Andrea Paquette | BYAP
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Bipolar Youth Action Project introduction
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Andrea Paquette | BYAP
- 1. THE BIPOLAR YOUTH ACTION PROJECT (BYAP)
- 3. Collaborators Andrea Paquette, Co-Lead Researcher Dr. Erin Michalak, Co-Lead Researcher Dr. Wei-Yi Song, Co-Investigator Dr. Joanna Cheek, Co-Investigator
- 4. Introducing the Bipolar Youth Action Project! BYAP is: • A two year action research project funded by the Vancouver Foundation • About building knowledge about how youth can live well with bipolar disorder • About building capacity for youth to engage in participatory mental health research BYAP will: • Be co-led by two Youth Action Groups (YAGs) in South and Central Vancouver Island • Host two Forums on self-management created for youth, by youth, ages 16-25 • Disseminate knowledge on youth BD self-management
- 5. Youth engagement is a win-win proposition Young people benefit by gaining skills, knowledge, self-esteem and connectedness. Adults benefit by enhancing their own competencies, learning to better understand and value youth and increasing their commitment to organizations. Organizations benefit by improving their programs, gaining community recognition and attracting funders. Communities benefit by improving quality of life, coordinating youth services and authentically embracing diversity by representing young people.
- 6. Learnings from SPARK Workshop – Mental Health Commission of Canada
- 7. In terms of research, what are the most important findings from this project? • Youth strategies to stay well while living with bipolar disorder • Need to consider what makes adult wellness strategies different from a youth’s perspective • How best to identify and adopt youth engagement strategies • Identifying best practices for application of research • Refer to one session pilot project The most important KE points: • Needing a fall back plan for working with youth with high relapse rates • Security/privacy issue considerations • Capitalising on the power of partnerships, we will partner with mindyourmind in order to capitalise on their expertise in youth engagement.
- 8. BYAP Pilot Focus Group Findings Five Youth, Andrea Paquette and Erin Michalak in Victoria, BC The youth shared diverse strategies that contributed to their wellness: • Exercise • Sobriety • Sleep and routine • Creating balance • Work and volunteer schedule • Positive interactions with healthcare providers • Creative outlets (i.e., creating art or playing music
- 9. Youth may cope differently from adults • Most of the youth in the pilot focus group felt that, while some of their wellness strategies might be useful for adults living with bipolar disorder, other strategies are specific to youth: • Parents can play a negative or positive role. The role of a parent can change drastically as one matures and for younger generations the impact is often significant • Young people and adults can have different lifestyles. Youth might be able to ‘live in the moment’, whereas more planning takes place as one transitions from youth to adulthood.
Editor's Notes
- Erin Michalak, Sally McBride, Nusha Elliot and Andrea Paquette. Study co-applicants include, Drs. Joanna Cheek, CREST.BD researcher and Co-Lead of Mood and Anxiety Program at the University of Victoria, and Wei-Yi Song, Director of the Mood Disorders Services for the Vancouver Island Health Authority, South Island. This funding would not be possible without support from the Mood Disorders Association of BC, The Kelty Mental Health Resource Centre, along with numerous youth, peer support workers, community advocates and researchers on Vancouver Island.
- This is an exciting step for us at multiple levels. Firstly, the knowledge the project will produce will fill an important gap in the bipolar disorders scientific literature. Secondly, it will allow CREST.BD and the BDSBC to fully articulate their fledgling collaboration and unite to fill the knowledge gap around effective wellness strategies for youth with bipolar disorders. Thirdly, it will support the development of new relationships (between clinicians, community groups and community activists alike) within the mental health community on Vancouver Island. Most exciting of all, however, is the potential for the study to produce real-world findings on effective wellness strategies for youth facing mental health challenges.
- Youth benefit for many reasons – not only will the build their resume, receive compensation, get to participate in a new process thereby learning new skills. They will learn to live a healthy life and participate in a creative process. Adults will better understand youth as they release research findings and learn how important a role they play in youth wellness. Organizations benefit for they will help us recruit youth and this will bring them closer to the youth community. They will improve their programs better suited to youth. The community as a whole will benefit – they can tailor their services to youth findings and we plan to share with the medical community so they can better treat youth.
- What have we done so far?
- Many of the youth also agreed that extra stressors from parents can play a negative role in a youth’s recovery, especially for those who have experienced a hospitalization or breakdown. Many of the youth, feeling that older generations often have inaccurate understandings of mental health, mentioned that they had taken a proactive role in educating their parents. ;For example, Lara identified her father as a strong supporter and their positive relationship as an integral component to her wellness. Wellness strategies for an individual navigating this transition were identified by the group as distinct from wellness strategies employed by someone who had fully matured.