On June 5, 2013, the Innovations Exchange held a Web event titled Building Health Information Exchanges To Support ACOs and Medical Homes: Delaware’s Experience. This was the third Web event in a three-part series designed to share novel experiences and lessons learned in putting accountable care organization (ACO) and patient-centered medical home (PCMH) principles into practice. For more information, visit https://innovations.ahrq.gov/events/2013/06/building-health-information-exchanges-support-acos-and-medical-homes-delawares.
El 22 de junio de 2015, el Catedrático de Economía de la Salud de la Universidad de Berkeley-California, Richard Scheffler, impartió en la Fundación Ramón Areces la conferencia: 'La financiación de la integración de servicios y el pago según calidad en la asistencia sanitaria', en colaboración con la Universidad Carlos III. Durante su intervención, ofreció previsiones sobre gasto sanitario en las próximas dos décadas en España.
Critical Access Hospitals’ Receipt of Medicare and Medicaid Electronic Health...Peiyin Hung
This policy brief has three purposes: 1) to describe current Critical Access Hospital (CAH) participation in the Medicare and Medicaid EHR incentive programs; 2) to compare CAH participation by state;and 3) to evaluate the differences in CAH participation by hospital
characteristics.
On June 5, 2013, the Innovations Exchange held a Web event titled Building Health Information Exchanges To Support ACOs and Medical Homes: Delaware’s Experience. This was the third Web event in a three-part series designed to share novel experiences and lessons learned in putting accountable care organization (ACO) and patient-centered medical home (PCMH) principles into practice. For more information, visit https://innovations.ahrq.gov/events/2013/06/building-health-information-exchanges-support-acos-and-medical-homes-delawares.
El 22 de junio de 2015, el Catedrático de Economía de la Salud de la Universidad de Berkeley-California, Richard Scheffler, impartió en la Fundación Ramón Areces la conferencia: 'La financiación de la integración de servicios y el pago según calidad en la asistencia sanitaria', en colaboración con la Universidad Carlos III. Durante su intervención, ofreció previsiones sobre gasto sanitario en las próximas dos décadas en España.
Critical Access Hospitals’ Receipt of Medicare and Medicaid Electronic Health...Peiyin Hung
This policy brief has three purposes: 1) to describe current Critical Access Hospital (CAH) participation in the Medicare and Medicaid EHR incentive programs; 2) to compare CAH participation by state;and 3) to evaluate the differences in CAH participation by hospital
characteristics.
Delivered by Craig Brammer at CITIH 2011. Focus on discussion of regional and national initiatives and opportunities for regional partners to leverage them for driving healthcare improvements, public health and research.
This session will provide a broad perspective on the many initiatives related to HIT. Experts from the regional and national level will discuss data models, privacy concerns and adoption strategies from their different perspectives. Also addressed will be planning for NHIN direct adoption as a complimentary strategic to full HIEs.
This qualitative overview of the Open Health Data initiatives is meant to showcase the importance of open health data, social as well as economic impacts across US, UK and a select set of Western European countries. This overview is not meant to be a comprehensive report on all the global initiatives, funding models and tracking of open health data. There are tremendous efforts across the globe to change our global healthcare system and we believe that open health data is one of the keys to bridge the gap between digital citizens & governments. Also, please note that if your country, initiative or product was not mentioned, it is in no way meant to diminish the impact of the efforts. Please feel free to share, discuss and contribute to the list of ongoing efforts and initiatives on one of our global communities or on openhealthdata.org.
Better Clinical Decision Support for COVID-19: Identifying Patients at Highes...Health Catalyst
Estimates place the in-hospital mortality for patients with COVID-19 between 15 and 25 percent, making early identification of individuals at high risk an imperative. Clinicians need reliable tools to identify individuals at the highest risk of severe deterioration. Risk-scoring tools exist for common acute conditions (such as septic, hypovolemic, or cardiogenic shock), but these methods don’t focus on COVID-19’s primary clinical impact—respiratory function. As a result, patients experiencing severe symptoms of COVID-19 may appear stable according to vital signs, such as heart rate and blood pressure, when they’re in fact critically ill. A more evolved approach to COVID-19 risk scoring focuses hypoxemia, or a below-normal blood oxygen level.
Over the last twenty years, medical costs associated with lost time workers’ compensation claims has risen dramatically, despite efforts to reform the system. Medical tourism, a popular option for many seeking lower cost health care, is one option that has yet to catch on. Issues of quality of health care in other countries is no different for workers’ compensation patients, as it is for health care patients, and with accreditation from the Joint Commission International (JCI), hospitals that cater to medical tourists offer better care at lower cost than most U.S. hospitals offer. Certain procedures, common to workers’ compensation claims, such as knee replacement, hip replacement and spinal fusion in countries such as India, Thailand and Singapore, are considerably lower cost than those performed in the U.S.
However, legal barriers currently exist not only for medical tourism, but for its implementation for workers’ compensation. Medical malpractice, liability laws, patient privacy and medical records (HIPAA), ERISA, and the PPACA, all present significant obstacles that need to be addressed before such implementation are possible. Case law in the US has recognized limited use of medical tourism, both domestic and international, and opens the door a little for further development in this direction. The globalization of healthcare as evidenced by the tremendous growth of medical tourism in the health care arena, will lead to the implementation of international medical providers into the medical provider network for workers’ compensation.
Customers routinely buy products for all sorts of uses. A statutory definition of a medical
device based on whether and how customers actually use products for medical purposes
would be utterly impossible to administer, and frankly unfair. The statute potentially imposes significant regulatory obligations on the seller of a product, and making those obligations depend on the whim of the customer would take compliance completely outside of the control of the seller. So instead, under the statute, it is the seller’s intent with regard to how the customer should use the product that controls how the device is regulated, not how the customer actually does use the product.
Source: http://mobihealthnews.com/wp-content/pdf/FDA_Regulation_of_Mobile_Health_2013.pdf
Three Data-Informed Ways to Drive Optimal Pediatric CareHealth Catalyst
Pediatric care has unique challenges, such as communicating with young patients through a parent or guardian and assessing pain levels with children. To overcome these challenges, organizations can rely on operational data to target pediatric improvement areas that lead to lower costs and higher profit margins.
Leveraging operational data—instead of focusing solely on pediatric outcomes data—can reveal opportunities for health systems to improve pediatric patient access and, in turn, increase revenue. Organizations can deliver higher quality pediatric care while increasing profits by implementing three data-informed strategies:
1. Maximize space utilization.
2. Improve patient scheduling.
3. Implement virtual care.
Interoperability is one of the most critical issues facing the health care industry today. A universal exchange language is needed to assist health care providers in sharing health information in order to coordinate diagnosis and treatment, while maintaining privacy and security of personal data. Health Information Exchanges (HIE) allow for the movement of clinical data between disparate systems; they enable providers to electronically share health records through a network. This presentation provides an overview of HIE and the Meaningful Use requirement related to the exchange of clinical information as well as information about standards of exchange and the recommended "next steps" for providers.
The Patient Centered Primary Care Collaborative has been working for years to build evidence and knowledge about how to improve healthcare by providing a medical "home" for each of us - a place where all our records reside, where the staff know us, etc. This April 2010 by Executive Director Edwina Rogers shows the phenomenal range of results they've produced.
Delivered by Craig Brammer at CITIH 2011. Focus on discussion of regional and national initiatives and opportunities for regional partners to leverage them for driving healthcare improvements, public health and research.
This session will provide a broad perspective on the many initiatives related to HIT. Experts from the regional and national level will discuss data models, privacy concerns and adoption strategies from their different perspectives. Also addressed will be planning for NHIN direct adoption as a complimentary strategic to full HIEs.
This qualitative overview of the Open Health Data initiatives is meant to showcase the importance of open health data, social as well as economic impacts across US, UK and a select set of Western European countries. This overview is not meant to be a comprehensive report on all the global initiatives, funding models and tracking of open health data. There are tremendous efforts across the globe to change our global healthcare system and we believe that open health data is one of the keys to bridge the gap between digital citizens & governments. Also, please note that if your country, initiative or product was not mentioned, it is in no way meant to diminish the impact of the efforts. Please feel free to share, discuss and contribute to the list of ongoing efforts and initiatives on one of our global communities or on openhealthdata.org.
Better Clinical Decision Support for COVID-19: Identifying Patients at Highes...Health Catalyst
Estimates place the in-hospital mortality for patients with COVID-19 between 15 and 25 percent, making early identification of individuals at high risk an imperative. Clinicians need reliable tools to identify individuals at the highest risk of severe deterioration. Risk-scoring tools exist for common acute conditions (such as septic, hypovolemic, or cardiogenic shock), but these methods don’t focus on COVID-19’s primary clinical impact—respiratory function. As a result, patients experiencing severe symptoms of COVID-19 may appear stable according to vital signs, such as heart rate and blood pressure, when they’re in fact critically ill. A more evolved approach to COVID-19 risk scoring focuses hypoxemia, or a below-normal blood oxygen level.
Over the last twenty years, medical costs associated with lost time workers’ compensation claims has risen dramatically, despite efforts to reform the system. Medical tourism, a popular option for many seeking lower cost health care, is one option that has yet to catch on. Issues of quality of health care in other countries is no different for workers’ compensation patients, as it is for health care patients, and with accreditation from the Joint Commission International (JCI), hospitals that cater to medical tourists offer better care at lower cost than most U.S. hospitals offer. Certain procedures, common to workers’ compensation claims, such as knee replacement, hip replacement and spinal fusion in countries such as India, Thailand and Singapore, are considerably lower cost than those performed in the U.S.
However, legal barriers currently exist not only for medical tourism, but for its implementation for workers’ compensation. Medical malpractice, liability laws, patient privacy and medical records (HIPAA), ERISA, and the PPACA, all present significant obstacles that need to be addressed before such implementation are possible. Case law in the US has recognized limited use of medical tourism, both domestic and international, and opens the door a little for further development in this direction. The globalization of healthcare as evidenced by the tremendous growth of medical tourism in the health care arena, will lead to the implementation of international medical providers into the medical provider network for workers’ compensation.
Customers routinely buy products for all sorts of uses. A statutory definition of a medical
device based on whether and how customers actually use products for medical purposes
would be utterly impossible to administer, and frankly unfair. The statute potentially imposes significant regulatory obligations on the seller of a product, and making those obligations depend on the whim of the customer would take compliance completely outside of the control of the seller. So instead, under the statute, it is the seller’s intent with regard to how the customer should use the product that controls how the device is regulated, not how the customer actually does use the product.
Source: http://mobihealthnews.com/wp-content/pdf/FDA_Regulation_of_Mobile_Health_2013.pdf
Three Data-Informed Ways to Drive Optimal Pediatric CareHealth Catalyst
Pediatric care has unique challenges, such as communicating with young patients through a parent or guardian and assessing pain levels with children. To overcome these challenges, organizations can rely on operational data to target pediatric improvement areas that lead to lower costs and higher profit margins.
Leveraging operational data—instead of focusing solely on pediatric outcomes data—can reveal opportunities for health systems to improve pediatric patient access and, in turn, increase revenue. Organizations can deliver higher quality pediatric care while increasing profits by implementing three data-informed strategies:
1. Maximize space utilization.
2. Improve patient scheduling.
3. Implement virtual care.
Interoperability is one of the most critical issues facing the health care industry today. A universal exchange language is needed to assist health care providers in sharing health information in order to coordinate diagnosis and treatment, while maintaining privacy and security of personal data. Health Information Exchanges (HIE) allow for the movement of clinical data between disparate systems; they enable providers to electronically share health records through a network. This presentation provides an overview of HIE and the Meaningful Use requirement related to the exchange of clinical information as well as information about standards of exchange and the recommended "next steps" for providers.
The Patient Centered Primary Care Collaborative has been working for years to build evidence and knowledge about how to improve healthcare by providing a medical "home" for each of us - a place where all our records reside, where the staff know us, etc. This April 2010 by Executive Director Edwina Rogers shows the phenomenal range of results they've produced.
Understanding CJIS Compliance – Information Exchange AgreementsDoubleHorn
In the previous blog, we saw an overview of what CJIS is and what are different policy areas and in this blog we will elaborate on the first policy area - Information Exchange Agreements.
Under the first policy area Information Exchange Agreements, it is mentioned that the information shared through communication mediums should be safely protected using appropriate security safeguards. Information exchanged can take many forms such as instant messages, electronic mail, hard copy, facsimile, web services and also information systems sending, receiving and storing CJI. It is to be noted that the agencies, before exchanging criminal justice information, should put formal agreements in place that specify the security controls. Information Exchange Agreements helps in understanding the roles, responsibilities and data ownership between agencies and other external parties.
Connecting the Healthcare Ecosystem - An Architecture for Improved HealthProlifics
While healthcare reform has many underlying goals and will solve many problems in the healthcare ecosystem, the essence is to provide seamless and secure connectivity, enabling the exchange of patient information, allowing improved continuity and coordination of care. The correct approach to enabling this connectivity will allow information to flow on an unprecedented scale, enabling better clinical decisions while allowing the patient, payer and provider to collaborate in new and meaningful ways. Join us in this session to learn how the WebSphere Healthcare ESB (Message Broker and Healthcare Pack), content and predictive analytics, Worklight mobile technology and Portal form the perfect building blocks for the future of healthcare.
In the AWS Healthcare Days presentation you’ll learn best practices for architecting cloud-based applications for the healthcare industry with a deep technical overview and demos. Topics to be covered in this presentation include building a healthcare analytics pipeline in the cloud, leveraging the cloud for mobile, connected devices, and IoT, and using infrastructure-as-code to automate your security and HIPAA compliance policies. You will also see how cloud technology partner, Cognizant, is helping healthcare providers manage cloud infrastructure at scale, as well as leveraging tooling to maintain the security and compliance of applications and environments through automation.
Virtual Business Incubator Ecosystem - Business Model Canvass (SAAS / PAAS)Patch of Land
Virtual Business Incubator - Business Model Canvass is an initiative to create a crowdsourced Ecosystem SAAS / PAAS platform to help early stage startups with the help they need to grow, raise capital, form strategic partnerships, and receive mentorship.
In the AWS Healthcare Days presentation you’ll learn best practices for architecting cloud-based applications for the healthcare industry with a deep technical overview and demos. Topics to be covered in this presentation include building a healthcare analytics pipeline in the cloud, HIPAA-compliant storage and archiving, and Using infrastructure-as-code to automate your security and compliance policies. You will also see how cloud security partner, Clear DATA, is helping healthcare providers leverage services like AWS Config and AWS CloudTrail, as well as, system level tooling to maintain the security and compliance of applications and environments through automation.
Digital health solutions are significantly transforming the healthcare industry, and revolutionizing the healthcare experience. Digital solutions not only make a profound impact on our lifestyle, but also offer better ways for providers to connect, understand, and engage with the patients - clearly paving the path for enhanced quality patient care and better health outcomes.
A recent report from IHS Technology estimates a rise in users of Mobile Consumer and Fitness devices from 23 million in 2011 to 75.5 million devices by the end of 2018. Advancement in the field of IOT has further fueled innovative digital health solutions which are enriching patient’s life by quick and easy synchronization. According to a survey conducted by Rock Health, investments in digital health companies in 2014 were a staggering $4.1 billion, and large and midsized ISV’s were directly benefited by this move.
The rising collection and analysis of data has shifted the way companies do business. Four key ingredients to develop a data strategy, how to leverage next-generation technologies, and three essential steps for rolling out implementation are included. The Data Ecosystem will show you how to develop and implement the strategies that will meet the needs of your business.
3 Round Stones at the New England Health Datapalooza Oct 3, 20123 Round Stones
3 Round Stones' co-founder Bernadette Hyland discusses a new mobile application that uses federal open government data about weather and healthcare to improve management of chronic health conditions including asthma and COPD.
Publicado originalmente en http://www.slideshare.net/EugeneBorukhovich/open-health-data-qualitative-overview
Extraordinaria presentación sobre la aplicación de Open Data en Salud ejemplos y casos de éxito en varios paises.
EHRs, PHRs, EMRs: Making Sense of the Alphabet SoupCHI*Atlanta
CHI*Atlanta's October program tackles health records and the potential of user experience to improve their adoption. Panelists include CDC, Kaiser Permanente, and Greenway Technologies. Hosted at Philips Design to cover public, private, and vendor perspectives.
Analytics-Driven Healthcare: Improving Care, Compliance and CostCognizant
In the face of skyrocketing costs, the healthcare industry is addressing inefficiencies by improving data sharing and collaboration across the industry value chain and applying analytics to improve operations and patient outcomes.
64 journal of law, medicine & ethicsDreams and Nightmare.docxevonnehoggarth79783
64 journal of law, medicine & ethics
Dreams and
Nightmares:
Practical and
Ethical Issues
for Patients and
Physicians Using
Personal Health
Records
Matthew Wynia and Kyle Dunn
Introduction and Definitions
The term “Electronic Health Records” (EHR) means
something different to each of the stakeholders in
health care, but it always seems to carry a degree of
emotional baggage. Increasingly, EHRs are advert-
ized as a nearly unmitigated good that will transform
medical care, improve safety and efficiency, allow
better patient engagement, and open the door to an
era of cheap, effective, timely, and patient-centered
care.1 Indeed, for some EHR proponents the ben-
efits of adopting them are so obvious that adoption
has become an end in itself.2 But for others — and
especially for a number of skeptical practitioners and
patients — EHR is a code word that portends the cor-
porate transformation of health care delivery, the loss
of patient privacy, the demand that patients bear more
responsibility in health care, and the unreflective take-
over of the health care system by people who do not
understand medical care or how health care relation-
ships unfold.3
For our purposes, we will consider EHRs impar-
tially, as a set of tools that can be used for a variety of
purposes. We define EHRs broadly as any electronic
means of storing and transferring health-related
information. We exclude from this definition the use
of the telephone and fax, arguably precursors to the
electronic means of data exchange now available. Like
face-to-face and paper-based interactions, the tele-
phone and fax are generally limited to two people.
Breaches of phone line security, while possible and
perhaps even frequent, are unlikely to affect thou-
sands of people at once.
In this paper, we examine the development of a new
set of EHR tools, Personal Health Records (PHRs).
PHRs may be variously defined (Table I) and have sev-
eral potential functional and payment models (Table
II), but the general aim of all PHRs is to increase
patients’ access to and sense of ownership over their
health care information. According to the Markle
Foundation, the advent of PHRs “represents a transi-
tion from a patient record that is physician-centered
to one that is patient-centered, prospective, interac-
Matthew Wynia, M.D., M.P.H., is the Director of the In-
stitute for Ethics at the American Medical Association and a
Clinical Assistant Professor at the University of Chicago. He
received his M.D. from the Oregon Health and Science Univer-
sity in Portland, Oregon and his M.P.H. from Harvard Uni-
versity School of Public Health in Boston, MA. Kyle Dunn,
M.H.S., was a Research Assistant at the Institute for Ethics
at the American Medical Association and is now a Ph.D. can-
didate in the Department of Health Policy and Management
at the Johns Hopkins Bloomberg School of Public Health. He
received a B.S. in Molecular, Cellular and Developmental Bi-
ology .
Minority Health Informatics Program using molecular diagnostic microarrys and gene expression profile database to develop healthcare policies to address minority health disparities.
Consumerism, Innovation and Best Practices to Thrive in the Future of HealthJustin Barnes
May 1, 2019 University of Toronto, Dalla Lana School of Public Health, The Institute of Health Policy, Management and Evaluation (IHPME) Keynote speaker Justin Barnes, a health innovation strategist and co-founder of Health Innovation Think Tank, will provide yet another integral perspective focused on the ways in which we can scale up and implement evidence-based changes in health care technology on a global scale. Having testified before Congress on more than twenty occasions delivering statements on virtual care, alternative payment methods, consumerism, connected health and the globalization of healthcare, Justin offers thought leadership for the university, the healthcare community as well as other key stakeholders.
Consumer Driven Health – IHPME Research Day
Looks to the Future of Health Care
The trend towards consumer driven health, whether it be mobile apps, wearable devices, or easy access to electronic health records, is changing the landscape of our health care system and the way we think about care.
Henry wei blue button overview top coder event 12-3-2012
Arnaub chatterjee the innovation data and healthcare ecosystem top-coder roadshow dec 3 2012
1. The Innovation, Data and
Healthcare Ecosystem
Arnaub Chatterjee, MHA, MPA
Special Assistant to the Chief Technology Officer
U.S. Department of Health and Human Services
December 3, 2012
U.S. Department of Health and Human Services Innovations
3. The Health Data Initiative: turning HHS and our sister
agencies into the “NOAA of health data”
A Rapidly Growing Array of Innovative
Products and Services That:
• Help consumers take control of
Health-related data from their health and health care
• Help employers promote health
and wellness
• Help care providers deliver better
FUELS care
• Help journalists shed light
• Help local leaders make better-
informed decisions
Made available to the public
• Support all of the above through
“data intermediary” services
• And much more
U.S. Department of Health and Human Services Innovations
4. Treasure Troves of Data
Just how much information is out there? Consider just a few examples:
MedlinePlus Connect has information for over 900 diseases, illnesses, health
conditions and wellness issues. This service allows health organizations and
health IT providers to link patient portals and electronic health record (EHR) systems
to MedlinePlus, an authoritative up-to-date health information resource for patients,
families, and health care providers.
ClinicalTrials.gov, a registry of federally and privately supported clinical trials,
currently has 115,266 trials with locations in 177 countries.
The Department of Agriculture’s Myfoodapedia provides information on the total
calories and saturated fat content of over 1,000 commonly eaten foods.
Data.Medicare.Gov COMPARE APIs provide detailed quality performance data for
thousands of individual hospitals, nursing homes, home health agencies,
and dialysis providers across the country.
U.S. Department of Health and Human Services Innovations
5. Examples of health data resources that are available
Listed below are just some of the key health data sets available that could be utilized in applications/services that
help care providers, consumers and communities. See pages following for brief summaries of each data set. And
check out Health.Data.gov for a much more comprehensive listing of available data resources.
If you are building an app/service for…
Type of Data Set Providers Consumers Community
Provider Quality COMPARE APIs at data.medicare.gov
Hospital / Nursing Home / Home Health / Dialysis Compare
FQHC (Federally Qualified Health Center) Directory
National Plan and Provider Enumeration System (NPPES) Downloadable File
National Library of Medicine API Portal
MedlinePlus Connect
Clinicaltrials.gov API
NIH’s Visible Human Project
NLM’s TOXMAP: Online Toxicology Maps
VitalStats
Cancer Incidence – Surveillance, Epidemiology, and End Results (SEER) Registries
FDA Recalls (drug, food and product)
HealthCare.gov Insurance Plan Directory
Mental Health Services Directory/Substance Abuse Treatment Center Directory
5
U.S. Department of Health and Human Services Innovations
6. Examples of health data resources that are available
If you are building an app/service for…
Data Set Providers Consumers Community
Household Products Database
USDA’s MyFood-a-Pedia
“Blue Button” data (the ability for veterans, Medicare beneficiaries and active duty
military to download their own personal health information)
Dietary Supplements Labels Database: brands, ingredients and references
Hospital, Skilled Nursing Facility, Home Health Agency, Renal Dialysis Facility, Hospice
Cost Report Data
National Health Expenditures
Medicare Claims “Basic Standalone Files”
Health Indicators Warehouse
QuitNowTxt SMS Library
Medical Expenditure Panel Survey (MEPS)
Wide-ranging Online Data for Epidemiologic Research (WONDER)
Web-based Injury Statistics Query and Reporting System (WISQARS)
Your Food Environment Atlas
Behavioral Risk Factor Surveillance System (BRFSS)
6
U.S. Department of Health and Human Services Innovations
7. Where to get the data??
Healthdata.gov, the one-stop place to get all of our free, publicly available
data
U.S. Department of Health and Human Services Innovations
8. How to make data actionable
• iTriage
• Healthline
• Castlight
• Patients Like Me
• Asthmapolis
• Food Oasis
U.S. Department of Health and Human Services Innovations
9. How to make data actionable
U.S. Department of Health and Human Services Innovations 9
10. How Policy and Regulations are
Promoting Availability of Data
• Health Systems Measurement
Project
• CMS Data and Information
Product Strategy
• Medicare Data Sharing
• Blue Button
U.S. Department of Health and Human Services Innovations
11. The Third Annual Health Data Initiative Forum –
The Health Data Palooza!
• Last year’s Palooza took place on June 5-6, 2012 at the
Walter E. Washington Convention Center in Washington,
DC.
• Was hosted through the Health Data Consortium, a
public-private partnership between the Institute of
Medicine, Robert Wood Johnson Foundation, Consumers
Union, Academy Health, Innocentive, Health 2.0, the
Mayo Clinic’s Center for Innovation and several other
organizations.
• Showcased 250 of the best innovations in three tracks:
consumer, provider and community apps
• Please visit www.hdiforum.org for more information
submission and details about each submission
category.
U.S. Department of Health and Human Services Innovations
12. Health Data Initiative
Current State
Health Data Health Data
HDI Affiliates
Leads Consortium
Hackathons / Health Data
Healthdata.gov
Codeathons Palooza
Future State
Technologists,
Health Data
HDI Affiliates social workers,
Leads
developers, Focused
Hackathons / Health Data advocates and Data
Codeathons Consortium researchers Liberation
Health Data and
Palooza Education
Healthdata.gov Communities
U.S. Department of Health and Human Services Innovations
15. Between Clinical Encounters
• Approximately 50 million Americans (roughly 20%)
have accessed their health information online .
(Manhattan Research, 2011)
• More than half (52%) of Americans say they would
use a smart phone or PDA to monitor their health if
they were able to access their medical records and
download information about their medical condition
and treatments. (Manhattan Research, 2011)
• 26% of Americans use mobile phones for health.
This has more than doubled since the previous year.
(Manhattan Research, 2011)
• Remote patient monitoring is expected to grow by
25% per year (Kalorama Information, 2011)
15
U.S. Department of Health and Human Services Innovations
16. Key Next Steps
• With the support of the new Health Data Consortium, continued
campaign to connect innovators to our data
– Challenges and “code-a-thons”
-- Innovator “meetups”
-- More roving “health data evangelists”
-- 2013 Health Data Initiative Forum
• Launch of semi-annual data reviews and brainstorming sessions
with each HHS agency
– Data access improvements made over the past 6 months and
planned over the following 6 months
-- Brainstorming about how we can connect innovators to each
agency’s data to help advance their mission
-- Expansion to include “semi-open” data
U.S. Department of Health and Human Services Innovations
Editor's Notes
The mission of the Department of Health and Human Services (HHS) is to enhance the health and well-being of Americans by providing for effective health and human services and by fostering strong, sustained advances in the sciences, underlying medicine, public health, and social services.At the Department, our number one priority will always be to protect the health of all Americans and provide essential human services, especially for those who are least able to help themselves.My role in CTO’s office One of HHS’s biggest asset is information, specifically in the form of data. How is this empowering consumers?Facilitate health innovation and the development of data ecosystemHHS Innovations office has been scanning the environment for the last 24 months, understanding the health data ecosystem26% of adults use mobile phones to access health data (per October 21, 2011), up 12% from 2010Specifically, there was an increase in consumers’ use of mobile phones to manage care or treatment, such as drug refill or medication adherence applications
A national initiative to help consumers and communities get more value out of the nation’s wealth of health data.We want to open up the data and stimulate massive private sector innovation play—this time, with vast amounts of health-related data that are sitting in the vaults of HHS. [This data] has been public in the sense that it’s in books, PDFs, and static webpages, and we’re turning it into forms that developers can actually use The objective is to “[stimulate] innovators to use our data as fuel in applications, products, and services that improve health and healthcare”. The real goal behind the efforts is to “stimulate the emergence of an ecosystem of innovation that sits on top of open health dataOn March 10, 2010, the initiative started with 36 people brainstorming in a room. On June 2, 2010, approximately 325 in-person attendees saw 7 health apps demoed at an historic forum in the theater of Institute of Medicine in Washington, D.C, with another 10 apps packed into an expo in the rotunda outside. All of the apps or services used open government data from the United States Department of Health and Human Services (HHS).In 2012, 242 applications or services that were based upon or use open data were submitted for consideration to third annual “Health Datapalooza. About 70 health app exhibitors made it to the expo. The conference itself had some 1400 registered attendees, not counting press and staff, and was sold out in advance of the event in the cavernous Washington Convention Center in DC.While the process of making health data open and machine-readable is far from done, there has been incontrovertible progress in standing up new application programming interfaces (APIs) that enable entrepreneurs, academic institutions and government itself to retrieve it one demand.
More than half (52%) of Americans say they would use a smart phone or PDA to monitor their health if they were able to access their medical records and download information about their medical condition and treatments. (Manhattan Research, 2011)Approximately 50 million Americans (roughly 20%) have accessed their health information online Mobile phones and devices, with their constant presence, data connectivity, and multiple intrinsic sensors, can support around-the-clock chronic disease prevention and management that is integrated with daily life. These mobile health (mHealth) devices can produce tremendous amounts of location-rich, real-time, high-frequency data.Clinical Trials.gov – Registry of federally and privately supported clinical trials, currently has 134,542 studies with locations in 180 countries
FDA Recall data – food, drug, cosmetic, biologics, animal health products2nd most in-demand data set by data.govOnly available via RSS feed, but we are working to offer API (Aetna is offering API)32 APIs on healthdata.gov with more coming
Locator Data – Elder Care facilities, Head Start locations, Health Care Service Delivery sites & Federally-Funded Health CentersMore Blue Button Data – Claims data from 12 to 36 months for Medicare Part A &B and 12 months Part D New restricted use files available from the Substance Abuse and Mental Health Services Administration for 4-year estimates for the National Survey on Drug Use and Health – most comprehensive mental health and substance abuse survey in the nation
Roughly 95 percent of the potential entrepreneur pool doesn’t know that these vast stores of data exist, so the HHS is working to increase awareness through the Health Data Initiative. Releasing and making open health data useful, however, is about far more than these mHealth apps: It’s about saving lives, improving the quality of care, adding more transparency to a system that needs itFrom our perspective, liberation and liquidity of data is an absolute necessity – specifically, interoperability and integration. The ability to share data amongst many different platforms will be a crucial component. Improved healthdata.gov to make submission of datasets faster and easier for internal data leads
We want innovators to use data as a foundational building block in the development of apps and services that will help consumers take control of their health and health care-iTriage, a rapidly growing mobile and web platform that allows patients to make better informed health decisions, has used HHS health facility locator databases to help consumers find nearby care providers that are right for them. - About to cross 2.3M users - through HRSA clinical center directories-Healthline – 100M visits/month, uses other search engines and narrows search-PatientsLikeMe – will notify you when other clinical trials are available - Patients can share EHRs with each other-Food Oasis – USDA food desert data, beta tested in 7 citiesHRSA/ONC finding: We have found “proof in concept” for the idea that IT can play an important role in improving quality and efficiency of care to the underserved. We also found that in the case of consumer-facing technologies, perceived benefits accrue for the role of technology in facilitating communication and access to human support such as peer-counselors, case managers and nurses.
Direct Relief provides essential material resources — medicines, supplies and equipment — to over 70 countries globally and 1,000 clinics and health centers in the United States.Direct Relief International Dataset contains approximately 50,000 records of shipments made by DRI to agencies world-wide.Health Resources and Services Administration Datasetfocuses on improving access to health care services for people who are uninsured, isolated or medically vulnerable.This dataset contains approximately 700,000 records of service delivery statistics reported by federally qualified health centers.
We want innovators to use data as a foundational building block in the development of apps and services that will help consumers take control of their health and health care
Health Datapalooza is an environment where everyone playing in the open data world can get together and showcase some of the best and groundbreaking innovationsLast Datapalooza we had over 1,600 attendees and over 250 applications featuredNext Datapalooza is June 3 – 4, 2013 @ OmniShoreham in Washington, DC
The transition to target innovation initiatives locally is aligned with the goals of the Department to serve in the grassroots development of the community to improve core public health capacities. Realizing that people want to use health data but may not be content experts, we are connecting our health data content experts with the users. Internal HHS activities:Launch of semi-annual data reviews and brainstorming sessions with each HHS agencyData access improvements made over the past 6 months and planned over the following 6 monthsBrainstorming about how we can connect innovators to each agency’s data to help advance their missionExpansion to include “semi-open” data Tailoring HHS’s health data events to focus on community health or related issues and partnering with public, private and voluntary institutions will jumpstart innovation at the local level and bridge the gap between federal and local governmental efforts. Additionally, HHS has already established “on-the-ground” support in many regions via the HDI Affiliates, local communities or state-based individuals or organizations that serve as a resource to inform, promote, train and/or convene interested parties of the region and connect them with national level health data activities.
26% of Americans use mobile phones for health – Manhattan ResearchHealth social media use has more than tripled since 2007 to over 100 million consumers. – Manhattan Research Remote patient monitoring is expected to grow by 25% per year -- Kalorama
With nearly 12,000 health-related apps available, and more being created every day,It is predicted that the number of mobile app downloads will reach 142 million by 2016, generating billions of real-world data points on patient health experiences and outcomesWithout the development of more sophisticated and effective tools for data visualization and analysis, legitimate questions remain regarding mHealth’s projected impact on chronic disease management and prevention. In considering how the mHealth ecosystem might need to evolve to achieve maximum impact, we can draw lessons from the success of the Internet’s open architecture and its ability to support both open and closed proprietary applications.More data will be liberated, including high value data sets. We will continue to work to improve the already liberated data. More applications will be developed to help consumers, communities and service providers. More opportunities to connect data owners and users will be available. We need your help in growing our data communities nationwide and in connecting data experts with users.