of the National Network of Libraries of Medicine, we’ve developed a tool-kit for Nebraska public libraries containing free health resources for you and your library. These include posters, brochures, social media slides, tutorials, and multi-lingual health information. In addition, the tool-kit expands on further training for your staff, funding opportunities, and how to tap in to regional medical librarians and community health data to continue to support your patrons’ health needs. We’re excited to share this tool-kit with all of you and make it freely available to webinar participants to use and share as they wish.
Presenters: Melanie Newell and Kimberly Rothgeb are IMLS Catalysts for Community Health Fellows at the University of Missouri-Columbia School of Information Science and Learning Technologies (SISLT). Melanie is a Lincoln City Libraries employee, and Kimberly works for the University of Nebraska Medical Center.
The HHS Health Data Initiative (HDI) Strategy & Execution Plan with Damon DavisHealth Data Consortium
Watch the webinar here: http://www.screencast.com/t/a43QB5zqjP5
Damon Davis, Director of the Health Data Initiative at the U.S. Department of Health and Human Services, discussed HHS' new Health Data Strategy and Execution Plan. Since the Department of Health and Human Services (HHS) launched its efforts to make the vast array of data resources it curates openly available for public consumption in 2010, the data available in HealthData.gov catalog has grown exponentially. HHS’s efforts to release data for the purpose of sparking innovations in healthcare and the delivery of human services is known as the Health Data Initiative (HDI). The mission of HDI is to help improve health, healthcare, and the delivery of human services by harnessing the power of data and fostering a culture of innovative uses of data in public and private sector institutions, communities, research groups, and policy making arenas.
Discover more health data resources on our website at http://www.healthdataconsortium.org/
Health Equity Advisory Group Recommendations 06-19-2020Franklin Matters
DPH Commissioner Monica Bharel convened the COVID-19 Health Equity Advisory Group to advise DPH on the needs of communities and populations disproportionately impacted by the COVID-19 pandemic.
2013 National Network of Libraries of Medicine: New England Region NAHSL UpdateElaine Martin
UMass Medical School's Library Director Elaine Martin presents the National Network of Libraries of Medicine: New England Region's 2013 update at NAHSL. The presentation features new developments and initiatives, such as eScience, public health outreach, knowledge management services, technology improvements, and focused community outreach projects. The presentation also features funding sources.
BUILDing Multi-Sector Collaborations to Advance Community HealthPractical Playbook
The Practical Playbook
National Meeting 2016
www.practicalplaybook.org
Bringing Public Health and Primary Care Together: The Practical Playbook National Meeting was at the Hyatt Regency in Bethesda, MD, May 22 - 24, 2016. The meeting was a milestone event towards advancing robust collaborations that improve population health. Key stakeholders from across sectors – representing professional associations, community organizations, government agencies and academic institutions – and across the country came together at the National Meeting to help catalyze a national movement, accelerate collaborations by fostering skill development, and connect with like-minded individuals and organizations to facilitate the exchange of ideas to drive population health improvement.
The National Meeting was also a significant source of tools and resources to advance collaboration. These tools and resources are available below and include:
Session presentations and materials
Poster session content
Photos from the National Meeting
The conversation started at the National Meeting is continuing in a LinkedIn Group "Working Together for Population Health" and Twitter. Use #PPBMeeting to provide feedback on the National Meeting.
The Practical Playbook was developed by the de Beaumont Foundation, the Duke University School of Medicine Department of Community and Family Medicine, the Centers for Disease Control and Prevention (CDC), and the Health Resources & Services Administration (HRSA).
Similar to Hit1113-NCVHS presentation-Aug2015 (20)
Normal Labour/ Stages of Labour/ Mechanism of LabourWasim Ak
Normal labor is also termed spontaneous labor, defined as the natural physiological process through which the fetus, placenta, and membranes are expelled from the uterus through the birth canal at term (37 to 42 weeks
Embracing GenAI - A Strategic ImperativePeter Windle
Artificial Intelligence (AI) technologies such as Generative AI, Image Generators and Large Language Models have had a dramatic impact on teaching, learning and assessment over the past 18 months. The most immediate threat AI posed was to Academic Integrity with Higher Education Institutes (HEIs) focusing their efforts on combating the use of GenAI in assessment. Guidelines were developed for staff and students, policies put in place too. Innovative educators have forged paths in the use of Generative AI for teaching, learning and assessments leading to pockets of transformation springing up across HEIs, often with little or no top-down guidance, support or direction.
This Gasta posits a strategic approach to integrating AI into HEIs to prepare staff, students and the curriculum for an evolving world and workplace. We will highlight the advantages of working with these technologies beyond the realm of teaching, learning and assessment by considering prompt engineering skills, industry impact, curriculum changes, and the need for staff upskilling. In contrast, not engaging strategically with Generative AI poses risks, including falling behind peers, missed opportunities and failing to ensure our graduates remain employable. The rapid evolution of AI technologies necessitates a proactive and strategic approach if we are to remain relevant.
Read| The latest issue of The Challenger is here! We are thrilled to announce that our school paper has qualified for the NATIONAL SCHOOLS PRESS CONFERENCE (NSPC) 2024. Thank you for your unwavering support and trust. Dive into the stories that made us stand out!
Unit 8 - Information and Communication Technology (Paper I).pdfThiyagu K
This slides describes the basic concepts of ICT, basics of Email, Emerging Technology and Digital Initiatives in Education. This presentations aligns with the UGC Paper I syllabus.
Introduction to AI for Nonprofits with Tapp NetworkTechSoup
Dive into the world of AI! Experts Jon Hill and Tareq Monaur will guide you through AI's role in enhancing nonprofit websites and basic marketing strategies, making it easy to understand and apply.
June 3, 2024 Anti-Semitism Letter Sent to MIT President Kornbluth and MIT Cor...Levi Shapiro
Letter from the Congress of the United States regarding Anti-Semitism sent June 3rd to MIT President Sally Kornbluth, MIT Corp Chair, Mark Gorenberg
Dear Dr. Kornbluth and Mr. Gorenberg,
The US House of Representatives is deeply concerned by ongoing and pervasive acts of antisemitic
harassment and intimidation at the Massachusetts Institute of Technology (MIT). Failing to act decisively to ensure a safe learning environment for all students would be a grave dereliction of your responsibilities as President of MIT and Chair of the MIT Corporation.
This Congress will not stand idly by and allow an environment hostile to Jewish students to persist. The House believes that your institution is in violation of Title VI of the Civil Rights Act, and the inability or
unwillingness to rectify this violation through action requires accountability.
Postsecondary education is a unique opportunity for students to learn and have their ideas and beliefs challenged. However, universities receiving hundreds of millions of federal funds annually have denied
students that opportunity and have been hijacked to become venues for the promotion of terrorism, antisemitic harassment and intimidation, unlawful encampments, and in some cases, assaults and riots.
The House of Representatives will not countenance the use of federal funds to indoctrinate students into hateful, antisemitic, anti-American supporters of terrorism. Investigations into campus antisemitism by the Committee on Education and the Workforce and the Committee on Ways and Means have been expanded into a Congress-wide probe across all relevant jurisdictions to address this national crisis. The undersigned Committees will conduct oversight into the use of federal funds at MIT and its learning environment under authorities granted to each Committee.
• The Committee on Education and the Workforce has been investigating your institution since December 7, 2023. The Committee has broad jurisdiction over postsecondary education, including its compliance with Title VI of the Civil Rights Act, campus safety concerns over disruptions to the learning environment, and the awarding of federal student aid under the Higher Education Act.
• The Committee on Oversight and Accountability is investigating the sources of funding and other support flowing to groups espousing pro-Hamas propaganda and engaged in antisemitic harassment and intimidation of students. The Committee on Oversight and Accountability is the principal oversight committee of the US House of Representatives and has broad authority to investigate “any matter” at “any time” under House Rule X.
• The Committee on Ways and Means has been investigating several universities since November 15, 2023, when the Committee held a hearing entitled From Ivory Towers to Dark Corners: Investigating the Nexus Between Antisemitism, Tax-Exempt Universities, and Terror Financing. The Committee followed the hearing with letters to those institutions on January 10, 202
Acetabularia Information For Class 9 .docxvaibhavrinwa19
Acetabularia acetabulum is a single-celled green alga that in its vegetative state is morphologically differentiated into a basal rhizoid and an axially elongated stalk, which bears whorls of branching hairs. The single diploid nucleus resides in the rhizoid.
1. 2015 National Conference on
Health Statistics
Community Health Data, Data
Stewardship and Data Access and Use:
Tools and Resources
North Bethesda, MD
August 25, 2015
2. Speakers
James Scanlon
• NCVHS Executive Staff Director
• Deputy Assistant Secretary, Office of Planning
and Evaluation, HHS
Walter G. Suarez, MD, MPH
• Chair, NCVHS
• Executive Director, Health IT Strategy and
Policy, Kaiser Permanente
Vickie M. Mays, PhD, MSPH
• Chair, NCVHS Work Group on Data Access & Use
• Professor and Director, UCLA Department of
Psychology & Fielding School of Public Health,
Department of Health Policy and Management
Kenyon Crowley, MBA, MS
• Member, Work Group on Data Access & Use
• Deputy Director, Center for Health Information
and Decision Systems (CHIDS), Robert H. Smith
School of Business, University of Maryland
“NCVHS Role and Contributions in HHS
Health Data Policy”
“The Community as a Learning System for
Health: Using Data to Improve Local Health
“A Stewardship Framework for the Use of
Community Health Data”
“Guidance on Increasing Usability and
Accessibility of Federal Health Data”
“Improving Health Data Access and Use”
2
3. NCVHS Role and Contributions in
HHS Health Data Policy
James Scanlon
5. The National Committee on
Vital and Health Statistics
• One of the oldest statutory public federal advisory
bodies to the HHS Secretary
• Focuses on health data and statistics, standards,
and health information policy
• Provides advice and assistance to various HHS groups
and agencies (HHS Data Council, CMS, CDC, HRSA,
AHRQ, others)
• Serves as a forum for interaction with private and public
sector groups on a variety of health data and
information issues
5
6. NCVHS Milestones
6
1949 Established as federal advisory committee
1974 Public Health Services Act gave NCVHS official status as statutory
public advisory committee to the Secretary of HEW (now HHS)
1996 HIPAA charged NCVHS with advising Secretary on health data
standards and privacy policy
2003 Medicare Modernization Act charged NCVHS with recommending
standards for electronic prescribing
2010 Affordable Care Act charged NCVHS with advising the Secretary on
Operating Rules for HIPAA Administrative Simplification
2014 NCVHS designated as the Review Committee (under ACA
provisions), to review status of adoption/implementation of
standards/operating rules, and advise on changes needed
7. NCVHS Configuration
• 18 members appointed for four year terms
• Organized around four core areas:
• Standards (including HIPAA administrative transactions, code sets, identifiers)
• Population Health
• Privacy, Confidentiality and Security
• Data Access and Use
• Holds quarterly meetings, convenes public hearings, listening
sessions, workshops, roundtables
• Develops and delivers practical, timely, thorough recommendations
to the Secretary
• Provides periodic reports to Congress
• Releases reports and resources to the industry
7
8. NCVHS Domains
8
Areas Focus
Standards
Standards, code sets, identifiers, operating rules
for HIPAA transactions, as required under HIPAA,
MMA, and ACA; public health informatics standards
Population
Health
Vital and health statistics policy; population-based
data to enable communities to identify disparities
and become learning systems for health
Privacy,
Confidentiality
and Security
Emerging issues related to health information
privacy, confidentiality and security and data
stewardship
Data Access Principles, best practices, guidelines, gaps on the
and Use availability, accessibility, use, utility, usability, and
usefulness of HHS data resources
9. NCVHS Recent Notable
Contributions
Visioning Documents
• 21st Century Vision for Health Statistics report (2000)
Emphasized role of all factors influencing health
• National Health Information Infrastructure (2002)
Led to the creation of Office of the National Coordinator for Health Information
Technology
• Towards Enhanced Information Capabilities for Health (2010)
Concept paper highlighting availability, accessibility, standardization and privacy
and security of health information
Population Health
• Community as a Learning Health System Framework (2011)
• Supporting Community Data Engagement – NCVHS Roundtable (2014)
• Electronic Standards for Public Health Information (2014)
9
10. Administrative Simplification
• Fifteen years of oversight/advice on adoption/implementation of standards,
code sets, identifiers, operating rules to fulfill HIPAA and ACA administrative
simplification provisions
• HIPAA Reports to Congress (2011 - 2014)
Privacy and Security
• Privacy and Security of Personal Health Records (2009)
• National Stewardship Framework for Health Information Privacy (2009)
• Stewardship Framework for the Use of Community Health Data (2012)
Data Access and Use
• Steps to improve Usability, Use and Usefulness of HHS Data Resources (2014)
10
NCVHS Recent Notable
Contributions (cont.)
11. Shaping a Health Statistics Vision
for the 21st Century (2002)
11
12. 12
NCVHS Website
and Resources
• www.ncvhs.hhs.gov
• All meeting
announcements, letters
to the Secretary,
reports, tools, and
other resources
available from this site
• Electronic/remote
access to meetings and
meeting materials
12
13. The Community as a Learning System for
Health: Using Data to Improve Local Health
Walter G. Suarez, MD, MPH
14. Health is a Community Affair
“Getting data into the hands of
communities and ensuring they have tools
and capacities to use them could move the
nation toward realizing the public benefits
of the informatics revolution.”
The Community as a Learning System for Health,
NCVHS, December 2011, p. 7
14
15. Impetus for Focus on Community Health Data
15
Community: an interdependent group of people who share a
set of characteristics and are joined over time by a sense that
what happens to one member affects many or all of the others
Upsurge in
community
health
Initiatives
Learning
Health System
project
How communities can become learning systems for
health and what resources exist and are needed to
help them?
16. Published, November 2011
Joint Project of the
Population Health and
Privacy, Confidentiality and
Security Subcommittees
16
16
17. Purpose: To bring together community
leaders, health data connectors, and
health data suppliers
• to identify major lessons, needs and gaps in
local data access and use, and
• to explore how HHS can better support local
data efforts.
NCVHS Roundtable on Supporting
Community Data Engagement,
October 2014
17
18. • Communities: Sonoma County CA, Louisiana PH
Institute, Douglas County NE, Seattle
• Connectors: Community Commons, Healthy
Communities Institute, County Health Rankings &
Roadmaps, NAHDO, ASTHO, NQF, Kaiser Permanente,
Catholic Health Assn., PHAB
• Data Suppliers: NCHS, SAMHSA, CMS, AHRQ,
Healthy People 2020, VHA, ASPE
• Philanthropy: RWJF (Culture of Health Initiative)
• NCVHS (full Committee and/or Working Group): 12
members plus staff
Participants included
18
19. 19
Major findings:
• Communities vary considerably in the
amount and types of assistance they
need to bring about data-based
improvements in local health.
• To inform local projects, data and
information should correspond to
authentic boundaries, have relevant
granularity, and be actionable.
• Communities need assistance with data
stewardship to help them protect
residents’ privacy and confidentiality and
optimize data quality.
• A growing number of intermediary
organizations provide Web-based
resources to facilitate local action.
• The federal government should support
community-driven change.
http://www.ncvhs.hhs.gov/130430sm.pdf
20. The most striking Roundtable theme concerned
the expanding drive for health equity within
communities and its implications for data
access and use. The emphasis on equity is … about the
nature of community heath and how to improve it … how to
operationalize the concept of the social determinants of health.
There are critical local data gaps, especially with regard to
health care access, inequality in health outcomes, costs and
affordability, care coordination, and determinants of health
specific to each community.
Letter to the Secretary: an excerpt
20
21. • Create a virtual Federal “home” for community-facing data
work; establish an interagency Community Health Data
Coordinating Committee
• Develop and publish an HHS Strategic Community Health
Data Plan
• Expand opportunities for ongoing input into relevant
Federal health data policy from knowledgeable community
representatives
• Expand high-level collaboration and coordination with
other Federal departments that operate or fund
community-level data and data-relevant programs
Letter to the Secretary:
Recommendations
21
22. • Create a mechanism for high-level coordination and collaboration
between HHS and non-governmental organizations to support
and inform community data engagement
• Develop resources to help communities find, select, and use
appropriate data tools
• Where possible, and preferably through a regional system that
builds on existing Federal regional offices, expand on-site
technical assistance to help local communities access and use
available data and tools
• Using the NCVHS Community Data Stewardship Toolkit, educate
community members and leaders on appropriate data
stewardship practices for collecting, storing, preserving,
disseminating, and publicizing health data
Letter to the Secretary:
Recommendations (cont.)
22
23. Walter G. Suarez, MD, MPH
A Stewardship Framework for the Use of
Community Health Data
24. http://www.ncvhs.hhs.gov/wp-content/uploads/2013/12/Toolkit-for-Communities.pdf 24
What is Data Stewardship?
• The responsibility, guided by principles and
practices, to ensure the knowledgeable
and appropriate use of data
Why a Toolkit and Why Now?
• Communities asked for practical guidance
• Illustrates principles in NCVHS’s letter to
the Secretary on Stewardship Framework
for the Use of Community Health Data
(Dec 5, 2012)
• Stewardship Framework principles and
their application defined, explained and
illustrated.
• Applicable laws and regulations cited and
explained.
• Practical tips, checklists and cautions
highlighted to avoid missteps and potential
harm.
25. • Effective stewardship
extends to all phases of
lifecycle
• Community health data
can be original data
gathered for the purpose
or repurposed data
• Use of repurposed data is
expanding, driven by
technology
Data Lifecycle
25
27. Accountability
• Accountability may lie with an individual or
entity
• Different people may be accountable for
different phases of the data lifecycle or different
stewardship elements
• An accountable individual or entity should be
named and held responsible for stewardship
• Data use agreements (DUAs) are one way to
establish accountability ground rules among
data users
27
28. Advancing Openness,
Transparency and Choice
Consent is the
process of getting
permission from a
community or
individual to use data
Notice is
information
provided to the
community about
data use
28
29. Community and Individual
Engagement and Participation
• Evaluate opportunities for engaging communities and
individuals at every step in the data lifecycle and
across all elements of the stewardship framework
• Be aware of the concerns of subgroups within
communities whose interests may be different from
those of the larger community
• Consider the risk of stigmatization of communities or
small groups and engage the community or individuals
to determine an action plan for addressing the risk
29
30. Purpose Specification
• Define the purpose of data collection or use of
repurposed data
• Consider how to engage the community in purpose
specification
• Anticipate possible adverse impacts of data use or
collection.
• Be aware that data may later be repurposed, design
collection accordingly
• When using repurposed data, consider the need for
additional notice or consent
• Address and align goals of collaborating entities
regarding goals, funding, use limitations
30
31. Quality and Integrity
• Ensure that data quality and integrity are
maintained throughout the data lifecycle
• Before merging data sets, consider how the merger
will affect data quality and integrity.
• Example quality questions to ask:
• Are the populations the same for the different data
collection efforts?
• Do survey questions and response categories match?
• Might differences in survey administration dates affect
survey results?
• What were the survey sample designs?
31
32. Security
Physical
Install locks on cabinets or rooms
where paper records are stored
Keep records away from areas
vulnerable to damage in a flood
Protect electronic storage facilities
against break-ins or destruction
Back up data with off-site storage
capabilities
Technical
Maintain logs of system access and
unauthorized extraction of data
Add encryption Specific elements in a
data set
Data set as a whole
Devices that allow access to the data
set, such as laptop computers
Implement monitoring to scan for and
identify cyber attacks
Administrative
Run a risk analysis
Set up policies and procedures for
accessing paper records, disposing of
data, or adding new equipment on a
network
Train those with access to sensitive
information in data security
Require robust passwords
Control who has access to view or
change the data
Conduct due diligence on employees
who handle data
Implement an incident response
program
32
34. Guidance on Increasing Usability and
Accessibility of Federal Health Data
Vickie M. Mays, PhD, MSPH
35. Why A Working Group On Data Access
and Use?
The problem:
• Changes in the data environment: Technology that makes it easier
and cheaper to access and manipulate data
• HHS infrastructure in which data stewards have extensive expertise
based on more traditional modes of data utility.
• Data access demands by new customers
• Secretary’s commitment as part of ACA to make data more available
to guide health and health care
The solution:
• Leverage the NCVHS, created in 1949
• Add a working group of experts who could advise on expanding data
access and encouraging innovative use, including content,
technology, media, and audiences
36. Changes In Customers for Federal
Survey Data
• Traditional Use By Researchers and
Health Systems
• Entrepreneurs/Innovators/Data –Driven
Solutions and Warehouses
• Community’s Use of Their Data
• Consumer
37. Changes in How Data is Accessed and
Health Information Is Communicated
• Traditional: Reports and Scientific Articles/
Computer or Library Search/TV/Newspapers
• Primary search for health information through
smartphones, attention to Twitter
• Blogs (WebMD), patient listservs, Google, Yahoo
• Demand for data in real time to respond in real
time
• Mash up activities to address social determinants
and social justice health inequities
38. Examples Of User Demands of HHS Data
• How can I find if the same variable (i.e. smoking) across HHS datasets is
measuring the same behavior. Is a smoker always a smoker?
• Where can I find data about my neighborhood? How healthy is my
community?
• Which therapy has better outcomes?
• Do hospitals with a certain number of beds prefer some EHR vendors
over others?
• How many heart attacks are there per year? What is my risk? What can I
do to lower my risk?
• What is the biggest health challenge facing a teenage woman? Does that
change if she lives in Toledo, OH or Miami, FL?
• Which surgeon has the lowest complications rates for a specific type of
surgery?
• Where can I find addresses for every drug treatment centers in America?
• What is the best way to link this dataset with physician names, addresses
and education to this other dataset with prescription drug spending?
40. Concepts For Greater Access and
Use of HHS Survey Data
• Accessible
• Findable
• Usable
• Useful
• Comprehensible
• Data Stewardship
• Linking and
Combining
• Quality
• Supported by data
provider
• Community and
learning
41. Solutions For Greater Access and
Use of HHS Survey Data (subset)
- Promoting Usability and Usefulness
- Metadata
- API’s
- Tagging
- Data Explorers and Visualizations
- Assessment of data quality and completeness
- Refresh rates confidence and transparency
- Promoting user-tailored resources and interaction
- Promoting Social Learning and Community
- Feedback loops
- Suggestive content and solutions
- Promoting Data Stewardship
42. Work Group Development of
Philosophy/Principles For Data Stewards
• Sustenance: data should have continuing persistence via
stewardship (for public use this does not need to be cost
draining, cf. public explorers like google, the internet
archive, etc.)
• Data releases sooner and less perfect: Release of data
can err on the side of being incomplete vs. perfect, with
appropriate disclosures
• Enforcement: use mechanism such as a machine
readable clause for public data (i.e. all data shall be
machine readable, provide basic and appropriate
metadata including ERDs and data dictionary, and an
indication of forward support
43. Work Group Development of
Philosophy/Principles For Data Stewards
• Detail who your survey serves and seeks ways to
expand the customer (user type) base
• Process in place to learn about needs of the audience.
Communicate with them directly, early and often...
Apply what’s learned
• Ability to understand data: context for data, about its
original purpose, and limitations and whether other
opportunities exist
• Data users need to assess value of complimentary
investments so need visibility into how frequently will
the data be released/refreshed
45. Thank You!
Contact:
Walter G. Suarez, MD, MPH Rebecca Hines, MHS
Chair, NCVHS Executive Secretary
walter.g.suarez@kp.org (Acting), NCVHS
vgh4@cdc.gov
Key Reports:
• The Community as a Learning Health System: Using Local Data
to Improve Local Health -
• http://www.ncvhs.hhs.gov/wp-content/uploads/2014/05/111213chip.pdf
• Joint Roundtable on Health Data Needs for Community-Driven
Change - http://www.ncvhs.hhs.gov/130430sm.pdf
• Toolkit for Communities Using Health Data: How to Collect, Use,
Protect and Share Data Responsibly -
http://www.ncvhs.hhs.gov/wp-content/uploads/2013/12/Toolkit-for-
Communities.pdf
46. http://www.ncvhs.hhs.gov/wp-content/uploads/2013/12/Toolkit-for-Communities.pdf 46
What is Data Stewardship?
• The responsibility, guided by principles and
practices, to ensure the knowledgeable
and appropriate use of data
Why a Toolkit and Why Now?
• Communities asked for practical guidance
• Illustrates principles in NCVHS’s letter to
the Secretary on Stewardship Framework
for the Use of Community Health Data
(Dec 5, 2012)
• Stewardship Framework principles and
their application defined, explained and
illustrated.
• Applicable laws and regulations cited and
explained.
• Practical tips, checklists and cautions
highlighted to avoid missteps and potential
harm.