Om data als rentmeester te kunnen beheren moet data applicatie onafhankelijk door de professionals van de organisatie worden beheerd. Op het moment dat data alleen via (applicatie) technologie van een leverancier toegankelijk is en deze de data beheert heeft de organisatie geen regie. Data is niet duurzaam voor haar stakeholders beschikbaar. Graag nodigen we uit voor een discussie over hoe Twente een vierde sector onderneming met Return on Data via een digitale burgerkluis kan opzetten.

1. Data-rentmeesterschap
How can we organize data curation by design
for the citizens of Twente?
Peter Walgemoed

2. Carelliance background and personal drive
• Peter Walgemoed founded Carelliance in
2000 with a Vision to:
• Build an open health data and application
ecosystem, where data is curated by trusted
professionals and organizations
• Curator/rentmeester role of citizen medical
and health data
• Entrepreneur a collaborative health data
service platform
© Carelliance 2019
Carelliance 2000

3. Shared Personal Case
Decision Making to
Improve Quality
Of Care & Life
Research, Education &
Knowledge communities
Discover & Learn
from many cases
Payers
Insurers
Public & Private
Citizens!
Pay for (Case)
Health & Care Value
Health Data Eco-system stakeholders
© Carelliance 2019
Health Board
Coach
Health & Care Value
Data &
Technology
Data &
Technology
Data &
Technology
Data &
TechnologyHealth Client
Health
Professionals

4. Data driven health 4.0
© Carelliance 2019
Organizational
Maturity Level
6. AI Supported
5. Optimized
4. Managed
3. Defined
2. Repeatable
1. Initial

5. 4.0 Industry
© Carelliance 2019
Source: Michel Drescher. Intelligent Linking.
https://www.slideshare.net/MichelDrescher/custmer-40-the-customer-led-revolution-and-how-companies-should-respond-to-it

6. Watch the animated fluKs
walkthrough on YouTube

7. The care plan options are discussed
(online) with all required data and
knowledge tags on the canvas. The
chosen care plan is approved by the
MD team members.

8. This is the collection of knowledge tags
presented as a summary for the MD team
to support the care plan decision process

9. This collaborative effort is part of the natural care path
flow and seamlessly connects data and care team
members across organizations. Data is curated by design
in the process of collaboration and sharing insights.
The timeline can be rewound
to revisit the course, including
the data and canvasses from
that moment.

10. 100 million Digitally Connected Healthy EU Citizens by 2027
© Carelliance 2019
Source: Digital Health Society. https://echalliance.com/page/DHSDeclaration

11. Health data ecosystem
Citizen Data Co-operative Safe (4th
Sector for benefit)
• Data curation by professionals on behalf of citizen
• Application Independent long term data archive
• Data media owned by Citizen Data Co-operative
• Data in physical safe (Off-line)
• Supported by digital preservation community
Secondary use
#Data
Primary use
Decentralized Identifier
TrustCaseID
Trusted
Application
Marketplace
Citizen
myDNA & Health Data
Trusted & Curated
& Connected

12. Join the communityships to give input
LinkedIN #Datadrivenhealthlab
@pwalgemoed