This document provides an overview of open health data resources available from the Department of Health and Human Services (HHS) to help entrepreneurs, researchers, and policymakers develop innovative products and services. It lists various data sets covering topics like healthcare provider quality, clinical trials, disease incidence, food nutrition, and more. The document aims to help users understand which data sets may be useful for different types of applications and provide consumers, healthcare providers, or communities. It also provides examples of how open data has already been used.
3 Round Stones at the New England Health Datapalooza Oct 3, 20123 Round Stones
3 Round Stones' co-founder Bernadette Hyland discusses a new mobile application that uses federal open government data about weather and healthcare to improve management of chronic health conditions including asthma and COPD.
On June 5, 2013, the Innovations Exchange held a Web event titled Building Health Information Exchanges To Support ACOs and Medical Homes: Delaware’s Experience. This was the third Web event in a three-part series designed to share novel experiences and lessons learned in putting accountable care organization (ACO) and patient-centered medical home (PCMH) principles into practice. For more information, visit https://innovations.ahrq.gov/events/2013/06/building-health-information-exchanges-support-acos-and-medical-homes-delawares.
3 Round Stones at the New England Health Datapalooza Oct 3, 20123 Round Stones
3 Round Stones' co-founder Bernadette Hyland discusses a new mobile application that uses federal open government data about weather and healthcare to improve management of chronic health conditions including asthma and COPD.
On June 5, 2013, the Innovations Exchange held a Web event titled Building Health Information Exchanges To Support ACOs and Medical Homes: Delaware’s Experience. This was the third Web event in a three-part series designed to share novel experiences and lessons learned in putting accountable care organization (ACO) and patient-centered medical home (PCMH) principles into practice. For more information, visit https://innovations.ahrq.gov/events/2013/06/building-health-information-exchanges-support-acos-and-medical-homes-delawares.
Real-Time Biosurveillance Program Pilot - India & Sri LankaNuwan Waidyanatha
The Biosurv program was tailored for a range of functions. Its main objective program was the rapid detection and
notification of any possible health outbreak using cutting edge information processing technology. The
mHealthSurvey application takes a few seconds to enter each patient's disease information. This rich dataset is sent over the existing commercial GPRS channels to
a centralized database. With such techniques, the
incoming health data can be automatically monitored for unusual changes in the numbers of reported disease
cases. The same data is also used to characterize statistical relationships between all available combinations of reported genders, locations, ages, symptoms and signs, etc., even if the number of such combinations is
prohibitively large for humans to process. That enables epidemiologists to pin down a potential outbreak of, for
instance, a gastrointestinal disease among children living in the Southwestern suburbs of the city, before it
spreads to other areas or to other demographic groups. T-Cube Web Interface (TCWI) and its underlying disease
outbreak detection algorithms are capable of reducing time-intensive calculations involved in such analyses from
hours or days down to as quick as turning on a light switch.
Over the last twenty years, medical costs associated with lost time workers’ compensation claims has risen dramatically, despite efforts to reform the system. Medical tourism, a popular option for many seeking lower cost health care, is one option that has yet to catch on. Issues of quality of health care in other countries is no different for workers’ compensation patients, as it is for health care patients, and with accreditation from the Joint Commission International (JCI), hospitals that cater to medical tourists offer better care at lower cost than most U.S. hospitals offer. Certain procedures, common to workers’ compensation claims, such as knee replacement, hip replacement and spinal fusion in countries such as India, Thailand and Singapore, are considerably lower cost than those performed in the U.S.
However, legal barriers currently exist not only for medical tourism, but for its implementation for workers’ compensation. Medical malpractice, liability laws, patient privacy and medical records (HIPAA), ERISA, and the PPACA, all present significant obstacles that need to be addressed before such implementation are possible. Case law in the US has recognized limited use of medical tourism, both domestic and international, and opens the door a little for further development in this direction. The globalization of healthcare as evidenced by the tremendous growth of medical tourism in the health care arena, will lead to the implementation of international medical providers into the medical provider network for workers’ compensation.
A presentation about the role of informatics standards in facilitating electronic data interchange, and a framework for service-oriented semantic interoperability among data systems.
Real-Time Biosurveillance Program Pilot - India & Sri LankaNuwan Waidyanatha
The Biosurv program was tailored for a range of functions. Its main objective program was the rapid detection and
notification of any possible health outbreak using cutting edge information processing technology. The
mHealthSurvey application takes a few seconds to enter each patient's disease information. This rich dataset is sent over the existing commercial GPRS channels to
a centralized database. With such techniques, the
incoming health data can be automatically monitored for unusual changes in the numbers of reported disease
cases. The same data is also used to characterize statistical relationships between all available combinations of reported genders, locations, ages, symptoms and signs, etc., even if the number of such combinations is
prohibitively large for humans to process. That enables epidemiologists to pin down a potential outbreak of, for
instance, a gastrointestinal disease among children living in the Southwestern suburbs of the city, before it
spreads to other areas or to other demographic groups. T-Cube Web Interface (TCWI) and its underlying disease
outbreak detection algorithms are capable of reducing time-intensive calculations involved in such analyses from
hours or days down to as quick as turning on a light switch.
Over the last twenty years, medical costs associated with lost time workers’ compensation claims has risen dramatically, despite efforts to reform the system. Medical tourism, a popular option for many seeking lower cost health care, is one option that has yet to catch on. Issues of quality of health care in other countries is no different for workers’ compensation patients, as it is for health care patients, and with accreditation from the Joint Commission International (JCI), hospitals that cater to medical tourists offer better care at lower cost than most U.S. hospitals offer. Certain procedures, common to workers’ compensation claims, such as knee replacement, hip replacement and spinal fusion in countries such as India, Thailand and Singapore, are considerably lower cost than those performed in the U.S.
However, legal barriers currently exist not only for medical tourism, but for its implementation for workers’ compensation. Medical malpractice, liability laws, patient privacy and medical records (HIPAA), ERISA, and the PPACA, all present significant obstacles that need to be addressed before such implementation are possible. Case law in the US has recognized limited use of medical tourism, both domestic and international, and opens the door a little for further development in this direction. The globalization of healthcare as evidenced by the tremendous growth of medical tourism in the health care arena, will lead to the implementation of international medical providers into the medical provider network for workers’ compensation.
A presentation about the role of informatics standards in facilitating electronic data interchange, and a framework for service-oriented semantic interoperability among data systems.
EHRs, PHRs, EMRs: Making Sense of the Alphabet SoupCHI*Atlanta
CHI*Atlanta's October program tackles health records and the potential of user experience to improve their adoption. Panelists include CDC, Kaiser Permanente, and Greenway Technologies. Hosted at Philips Design to cover public, private, and vendor perspectives.
Publicado originalmente en http://www.slideshare.net/EugeneBorukhovich/open-health-data-qualitative-overview
Extraordinaria presentación sobre la aplicación de Open Data en Salud ejemplos y casos de éxito en varios paises.
This qualitative overview of the Open Health Data initiatives is meant to showcase the importance of open health data, social as well as economic impacts across US, UK and a select set of Western European countries. This overview is not meant to be a comprehensive report on all the global initiatives, funding models and tracking of open health data. There are tremendous efforts across the globe to change our global healthcare system and we believe that open health data is one of the keys to bridge the gap between digital citizens & governments. Also, please note that if your country, initiative or product was not mentioned, it is in no way meant to diminish the impact of the efforts. Please feel free to share, discuss and contribute to the list of ongoing efforts and initiatives on one of our global communities or on openhealthdata.org.
A look at the key trends and challenges in applying Big Data to transform healthcare by supporting research, self care, providers and building ecosystems. Purchase the report here: https://gumroad.com/l/PlXP
64 journal of law, medicine & ethicsDreams and Nightmare.docxevonnehoggarth79783
64 journal of law, medicine & ethics
Dreams and
Nightmares:
Practical and
Ethical Issues
for Patients and
Physicians Using
Personal Health
Records
Matthew Wynia and Kyle Dunn
Introduction and Definitions
The term “Electronic Health Records” (EHR) means
something different to each of the stakeholders in
health care, but it always seems to carry a degree of
emotional baggage. Increasingly, EHRs are advert-
ized as a nearly unmitigated good that will transform
medical care, improve safety and efficiency, allow
better patient engagement, and open the door to an
era of cheap, effective, timely, and patient-centered
care.1 Indeed, for some EHR proponents the ben-
efits of adopting them are so obvious that adoption
has become an end in itself.2 But for others — and
especially for a number of skeptical practitioners and
patients — EHR is a code word that portends the cor-
porate transformation of health care delivery, the loss
of patient privacy, the demand that patients bear more
responsibility in health care, and the unreflective take-
over of the health care system by people who do not
understand medical care or how health care relation-
ships unfold.3
For our purposes, we will consider EHRs impar-
tially, as a set of tools that can be used for a variety of
purposes. We define EHRs broadly as any electronic
means of storing and transferring health-related
information. We exclude from this definition the use
of the telephone and fax, arguably precursors to the
electronic means of data exchange now available. Like
face-to-face and paper-based interactions, the tele-
phone and fax are generally limited to two people.
Breaches of phone line security, while possible and
perhaps even frequent, are unlikely to affect thou-
sands of people at once.
In this paper, we examine the development of a new
set of EHR tools, Personal Health Records (PHRs).
PHRs may be variously defined (Table I) and have sev-
eral potential functional and payment models (Table
II), but the general aim of all PHRs is to increase
patients’ access to and sense of ownership over their
health care information. According to the Markle
Foundation, the advent of PHRs “represents a transi-
tion from a patient record that is physician-centered
to one that is patient-centered, prospective, interac-
Matthew Wynia, M.D., M.P.H., is the Director of the In-
stitute for Ethics at the American Medical Association and a
Clinical Assistant Professor at the University of Chicago. He
received his M.D. from the Oregon Health and Science Univer-
sity in Portland, Oregon and his M.P.H. from Harvard Uni-
versity School of Public Health in Boston, MA. Kyle Dunn,
M.H.S., was a Research Assistant at the Institute for Ethics
at the American Medical Association and is now a Ph.D. can-
didate in the Department of Health Policy and Management
at the Johns Hopkins Bloomberg School of Public Health. He
received a B.S. in Molecular, Cellular and Developmental Bi-
ology .
Wake up Pharma and look into your Big data Yigal Aviv
The vast volumes of medical data collected offers pharma the opportunity to harness the information in big data sets
Unlocking the potential in these data sources can ultimately lead to improved patients outcomes
This presentation describes consideration how to maximize the impact of Big Data.
its methodology, practical challenges and implications.
White paper examines the unstructured data management challenges healthcare organizations face and how the Hitachi Data Systems solution employs metadata to address the data storm.
Updates on the BioSense Program Redesign: 2011 Public Health Preparedness SummitTaha Kass-Hout, MD, MS
Most state and local health departments are involved in on-going traditional disease surveillance and are beginning to access information through health information exchange with clinical partners. Biosurveillance initiatives offer the opportunity to leverage these existing initiatives while providing important data to protect community health. Building on these existing activities and relationships is key to the success of national initiatives such as BioSense Redesign and meaningful use of electronic health records as a component of the evolving nationwide health information network (NHIN). During this session/workshop, the National Association of County and City Health Officials (NACCHO) and the Association of State and Territorial Health Officials (ASTHO) in association with the Centers for Disease Control and Prevention will address discuss the BioSense redesign effort and provide opportunities for extended engagement of local and state health officials. This workshop encourages the participation of public health emergency responders, and local public health personnel involved in bio-surveillance for emergency preparedness and response within their jurisdictions.
Electronic Health Records: purpose of electronic health records, popular electronic health record system, advantages of electronic records, challenges of electronic health records, the key players involved.
Explore natural remedies for syphilis treatment in Singapore. Discover alternative therapies, herbal remedies, and lifestyle changes that may complement conventional treatments. Learn about holistic approaches to managing syphilis symptoms and supporting overall health.
Flu Vaccine Alert in Bangalore Karnatakaaddon Scans
As flu season approaches, health officials in Bangalore, Karnataka, are urging residents to get their flu vaccinations. The seasonal flu, while common, can lead to severe health complications, particularly for vulnerable populations such as young children, the elderly, and those with underlying health conditions.
Dr. Vidisha Kumari, a leading epidemiologist in Bangalore, emphasizes the importance of getting vaccinated. "The flu vaccine is our best defense against the influenza virus. It not only protects individuals but also helps prevent the spread of the virus in our communities," he says.
This year, the flu season is expected to coincide with a potential increase in other respiratory illnesses. The Karnataka Health Department has launched an awareness campaign highlighting the significance of flu vaccinations. They have set up multiple vaccination centers across Bangalore, making it convenient for residents to receive their shots.
To encourage widespread vaccination, the government is also collaborating with local schools, workplaces, and community centers to facilitate vaccination drives. Special attention is being given to ensuring that the vaccine is accessible to all, including marginalized communities who may have limited access to healthcare.
Residents are reminded that the flu vaccine is safe and effective. Common side effects are mild and may include soreness at the injection site, mild fever, or muscle aches. These side effects are generally short-lived and far less severe than the flu itself.
Healthcare providers are also stressing the importance of continuing COVID-19 precautions. Wearing masks, practicing good hand hygiene, and maintaining social distancing are still crucial, especially in crowded places.
Protect yourself and your loved ones by getting vaccinated. Together, we can help keep Bangalore healthy and safe this flu season. For more information on vaccination centers and schedules, residents can visit the Karnataka Health Department’s official website or follow their social media pages.
Stay informed, stay safe, and get your flu shot today!
micro teaching on communication m.sc nursing.pdfAnurag Sharma
Microteaching is a unique model of practice teaching. It is a viable instrument for the. desired change in the teaching behavior or the behavior potential which, in specified types of real. classroom situations, tends to facilitate the achievement of specified types of objectives.
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TEST BANK for Operations Management, 14th Edition by William J. Stevenson, Ve...kevinkariuki227
TEST BANK for Operations Management, 14th Edition by William J. Stevenson, Verified Chapters 1 - 19, Complete Newest Version.pdf
TEST BANK for Operations Management, 14th Edition by William J. Stevenson, Verified Chapters 1 - 19, Complete Newest Version.pdf
Lung Cancer: Artificial Intelligence, Synergetics, Complex System Analysis, S...Oleg Kshivets
RESULTS: Overall life span (LS) was 2252.1±1742.5 days and cumulative 5-year survival (5YS) reached 73.2%, 10 years – 64.8%, 20 years – 42.5%. 513 LCP lived more than 5 years (LS=3124.6±1525.6 days), 148 LCP – more than 10 years (LS=5054.4±1504.1 days).199 LCP died because of LC (LS=562.7±374.5 days). 5YS of LCP after bi/lobectomies was significantly superior in comparison with LCP after pneumonectomies (78.1% vs.63.7%, P=0.00001 by log-rank test). AT significantly improved 5YS (66.3% vs. 34.8%) (P=0.00000 by log-rank test) only for LCP with N1-2. Cox modeling displayed that 5YS of LCP significantly depended on: phase transition (PT) early-invasive LC in terms of synergetics, PT N0—N12, cell ratio factors (ratio between cancer cells- CC and blood cells subpopulations), G1-3, histology, glucose, AT, blood cell circuit, prothrombin index, heparin tolerance, recalcification time (P=0.000-0.038). Neural networks, genetic algorithm selection and bootstrap simulation revealed relationships between 5YS and PT early-invasive LC (rank=1), PT N0—N12 (rank=2), thrombocytes/CC (3), erythrocytes/CC (4), eosinophils/CC (5), healthy cells/CC (6), lymphocytes/CC (7), segmented neutrophils/CC (8), stick neutrophils/CC (9), monocytes/CC (10); leucocytes/CC (11). Correct prediction of 5YS was 100% by neural networks computing (area under ROC curve=1.0; error=0.0).
CONCLUSIONS: 5YS of LCP after radical procedures significantly depended on: 1) PT early-invasive cancer; 2) PT N0--N12; 3) cell ratio factors; 4) blood cell circuit; 5) biochemical factors; 6) hemostasis system; 7) AT; 8) LC characteristics; 9) LC cell dynamics; 10) surgery type: lobectomy/pneumonectomy; 11) anthropometric data. Optimal diagnosis and treatment strategies for LC are: 1) screening and early detection of LC; 2) availability of experienced thoracic surgeons because of complexity of radical procedures; 3) aggressive en block surgery and adequate lymph node dissection for completeness; 4) precise prediction; 5) adjuvant chemoimmunoradiotherapy for LCP with unfavorable prognosis.
Pulmonary Thromboembolism - etilogy, types, medical- Surgical and nursing man...VarunMahajani
Disruption of blood supply to lung alveoli due to blockage of one or more pulmonary blood vessels is called as Pulmonary thromboembolism. In this presentation we will discuss its causes, types and its management in depth.
These lecture slides, by Dr Sidra Arshad, offer a quick overview of physiological basis of a normal electrocardiogram.
Learning objectives:
1. Define an electrocardiogram (ECG) and electrocardiography
2. Describe how dipoles generated by the heart produce the waveforms of the ECG
3. Describe the components of a normal electrocardiogram of a typical bipolar leads (limb II)
4. Differentiate between intervals and segments
5. Enlist some common indications for obtaining an ECG
Study Resources:
1. Chapter 11, Guyton and Hall Textbook of Medical Physiology, 14th edition
2. Chapter 9, Human Physiology - From Cells to Systems, Lauralee Sherwood, 9th edition
3. Chapter 29, Ganong’s Review of Medical Physiology, 26th edition
4. Electrocardiogram, StatPearls - https://www.ncbi.nlm.nih.gov/books/NBK549803/
5. ECG in Medical Practice by ABM Abdullah, 4th edition
6. ECG Basics, http://www.nataliescasebook.com/tag/e-c-g-basics
Couples presenting to the infertility clinic- Do they really have infertility...Sujoy Dasgupta
Dr Sujoy Dasgupta presented the study on "Couples presenting to the infertility clinic- Do they really have infertility? – The unexplored stories of non-consummation" in the 13th Congress of the Asia Pacific Initiative on Reproduction (ASPIRE 2024) at Manila on 24 May, 2024.
These simplified slides by Dr. Sidra Arshad present an overview of the non-respiratory functions of the respiratory tract.
Learning objectives:
1. Enlist the non-respiratory functions of the respiratory tract
2. Briefly explain how these functions are carried out
3. Discuss the significance of dead space
4. Differentiate between minute ventilation and alveolar ventilation
5. Describe the cough and sneeze reflexes
Study Resources:
1. Chapter 39, Guyton and Hall Textbook of Medical Physiology, 14th edition
2. Chapter 34, Ganong’s Review of Medical Physiology, 26th edition
3. Chapter 17, Human Physiology by Lauralee Sherwood, 9th edition
4. Non-respiratory functions of the lungs https://academic.oup.com/bjaed/article/13/3/98/278874
Report Back from SGO 2024: What’s the Latest in Cervical Cancer?bkling
Are you curious about what’s new in cervical cancer research or unsure what the findings mean? Join Dr. Emily Ko, a gynecologic oncologist at Penn Medicine, to learn about the latest updates from the Society of Gynecologic Oncology (SGO) 2024 Annual Meeting on Women’s Cancer. Dr. Ko will discuss what the research presented at the conference means for you and answer your questions about the new developments.
Recomendações da OMS sobre cuidados maternos e neonatais para uma experiência pós-natal positiva.
Em consonância com os ODS – Objetivos do Desenvolvimento Sustentável e a Estratégia Global para a Saúde das Mulheres, Crianças e Adolescentes, e aplicando uma abordagem baseada nos direitos humanos, os esforços de cuidados pós-natais devem expandir-se para além da cobertura e da simples sobrevivência, de modo a incluir cuidados de qualidade.
Estas diretrizes visam melhorar a qualidade dos cuidados pós-natais essenciais e de rotina prestados às mulheres e aos recém-nascidos, com o objetivo final de melhorar a saúde e o bem-estar materno e neonatal.
Uma “experiência pós-natal positiva” é um resultado importante para todas as mulheres que dão à luz e para os seus recém-nascidos, estabelecendo as bases para a melhoria da saúde e do bem-estar a curto e longo prazo. Uma experiência pós-natal positiva é definida como aquela em que as mulheres, pessoas que gestam, os recém-nascidos, os casais, os pais, os cuidadores e as famílias recebem informação consistente, garantia e apoio de profissionais de saúde motivados; e onde um sistema de saúde flexível e com recursos reconheça as necessidades das mulheres e dos bebês e respeite o seu contexto cultural.
Estas diretrizes consolidadas apresentam algumas recomendações novas e já bem fundamentadas sobre cuidados pós-natais de rotina para mulheres e neonatos que recebem cuidados no pós-parto em unidades de saúde ou na comunidade, independentemente dos recursos disponíveis.
É fornecido um conjunto abrangente de recomendações para cuidados durante o período puerperal, com ênfase nos cuidados essenciais que todas as mulheres e recém-nascidos devem receber, e com a devida atenção à qualidade dos cuidados; isto é, a entrega e a experiência do cuidado recebido. Estas diretrizes atualizam e ampliam as recomendações da OMS de 2014 sobre cuidados pós-natais da mãe e do recém-nascido e complementam as atuais diretrizes da OMS sobre a gestão de complicações pós-natais.
O estabelecimento da amamentação e o manejo das principais intercorrências é contemplada.
Recomendamos muito.
Vamos discutir essas recomendações no nosso curso de pós-graduação em Aleitamento no Instituto Ciclos.
Esta publicação só está disponível em inglês até o momento.
Prof. Marcus Renato de Carvalho
www.agostodourado.com
Novas diretrizes da OMS para os cuidados perinatais de mais qualidade
Health Data Initiative Starter Kit
1. Making Open Health Data Work For You – A “Starter Kit”
For Entrepreneurs, Researchers and Policymakers
Version: January 5, 2012
2. The purpose of this Health Data Initiative (HDI)
“Starter Kit”
1. Serve as a starting point to help you understand key HHS data
resources which are available
2. Help you understand to whom this data may be useful
3. Help you utilize HHS data as fuel that can power innovative products,
services, features, and insights you create
2
3. Unleashing the power of data
These datasets and tools have been gathered from agencies across the Department of
Health and Human Services (and other sources) with the goal of improving health for all
Americans. The data sets are increasingly available in a variety of machine-readable
formats and via Application Programming Interfaces (APIs), making it easier than ever to
consume data.
Just how much information is out there? Consider just a few examples:
MedlinePlus Connect has information for over 900 diseases, illnesses, health
conditions and wellness issues. This service allows health organizations and
health IT providers to link patient portals and electronic health record (EHR) systems
to MedlinePlus, an authoritative up-to-date health information resource for patients,
families, and health care providers.
ClinicalTrials.gov, a registry of federally and privately supported clinical trials,
currently has 115,266 trials with locations in 177 countries.
The Department of Agriculture’s Myfoodapedia provides information on the total
calories and saturated fat content of over 1,000 commonly eaten foods.
Data.Medicare.Gov COMPARE APIs provide detailed quality performance data for
thousands of individual hospitals, nursing homes, home health agencies, and
dialysis providers across the country.
4. How to make data actionable
Open HHS data can help power applications, products, services, and features that help
consumers take control of their health and health care, doctors and nurses provide better
care, and community leaders make better-informed decisions.
Here are some of the many examples of how open data has already been leveraged to do
so:
Aetna has integrated HHS data
The Healthline search engine on everything from care iTriage, a rapidly growing
has ingested massive amounts provider quality to the mobile and web platform that
of data from HHS agencies availability of eldercare support allows patients to make better
(e.g., CDC, NIH, CMS, AHRQ, services to the latest medical informed health decisions, has
FDA, etc.) and other sources to education information for used HHS health facility locator
help make internet search on patients into an “IT cockpit” for databases to help consumers
health topics and issues nurse case managers in its call find nearby care providers that
substantially more reliable, centers to help these nurses are right for them.
accurate, and helpful. provide information-rich support
for patients.
4
5. Where to find the data: Health.Data.gov, the one-stop
place to get all of our free, publicly available data
5
5
6. Examples of health data resources that are available
Listed below are just some of the key health data sets available that could be utilized in
applications/services that help care providers, consumers and communities. See pages following for brief
summaries of each data set. And check out Health.Data.gov for a much more comprehensive listing of
available data resources.
If you are building an app/service for…
Type of Data Set Providers Consumers Community
Provider Quality COMPARE APIs at data.medicare.gov
Hospital / Nursing Home / Home Health / Dialysis Compare
FQHC (Federally Qualified Health Center) Directory
National Plan and Provider Enumeration System (NPPES) Downloadable File
National Library of Medicine API Portal
MedlinePlus Connect
Clinicaltrials.gov API
NIH’s Visible Human Project
NLM’s TOXMAP: Online Toxicology Maps
VitalStats
Cancer Incidence – Surveillance, Epidemiology, and End Results (SEER)
Registries
FDA Recalls (drug, food and product)
HealthCare.gov Insurance Plan Directory
Mental Health Services Directory/Substance Abuse Treatment Center Directory
6
7. Examples of health data resources that are available
If you are building an app/service for…
Data Set Providers Consumers Community
Household Products Database
USDA’s MyFood-a-Pedia
“Blue Button” data (the ability for veterans, Medicare beneficiaries and active
duty military to download their own personal health information)
Dietary Supplements Labels Database: brands, ingredients and references
Hospital, Skilled Nursing Facility, Home Health Agency, Renal Dialysis Facility,
Hospice Cost Report Data
National Health Expenditures
Medicare Claims “Basic Standalone Files”
Health Indicators Warehouse
QuitNowTxt SMS Library
Medical Expenditure Panel Survey (MEPS)
Wide-ranging Online Data for Epidemiologic Research (WONDER)
Web-based Injury Statistics Query and Reporting System (WISQARS)
Your Food Environment Atlas
Behavioral Risk Factor Surveillance System (BRFSS)
Assisted Reproductive Technology (ART) Surveillance
7
8. Examples of health data resources that are available
* Note: text in light blue hyperlinks to the data set as it’s available via Health.Data.gov
Provider Quality Compare APIs FQHC Directory
• New user interface/analytical tool/APIs for health • Downloadable directory of all federally qualified
care provider quality Compare data at health centers (FQHCs) across the U.S., which
data.medicare.gov provide comprehensive primary and preventive
• Quality and patient satisfaction data available via care to persons of all ages, regardless of ability
APIs for thousands of nursing homes, hospitals, to pay
home health agencies, and dialysis centers National Plan and Provider Enumeration
System (NPPES) Downloadable File
Hospital Compare / Nursing Home Compare / Home • Contains FOIA-disclosable health care provider
Health Compare / Dialysis Facility Compare data for providers who have been assigned
• Downloadable databases of quality and patient National Provider Identifiers (NPIs) – e.g., name,
satisfaction measures for thousands of hospitals business address, phone number, NPI number,
and nursing homes provider license number
Medline Plus Connect
National Library of Medicine API Portal
• This new service provides patient portals and
• One-stop access to a growing array of NLM electronic health record (EHR) systems with
Application Programming Interfaces (APIs) that customized patient education information in
enable you to access an array of remarkably electronic form that maps to the diagnoses,
powerful medical and scientific information medications, and lab tests about which you are
resources asking. Info is drawn from the National Library
of Medicine’s MedlinePlus, an authoritative, up-
8
to-date health information resource for patients,
families, and health care providers
9. Examples of health data resources that are available
* Note: text in light blue hyperlinks to the data set as it’s available via Health.Data.gov
ClinicalTrials.gov API API TOXMAP: Online Toxicology Maps
• API to the ClinicalTrials.gov registry, which • Geographic Information System (GIS) that uses
provides patients, family members, health care maps of the United States to help users visually
professionals, and members of the public easy explore data from the EPA's Toxics Release
access to information on clinical trials for a wide Inventory (TRI) and Superfund Programs.
range of diseases and conditions TOXMAP helps users create nationwide,
regional, or local area maps showing where TRI
chemicals are released on-site into the air,
Visible Human Project water, and ground
• Presents complete, anatomically detailed, three-
dimensional representations of the male and
Cancer Incidence - Surveillance,
female human body
Epidemiology, and End Results (SEER)
Registries
VitalStats
• Collects and distributes cancer data from a
• Interactive online tool for creating and number of population-based cancer registries
manipulating tables based on birth and perinatal (i.e. patient demographics, primary tumor site,
(fetal and infant death) data files. Tabulated data first course of treatment, and follow-up for vital
can be graphed or mapped within VitalStats or status)
exported to Excel for further analysis.
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10. Examples of health data resources that are available
* Note: text in light blue hyperlinks to the data set as it’s available via Health.Data.gov
FDA Recalls Household Products Database
• This feed describes all new items being recalled • This database links over 4,000 consumer brands
by FDA to health effects from Material Safety Data
• Complementary resource: a downloadable XML Sheets (MSDS) provided by the manufacturers
file which contains all company-issued recalls for and allows scientists and consumers to research
drugs, food, products from 2009 to the present products based on chemical ingredients.
(http://www.data.gov/communities/node/81/data_
tools/345)
Mental Health Services Directory / Substance
Abuse Treatment Directory
HealthCare.gov Insurance Plan Inventory
• Downloadable directories of mental health and
• These downloadable files contain the inventory substance abuse treatment centers across the
of private insurance carriers, products, and plans U.S.
currently listed in HealthCare.gov – information
collected from 1000 issuers of individual and
small group insurance across all 50 states and
the District of Columbia.
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11. Examples of health data resources that are available
* Note: text in light blue hyperlinks to the data set as it’s available via Health.Data.gov
MyFood-a-Pedia Dietary Supplements Labels Database:
• MyFood-a-Pedia provides information on the brands, ingredients, and references
total calories; calories from solid fats, added • Designed to help both the general public and
sugars, and alcohol (extras); MyPyramid food health care providers find information about
group and subgroup amounts; and saturated fat ingredients in brand-name products, including
content of over 1,000 commonly eaten foods name, form, active and inactive ingredients,
with corresponding commonly used portion amount of active ingredient/unit,
amounts. manufacturer/distributor information, suggested
dose, label claims, warnings, percentage of daily
“Blue Button” Data value, and further label information.
• The Blue Button download capability enables
veterans, Medicare beneficiaries, and members Hospital, Skilled Nursing Facility, Home
of the military to download electronic copies of Health Agency, Renal Dialysis Facility,
their personal health information (via secure web Hospice Cost Report Data
portals) • Collections of cost report data from annual
• Learn more about Blue Button and examine reports filed with CMS by hospitals, skilled
sample file formats at www.bluebuttondata.org nursing facilities, home health agencies, renal
dialysis facilities, and hospices
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12. Examples of health data resources that are available
* Note: text in light blue hyperlinks to the data set as it’s available via Health.Data.gov
Medicare Claims “Basic Standalone Files” National Health Expenditures - State
• Claim-level public use files (“slimmed” for privacy (Provider), State (Residence), Age/Gender,
protection) made available for free public Sponsors (Businesses, Households, and
download for all major types of care: inpatient, Governments), Historical
prescription drug, home health, skilled nursing, • The National Health Expenditure Accounts
outpatient procedures, physician, hospice, (NHEA) are the official estimates of total health
durable medical equipment care spending in the United States
• Helps users understand patterns of utilization of
services and cost in the Medicare population Health Indicators Warehouse
• Provides data on over 1,100 metrics of
community health, health care system, and
QuitNowTXT determinants-of-health performance (at whatever
level of granularity this data is available –
• A new health text message library developed by
national, state, hospital referral region, county)
the National Cancer Institute (NCI) that contains
interactive and evidence-based smoking • Available both via downloadable files and via
cessation text messages targeted to adult web service APIs
smokers Assisted Reproductive Technology (ART)
• Text messages offer tips, motivation, Surveillance
encouragement and information tailored to the • The data collected include patient's diagnosis,
user’s responses type of ART, clinical information pertaining to the
• Also available at http://smokefree.gov/hp.aspx ART procedure, and information on pregnancy
outcomes.
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13. Examples of health data resources that are available
* Note: text in light blue hyperlinks to the data set as it’s available via Health.Data.gov
Medicare Expenditure Panel Survey (MEPS) Web-based Injury Statistics Query and
• The Medical Expenditure Panel Survey (MEPS) Reporting System (WISQARS)
is a set of large-scale surveys of families and • WISQARS is an interactive query system that
individuals, their medical providers, and provides data on injury deaths, violent deaths,
employers across the United States. MEPS is and nonfatal injuries treated in U.S. emergency
the most complete source of data on the cost departments
and use of health care and health insurance
Behavioral Risk Factor Surveillance System
coverage.
(BRFSS)
Wide-ranging Online Data for Epidemiologic
Research (WONDER) • The Behavioral Risk Factor Surveillance System
(BRFSS) is the world’s largest, on-going
• Massive array of public health databases re:
telephone health survey system, tracking health
births, deaths, disease incidence, health event
conditions and risk behaviors in the United
case reports, demographics, community health
States yearly since 1984. Currently, data are
Your Food Environment Atlas collected monthly in all 50 states, the District of
• Contains detailed community-level statistics on Columbia, Puerto Rico, the U.S. Virgin Islands,
food environment indicators (e.g., access and and Guam.
proximity to grocery stores, food prices, etc.) –
providing a spatial overview of a community’s
ability to access healthy food and its success in
doing so
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14. We’d love to hear from you!
We’d love to hear your feedback and questions about this Health Data Initiative starter kit and about
Health.Data.gov in general. Please contact us with questions, suggestions, or comments at
Healthdata@hhs.gov. Thank you!
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