Breakout 2.1 OSA The patient’s perspective and 3rd sector view - Judy Harris and Lucy Bramwell Part of a set of presentations from NHS Improvement event: Better value, better outcomes held on Thursday 21 February 2013, Guoman Tower Hotel, London How to deliver quality and value in chronic care:sharing the learning from the respiratory programme

1. OSA
The patient’s perspective
and 3rd sector view
National Respiratory Learning Event
21st February 2013
Judy Harris and Lucy Bramwell
About the BLF
The BLF is the UK’s lung charity
• We offer support to the one in five people in the UK who have a lung
condition
• We promote greater understanding of lung disease
• We campaign for positive change
• We fund new research
www.blf.org.uk © British Lung Foundation 2012
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2. The BLF OSA campaign
Objectives:
To promote OSA as a regional and national priority in
England, Scotland, Wales and Northern Ireland, in order to
improve services along the patient pathway for people with
OSA
To help increase awareness of OSA to the general public and
health care professionals, especially primary care, to find
undiagnosed people and improve their quality of life
www.blf.org.uk © British Lung Foundation 2012
The OSA Charter
• Campaign tool
• 3 parts:
 Rights of people with OSA
 Calls to Governments across UK
 Encouraging employers
www.blf.org.uk © British Lung Foundation 2012
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3. The patient’s perspective
Signs and symptoms
• Public awareness of OSA (BLF surveys suggest 50% men and 60%
women have heard of OSA)
• Awareness of key symptoms
• Support from primary care; BLF GP guide; recognising symptoms –
day and night; screening; referral
www.blf.org.uk © British Lung Foundation 2012
The patient’s perspective
Referral
• Access to local sleep clinic
• Joined up working between primary, secondary and tertiary care –
protocols
• Clear pathway at point of referral
• Prioritising those most at risk
www.blf.org.uk © British Lung Foundation 2012
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4. The patient’s perspective
Assessment and Diagnosis
• Sleep services in each region for children and adults
• Fast track drivers, patients with co-morbidities (hypertension and
type 2 diabetes)
• Agreed minimum standards
www.blf.org.uk © British Lung Foundation 2012
The patient’s perspective
Treatment
• Agreed minimum standards
• Access to:
 Continuous Positive Airways Pressure (CPAP) – recommended for
moderate to severe OSA
 Other treatments – mandibular advancement (MAD), lifestyle
changes, surgery (tonsillectomy, bariatric, mandibular advancement)
 Education and Information
www.blf.org.uk © British Lung Foundation 2012
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5. The patient’s perspective
Management
• Patient information and education
• On-going clinical support
• Patient Voice
www.blf.org.uk © British Lung Foundation 2012
Patient voice - adult
• My CPAP is like a comfort blanket. After the first night with it, I was
bouncing off the walls – I had never felt like that before. It was
brilliant, absolutely brilliant.
• A sleep test showed I stopped breathing 54 times an hour during the
night. With the treatment I am doing really well and feel like a
completely different person.
• I've now been using the mandibular advancement device for just
over 4 weeks now which is reasonably comfortable to wear. It does
take some getting used to, but I do get a better quality of sleep -
and possibly more importantly, so does my wife.
www.blf.org.uk © British Lung Foundation 2012
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6. Patient voice -
child
As a baby, we noticed pauses in his breathing from about eight weeks
old. Milo used to cry before bedtime and say: ‘I don’t want to go to
sleep. It makes me tired.’ He was right, sleeping was exhausting for him.
I took him to the GP many times and we had several trips to A&E, when
Milo stopped breathing. But it took us a very long time to find out what
was wrong.
Milo had an urgent operation to remove his tonsils and adenoids in June
2012, just after his fourth birthday. The change has been incredible.
Milo was sleep deprived and oxygen starved for the first for years of his
life. I think the problem lies in a lack of awareness among GPs of OSA in
children.
www.blf.org.uk © British Lung Foundation 2012
OSA takeaway
Your OSA pack contains:
• Charter
• Patient information leaflet
• Triple S awareness poster (sample copy)
• Take action flyer
• GP OSA Guide – launching today!
www.blf.org.uk © British Lung Foundation 2012
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