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Health Economics and Burden of Disease Breakout Report

Report on key points of discussion from Health Economics and Burden of Disease breakout group.

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Health Economics and Burden of Disease Breakout Report

  1. 1. Health Economics & Burden of Disease Breakout Group Report
  2. 2. What has already been done and how is it related? • Understanding impact of non-scalp hair loss • Sexual Quality of Life • Out of Pocket Costs • Prevalence studies/who is going to be a candidate for the drug
  3. 3. What questions still need to be answered? • How does AA impact work related outcomes? • Impact on patient time/income • Anxiety/depression/suicidality • What is the cumulative impact of alopecia areata on patients’ life course • Practice gap between patient and provider’s views of what is important and what works for patients • What is wean-off criteria
  4. 4. What resources are needed? • Partnership with clinical outcome assessments to make sure we are measuring what matters • Database access—how do we have ready access to data that people want? • Connections between patients, payers, clinicians, and pharmaceuticals
  5. 5. What can NAAF do to help? • Coordination and funding of clinical research focused on specific practice gaps • Identify patients for qualitative interviews or focus groups—link research to PRO development • Coordinate among pharma and payers to facilitate access

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Report on key points of discussion from Health Economics and Burden of Disease breakout group.

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