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Autism, Social Media and
Community
Avinash Patil, Social Media Consultant
@NiteGlow
What is Social Media?
“Social Media is the democratisation by which anyone
can become a consumer or publisher of content through
online channels. It enables people to share information
and engage in a global real-time conversation.”
(Avinash Patil)​
Different flavours…
 Large Social Networks – Facebook, Linkedin
 Public Microblogging and Blogging Platforms – Twitter, Tumblr, Wordpress
 Video Sharing and Discussion Platforms – YouTube, Vimeo, DailyMotion
 Photosharing sites – Instagram, Flickr
 Direct Messaging – Skype, Whatsapp, Snapchat
 Internal Forums – NAS Community Forum, Network Autism​, Aspievillage,
Wrongplanet
Staggering numbers!
Facebook
 1.4 billion active users – 50% every day
 71% of adult internet users & 58% of entire adult population
 20 million people “Like” pages every day
Twitter
 320 million active users worldwide
 500 million tweets every day
A world of social connections
• Map of Facebook connections around the world in 2010 – Imagine what is now!
Large Existing Autism Communities
Wrong Planet - 80,000+ registered users
• Set up 2004
• Advice, tips and practical advice driven by autistic people
NAS Community – 13,276 registered users
• Set up 2010
• Peer-to-Peer support
• Sign-posting to relevant information on NAS website
• Anonymous – leads to freedom to discuss difficult topics
Advocacy and Awareness
In 2014 ‘What is autism’ was the 6th most
searched term in ‘What is’ category on
Google
Why do autistic people use Social Media?
Challenges with social communication
• Face-to-face communication
• Eye contact and body language
• Sustaining conversation
• Making and maintaining friendships
Social Media provides new options of addressing these
challenges
Why do autistic people use Social media?
Social Communication
Social Interaction Social Imagination
Addressing the Triad of Impairments
Sensory Challenges
 Creative self-expression and connection through
common interests
 Exploring of different identities and personas
 Text based and visual communication
• More direct and literal
 Clearer understanding of context and rules
 More time to process and respond
 Often less overwhelming than physical social
situations
• No need to interpret body language or facial
expression
 Always on
Why do autistic people use Social Media?
64%
22.10%
5.20%
3.90% 3.90%
Social Engagement and Common Connection
Entertainment
No specific reason
Business and Work
Keeping in touch with friends and relatives
 Most autistic people use Social Media for
Social Engagement and Common
Connection
 Friends or Romantic Partners
 Option that did not exist before
Source: Jemma Byrne, Autism and Social
Media: An exploration of the use of
computer mediated communications by
individuals on the autism spectrum,
University of Glasgow, Scottish Autism
Connectedness, Emotions and Empathy
Social Media offers new opportunities for a feeling of
connectedness
Social interactions such as likes and Emoji provide discreet
ways of conveying affinity and a wide range of emotions
‘Likes’ can also be used as icebreakers in conversations
Good examples of sharing experience and knowledge
Good examples of sharing experience and knowledge
Aspie World is a UK
Vlogger on the autism
spectrum
• Quirky and fun
look
• Practical advice
• Experience
• 5,490 subscribers
Democratisation and Social Change
 Social Media has been used successful for rapid Social change
• Voice to the Voiceless – People are part of the collective conversation
• Arab Spring 2011-2012 utilised it effectively to challenge and oust
oppressive regimes
 Access was less defined by sociological factors like class but rather
technical ability and an internet connection
Democratisation and Social Change
 Social Media played a key role in US Election and Brexit
 People VS the Establishment
 It successfully predicted the outcome
 Traditional polls got it wrong
Democratisation and Social Change
Imagine the social change the autism community can achieve with more
effective use of Social Media…
Community
 Social Media empowers autistic people to develop virtual and real world
communities around important issues
 Should look to develop this to full potential
 Mobilise positive action, awareness and acceptance

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Autism, Social Media and Community

  • 1. Autism, Social Media and Community Avinash Patil, Social Media Consultant @NiteGlow
  • 2. What is Social Media? “Social Media is the democratisation by which anyone can become a consumer or publisher of content through online channels. It enables people to share information and engage in a global real-time conversation.” (Avinash Patil)​
  • 3. Different flavours…  Large Social Networks – Facebook, Linkedin  Public Microblogging and Blogging Platforms – Twitter, Tumblr, Wordpress  Video Sharing and Discussion Platforms – YouTube, Vimeo, DailyMotion  Photosharing sites – Instagram, Flickr  Direct Messaging – Skype, Whatsapp, Snapchat  Internal Forums – NAS Community Forum, Network Autism​, Aspievillage, Wrongplanet
  • 4. Staggering numbers! Facebook  1.4 billion active users – 50% every day  71% of adult internet users & 58% of entire adult population  20 million people “Like” pages every day Twitter  320 million active users worldwide  500 million tweets every day
  • 5. A world of social connections • Map of Facebook connections around the world in 2010 – Imagine what is now!
  • 6. Large Existing Autism Communities Wrong Planet - 80,000+ registered users • Set up 2004 • Advice, tips and practical advice driven by autistic people NAS Community – 13,276 registered users • Set up 2010 • Peer-to-Peer support • Sign-posting to relevant information on NAS website • Anonymous – leads to freedom to discuss difficult topics
  • 7. Advocacy and Awareness In 2014 ‘What is autism’ was the 6th most searched term in ‘What is’ category on Google
  • 8. Why do autistic people use Social Media? Challenges with social communication • Face-to-face communication • Eye contact and body language • Sustaining conversation • Making and maintaining friendships Social Media provides new options of addressing these challenges
  • 9. Why do autistic people use Social media? Social Communication Social Interaction Social Imagination Addressing the Triad of Impairments Sensory Challenges  Creative self-expression and connection through common interests  Exploring of different identities and personas  Text based and visual communication • More direct and literal  Clearer understanding of context and rules  More time to process and respond  Often less overwhelming than physical social situations • No need to interpret body language or facial expression  Always on
  • 10. Why do autistic people use Social Media? 64% 22.10% 5.20% 3.90% 3.90% Social Engagement and Common Connection Entertainment No specific reason Business and Work Keeping in touch with friends and relatives  Most autistic people use Social Media for Social Engagement and Common Connection  Friends or Romantic Partners  Option that did not exist before Source: Jemma Byrne, Autism and Social Media: An exploration of the use of computer mediated communications by individuals on the autism spectrum, University of Glasgow, Scottish Autism
  • 11. Connectedness, Emotions and Empathy Social Media offers new opportunities for a feeling of connectedness Social interactions such as likes and Emoji provide discreet ways of conveying affinity and a wide range of emotions ‘Likes’ can also be used as icebreakers in conversations
  • 12. Good examples of sharing experience and knowledge
  • 13. Good examples of sharing experience and knowledge Aspie World is a UK Vlogger on the autism spectrum • Quirky and fun look • Practical advice • Experience • 5,490 subscribers
  • 14. Democratisation and Social Change  Social Media has been used successful for rapid Social change • Voice to the Voiceless – People are part of the collective conversation • Arab Spring 2011-2012 utilised it effectively to challenge and oust oppressive regimes  Access was less defined by sociological factors like class but rather technical ability and an internet connection
  • 15. Democratisation and Social Change  Social Media played a key role in US Election and Brexit  People VS the Establishment  It successfully predicted the outcome  Traditional polls got it wrong
  • 16. Democratisation and Social Change Imagine the social change the autism community can achieve with more effective use of Social Media…
  • 17. Community  Social Media empowers autistic people to develop virtual and real world communities around important issues  Should look to develop this to full potential  Mobilise positive action, awareness and acceptance