Does your organization plow ahead with research and evaluation with some trepidation around ethical considerations? Do you worry about how your research may affect participants? Are you unclear about where you can get support to address your research ethics concerns?
The Community Research Ethics Office (CREO) is here to help. Established in Kitchener, Ontario with the support of the Centre for Community Based Research and the Ontario Trillium Foundation, CREO’s mandate is to support researchers and organizations that do not have access to institutional Research Ethics Boards in undertaking community based research (CBR).
Recruiting Minority Elders to Participate in ResearchUCLA CTSI
This study will examine the barriers that prevent minority elders from participating in research, particularly those studies that involve collection of biomarkers. Minority elders face health disparities but are underrepresented in research. As a consequence, research results are potentially non-generalizable to older, minority adults.
This document summarizes a study on community engagement in translational research. It found that while faculty and community partners generally agreed on the benefits of community engagement, there were some differences in attitudes around timelines and resource allocation. Both groups saw a need for more faculty training, particularly in cultural competency, community dialogue skills, and power sharing. The study was limited by its sampling methods but implications include using experienced faculty as mentors and addressing gaps in expectations between researchers and partners.
Taking Communities Seriously: Reflecting on Ethical, Social and Cultural Issueswellcome.trust
Presented by Paulina Tindana (McLaughlin-Rotman Centre and Navrongo Health Research Centre, Ghana) at the Public Engagement Workshop, 2-5 Dec. 2008, KwaZulu-Natal South Africa, http://scienceincommunity.wordpress.com/
Preparing for Genomic Research Among Indigenous People: What Scientists Need to Know – Jeffrey Collmann, PhD; Director, O’Neill Institute for National and Global Health Law, Georgetown University. As presented at Ohio State's Personalized Health Care National Conference.
This document discusses ethical guidelines for research in geography, political science, and sociology. It provides an overview of the key principles of ethical research according to the American Association of Geographers (AAG), American Political Science Association (APSA), and American Sociological Association (ASA). The guidelines address issues like professional competence, integrity, respect for people's rights and dignity, social responsibility, and maintaining confidentiality of research participants. The document also discusses challenges around informed consent and balancing the rights of researchers with the rights of research participants.
This document discusses ethics in social science and health research. It defines key terms like research, social science research, and health research. It outlines the symbiotic relationship between health and social science research, noting that social factors must be considered in health research and vice versa. The document also examines debates around ethical issues in social science research, such as power dynamics and risks to participants. It provides an overview of different types of ethics review for research protocols and discusses navigating ethics through principles like those in the Belmont Report.
The document discusses ethical guidelines for social scientists in different disciplines. It finds that while guidelines for political scientists, sociologists, and geographers cover similar topics like professional competence and responsibility, they differ in their specific focus. Political science guidelines emphasize responsibilities to students and in publishing/tenure processes. Sociology guidelines focus on competence, integrity, respect for people, and social responsibility. Geography guidelines discuss professional relations with other scholars, students, institutions, governments, and places/things under study. Overall, the document examines how ethics codes aim to balance scientists' research needs with participants' rights and welfare.
Participants at CKX were among the first to hear the breakthrough concept from best selling author, strategist and disruptive thinker Don Tapscott (@dtapscott) on how institutions, companies and governments can unlock data, knowledge and ideas to create truly vibrant and open communities and cities in his keynote address.
Tapscott is ranked by Thinkers50 as the one of the most important management thinkers in the world. In his keynote address at CKX, presented by Manulife Asset Management, Tapscott shared a radically new concept of the city. What if institutions opened up and shared data, knowledge and ideas — everything from local government, public transportation, traffic, hospitals, universities, schools, shopping malls, to the power grid, research laboratories and community organizations. “We can create the city as a platform” says Tapscott, “supercharging entrepreneurship, jobs, prosperity, science, learning, sustainability, public safety and good government.”
The author or co-author of 15 books including Radical Openness, Macrowikinomics and Grown Up Digital, Tapscott explained how The Open City is not just a vision, it’s also within our reach.
Recruiting Minority Elders to Participate in ResearchUCLA CTSI
This study will examine the barriers that prevent minority elders from participating in research, particularly those studies that involve collection of biomarkers. Minority elders face health disparities but are underrepresented in research. As a consequence, research results are potentially non-generalizable to older, minority adults.
This document summarizes a study on community engagement in translational research. It found that while faculty and community partners generally agreed on the benefits of community engagement, there were some differences in attitudes around timelines and resource allocation. Both groups saw a need for more faculty training, particularly in cultural competency, community dialogue skills, and power sharing. The study was limited by its sampling methods but implications include using experienced faculty as mentors and addressing gaps in expectations between researchers and partners.
Taking Communities Seriously: Reflecting on Ethical, Social and Cultural Issueswellcome.trust
Presented by Paulina Tindana (McLaughlin-Rotman Centre and Navrongo Health Research Centre, Ghana) at the Public Engagement Workshop, 2-5 Dec. 2008, KwaZulu-Natal South Africa, http://scienceincommunity.wordpress.com/
Preparing for Genomic Research Among Indigenous People: What Scientists Need to Know – Jeffrey Collmann, PhD; Director, O’Neill Institute for National and Global Health Law, Georgetown University. As presented at Ohio State's Personalized Health Care National Conference.
This document discusses ethical guidelines for research in geography, political science, and sociology. It provides an overview of the key principles of ethical research according to the American Association of Geographers (AAG), American Political Science Association (APSA), and American Sociological Association (ASA). The guidelines address issues like professional competence, integrity, respect for people's rights and dignity, social responsibility, and maintaining confidentiality of research participants. The document also discusses challenges around informed consent and balancing the rights of researchers with the rights of research participants.
This document discusses ethics in social science and health research. It defines key terms like research, social science research, and health research. It outlines the symbiotic relationship between health and social science research, noting that social factors must be considered in health research and vice versa. The document also examines debates around ethical issues in social science research, such as power dynamics and risks to participants. It provides an overview of different types of ethics review for research protocols and discusses navigating ethics through principles like those in the Belmont Report.
The document discusses ethical guidelines for social scientists in different disciplines. It finds that while guidelines for political scientists, sociologists, and geographers cover similar topics like professional competence and responsibility, they differ in their specific focus. Political science guidelines emphasize responsibilities to students and in publishing/tenure processes. Sociology guidelines focus on competence, integrity, respect for people, and social responsibility. Geography guidelines discuss professional relations with other scholars, students, institutions, governments, and places/things under study. Overall, the document examines how ethics codes aim to balance scientists' research needs with participants' rights and welfare.
Participants at CKX were among the first to hear the breakthrough concept from best selling author, strategist and disruptive thinker Don Tapscott (@dtapscott) on how institutions, companies and governments can unlock data, knowledge and ideas to create truly vibrant and open communities and cities in his keynote address.
Tapscott is ranked by Thinkers50 as the one of the most important management thinkers in the world. In his keynote address at CKX, presented by Manulife Asset Management, Tapscott shared a radically new concept of the city. What if institutions opened up and shared data, knowledge and ideas — everything from local government, public transportation, traffic, hospitals, universities, schools, shopping malls, to the power grid, research laboratories and community organizations. “We can create the city as a platform” says Tapscott, “supercharging entrepreneurship, jobs, prosperity, science, learning, sustainability, public safety and good government.”
The author or co-author of 15 books including Radical Openness, Macrowikinomics and Grown Up Digital, Tapscott explained how The Open City is not just a vision, it’s also within our reach.
This document provides an overview of research ethics and the postgraduate research (PGR) ethical review process at the School of Education, University of Nottingham. It discusses key concepts in research ethics like informed consent and protecting participants. It also summarizes guidelines from the British Educational Research Association (BERA) on responsibilities to participants, sponsors, and the research community. Additionally, it addresses some challenges with ethical codes and the need for researchers to make judgment calls. Finally, it briefly touches on additional considerations for ethics in practitioner and action research due to dual roles of researchers.
This document provides an overview of research ethics and the institutional review board (IRB) approval process at Makerere University's College of Agricultural and Environmental Sciences (CAES). It defines research and ethics, outlines key ethical principles like respect for persons and justice, and discusses common issues like conflicts of interest and risk of harm. It then describes the functions and composition of CAES' research ethics committee (REC), which reviews research proposals to protect participants. The document concludes by explaining CAES-REC's application and approval process, which involves submitting documents like protocols and consent forms for either regular or expedited review.
Presentasjon fra Helene Ingierd i forbindelse med foredraget "Research ethics, scientific misconduct and questionable practices". Foredraget ble holdt online den 23. september 2020.
BACP Ethical guidelines for research in counselling professionsAlex Clapson
The Ethical Guidelines for Research in the Counselling Professions was written by Dr Barbara
Mitchels, PhD., LL.B., Solicitor (rtd.), Dip Couns., FBACP (Snr Accred). The project was supervised
by Professor Tim Bond, Emeritus Professor, University of Bristol and Visiting Professor,
University of Malta. The project was ably supported by the expertise and contributions of staff
and members of the British Association for Counselling and Psychotherapy and by external
advisers.
In particular, we thank Clare Symons, the British Psychological Society Ethics
Committee, and all the consultants and discussants who generously contributed to the project,
giving their time and energy to help create and review the draft. In particular, grateful thanks
to: Deborah Bowman, Katherine Cereghino, Alex Clapson, Ann Dalzell, Susan Dale, Morag
Driscoll, Betts Fetherston, Nicola Forshaw, Rachel Freeth, Jane Hancock, Sue Gandy, Caroline
Jesper, Colin Lago, David Lane, Richard Mason, Jo Mountain, Rachel Muir, John Ovretveit,
Kathy Raffles, Alistair Ross, Elspeth Schwenk, Mhairi Thurston, Maureen Vernon, Pippa Weitz,
William West and Jeannie Wright. We thank Brethertons LLP Solicitors for their legal expertise
and comments on the draft document. The Ethical Guidelines for Research in the Counselling
Professions has been greatly improved by all the feedback received.
February 2019
Building a culture of research in schools is important. A research culture influences career paths and how research is conducted and communicated. It also determines an organization's approach to research integrity - the formal ethics, standards, and policies researchers follow. Major ethical issues in conducting research include obtaining informed consent, doing no harm, respecting anonymity and confidentiality, and respecting privacy. Common ethical issues are proper study design, appropriate data analysis, fair authorship, avoiding redundant publication, and preventing plagiarism. It is the researcher's duty to ensure research is conducted and reported ethically.
CBPR and Detroit URC, IUHPE, New Zealand, 2019ewilsonpowers
The Detroit Community-Academic Urban Research Center takes a community-based participatory research approach to address health inequities. It forms equitable partnerships between community organizations and academic researchers to conduct research. Projects focus on social and environmental determinants of health. This has led to over 20 partnerships, 35 research projects, and improved community health. Lessons learned include developing shared principles, focusing on community strengths, reaching equity, and ongoing evaluation to promote effective long-term partnerships.
Developing Performance Measures Through a Consultative ProcessCesToronto
This document summarizes the development of performance indicators to measure the impact of Ontario's Accessibility for Ontarians with Disabilities Act (AODA). It involved background research, consultation with stakeholders, and a priority sorting process. Twelve indicators across five domains (customer service, employment, information, transportation, public spaces) were recommended to capture changes in quality of life. The process highlighted that people with disabilities want to provide input and see the AODA taken seriously. It also showed that online surveys can effectively engage stakeholders if organizations represent populations.
Developing Performance Measures through a Consultative ProcessKate Powadiuk
This document summarizes the development of performance indicators to measure the impact of Ontario's Accessibility for Ontarians with Disabilities Act (AODA). It involved background research, consultation with stakeholders, and a priority sorting process. Twelve indicators across five domains (customer service, employment, information, transportation, public spaces) were recommended to capture changes in quality of life. The process highlighted that people with disabilities want to provide input and see the AODA taken seriously. It also showed that online surveys can effectively engage stakeholders if organizations represent populations.
ICRISAT Global Planning Meeting 2019: Research Involving Humans by Michael Ha...ICRISAT
Research Ethics are the principles and standards guiding research from inception through to publication. Ensure research is designed, conducted and reported in a way that ensures its integrity, quality and contribution to scholarly knowledge.Ethics is knowing the difference between what you have a right to do and what is right to do.
This document provides an overview of qualitative research methods. It discusses that qualitative research aims to understand experiences from the perspective of individuals, using words rather than numbers. Qualitative methods are used to answer questions about processes or experiences. Topics that can be addressed include people's health experiences, attitudes, and how life circumstances affect health. The document reviews sampling techniques in qualitative research, as well as methods for generating data, including individual interviews, group interviews, and collecting contextual information. Interviewing skills like establishing rapport and addressing potential biases are also covered.
An overview of ethical research practices by Malcolm MacLean, Chair of UoG Research Ethics Committee.
Reader in the Culture & History of Sport, Faculty of Applied Sciences
Module 1: Overview of Professional Ethics
Professional Ethics - Big Picture View - Organizational Culture and Climate- Senses of ‘Engineering Ethics’- Leadership theories: Transactional, Transformational, charismatic leadership, situational leadership - Participative style of management- Engineers as Managers - Concept of Continuous improvement- PDCA Cycle- Suggestion Schemes and Quality circles
This document discusses ethical principles in social research. It covers historical examples where ethics were not followed, such as the Tuskegee Syphilis Study and research done by Nazi Germany. Key principles discussed include obtaining informed consent, protecting participants from harm, ensuring anonymity and confidentiality, and being honest in reporting results. The document also addresses ethical dilemmas that can arise during and after data collection regarding issues like who owns the data. Researchers must consider all stakeholders and try to maximize benefits and minimize risks of any study.
This document provides an overview of qualitative research methods. It discusses key topics such as the differences between qualitative and quantitative research, sampling and recruitment strategies in qualitative research, and ethical guidelines. Some of the main points covered are:
- Qualitative research seeks to understand a research problem from the perspectives of the local population. It uses open-ended questions to obtain culturally specific and rich explanatory data.
- Common qualitative methods include participant observation, in-depth interviews, and focus groups. Data takes the form of field notes, audio recordings, and transcripts.
- Purposive, quota, and snowball sampling strategies are used to identify and select participants with specific characteristics relevant to the research question.
- Informed consent
You’ve probably heard about Open Data and Open Government. But have you ever considered the radical idea of Open Philanthropy? What would happen if you applied the principles of open data to philanthropic institutions such as foundations, funders and grant-makers?
In this session you’ll be introduced to three open data initiatives that are doing just that.
Join Jake Hirsch-Allen (Partner, Functional Imperative & Lighthouse Labs) Michael Lenczner (CEO, Ajah and Director, Powered By Data) and Gena Rotstein (CEO and Advisor in Philanthropy - Dexterity Ventures Inc./Place2Give) for an interactive showcase that will answer this question and unpack the benefits of Open Philanthropy for grantmakers, community organizations and donors.
How do you measure what matters in your community?
Rather than starting from scratch, one approach that’s gaining traction is using shared impact measurement tools like the Canadian Index of Wellbeing.
Hang on a second. What’s the Canadian Index of Wellbeing?
First and foremost, the CIW is a big idea that regards wellbeing as encompassing a wide variety of aspects of life, beyond economic measures like Gross Domestic Product (GDP). It’s also a tool that is measuring what matters to Canadians. It tracks wellbeing from year to year in an effort to offer clear, effective, and regular information on the quality of life of all Canadians.
In a series of Pecha-Kucha style presentations (each limited to 20 slides with 20 seconds per slide), you’ll learn how five organizations across Canada are working with the Canadian Index of Wellbeing to measure what matters in their communities. The presenters include:
Dan Wilson, Director, Policy, Planning and Performance, Ontario Trillium Foundation
Robert Janus, Director of Communications, Victoria Foundation
Barbara Powell, General Manager of Community Engagement, City of Guelph
Nancy Mattes, Director, Social Prosperity Wood Buffalo
Denise C. Squire, Executive Director, Woolwich Community Health Centre
After the rapid-fire overview, you’ll have a chance to take a bit of a deeper dive in a series of group discussions led by our presenters as we unpack the challenges of measuring impact and the potential benefits of shared or common measurement frameworks like the Canadian Index of Wellbeing.
More Related Content
Similar to CKX: Do No Harm - The ethical challenges of community-based research
This document provides an overview of research ethics and the postgraduate research (PGR) ethical review process at the School of Education, University of Nottingham. It discusses key concepts in research ethics like informed consent and protecting participants. It also summarizes guidelines from the British Educational Research Association (BERA) on responsibilities to participants, sponsors, and the research community. Additionally, it addresses some challenges with ethical codes and the need for researchers to make judgment calls. Finally, it briefly touches on additional considerations for ethics in practitioner and action research due to dual roles of researchers.
This document provides an overview of research ethics and the institutional review board (IRB) approval process at Makerere University's College of Agricultural and Environmental Sciences (CAES). It defines research and ethics, outlines key ethical principles like respect for persons and justice, and discusses common issues like conflicts of interest and risk of harm. It then describes the functions and composition of CAES' research ethics committee (REC), which reviews research proposals to protect participants. The document concludes by explaining CAES-REC's application and approval process, which involves submitting documents like protocols and consent forms for either regular or expedited review.
Presentasjon fra Helene Ingierd i forbindelse med foredraget "Research ethics, scientific misconduct and questionable practices". Foredraget ble holdt online den 23. september 2020.
BACP Ethical guidelines for research in counselling professionsAlex Clapson
The Ethical Guidelines for Research in the Counselling Professions was written by Dr Barbara
Mitchels, PhD., LL.B., Solicitor (rtd.), Dip Couns., FBACP (Snr Accred). The project was supervised
by Professor Tim Bond, Emeritus Professor, University of Bristol and Visiting Professor,
University of Malta. The project was ably supported by the expertise and contributions of staff
and members of the British Association for Counselling and Psychotherapy and by external
advisers.
In particular, we thank Clare Symons, the British Psychological Society Ethics
Committee, and all the consultants and discussants who generously contributed to the project,
giving their time and energy to help create and review the draft. In particular, grateful thanks
to: Deborah Bowman, Katherine Cereghino, Alex Clapson, Ann Dalzell, Susan Dale, Morag
Driscoll, Betts Fetherston, Nicola Forshaw, Rachel Freeth, Jane Hancock, Sue Gandy, Caroline
Jesper, Colin Lago, David Lane, Richard Mason, Jo Mountain, Rachel Muir, John Ovretveit,
Kathy Raffles, Alistair Ross, Elspeth Schwenk, Mhairi Thurston, Maureen Vernon, Pippa Weitz,
William West and Jeannie Wright. We thank Brethertons LLP Solicitors for their legal expertise
and comments on the draft document. The Ethical Guidelines for Research in the Counselling
Professions has been greatly improved by all the feedback received.
February 2019
Building a culture of research in schools is important. A research culture influences career paths and how research is conducted and communicated. It also determines an organization's approach to research integrity - the formal ethics, standards, and policies researchers follow. Major ethical issues in conducting research include obtaining informed consent, doing no harm, respecting anonymity and confidentiality, and respecting privacy. Common ethical issues are proper study design, appropriate data analysis, fair authorship, avoiding redundant publication, and preventing plagiarism. It is the researcher's duty to ensure research is conducted and reported ethically.
CBPR and Detroit URC, IUHPE, New Zealand, 2019ewilsonpowers
The Detroit Community-Academic Urban Research Center takes a community-based participatory research approach to address health inequities. It forms equitable partnerships between community organizations and academic researchers to conduct research. Projects focus on social and environmental determinants of health. This has led to over 20 partnerships, 35 research projects, and improved community health. Lessons learned include developing shared principles, focusing on community strengths, reaching equity, and ongoing evaluation to promote effective long-term partnerships.
Developing Performance Measures Through a Consultative ProcessCesToronto
This document summarizes the development of performance indicators to measure the impact of Ontario's Accessibility for Ontarians with Disabilities Act (AODA). It involved background research, consultation with stakeholders, and a priority sorting process. Twelve indicators across five domains (customer service, employment, information, transportation, public spaces) were recommended to capture changes in quality of life. The process highlighted that people with disabilities want to provide input and see the AODA taken seriously. It also showed that online surveys can effectively engage stakeholders if organizations represent populations.
Developing Performance Measures through a Consultative ProcessKate Powadiuk
This document summarizes the development of performance indicators to measure the impact of Ontario's Accessibility for Ontarians with Disabilities Act (AODA). It involved background research, consultation with stakeholders, and a priority sorting process. Twelve indicators across five domains (customer service, employment, information, transportation, public spaces) were recommended to capture changes in quality of life. The process highlighted that people with disabilities want to provide input and see the AODA taken seriously. It also showed that online surveys can effectively engage stakeholders if organizations represent populations.
ICRISAT Global Planning Meeting 2019: Research Involving Humans by Michael Ha...ICRISAT
Research Ethics are the principles and standards guiding research from inception through to publication. Ensure research is designed, conducted and reported in a way that ensures its integrity, quality and contribution to scholarly knowledge.Ethics is knowing the difference between what you have a right to do and what is right to do.
This document provides an overview of qualitative research methods. It discusses that qualitative research aims to understand experiences from the perspective of individuals, using words rather than numbers. Qualitative methods are used to answer questions about processes or experiences. Topics that can be addressed include people's health experiences, attitudes, and how life circumstances affect health. The document reviews sampling techniques in qualitative research, as well as methods for generating data, including individual interviews, group interviews, and collecting contextual information. Interviewing skills like establishing rapport and addressing potential biases are also covered.
An overview of ethical research practices by Malcolm MacLean, Chair of UoG Research Ethics Committee.
Reader in the Culture & History of Sport, Faculty of Applied Sciences
Module 1: Overview of Professional Ethics
Professional Ethics - Big Picture View - Organizational Culture and Climate- Senses of ‘Engineering Ethics’- Leadership theories: Transactional, Transformational, charismatic leadership, situational leadership - Participative style of management- Engineers as Managers - Concept of Continuous improvement- PDCA Cycle- Suggestion Schemes and Quality circles
This document discusses ethical principles in social research. It covers historical examples where ethics were not followed, such as the Tuskegee Syphilis Study and research done by Nazi Germany. Key principles discussed include obtaining informed consent, protecting participants from harm, ensuring anonymity and confidentiality, and being honest in reporting results. The document also addresses ethical dilemmas that can arise during and after data collection regarding issues like who owns the data. Researchers must consider all stakeholders and try to maximize benefits and minimize risks of any study.
This document provides an overview of qualitative research methods. It discusses key topics such as the differences between qualitative and quantitative research, sampling and recruitment strategies in qualitative research, and ethical guidelines. Some of the main points covered are:
- Qualitative research seeks to understand a research problem from the perspectives of the local population. It uses open-ended questions to obtain culturally specific and rich explanatory data.
- Common qualitative methods include participant observation, in-depth interviews, and focus groups. Data takes the form of field notes, audio recordings, and transcripts.
- Purposive, quota, and snowball sampling strategies are used to identify and select participants with specific characteristics relevant to the research question.
- Informed consent
You’ve probably heard about Open Data and Open Government. But have you ever considered the radical idea of Open Philanthropy? What would happen if you applied the principles of open data to philanthropic institutions such as foundations, funders and grant-makers?
In this session you’ll be introduced to three open data initiatives that are doing just that.
Join Jake Hirsch-Allen (Partner, Functional Imperative & Lighthouse Labs) Michael Lenczner (CEO, Ajah and Director, Powered By Data) and Gena Rotstein (CEO and Advisor in Philanthropy - Dexterity Ventures Inc./Place2Give) for an interactive showcase that will answer this question and unpack the benefits of Open Philanthropy for grantmakers, community organizations and donors.
How do you measure what matters in your community?
Rather than starting from scratch, one approach that’s gaining traction is using shared impact measurement tools like the Canadian Index of Wellbeing.
Hang on a second. What’s the Canadian Index of Wellbeing?
First and foremost, the CIW is a big idea that regards wellbeing as encompassing a wide variety of aspects of life, beyond economic measures like Gross Domestic Product (GDP). It’s also a tool that is measuring what matters to Canadians. It tracks wellbeing from year to year in an effort to offer clear, effective, and regular information on the quality of life of all Canadians.
In a series of Pecha-Kucha style presentations (each limited to 20 slides with 20 seconds per slide), you’ll learn how five organizations across Canada are working with the Canadian Index of Wellbeing to measure what matters in their communities. The presenters include:
Dan Wilson, Director, Policy, Planning and Performance, Ontario Trillium Foundation
Robert Janus, Director of Communications, Victoria Foundation
Barbara Powell, General Manager of Community Engagement, City of Guelph
Nancy Mattes, Director, Social Prosperity Wood Buffalo
Denise C. Squire, Executive Director, Woolwich Community Health Centre
After the rapid-fire overview, you’ll have a chance to take a bit of a deeper dive in a series of group discussions led by our presenters as we unpack the challenges of measuring impact and the potential benefits of shared or common measurement frameworks like the Canadian Index of Wellbeing.
It is rare for new ideas and insights to turn into successful programs on the first try. Even tested approaches don't always go as planned. Failure happens. The question is: How do we fail intelligently? How do we create space for innovation, build resilience, and harness the productive potential of our failures?
In this session, participants will explore what intelligent failure means in their context, participate in hands-on, interactive activities and engage and learn with peers to discover easy ways to apply intelligent failure practices that align with organizational needs. Participants will walk away with tangible skills, insights and actions that help them, and their organizations, fail better.
Jenna Tenn-Yuk discusses spoken word poetry as a tool for activism and social change. She explains that spoken word allows one to find and share their voice, connect personal experiences to wider cultural movements, and challenge dominant social norms. It creates a space for community, inclusion and breaking silences. Spoken word can examine complex identities, foster dialogue, and cause self-reflection and social action to incite change.
This document provides statistics about food-bearing trees and food waste in Ottawa, Canada. It estimates there are over 235,000 potential food-bearing trees across the city's public and private lands that could yield over 7 million pounds of fruit annually if harvested. However, currently only a small fraction of the potential harvest is being collected. The document encourages various ways for people to get involved to reduce waste and make better use of available local food resources.
In this workshop, Pathways to Education showcases its new interactive mapping tool - a key component of its approach to program expansion and improvement, partner engagement, and community knowledge. By providing insights into educational attainment rates, poverty trends, and other indicators throughout Canada, the new data visualization tool is helping the organization build a thoughtful and demand-driven expansion strategy and ensure effective program offerings, multi-stakeholder collaboration, and greater issue awareness.
Session participants learned how the mapping tool is helping Pathways to Education understand unique socio-demographic contexts of existing and potential program sites, and how this type of tool can benefit other Canadian nonprofits, foundations, and the general public.
This session also outlined the challenges inherent in working with big data and highlight key insights gained from the project. The presenters shared specific examples of how the tool has already helped to spark conversations and raise awareness about the barriers and solutions facing at-risk youth and communities throughout Canada.
This document provides information on several Canadian organizations involved in social impact measurement and social return on investment (SROI). It describes a meetup group in the Greater Toronto Area for those interested in social impact measurement and SROI. It also provides details on SIAA Canada, which is a network that offers training in impact analysis, the SROI Network Canada, which connects SROI practitioners through methodology calls and accreditation training, and the Canadian Evaluation Society, which has local chapters that provide professional development workshops. It concludes by mentioning an upcoming session at the Centre for Social Innovation to discuss questions about social impact analysis.
Our communities are facing complex challenges. Whether in areas such as housing, food security, youth employment or other areas, there are no silver bullets and no easy answers. Our capacity to solve these challenges is present, and is even stronger than ever. Only no single individual, group, organization or government can claim to have all the pieces required to solve these complex social challenges, but they can all contribute something. What is needed is to connect, assemble and test the pieces that together can help bring the solution.
This is exactly what social innovation labs do. In this CKX opening plenary, Joeri van den Steenhoven, Director of the MaRS Solutions Lab, shares his perspectives on the challenges communities face today and tomorrow, and why we need to think about systems change. He shows how labs work and how community knowledge - in its many forms - can and must be assembled, adapted and reconfigured to bring about the change we want in our communities.
What is the power of community knowledge? Using the analogy of LEGO, CKX Sherpa Lee Rose explore how different actors in a community (governments, community organizations, institutions, companies and individuals) already have all the pieces they need to address challenges and issues.
In short: You don't need new pieces - you need to find new ways to put the existing pieces together. That's the power of community knowledge
This document discusses both the promise and potential pitfalls of data use in the non-profit sector. While data can empower people by providing information to make informed choices, there are also risks if not handled responsibly. Specifically, non-profits may collect and use personal data without proper consent, guidelines, or oversight. The document warns against thinking that more data is always better and that technology alone empowers. It advocates for a responsible approach that considers issues like identity, consent, re-use, and doing no harm. Real-life examples will be presented of challenges around police body cameras, digital redlining, and the Netflix Prize effect to illustrate these issues.
Wellbeing Toronto is a dynamic map visualization tool that helps evaluate community wellbeing across Toronto's 140 neighbourhoods on a number of factors including as crime, transportation and housing. It’s used by decision-makers that need data to support neighbourhood level planning, residents that want information to better understand the communities they live, work, and play in; and businesses needing indicators to learn more about their customers.
But it’s more than just a map.
In this session, Wellbeing Toronto Project Manager Mat Krepicz takes you on a tour of Wellbeing Toronto and share candid insights on its development including key lessons learned, mistakes made, and preview what’s next for one of Canada’s most robust community indicator platforms.
This document discusses social impact measurement and performance management. It presents frameworks for measuring social impact at different levels, from individual programs to entire fields. It emphasizes using data and feedback loops to continually evaluate and improve social services. Performance is measured through outcomes, benchmarks, and constituent voice. The goal is to understand what works, for whom, and drive better outcomes and collaboration.
CKX: Do No Harm - The ethical challenges of community-based research
1.
2. W O R K S H O P H O S T E D B Y :
F A C I L I T A T O R S :
T H E R O N K R A M E R
A Y E S H A U M M E - J I H A D
DO NO HARM:
The Ethical Challenges Of
Community-based Research
3. CONTEXT
Tri-Council agencies: SSHRC, NSERC, CIHR
TCPS 2 mandate: Ethical review is required for
human subjects research.
Community-based research does not have access to
ethical support or review.
4. HISTORY of CREO
Needs identified:
1. Access to consultation service for support and education
pertaining to CBR
2. A formal review process for CBR projects
3. Training and workshops for CBR and ethics
4. Online resources
CREO, established in 2011, “aims to strengthen and
support community research by responding to the
needs of community researchers to easily access an
ethical support and review process.”
5. CREO’s STRUCTURE
Community Research Ethics Board consists of:
8 Board of Directors
1 Coordinator
Key considerations in BoD composition
Multidisciplinary
Gender and cultural diversity
Expertise in methodology & ethical considerations of CBR
Expertise in ethics & law
Community research experience as researcher or participant
6. CREO’s PRINCIPLES
Aligned with the principles of the Tri-Council
agencies and the TCPS 2
Adds 4th principle reflecting the impact research has
on communities as well as individuals
1. Respect for Persons
2. Concern for Welfare
3. Concern for Justice
4. Respect for Community
9. COMMUNITY-BASED RESEARCH
Involves the community at all research stages
Usually involves desire for action toward change
May relate to existing services/programs or
operations
Results ownership shared between researchers and
the community
10. ETHICAL CHALLENGES
Researchers may not be cognizant of ethical
considerations:
Voluntariness – Undue influence
Confidentiality – Use of Focus Groups
Informed consent – how much is too much
Consideration of effects on communities not just on
individuals
11. SOME OF OUR ETHICAL DILEMMAS
Uniqueness of qualitative research
Poor methodology may have ethical implications
Considering treatment of researchers as well as
research participants in participatory action research
model
Lack of research ethics training for community based
researchers
12. YOUR ETHICAL DILEMMAS
WHAT ETHICAL DILEMMAS/ CONCERNS
HAVE YOU FACED
or
ARE YOU FACING IN
YOUR RESEARCH PROJECTS
??????????
13. W O R K S H O P H O S T E D B Y :
F A C I L I T A T O R S :
T H E R O N K R A M E R
A Y E S H A U M M E - J I H A D
Thank you for attending!
Editor's Notes
All Canadian institutions that conduct research and receive funding from the Tri-Council agencies (SSHRC, NSERC, CIHR). These three agencies have made it mandatory for research to undergo ethical review through a Research Ethics Board. Major institutions such as universities, hospitals have their own institutional REB to conduct ethical reviews of research projects.
The 3 major government agencies have developed the Tri-Council Policy which establishes and outlines ethical norms that are meant to guide Canadian researchers in the conduct of research involving humans. According to the TCPS, all research that the three agencies fund that involve living human subjects requires ethics review and approval by a Research Ethics Board (REB) before the research commences.
The research design, contingencies for data collection and storage, methods for ensuring participant confidentiality and anonymity are all part of a review. The ethical review process is not designed to hinder, prevent, or police the conduct of research. It is designed to help researchers think about the ethical implications of their research on the lives of their human subjects.
Research in Canada is increasingly being conducted outside of academia through NGO’s, government organizations, independent consultants, and community organizations. This research is not mandated for ethical review, because it is not funded by the Tri-council agencies. Ethical support and ethical review processes are lacking for community-based research.
In 2008, community representatives in the Waterloo Region identified the need for a community-accessible ethics review board for community-based research.
The Centre for Community Based Research, located in Kitchener, conducted a needs assessment and feasibility study in the region, collecting data from 74 community members.
In 2010, a community forum was held to use the findings to develop a feasible approach for improving ethical review and access to support for research being conducted in the community.
The forum generated four suggestions:
An accessible consultation service for support and education pertaining to community research
A formal review process for community-based research projects
Ongoing training and workshops pertaining to community research and ethics
An online resource base
The steering committee submitted a grant application to the Ontario Trillium Foundation to support the implementation of CREO.
Implemented in 2011 and funded by the Ontario Trillium Foundation for the first 3 years, CREO responds to the needs of community researchers to access an ethical support and review process
(handout principles chart and highlight briefly)
We conduct reviews of proposed research projects to determine if the projects are ethically sound
We offer one-on-one consultations about ethical conduct of research
We provide training and workshops on the ethical conduct of community-based research
Our website operates as a network in which community researchers can contribute to and access resources.
Questions about CREO?
Involves the community at all research stages – questions may be posed by the community or by the researcher but affected communities are engaged early in the process – refining the research questions; designing the research process; may involve community participant researchers, usually includes some sort of community steering committee including partnerships among nfps, institutions, government, funders, affected individuals
Usually involves desire for action toward change – i.e., there is a community development component. This is not research that is done primarily to only move knowledge forward on an issue or to lead to further research (although it may). The researcher is often also a facilitator or may engage external facilitator, especially in complex partnerships
May relate to existing services/programs or operations – evaluation research which involves human participants is still research and needs to consider the ethics of the processes, relationships, tools, etc. involved in all aspects of the research
Results ownership shared between researchers and the community. Who owns the research results is sometimes an important issue since there may be interest on both the part of the community and the researcher to use those results with different agendas (the researcher may feel the research is not complete enough and needs more research while the community just wants to move forward on making change).
There may be any number of other ethical challenges and dilemmas faced by both the community and the researchers involved in CBR. Lets look first at a few challenges:
Researchers may not be cognizant of ethical considerations:
Voluntariness – Undue influence (e.g., public health unit wanting to do research with new mothers related to breast feeding – may feel coerced because they fear losing services if they refuse to participate)
Confidentiality – Use of Focus Groups (you can never guarantee that all focus group participants will maintain confidentiality – how to overcome this??)
Informed consent – how much is too much – list the kinds of things participants need to know in information/consent forms Handout?
Consideration of effects on communities not just on individuals – note that TCPS2 has much to say about this related to Aboriginal/First Nations/Indigenous communities but not others. Discuss current proposed changes related to this.
Uniqueness of qualitative research – e.g., observation
Poor methodology may have ethical implications - e.g., in evaluation research of a pilot project running training workshops. Research dethics cannot evaluate the ethics of the workshops so there must be clear separation in applicants documentation.
Considering treatment of researchers as well as research participants in participatory action research model – especially important in participant action research where researchers are themselves part of the community on which the research is based.
Lack of research ethics training for community based researchers – NFP staff, consultants, etc. may have degrees even at the doctorate level but may not have any idea how to apply ethical principles to their research. Even more difficult where those undertaking the research do not have a lot of research experience either. This goes back to the first point on this slide.
Facilitate discussion on their examples or present an example to get discussion started.