Póster presentado por Lilisbeth Perestelo en el congreso Summer Institute for Informed Patient Choice (SIIPC14) celebrado del 25 al 27 de junio de 2014 en Dartmouth, Hanover (EEUU). Web: http://siipc.org Contacto: lperperr@gobiernodecanarias.org

1. PhD Lilisbeth Perestelo-Perez1,2, MPsych Jeanette Perez-Ramos3, Ms Analia Abt-Sacks2,3, BA Dacil Carballo3, PhD Begoña Bellas4,
PhD Nerea Gonzalez2,5, PhD Andrea Buron2,6, MPsych Fatima Izquierdo2, PhD Michael Pignone7, PhD Enrique Quintero4
1 Evaluation Unit of the Canary Islands Health Service, Tenerife, Spain; 2 Health Services Research on Chronic Patients Network (REDISSEC). Tenerife, Spain; 3 Canarian Foundation of Health and Research (FUNCIS), Tenerife, Spain; 4 University
Hospital of the Canary Island, Tenerife, Spain; 5 Research Unit, Hospital Galdakao-Usansolo, Galdakao, Spain; 6 Department of Epidemiology and Evaluation, IMIM-Hospital del Mar, Barcelona, Spain; 7 University of North Carolina, Chapel Hill, NC, USA
INTRODUCTION
In Europe, colorectal cancer (CRC) is the most common malignant tumor when taking into account both sexes, and is the second leading cause of cancer death.
However, due to existing screening tests, the CCR is one of the few cancers with the possibility of early detection, which significantly increases the chance of
cure. One of the main problems with any screening program is to ensure that the target population participate in it, and ensure their cost-effectiveness. Strategies
that promote and encourage such participation are needed.
AIMS METHOD ACTUAL STATE
To identify factors (modifiable and non-modifiable) that predict
and influence the intention and participation in CRC screening
(P,HP,HCS)
YEAR1
Systematic review (SR)
SR completed. The articles have been
classified into: 1) factors; 2) SDM; 3)
risk communication. Currently we are
performing the data extraction of SR
and RCT.
To explore: a) level of knowledge, beliefs, and attitudes about
the CRC; and its influence on the decision to participate in a
CRC screening program (P); b) attitudes in relation to the SDM
model for addressing the CCR (screening, diagnosis /
treatment, follow-up) (P,HP)
YEAR2
Observational cross-sectional national study:
interviews, questionnaires, and focus groups.
Year 2015: focus groups with patients
and professionals.
To identify: a) barriers and facilitators to the implementation of
CRC screening, and to SDM (P,HP): b) strategies to promote
SDM, population's desire to participate in decisions about their
health (P,HP)
To develop a Web Platform (www.pydesalud.com) that will
integrate:
A. Experiences, values, ​​and preferences of people who have
participated in a CRC screening program (negative result,
positive result without cancer, and CRC).
B. Research needs from the perspective of patients and
families.
C.A patient decision aid (PtDA) about CRC screening.
YEARS2–3
•Household interviews videotaped to show users
fragments from the experiences of people who
have participated in CRC screening programs.
Delphi to identify research needs from the
perspective of patients, compared with those
identified by an expert panel.
A, B): coming.
C) It is collecting information about the
disease, treatments, symptoms,
prevention, etc. + Developing the
technical structure.
To evaluate the acceptability and effectiveness of the PtDA.
YEAR3
Multicenter RCT (pilot study) to compare the
effectiveness of PtDA vs. usual care.
Coming.
Perspective: Population (P); Health professionals (HP); Health care system (HCS) / SDM: Shared decision making/ RCT: randomized controlled trials
EXPECTED RESULTS
 The level of knowledge, beliefs and attitudes of the population about CRC screening influences and predicts the level of participation.
 Patients and professionals have different attitudes toward shared decision making (SDM) in addressing the screening.
 The preferences and wishes to participate in the process of SDM in addressing the CCR vary considerably between patients.
 Patients who receive information through a decision aid on CRC screening, participate more actively in the decision making process.
 Active involvement of patients and their families in exploring research needs, providing their views and concerns, may lead a more relevant research in
CRC screening.
 Developing a Web Platform that integrates the best available scientific evidence on CRC screening, as well as integrating the perspective of patients in
relation to CRC, will promote the participation on SDM.
PARTICIPATION OF THE POPULATION IN DECISIONS ABOUT THEIR HEALTH AND IN THE
PROCESS OF SHARED DECISION MAKING IN THE COLORECTAL CANCER SCREENING
33 interviews
49 questionnaires
8 Spanish autonomous community
(including pilot
study)
Target population
•34 people
•Interviews: 10
•Focus groups: 24
•50-69 years
Professionals
32 people
4 focus groups