CADTH 2015 Symposium

1. The Role of Patients in
Defining Value:
Benefits for HTA
KEN BOND, DIRECTOR, STRATEGIC INITIATIVES

2. HTA
• Clinical, economic, ethical, legal, and
organizational implications
• Direct and indirect, intended and unintended
consequences
• Health benefit for money spent

3. Patients roles in HTA
Source of evidence
• current therapy and gaps, impact on
caregivers and family, expectations for new
medicines, key outcomes
• Validation
• Critical appraisal

5. Patient roles in HTA
Expert
• Research questions
• Protocol, report, recommendations
• Ensure voice is heard
• Clarification

6. Barriers to Input
Patient Organizations
• Work required to prepare submissions
• Expertise required to collect and analyze qualitative and
quantitative information
• Technical language of HTA
HTA Agencies
• Challenge understanding and using qualitative information
• Volume of information to consider within limited time
• Fair processes for all stakeholders

7. • Advice from HTA perspective
• Includes patient perspective
• What does “better” (evaluation, treatment) look like?

8. Patient input ensures that assessments and
deliberations are based on a well-informed
and explicit articulation of what is valued.

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