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International Classification of Functioning, Disability and
Health:
An Introduction for Rehabilitation Psychologists
David B. Peterson
Illinois Institute of Technology
The International Classification of Functioning, Disability and
Health (ICF) represents a new way for
rehabilitation psychologists and other health care providers to
classify health and functioning. The ICF
classifies functioning and disability through the constructs of
Body Functions and Structures and
Activities and Participation and addresses contextual influences
through Environmental and Personal
Factors. The ICF and its companion classification, the
International Statistical Classification of Diseases
and Related Health Problems, Tenth Revision, provide a
complementary, broad, and meaningful picture
of the health of an individual or of entire populations. Research
and clinical implementation efforts
suggest that the ICF is a useful and meaningful public health
tool. The development of the ICF and its
universe and scope of application are reviewed. Critical
concepts are defined, the structure of the ICF is
illustrated, and clinical–research utility are featured in light of
the ethical considerations for responsible
use by rehabilitation psychologists.
The International Classification of Functioning, Disability and
Health (ICF; World Health Organization [WHO], 2001) was en-
dorsed by the 54th World Health Assembly for international use
on
May 22, 2001. Given its focus on health, disability, and
function-
ing, the ICF is an important and relevant development in
rehabil-
itation psychology practice. This article orients rehabilitation
psy-
chologists to the ICF so they can apply it to research and
practice.
The structure of the ICF is described, and important concepts
are
defined. Reviewed are related research, clinical applications,
and
ethical considerations associated with the use of the ICF in
reha-
bilitation psychology and general clinical practice.
The ICF is intended to be used with its companion
classification,
the International Statistical Classification of Diseases and
Related
Health Problems, Tenth Revision (ICD-10; WHO, 1992). There
is
some overlap between the ICF and the ICD-10 in that they both
classify impairments in various body systems. However, the
ICD-10 provides an etiological classification of health
conditions
(e.g., diseases, disorders, injuries), whereas the ICF offers a
frame-
work for conceptualizing functioning and disability associated
with health conditions. Disease may manifest itself differently
in
two individuals, and similar functioning does not necessarily
imply
similar health conditions. Thus, together the ICD-10 and the
ICF
yield a complementary, broad, and meaningful picture of the
health of an individual or of entire populations. Health
outcomes
data gleaned from the ICF can be used in tandem with ICD-10
mortality data to monitor the health of international
populations,
allowing a much broader picture of public health to emerge than
either alone could permit. For a comprehensive review of other
health status measures, the reader is referred to Stucki, Ewert,
and
Cieza (2003).
Overview of the ICF
The WHO followed several principles in developing the ICF.
The classification needed to contain a culturally meaningful
order
of categories that relied on consensus from potential
stakeholders,
including people with disabilities; professionals in health care
service delivery; insurance, social security, and other
entitlement
programs; labor, education, economics, and social policy
develop-
ment; and allied corporate entities. The different languages in
the
international community had to be respected, and the ICF had to
be
attractive to its users and subsequently to management and poli-
cymakers so they would support using the ICF. Finally, the ICF
needed to have continuity with and complement classification
systems already in place (WHO, 2001).
The chapters that comprise the ICF may appear numerous at
first
blush, perhaps even unwieldy. However, on achieving
familiarity
with the basic structure of the ICF, one can search purposefully
for
information related to health and functioning in different
domains.
Using the ICF is similar to using an encyclopedia, as it is not
necessary or practical to read either cover to cover; rather, one
engages in a guided search for specific information. An
alphabet-
ical index is available in the hard-copy version of the ICF. To
facilitate quick and easy classification, the WHO developed an
online version of the ICF that is searchable through the ICF
Browser (WHO, 2001), as well as a CD-ROM electronic media
version that is also searchable on any personal or laptop
computer
I was a U.S. participant, among participants from 65 countries,
in the
revision process for the International Classification of
Impairments, Dis-
abilities and Handicaps, now the International Classification of
Function-
ing, Disability and Health (ICF). I also participated in the alpha
drafting
team for the American Psychological Association–World Health
Organi-
zation Procedural Manual and Guide for a Standardized
Application of the
ICF: A Manual for Health Professionals. Further information on
the ICF
can be found on the Internet at www.who.int/classification/icf.
Thanks to Robert Glueckauf for guidance on the organization of
this
article.
Correspondence concerning this article should be addressed to
David B.
Peterson, PhD, Institute of Psychology, Illinois Institute of
Technology,
3101 South Dearborn Street, 252 Life Sciences Building,
Chicago, IL
60616-3793. E-mail: [email protected]
Rehabilitation Psychology
2005, Vol. 50, No. 2, 105–112
Copyright 2005 by the Educational Publishing Foundation
0090-5550/05/$12.00 DOI: 10.1037/0090-5550.50.2.105
105
with a CD-ROM drive. Other computer-based adjuncts to the
ICF
will likely be developed to facilitate its use.
Defining Concepts
The ICF is based on an integration of the medical and social
models of disability, addressing the biological, individual, and
societal perspectives of health in a biopsychosocial approach.
From a disability rights activist perspective, the ICF’s
interactive
model complements the social model (disability being an
interac-
tion among impairment, functioning, and environment) and can
be
used to describe how environmental factors are key to
understand-
ing disability and how advocacy occurs through social change
(Hurst, 2003). The ICF defines health in terms of the universe
of
well-being, composed of health domains of well-being, or those
areas of functioning that are a focus of health care professionals
(e.g., seeing, hearing, speaking, walking), and other domains of
well-being that are not typically a focus of health care systems
(e.g., education, employment, social interactions).
It is important to note that the following terms used in the ICF
are capitalized to distinguish them from their lay use (Threats &
Worrall, 2004). Health refers to components of health (e.g.,
seeing,
remembering, learning) and health-related components of well-
being (e.g., labor, education, transportation). Functioning is an
inclusive term covering all body functions, activities, and
partici-
pation in society.
Etiology of dysfunction is not the focus of the ICF; that is the
province of the ICD-10. Impairments do not necessarily imply
the
presence of a disorder or disease but “represent a deviation
from
certain generally accepted population standards” of functioning
(WHO, 2001, p. 12). Impairments are manifestations of
dysfunc-
tion in the body structures or functions, differentiated from the
underlying pathology itself. Determination of impairment is
made
by “those qualified to judge physical and mental functioning
according to these standards” (WHO, 2001, p. 12). Disability,
then, refers to any impairments, activity limitations, or
participa-
tion restrictions or to “the outcome or result of a complex rela-
tionship between an individual’s health condition and personal
factors, and of the external factors that represent the
circumstances
in which the individual lives” (WHO, 2001, p. 17). Both
function-
ing and disability are conceptualized within the dynamic
interac-
tion between health conditions and contextual factors.
The model of functioning and disability proposed in the ICF
classification suggests dynamic and reciprocal relations among
the
various components that comprise the classification within the
context of environmental and personal factors. Figure 1 is a
heu-
ristic depiction of the components and interactions that can be
used
to describe the relation between disability and functioning, or
the
conceptual framework of the ICF. The WHO (2001) admitted
that
this model is likely incomplete and only one of many possible.
Domains within the ICF are practical and meaningful sets of
related physiological functions (including psychological
function-
ing), anatomical structures, actions, tasks, or areas of life, de-
scribed from the body, individual, and societal perspectives,
which
make up the different chapters and blocks within each
component
of the ICF. Categories within the domains contain the classes
and
subclasses related to the actual units of classification and are
recorded by selecting an appropriate category code or codes.
Essential attributes of the domains (e.g., qualities, properties,
re-
lationships) are defined by inclusions and exclusions, making
the
codes mutually exclusive. The classes and subclasses reflect the
various levels of the hierarchical order of the ICF, with more
basic
levels encompassing all aspects of more detailed levels.
Universe and Scope of the ICF
The ICF addresses functioning that is primarily a focus of
health
care systems but encourages flexibility in its application to
differ-
ent conceptualizations of health and health-related elements.
The
ICF does not classify people, as many diagnostic systems do;
rather, it describes the situation of the person being evaluated
within an array of health or health-related domains. In addition,
the
person’s situation is classified within the context of
Environmental
and Personal Factors. Although the ICF classifies all aspects of
Figure 1. Interaction between components of the International
Classification of Functioning, Disability and
Health. From International Classification of Functioning,
Disability and Health (p. 18), by the World Health
Organization, 2001, Geneva, Switzerland: Author. Copyright
2001 by the World Health Organization. Reprinted
with permission.
106 PETERSON
human health and some health-related components of well-
being,
it does not currently classify circumstances determined by
socio-
economic factors, such as race, gender, religion, or culture, that
may limit full participation in society for reasons that are not
health related. However, the conceptual framework uses a
Personal
Factors component to highlight the need to consider complex
social circumstances that presently defy classification in
practice
and research (see Ueda & Okawa, 2003).
The ICF was designed to classify not only limitations in func-
tioning but also positive experiences for all body functions,
activ-
ities, and participation in the environment. Examples of positive
experiences include communicating, tending to personal
hygiene,
working, and studying. In summary, the ICF portrays health as a
dynamic interaction between an individual’s functioning and
dis-
ability within a given context.
Structure of the ICF
As reflected in the underlying conceptual framework of the ICF
(see Figure 1), the core structure of the ICF consists of two
parts—(a) Functioning and Disability and (b) Contextual
Factors—
each of which has two components. Within Functioning and
Dis-
ability, the Body component consists of two classifications,
Body
Functions and Body Structures. Chapters within these two
classi-
fications are parallel and organized according to body systems.
The
Activities and Participation component of Functioning and Dis-
ability covers domains of functioning from both an individual
and
societal perspective. Components of functioning can be
expressed
either as nonproblematic functioning or as a disability (i.e., im-
pairment, activity limitation, or participation restriction).
The first part of the ICF is qualified through four separate but
related constructs. Body Functions and Structures are
interpreted
through changes in physiological systems or anatomical
structures,
and Activities and Participation is interpreted though Capacity
and
Performance. These constructs are defined through the use of
qualifiers, elaborated on later.
The second part of the ICF classification (Contextual Factors)
has two components. The first is Environmental Factors, or
factors
in the physical, social, or attitudinal world, ranging from the
immediate to more general environment. Environmental Factors
are qualified as either facilitating or hindering functioning. The
second component is Personal Factors, which, as mentioned ear-
lier, is not currently classified.
The categories of function for a given domain begin at a more
general level and expand to levels of greater detail to enhance
classificatory precision. The one-level classification (illustrated
in
Table 1) of the ICF expands on the core structure: (a) The Body
Functions component contains eight chapters that address
“phys-
iological functions of body systems (including psychological
func-
tions)” (WHO, 2001, p. 12); (b) the Body Structures component
(eight chapters) parallels the Body Functions component,
dealing
with “anatomical parts of the body such as organs, limbs, and
their
components” (WHO, 2001, p. 12); (c) the Activities and Partici-
pation component (nine chapters) addresses “the execution of a
task or action by an individual” and “involvement in a life
situa-
tion” (WHO, 2001, p. 14), respectively; and (d) the
Environmental
Factors component contains five chapters focusing on “the
phys-
ical, social, and attitudinal environment in which people live
and
conduct their lives” (WHO, 2001, p. 171), organized from the
immediate to more general environment.
The two-level classification lists specific chapter headings and
the first branching level of the ICF. Alphanumeric codes begin
with a letter (b for Body Functions, s for Body Structures, d for
Table 1
International Classification of Functioning, Disability and
Health (ICF): One-Level Classification
Chapter Body Functionsa Body Structuresb Activities and
Participationc Environmental Factorsd
1 Mental functions Structures of the nervous system Learning
and applying
knowledge
Products and technology
2 Sensory functions and pain The eye, ear, and related
structures General tasks and demands Natural environment and
human-made changes
to environment
3 Voice and speech functions Structures involved in voice and
speech
Communication Support and
relationships
4 Functions of the cardiovascular,
haematological,
immunological, and
respiratory systems
Structures of the cardiovascular,
immunological, and respiratory
systems
Mobility Attitudes
5 Functions of the digestive,
metabolic, and endocrine
systems
Structures related to the digestive,
metabolic, and endocrine
systems
Self-care Services, systems, and
policies
6 Genitourinary and reproductive
functions
Structures related to the
genitourinary and reproductive
systems
Domestic life
7 Neuromusculoskeletal and
movement-related functions
Structures related to movement Interpersonal interactions
and relationships
8 Functions of the skin and
related structures
Skin and related structures Major life areas
9 Community, social, and
civic life
Note. Chapter descriptions are broken down by ICF
components.
a Consists of eight chapters; the code letter is b. b Consists of
eight chapters; the code letter is s. c Consists of nine chapters;
the code letter is
d. d Consists of five chapters; the code letter is e.
107SPECIAL SECTION: INTERNATIONAL
CLASSIFICATION
Activities and Participation, and e for Environmental Factors)
and
then a three-digit numeric classification that indicates the
chapter
and specific categories within. For example, the classification
associated with the psychological function of attention is found
in
the first chapter of Body Functions (code begins with b) under
the
Specific Mental Function section, Attention Functions, or alpha-
numeric code b140.
Finally, the detailed classification with definitions lists all cat-
egories within the ICF along with their definitions, inclusions,
and
exclusions, providing greater levels of detail using four- and
five-
digit numeric codes. The level of classification implemented de-
pends on the clinical needs presented. Considering attention
func-
tions again, examples of level of detail include Sustaining
Attention (b1400), Shifting Attention (b1401), Dividing
Attention
(b1402), and Sharing Attention (b1403). Code groups also offer
an
“Other Specified” and “Unspecified Code” for functions not de-
tailed in the current classification.
Within components, as units of classification become more
detailed, there is the assumption that more detailed units share
the
attributes of the lesser detailed units that subsume them. For
example, Dividing Attention (b1402) shares the attributes of the
higher level of classification, Attention Functions (b140). More
than one category may be used to classify specific functioning
as
a situation warrants.
In summary, the ICF has two parts, each with two components.
Each component within the ICF consists of various domains
com-
posed of the categories that make up the actual units of classifi-
cation, representing the health and health-related state of an
indi-
vidual, all of which can be qualified in both positive and
negative
terms. The aforementioned units of classification are qualified
with
numeric codes that specify the magnitude or extent of disability
or
function in a given category and the extent to which an environ-
mental factor is a facilitator or a barrier (more thoroughly
reviewed
later). The first qualifier for Environmental Factors and Body
Functions and Structures and the qualifiers for Performance and
Capacity all describe the extent of problems for a given code
using
the same generic qualifier scale, with slight modifications
depend-
ing on the component (see Table 2).
There are two versions of the ICF: The full version provides all
four levels of classification detail, and the short version
provides
two levels of classification. Table 3 contains an overview of the
concepts discussed thus far.
Evolution of the ICF
A detailed summary of the development of the International
Classification of Impairments, Disabilities and Handicaps
(ICIDH;
WHO, 1980), and the revision process leading to the publication
of
the ICF, can be found in Annex 7 of the ICF (WHO, 2001, pp.
246 –249). Two special issues of Disability and Rehabilitation
(Volume 17 in 1995 and Volume 25 in 2003) were dedicated to
reviewing the development and application of the ICIDH and
subsequent ICF, to which readers may refer for detailed
accounts
of the ICF’s development (see Üstün, Chaterji, Bickenbach,
Kas-
tanjsek, & Schnieder, 2003).
Between 1993 and 2000, the ICIDH developed through inter-
national participation in a systematic revision process and
exten-
sive field testing. Health professionals from many disciplines,
researchers, members of government, and, most importantly,
peo-
ple with disabilities contributed to the revision process.
Revisions
over time were designed to reflect changes in disability policy
development and reforms of health care systems internationally.
Translation and linguistic evaluation involved the translation of
the
Beta-2 draft of the ICIDH (ICIDH-2; WHO, 1999) into 15 lan-
guages (6 were in the short-form only). Since then, over 12
other
language translations have been in process.
Revision and Field Testing
The ICF in its current iteration was developed through a process
of international consensus building, including 652 individuals
from 18 countries over a 7-year period. The ICIDH-2 was field
tested for cross-cultural applicability in over 50 countries at
vari-
ous centers, nongovernmental and intergovernmental organiza-
tions affiliated with the United Nations, and among more than
1,800 scientists, clinicians, persons with disabilities, and other
experts (WHO, 2001). Feasibility and reliability of case evalua-
tions were tested during the beta-2 field trials of the ICIDH-2
involving 24 countries, 1,884 case evaluations, and 3,216
evalua-
tions of case summaries. The field trials showed that the
ICIDH-2
was a useful and meaningful public health tool but suggested
that
training was needed in its implementation, particularly in the
application of its conceptual framework.
As a member of the WHO’s Mental Health Task Force, the
American Psychological Association (APA) became involved in
the revision of the ICIDH-2 in 1995. The APA’s Practice Direc-
torate has worked closely with the WHO since then, and a
number
of Division 22 members have been very active in the Practice
Directorate’s efforts to further the development of the ICIDH-2
(Daw, 2002). Field trial activity subsequent to the publication
of
the ICF is reviewed in an article by Reed et al. (2005).
Research Utility
The ICF was created to serve several important purposes, the
most revolutionary of which was “to establish a common
language
for describing health and health related states in order to
improve
communication between different users, such as health care
work-
ers, researchers, policymakers, and the public, including people
with disabilities” (WHO, 2001, p. 5). The ICF provides the
basis
for a systematic coding scheme for global health information
systems. Data from these information systems can be used to
identify facilitators of and barriers to the full participation in
Table 2
Generic Qualifiers
Code Extent Qualitative descriptors Percentages
bxxx.0 No problem None, absent, negligible 0–4
bxxx.1 Mild problem Slight, low 5–24
bxxx.2 Moderate problem Medium, fair 25–49
bxxx.3 Severe problem High, extreme 50–95
bxxx.4 Complete problem Total 96–100
bxxx.8 Not specified
bxxx.9 Not applicable
Note. Qualitative descriptors refer to impairment, limitation,
restriction,
and/or barrier. Percentages are to be calibrated in different
domains with
reference to relevant population standards as percentiles.
“bxxx” stands for
a given International Classification of Functioning, Disability
and Health
classification code that precedes the qualifier.
108 PETERSON
society of people with disabilities. Subsequent research may
per-
mit comparison of data across countries, health care disciplines,
services, and time, contributing to an international database of
scientific knowledge of health and health-related states,
stimulat-
ing research on the consequences of health conditions.
Since the trial version was published in 1980, the ICF (ICIDH)
has been used as a(n)
1. statistical tool for population studies and in systems of
information management;
2. research tool to measure outcomes, environmental fac-
tors, and quality of life;
3. clinical tool in treatment planning, vocational assess-
ment, and rehabilitation outcome evaluation;
4. social policy tool for social security planning, compen-
sation systems development, and policy design and im-
plementation; and
5. educational tool in curriculum design and to raise aware-
ness and take social action (WHO, 2001, p. 5).
For an update of recent research developments since the
publica-
tion of the ICF, see Bruyère, Van Looy, and Peterson’s (2005)
review.
Clinical Utility
Advances in medical technology have resulted in tremendous
progress in the treatment of acute medical conditions, and
people
are living longer with chronic health conditions, thus increasing
the cost of medical care over the average person’s lifetime
(Peter-
son & Aguiar, 2004; Tarvydas, Peterson, & Michaelson, 2005).
In
response to increased costs, the managed-care industry has
forced
health professionals to extend their accountability to third-party
payers beyond traditional diagnostic procedures and labels, the
focus of traditional classification systems that do not precisely
describe functioning, disability, and states of health. The ICF
has
the potential to fill this classificatory gap in the health
professional
armament of classifications, and some believe it is only a matter
of
time before detailed functional assessment is required in most,
if
not all, managed-care contexts. Jerome Bickenbach, professor
and
Queen’s Research Chair at Queen’s University in Ontario,
Canada
(an internationally recognized expert on the nature of disability
and disability policy who was involved in the development of
the
ICF), suggested recently,
There are strong indications in many parts of the world,
including the
United States, that functional information will soon be required
of
clinicians by payers . . . in part because of a realization that
functional
status information is a far better predictor of health-system
usage than
diagnostic information. (as cited in Holloway, 2004, p. 32)
Diagnoses are necessary but not sufficient guides in providing
contemporary health care. A review of health care literature
sug-
gests that diagnoses alone do not predict well service needs
(Na-
tional Advisory Mental Health Council, 1993), length of
hospital-
ization (McCrone & Phelan, 1994), level of care needed (Burns,
1991), outcome of hospitalization (Rabinowitz, Modai, & Inbar-
Saban, 1994), receipt of disability benefits (Basset, Chase, Fol-
stein, & Regier, 1998; Massel, Liberman, Mintz, & Jacobs,
1990;
Segal & Choi, 1991), work performance (Gatchel, Polatin,
Mayer,
& Garcy, 1994; Massel et al., 1990), or social integration
(Ormel,
Oldehinkel, Brilman, & vanden Brink, 1993). Diagnostic
informa-
tion enhanced by descriptions of function may better predict
health
service utilization (Bassett & Folstein, 1991; Hoeper et al.,
1980;
Ormel et al., 1993; Regier, Burker, Manderscheid, & Burns,
1985;
Von Korff, Ormel, Katon, & Lin, 1992), improvement of func-
tioning after hospitalization (Rabinowitz et al., 1994), return to
work (Hlatky et al., 1986), work performance (Massel et al.,
1990),
Table 3
Overview of the International Classification of Functioning,
Disability and Health (ICF)
Structural element
Part 1: Functioning and Disability Part 2: Contextual Factors
Body Functions and Structures Activities and Participation
Environmental Factors Personal Factors
Domains Body Functions (including
psychological functioning)
Body Structures
Life areas (tasks, actions) External influences on
functioning and
disability
Internal influences on
functioning and
disability
Constructs Change in body function
(physiological)
Change in body structure
(anatomical)
Capacity: Executing tasks
in a standard
environment (“can do”)
Performance: Executing
tasks in the current
environment (“does do”)
Facilitating or
hindering impact of
features of the
physical, social, and
attitudinal world
Impact of attributes of
the person
Positive aspect Functioning
Functional and structural
integrity
Activities
Participation
Facilitators Not classified in the
ICF
Negative aspect Disability
Impairment
Activity limitation
Participation restriction
Barriers-hindrances Not classified in the
ICF
Note. Units of classification are situations, not people. The ICF
consists of a dynamic interaction between two parts (Parts 1 and
2 in the table). Each part
has two components (as listed in the table). Domains contain the
categories or units of classification for the ICF. Constructs are
defined through the use
of qualifiers that modify the extent or magnitude of function or
disability.
109SPECIAL SECTION: INTERNATIONAL
CLASSIFICATION
and recovery of social integration (Tate, Lulham, Broe,
Strettles, &
Pfaff, 1989). The ICF can be used to construct a useful profile
of
an individual’s functioning, disability, and health, which the
liter-
ature suggests may enhance health care service provision.
For example, consider an individual with a diagnosis of post-
traumatic stress disorder (PTSD). According to the Diagnostic
and
Statistical Manual of Mental Disorders, Fourth Edition, Text
Re-
vision (American Psychiatric Association, 2000), this person
may
experience a number (17) of characteristic symptoms, ranging
from difficulty falling asleep to a visceral reexperiencing of the
trauma-inducing event. The functional implications of these
symp-
toms may be quite different, and neither may be true of someone
with the diagnosis. Possible combinations of the 15 other
diagnos-
tic criteria of PTSD highlight that diagnostic information alone
is
of limited value without clear descriptions of functional impact
of
such a diagnosis. The ICF provides health care systems with a
common language to enhance diagnostic information with stan-
dard descriptions of health and health-related states and has the
potential to revolutionize the way stakeholders in health care
delivery systems think about and classify health (Stucki et al.,
2003). See Reed et al. (2005) for further discussion of the
potential
impact of the ICF on health care service delivery.
Using the ICF
This section provides a thumbnail sketch for using the ICF in
clinical practice but should be supplemented with a thorough
review of the document itself (WHO, 2001, Annexes 2 and 3,
specifically) and participation in available training provided by
local health and research entities using the ICF. The clinical
implementation manual in process, soon to be released, provides
the first how-to guide for use of the ICF in North America (see
Reed et al., 2005).
Body Functions, Structures, and Impairments
The Body Functions and Structures component is composed of
two classifications concerning physiological functions of body
systems (including psychological functions) and anatomical
parts
of the body (e.g., organs, limbs, and their components), respec-
tively, classified in separate but parallel chapters (see Table 1).
For
example, within Body Functions, hearing functions has a
corollary
within Body Structures of ear and related structures. Both
classi-
fications are arranged according to the same body system taxon-
omy and can be interpreted in terms of changes in physiological
systems or in anatomical structures. The criteria for impairment
are
the same for Body Functions and Structures and are classified
according to (a) loss or lack, (b) reduction, (c) addition or
excess,
and (d) deviation.
Once identified, an impairment is further defined in terms of
severity through the use of various qualifiers, depending on the
component of focus. Codes have no meaning without their
quali-
fiers, which are one or more numbers after a decimal point (or
separator) that follows a multilevel code, denoting a magnitude
or
level of health for that code. The Body Functions component
uses
a qualifier that addresses severity through values ranging from 0
(meaning no impairment) to 4 (with 1 through 4 indicating mild,
moderate, severe, and complete impairment, respectively; WHO,
2001, p. 47). The Body Structures component uses the same
severity qualifier as a first qualifier and then a second qualifier
to
indicate the nature of the change in a body structure: 0 � no
change in structure, 1 � total absence, 2 � partial absence, 3 �
additional part, 4 � aberrant dimensions, 5 � discontinuity, 6 �
deviating position, and 7 � qualitative changes in structure, in-
cluding accumulation of fluid (WHO, 2001, p. 105). The third
qualifier indicates location of impairment as follows: 0 � more
than one region, 1 � right, 2 � left, 3 � both sides, 4 � front, 5
�
back, 6 � proximal, and 7 � distal. All three qualifiers have a
not
specified (8) and not applicable (9) qualifier as appropriate.
Activities and Participation
The second component under Functioning and Disability, Ac-
tivities and Participation, presents a list of nine domains that
covers a wide range of aspects of functioning from both
individual
and societal perspectives (see Table 1). It is important to note
that
the Body Functions and Structures component is intended to be
used along with the Activities and Participation component. An
activity is defined as the execution of a task or action by an
individual, such as sitting, copying, calculating, or driving. Par-
ticipation is involvement in a life situation. The domains in the
Activities and Participation component can be used to describe
either or both activity or participation.
Activity limitations and participation restrictions “are assessed
against a generally accepted population standard” (WHO, 2001,
p.
15) for someone without a similar health condition. The ICF
proposes four possible conceptualizations of the relation
between
Activities and Participation. Although a single list of domains,
in
one possible conceptualization, the user can code each category
as
either an activity or participation issue, resulting in two
mutually
exclusive lists; Australia has adopted this method in their
clinical
implementation manual (available at http://www.aihw.gov.au/
disability/icf_ug/icf_ug-ug_s1.html). Alternatively, one can use
the domains for both activity and participation as totally
overlap-
ping issues or as a unified list, which is how the U.S. version of
a
clinical implementation manual in progress is proceeding (see
Reed et al., 2005; Threats & Worrall, 2004). Two other alterna-
tives suggest compromises between separate and overlapping
lists;
the reader is referred to Annex 3 of the ICF for greater detail.
Domains within the Activities and Participation component are
qualified through the constructs of Capacity and Performance.
Capacity and Performance Qualifiers
The domains of the Activities and Participation component are
operationalized through the use of qualifiers Capacity and
Perfor-
mance. The Capacity qualifier “describes an individual’s ability
to
execute a task or an action,” or, more specifically, “the highest
probable level of functioning that a person may reach in a given
domain at a given moment” (i.e., what a person can do; WHO,
2001, p. 15). One needs to apply the Capacity qualifier in the
context of a “uniform or standard environment, and thus reflect
the
environmentally adjusted ability of the individual” (WHO,
2001,
p. 15). To make international comparisons, such environments
have to be defined similarly across countries; this presents
unique
standardization challenges, which are being addressed in the de-
velopment of the clinical implementation manual (see Reed et
al.,
2005; Threats & Worrall, 2004).
The Performance qualifier describes “what a person does in his
or her current environment” (WHO, 2001, p. 15). Another way
to
110 PETERSON
describe this qualifier is “involvement in a life situation” or
“the
lived experience” of a person in the environment (i.e., what a
person does do; WHO, 2001, p. 15). The difference between
Capacity and Performance could be used to consider what inter-
ventions might be applied to the environment to maximize an
individual’s ability and function and increase opportunity for
full
participation in his or her environment.
The Performance and Capacity qualifiers are rated from 0 to 4,
as with the first qualifier of Body Functions and Structures but
substituting the term difficulty for impairment. Performance and
Capacity can be considered both with and without assistive
devices
or personal assistance, forming four qualifiers (Performance
with
and without assistance and Capacity with and without
assistance).
Contextual Factors
Environmental Factors (the physical, social, and attitudinal
worlds) are considered as they influence (facilitate or hinder)
all
components of functioning and disability at the Body Functions
and Structures levels, as well as the Activities and Participation
levels. Environmental Factors are organized in three levels, the
individual level (e.g., support network), the services level (e.g.,
vocational rehabilitation), and cultural–legal systems level
(e.g.,
worldviews, laws). The individual level has the most immediate
environmental influence, for example, one’s home, workplace,
or
school. The services and systems level addresses the more
general
environmental influences, such as formal and informal social
struc-
tures and service delivery systems. Table 1 includes the five
chapters that comprise Environmental Factors.
Evaluation of the Environmental Factors provides opportunity
for exploration into determinants and risk factors of health
condi-
tions as they exist in the environment. There are three suggested
coding conventions for the Environmental Factors. They can be
coded independent of other components in the ICF, coded for
every component, or coded for each of the Performance and
Capacity qualifiers under Activities and Participation. The
factors
are qualified with respect to the extent to which they are
facilitators
or barriers. Similar to the first qualifier for the other
components,
the scale ranges from 0 to 4 (or no to complete), substituting
barrier or facilitator for impairment or difficulty. Facilitators, a
positive environmental support, are noted with a plus sign;
barriers
plainly follow the decimal point.
Personal Factors may include gender, race, age, fitness,
religion,
lifestyle, habits, upbringing, coping styles, social background,
education, profession, past and current experience, overall
behav-
ior pattern and character style, individual psychological assets,
and
other health conditions, all of which can affect health and func-
tioning. Although Personal Factors are a consideration within
the
contextual factors, they are not coded specifically in the ICF for
reasons already presented. However, they are important to con-
sider within the overall model because they can influence the
outcome of an intervention.
Ethical Implications
Eleven basic guidelines were established in Annex 6 of the ICF
to reduce the risk of disrespectful or harmful use of the newly
revised classification system. From the outset, WHO
coordinators
of the revision efforts made sure to include people with
disabilities
and their advocacy organizations in all phases of the revision
process, which led to important changes in the content and
struc-
ture of the ICF. The provisions detailed in the ethical guidelines
(WHO, 2001, pp. 244 –245) address three critical areas: respect
and confidentiality, clinical use of the ICF, and social use of
ICF
information.
Karen Strohm Kitchener’s (2000, p. 21) “Foundational Princi-
ples for Thinking Well” can further inform ethical use of the
ICF.
The five concepts of nonmaleficence, beneficence, autonomy,
fi-
delity, and justice have been integral to the development of nu-
merous ethical codes in psychology-related professions. These
principles were derived from the “common morality” in biomed-
ical ethics (Beauchamp & Childress, 1994, p. 102). According
to
Kitchener (2000, pp. 23–31), nonmaleficence means not causing
others harm, including avoiding actions that risk harming
others.
Beneficence means doing good or benefiting others, including
balancing the potential consequences of an action, both
beneficial
and harmful. Autonomy addresses freedom of action and choice,
promoting autonomous action that is reciprocal in nature.
Fidelity
connotes faithful, loyal, honest, and trustworthy behavior.
Finally,
justice deals with issues of fairness, crossing individual,
interper-
sonal, organizational, and societal spheres of existence. The
reader
is encouraged to review the 11 guidelines and see how clearly
they
complement the intent of Kitchener’s five principles.
The foundational principles provide aspirational guidance to
health care professionals, fostering good judgment when
applying
the ICF to practice: treating all people respectfully and treating
classification data confidentially, using the ICF in a
collaborative
and facilitative spirit, and ethically managing information
gleaned
from the ICF that is subsequently disseminated to society. The
foundational principles may also inform the development of
future
standards guiding the ethical use of the ICF. Threats and
Worrall
(2004) summed it up nicely when they posited that the ICF is
not
something to be done to someone but rather something to be
done
with them.
Conclusion
The aim of this article was to increase the awareness of reha-
bilitation psychologists regarding the developmental context of
the
ICF, its structure, key concepts, and potential utility in the hope
that they will embrace it and apply it to clinical research and
practice. The underlying conceptual framework of the ICF is
informed by core principles and paradigms of practice of
rehabil-
itation psychologists, including the dignity and worth of all
people,
inclusion of people with disabilities in society to the fullest
extent
possible, consideration of not only functional limitations but
also
an individual’s health and functioning, and the need for
advocacy
to maximize their independence (Frank & Elliott, 2000; Riggar
&
Maki, 2004; Scherer et al., 2004). The ICF has the potential to
contribute to rehabilitation psychology research, program
evalua-
tion, clinical intervention, and social policy development in sig-
nificant and useful ways if it is carefully, ethically, and
systemat-
ically implemented in the same collaborative and international
spirit in which it was conceived.
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112 PETERSON
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  • 1. International Classification of Functioning, Disability and Health: An Introduction for Rehabilitation Psychologists David B. Peterson Illinois Institute of Technology The International Classification of Functioning, Disability and Health (ICF) represents a new way for rehabilitation psychologists and other health care providers to classify health and functioning. The ICF classifies functioning and disability through the constructs of Body Functions and Structures and Activities and Participation and addresses contextual influences through Environmental and Personal Factors. The ICF and its companion classification, the International Statistical Classification of Diseases and Related Health Problems, Tenth Revision, provide a complementary, broad, and meaningful picture of the health of an individual or of entire populations. Research and clinical implementation efforts suggest that the ICF is a useful and meaningful public health tool. The development of the ICF and its universe and scope of application are reviewed. Critical concepts are defined, the structure of the ICF is illustrated, and clinical–research utility are featured in light of the ethical considerations for responsible use by rehabilitation psychologists. The International Classification of Functioning, Disability and Health (ICF; World Health Organization [WHO], 2001) was en- dorsed by the 54th World Health Assembly for international use
  • 2. on May 22, 2001. Given its focus on health, disability, and function- ing, the ICF is an important and relevant development in rehabil- itation psychology practice. This article orients rehabilitation psy- chologists to the ICF so they can apply it to research and practice. The structure of the ICF is described, and important concepts are defined. Reviewed are related research, clinical applications, and ethical considerations associated with the use of the ICF in reha- bilitation psychology and general clinical practice. The ICF is intended to be used with its companion classification, the International Statistical Classification of Diseases and Related Health Problems, Tenth Revision (ICD-10; WHO, 1992). There is some overlap between the ICF and the ICD-10 in that they both classify impairments in various body systems. However, the ICD-10 provides an etiological classification of health conditions (e.g., diseases, disorders, injuries), whereas the ICF offers a frame- work for conceptualizing functioning and disability associated with health conditions. Disease may manifest itself differently in two individuals, and similar functioning does not necessarily imply similar health conditions. Thus, together the ICD-10 and the
  • 3. ICF yield a complementary, broad, and meaningful picture of the health of an individual or of entire populations. Health outcomes data gleaned from the ICF can be used in tandem with ICD-10 mortality data to monitor the health of international populations, allowing a much broader picture of public health to emerge than either alone could permit. For a comprehensive review of other health status measures, the reader is referred to Stucki, Ewert, and Cieza (2003). Overview of the ICF The WHO followed several principles in developing the ICF. The classification needed to contain a culturally meaningful order of categories that relied on consensus from potential stakeholders, including people with disabilities; professionals in health care service delivery; insurance, social security, and other entitlement programs; labor, education, economics, and social policy develop- ment; and allied corporate entities. The different languages in the international community had to be respected, and the ICF had to be attractive to its users and subsequently to management and poli- cymakers so they would support using the ICF. Finally, the ICF needed to have continuity with and complement classification systems already in place (WHO, 2001). The chapters that comprise the ICF may appear numerous at first
  • 4. blush, perhaps even unwieldy. However, on achieving familiarity with the basic structure of the ICF, one can search purposefully for information related to health and functioning in different domains. Using the ICF is similar to using an encyclopedia, as it is not necessary or practical to read either cover to cover; rather, one engages in a guided search for specific information. An alphabet- ical index is available in the hard-copy version of the ICF. To facilitate quick and easy classification, the WHO developed an online version of the ICF that is searchable through the ICF Browser (WHO, 2001), as well as a CD-ROM electronic media version that is also searchable on any personal or laptop computer I was a U.S. participant, among participants from 65 countries, in the revision process for the International Classification of Impairments, Dis- abilities and Handicaps, now the International Classification of Function- ing, Disability and Health (ICF). I also participated in the alpha drafting team for the American Psychological Association–World Health Organi- zation Procedural Manual and Guide for a Standardized Application of the ICF: A Manual for Health Professionals. Further information on the ICF can be found on the Internet at www.who.int/classification/icf. Thanks to Robert Glueckauf for guidance on the organization of this article.
  • 5. Correspondence concerning this article should be addressed to David B. Peterson, PhD, Institute of Psychology, Illinois Institute of Technology, 3101 South Dearborn Street, 252 Life Sciences Building, Chicago, IL 60616-3793. E-mail: [email protected] Rehabilitation Psychology 2005, Vol. 50, No. 2, 105–112 Copyright 2005 by the Educational Publishing Foundation 0090-5550/05/$12.00 DOI: 10.1037/0090-5550.50.2.105 105 with a CD-ROM drive. Other computer-based adjuncts to the ICF will likely be developed to facilitate its use. Defining Concepts The ICF is based on an integration of the medical and social models of disability, addressing the biological, individual, and societal perspectives of health in a biopsychosocial approach. From a disability rights activist perspective, the ICF’s interactive model complements the social model (disability being an interac- tion among impairment, functioning, and environment) and can be used to describe how environmental factors are key to understand- ing disability and how advocacy occurs through social change
  • 6. (Hurst, 2003). The ICF defines health in terms of the universe of well-being, composed of health domains of well-being, or those areas of functioning that are a focus of health care professionals (e.g., seeing, hearing, speaking, walking), and other domains of well-being that are not typically a focus of health care systems (e.g., education, employment, social interactions). It is important to note that the following terms used in the ICF are capitalized to distinguish them from their lay use (Threats & Worrall, 2004). Health refers to components of health (e.g., seeing, remembering, learning) and health-related components of well- being (e.g., labor, education, transportation). Functioning is an inclusive term covering all body functions, activities, and partici- pation in society. Etiology of dysfunction is not the focus of the ICF; that is the province of the ICD-10. Impairments do not necessarily imply the presence of a disorder or disease but “represent a deviation from certain generally accepted population standards” of functioning (WHO, 2001, p. 12). Impairments are manifestations of dysfunc- tion in the body structures or functions, differentiated from the underlying pathology itself. Determination of impairment is made by “those qualified to judge physical and mental functioning according to these standards” (WHO, 2001, p. 12). Disability, then, refers to any impairments, activity limitations, or participa- tion restrictions or to “the outcome or result of a complex rela- tionship between an individual’s health condition and personal
  • 7. factors, and of the external factors that represent the circumstances in which the individual lives” (WHO, 2001, p. 17). Both function- ing and disability are conceptualized within the dynamic interac- tion between health conditions and contextual factors. The model of functioning and disability proposed in the ICF classification suggests dynamic and reciprocal relations among the various components that comprise the classification within the context of environmental and personal factors. Figure 1 is a heu- ristic depiction of the components and interactions that can be used to describe the relation between disability and functioning, or the conceptual framework of the ICF. The WHO (2001) admitted that this model is likely incomplete and only one of many possible. Domains within the ICF are practical and meaningful sets of related physiological functions (including psychological function- ing), anatomical structures, actions, tasks, or areas of life, de- scribed from the body, individual, and societal perspectives, which make up the different chapters and blocks within each component of the ICF. Categories within the domains contain the classes and subclasses related to the actual units of classification and are recorded by selecting an appropriate category code or codes. Essential attributes of the domains (e.g., qualities, properties, re-
  • 8. lationships) are defined by inclusions and exclusions, making the codes mutually exclusive. The classes and subclasses reflect the various levels of the hierarchical order of the ICF, with more basic levels encompassing all aspects of more detailed levels. Universe and Scope of the ICF The ICF addresses functioning that is primarily a focus of health care systems but encourages flexibility in its application to differ- ent conceptualizations of health and health-related elements. The ICF does not classify people, as many diagnostic systems do; rather, it describes the situation of the person being evaluated within an array of health or health-related domains. In addition, the person’s situation is classified within the context of Environmental and Personal Factors. Although the ICF classifies all aspects of Figure 1. Interaction between components of the International Classification of Functioning, Disability and Health. From International Classification of Functioning, Disability and Health (p. 18), by the World Health Organization, 2001, Geneva, Switzerland: Author. Copyright 2001 by the World Health Organization. Reprinted with permission. 106 PETERSON human health and some health-related components of well-
  • 9. being, it does not currently classify circumstances determined by socio- economic factors, such as race, gender, religion, or culture, that may limit full participation in society for reasons that are not health related. However, the conceptual framework uses a Personal Factors component to highlight the need to consider complex social circumstances that presently defy classification in practice and research (see Ueda & Okawa, 2003). The ICF was designed to classify not only limitations in func- tioning but also positive experiences for all body functions, activ- ities, and participation in the environment. Examples of positive experiences include communicating, tending to personal hygiene, working, and studying. In summary, the ICF portrays health as a dynamic interaction between an individual’s functioning and dis- ability within a given context. Structure of the ICF As reflected in the underlying conceptual framework of the ICF (see Figure 1), the core structure of the ICF consists of two parts—(a) Functioning and Disability and (b) Contextual Factors— each of which has two components. Within Functioning and Dis- ability, the Body component consists of two classifications, Body Functions and Body Structures. Chapters within these two classi- fications are parallel and organized according to body systems.
  • 10. The Activities and Participation component of Functioning and Dis- ability covers domains of functioning from both an individual and societal perspective. Components of functioning can be expressed either as nonproblematic functioning or as a disability (i.e., im- pairment, activity limitation, or participation restriction). The first part of the ICF is qualified through four separate but related constructs. Body Functions and Structures are interpreted through changes in physiological systems or anatomical structures, and Activities and Participation is interpreted though Capacity and Performance. These constructs are defined through the use of qualifiers, elaborated on later. The second part of the ICF classification (Contextual Factors) has two components. The first is Environmental Factors, or factors in the physical, social, or attitudinal world, ranging from the immediate to more general environment. Environmental Factors are qualified as either facilitating or hindering functioning. The second component is Personal Factors, which, as mentioned ear- lier, is not currently classified. The categories of function for a given domain begin at a more general level and expand to levels of greater detail to enhance classificatory precision. The one-level classification (illustrated in Table 1) of the ICF expands on the core structure: (a) The Body Functions component contains eight chapters that address “phys-
  • 11. iological functions of body systems (including psychological func- tions)” (WHO, 2001, p. 12); (b) the Body Structures component (eight chapters) parallels the Body Functions component, dealing with “anatomical parts of the body such as organs, limbs, and their components” (WHO, 2001, p. 12); (c) the Activities and Partici- pation component (nine chapters) addresses “the execution of a task or action by an individual” and “involvement in a life situa- tion” (WHO, 2001, p. 14), respectively; and (d) the Environmental Factors component contains five chapters focusing on “the phys- ical, social, and attitudinal environment in which people live and conduct their lives” (WHO, 2001, p. 171), organized from the immediate to more general environment. The two-level classification lists specific chapter headings and the first branching level of the ICF. Alphanumeric codes begin with a letter (b for Body Functions, s for Body Structures, d for Table 1 International Classification of Functioning, Disability and Health (ICF): One-Level Classification Chapter Body Functionsa Body Structuresb Activities and Participationc Environmental Factorsd 1 Mental functions Structures of the nervous system Learning and applying knowledge Products and technology
  • 12. 2 Sensory functions and pain The eye, ear, and related structures General tasks and demands Natural environment and human-made changes to environment 3 Voice and speech functions Structures involved in voice and speech Communication Support and relationships 4 Functions of the cardiovascular, haematological, immunological, and respiratory systems Structures of the cardiovascular, immunological, and respiratory systems Mobility Attitudes 5 Functions of the digestive, metabolic, and endocrine systems Structures related to the digestive, metabolic, and endocrine systems Self-care Services, systems, and policies 6 Genitourinary and reproductive functions
  • 13. Structures related to the genitourinary and reproductive systems Domestic life 7 Neuromusculoskeletal and movement-related functions Structures related to movement Interpersonal interactions and relationships 8 Functions of the skin and related structures Skin and related structures Major life areas 9 Community, social, and civic life Note. Chapter descriptions are broken down by ICF components. a Consists of eight chapters; the code letter is b. b Consists of eight chapters; the code letter is s. c Consists of nine chapters; the code letter is d. d Consists of five chapters; the code letter is e. 107SPECIAL SECTION: INTERNATIONAL CLASSIFICATION Activities and Participation, and e for Environmental Factors) and then a three-digit numeric classification that indicates the
  • 14. chapter and specific categories within. For example, the classification associated with the psychological function of attention is found in the first chapter of Body Functions (code begins with b) under the Specific Mental Function section, Attention Functions, or alpha- numeric code b140. Finally, the detailed classification with definitions lists all cat- egories within the ICF along with their definitions, inclusions, and exclusions, providing greater levels of detail using four- and five- digit numeric codes. The level of classification implemented de- pends on the clinical needs presented. Considering attention func- tions again, examples of level of detail include Sustaining Attention (b1400), Shifting Attention (b1401), Dividing Attention (b1402), and Sharing Attention (b1403). Code groups also offer an “Other Specified” and “Unspecified Code” for functions not de- tailed in the current classification. Within components, as units of classification become more detailed, there is the assumption that more detailed units share the attributes of the lesser detailed units that subsume them. For example, Dividing Attention (b1402) shares the attributes of the higher level of classification, Attention Functions (b140). More than one category may be used to classify specific functioning as a situation warrants. In summary, the ICF has two parts, each with two components.
  • 15. Each component within the ICF consists of various domains com- posed of the categories that make up the actual units of classifi- cation, representing the health and health-related state of an indi- vidual, all of which can be qualified in both positive and negative terms. The aforementioned units of classification are qualified with numeric codes that specify the magnitude or extent of disability or function in a given category and the extent to which an environ- mental factor is a facilitator or a barrier (more thoroughly reviewed later). The first qualifier for Environmental Factors and Body Functions and Structures and the qualifiers for Performance and Capacity all describe the extent of problems for a given code using the same generic qualifier scale, with slight modifications depend- ing on the component (see Table 2). There are two versions of the ICF: The full version provides all four levels of classification detail, and the short version provides two levels of classification. Table 3 contains an overview of the concepts discussed thus far. Evolution of the ICF A detailed summary of the development of the International Classification of Impairments, Disabilities and Handicaps (ICIDH; WHO, 1980), and the revision process leading to the publication of the ICF, can be found in Annex 7 of the ICF (WHO, 2001, pp.
  • 16. 246 –249). Two special issues of Disability and Rehabilitation (Volume 17 in 1995 and Volume 25 in 2003) were dedicated to reviewing the development and application of the ICIDH and subsequent ICF, to which readers may refer for detailed accounts of the ICF’s development (see Üstün, Chaterji, Bickenbach, Kas- tanjsek, & Schnieder, 2003). Between 1993 and 2000, the ICIDH developed through inter- national participation in a systematic revision process and exten- sive field testing. Health professionals from many disciplines, researchers, members of government, and, most importantly, peo- ple with disabilities contributed to the revision process. Revisions over time were designed to reflect changes in disability policy development and reforms of health care systems internationally. Translation and linguistic evaluation involved the translation of the Beta-2 draft of the ICIDH (ICIDH-2; WHO, 1999) into 15 lan- guages (6 were in the short-form only). Since then, over 12 other language translations have been in process. Revision and Field Testing The ICF in its current iteration was developed through a process of international consensus building, including 652 individuals from 18 countries over a 7-year period. The ICIDH-2 was field tested for cross-cultural applicability in over 50 countries at vari- ous centers, nongovernmental and intergovernmental organiza- tions affiliated with the United Nations, and among more than 1,800 scientists, clinicians, persons with disabilities, and other
  • 17. experts (WHO, 2001). Feasibility and reliability of case evalua- tions were tested during the beta-2 field trials of the ICIDH-2 involving 24 countries, 1,884 case evaluations, and 3,216 evalua- tions of case summaries. The field trials showed that the ICIDH-2 was a useful and meaningful public health tool but suggested that training was needed in its implementation, particularly in the application of its conceptual framework. As a member of the WHO’s Mental Health Task Force, the American Psychological Association (APA) became involved in the revision of the ICIDH-2 in 1995. The APA’s Practice Direc- torate has worked closely with the WHO since then, and a number of Division 22 members have been very active in the Practice Directorate’s efforts to further the development of the ICIDH-2 (Daw, 2002). Field trial activity subsequent to the publication of the ICF is reviewed in an article by Reed et al. (2005). Research Utility The ICF was created to serve several important purposes, the most revolutionary of which was “to establish a common language for describing health and health related states in order to improve communication between different users, such as health care work- ers, researchers, policymakers, and the public, including people with disabilities” (WHO, 2001, p. 5). The ICF provides the basis for a systematic coding scheme for global health information systems. Data from these information systems can be used to
  • 18. identify facilitators of and barriers to the full participation in Table 2 Generic Qualifiers Code Extent Qualitative descriptors Percentages bxxx.0 No problem None, absent, negligible 0–4 bxxx.1 Mild problem Slight, low 5–24 bxxx.2 Moderate problem Medium, fair 25–49 bxxx.3 Severe problem High, extreme 50–95 bxxx.4 Complete problem Total 96–100 bxxx.8 Not specified bxxx.9 Not applicable Note. Qualitative descriptors refer to impairment, limitation, restriction, and/or barrier. Percentages are to be calibrated in different domains with reference to relevant population standards as percentiles. “bxxx” stands for a given International Classification of Functioning, Disability and Health classification code that precedes the qualifier. 108 PETERSON society of people with disabilities. Subsequent research may per- mit comparison of data across countries, health care disciplines, services, and time, contributing to an international database of scientific knowledge of health and health-related states, stimulat- ing research on the consequences of health conditions.
  • 19. Since the trial version was published in 1980, the ICF (ICIDH) has been used as a(n) 1. statistical tool for population studies and in systems of information management; 2. research tool to measure outcomes, environmental fac- tors, and quality of life; 3. clinical tool in treatment planning, vocational assess- ment, and rehabilitation outcome evaluation; 4. social policy tool for social security planning, compen- sation systems development, and policy design and im- plementation; and 5. educational tool in curriculum design and to raise aware- ness and take social action (WHO, 2001, p. 5). For an update of recent research developments since the publica- tion of the ICF, see Bruyère, Van Looy, and Peterson’s (2005) review. Clinical Utility Advances in medical technology have resulted in tremendous progress in the treatment of acute medical conditions, and people are living longer with chronic health conditions, thus increasing the cost of medical care over the average person’s lifetime (Peter- son & Aguiar, 2004; Tarvydas, Peterson, & Michaelson, 2005). In response to increased costs, the managed-care industry has
  • 20. forced health professionals to extend their accountability to third-party payers beyond traditional diagnostic procedures and labels, the focus of traditional classification systems that do not precisely describe functioning, disability, and states of health. The ICF has the potential to fill this classificatory gap in the health professional armament of classifications, and some believe it is only a matter of time before detailed functional assessment is required in most, if not all, managed-care contexts. Jerome Bickenbach, professor and Queen’s Research Chair at Queen’s University in Ontario, Canada (an internationally recognized expert on the nature of disability and disability policy who was involved in the development of the ICF), suggested recently, There are strong indications in many parts of the world, including the United States, that functional information will soon be required of clinicians by payers . . . in part because of a realization that functional status information is a far better predictor of health-system usage than diagnostic information. (as cited in Holloway, 2004, p. 32) Diagnoses are necessary but not sufficient guides in providing contemporary health care. A review of health care literature sug- gests that diagnoses alone do not predict well service needs
  • 21. (Na- tional Advisory Mental Health Council, 1993), length of hospital- ization (McCrone & Phelan, 1994), level of care needed (Burns, 1991), outcome of hospitalization (Rabinowitz, Modai, & Inbar- Saban, 1994), receipt of disability benefits (Basset, Chase, Fol- stein, & Regier, 1998; Massel, Liberman, Mintz, & Jacobs, 1990; Segal & Choi, 1991), work performance (Gatchel, Polatin, Mayer, & Garcy, 1994; Massel et al., 1990), or social integration (Ormel, Oldehinkel, Brilman, & vanden Brink, 1993). Diagnostic informa- tion enhanced by descriptions of function may better predict health service utilization (Bassett & Folstein, 1991; Hoeper et al., 1980; Ormel et al., 1993; Regier, Burker, Manderscheid, & Burns, 1985; Von Korff, Ormel, Katon, & Lin, 1992), improvement of func- tioning after hospitalization (Rabinowitz et al., 1994), return to work (Hlatky et al., 1986), work performance (Massel et al., 1990), Table 3 Overview of the International Classification of Functioning, Disability and Health (ICF) Structural element Part 1: Functioning and Disability Part 2: Contextual Factors Body Functions and Structures Activities and Participation Environmental Factors Personal Factors
  • 22. Domains Body Functions (including psychological functioning) Body Structures Life areas (tasks, actions) External influences on functioning and disability Internal influences on functioning and disability Constructs Change in body function (physiological) Change in body structure (anatomical) Capacity: Executing tasks in a standard environment (“can do”) Performance: Executing tasks in the current environment (“does do”) Facilitating or hindering impact of features of the physical, social, and attitudinal world Impact of attributes of the person
  • 23. Positive aspect Functioning Functional and structural integrity Activities Participation Facilitators Not classified in the ICF Negative aspect Disability Impairment Activity limitation Participation restriction Barriers-hindrances Not classified in the ICF Note. Units of classification are situations, not people. The ICF consists of a dynamic interaction between two parts (Parts 1 and 2 in the table). Each part has two components (as listed in the table). Domains contain the categories or units of classification for the ICF. Constructs are defined through the use of qualifiers that modify the extent or magnitude of function or disability. 109SPECIAL SECTION: INTERNATIONAL CLASSIFICATION and recovery of social integration (Tate, Lulham, Broe, Strettles, & Pfaff, 1989). The ICF can be used to construct a useful profile of
  • 24. an individual’s functioning, disability, and health, which the liter- ature suggests may enhance health care service provision. For example, consider an individual with a diagnosis of post- traumatic stress disorder (PTSD). According to the Diagnostic and Statistical Manual of Mental Disorders, Fourth Edition, Text Re- vision (American Psychiatric Association, 2000), this person may experience a number (17) of characteristic symptoms, ranging from difficulty falling asleep to a visceral reexperiencing of the trauma-inducing event. The functional implications of these symp- toms may be quite different, and neither may be true of someone with the diagnosis. Possible combinations of the 15 other diagnos- tic criteria of PTSD highlight that diagnostic information alone is of limited value without clear descriptions of functional impact of such a diagnosis. The ICF provides health care systems with a common language to enhance diagnostic information with stan- dard descriptions of health and health-related states and has the potential to revolutionize the way stakeholders in health care delivery systems think about and classify health (Stucki et al., 2003). See Reed et al. (2005) for further discussion of the potential impact of the ICF on health care service delivery. Using the ICF This section provides a thumbnail sketch for using the ICF in clinical practice but should be supplemented with a thorough review of the document itself (WHO, 2001, Annexes 2 and 3,
  • 25. specifically) and participation in available training provided by local health and research entities using the ICF. The clinical implementation manual in process, soon to be released, provides the first how-to guide for use of the ICF in North America (see Reed et al., 2005). Body Functions, Structures, and Impairments The Body Functions and Structures component is composed of two classifications concerning physiological functions of body systems (including psychological functions) and anatomical parts of the body (e.g., organs, limbs, and their components), respec- tively, classified in separate but parallel chapters (see Table 1). For example, within Body Functions, hearing functions has a corollary within Body Structures of ear and related structures. Both classi- fications are arranged according to the same body system taxon- omy and can be interpreted in terms of changes in physiological systems or in anatomical structures. The criteria for impairment are the same for Body Functions and Structures and are classified according to (a) loss or lack, (b) reduction, (c) addition or excess, and (d) deviation. Once identified, an impairment is further defined in terms of severity through the use of various qualifiers, depending on the component of focus. Codes have no meaning without their quali- fiers, which are one or more numbers after a decimal point (or separator) that follows a multilevel code, denoting a magnitude or level of health for that code. The Body Functions component
  • 26. uses a qualifier that addresses severity through values ranging from 0 (meaning no impairment) to 4 (with 1 through 4 indicating mild, moderate, severe, and complete impairment, respectively; WHO, 2001, p. 47). The Body Structures component uses the same severity qualifier as a first qualifier and then a second qualifier to indicate the nature of the change in a body structure: 0 � no change in structure, 1 � total absence, 2 � partial absence, 3 � additional part, 4 � aberrant dimensions, 5 � discontinuity, 6 � deviating position, and 7 � qualitative changes in structure, in- cluding accumulation of fluid (WHO, 2001, p. 105). The third qualifier indicates location of impairment as follows: 0 � more than one region, 1 � right, 2 � left, 3 � both sides, 4 � front, 5 � back, 6 � proximal, and 7 � distal. All three qualifiers have a not specified (8) and not applicable (9) qualifier as appropriate. Activities and Participation The second component under Functioning and Disability, Ac- tivities and Participation, presents a list of nine domains that covers a wide range of aspects of functioning from both individual and societal perspectives (see Table 1). It is important to note that the Body Functions and Structures component is intended to be used along with the Activities and Participation component. An activity is defined as the execution of a task or action by an individual, such as sitting, copying, calculating, or driving. Par- ticipation is involvement in a life situation. The domains in the Activities and Participation component can be used to describe either or both activity or participation.
  • 27. Activity limitations and participation restrictions “are assessed against a generally accepted population standard” (WHO, 2001, p. 15) for someone without a similar health condition. The ICF proposes four possible conceptualizations of the relation between Activities and Participation. Although a single list of domains, in one possible conceptualization, the user can code each category as either an activity or participation issue, resulting in two mutually exclusive lists; Australia has adopted this method in their clinical implementation manual (available at http://www.aihw.gov.au/ disability/icf_ug/icf_ug-ug_s1.html). Alternatively, one can use the domains for both activity and participation as totally overlap- ping issues or as a unified list, which is how the U.S. version of a clinical implementation manual in progress is proceeding (see Reed et al., 2005; Threats & Worrall, 2004). Two other alterna- tives suggest compromises between separate and overlapping lists; the reader is referred to Annex 3 of the ICF for greater detail. Domains within the Activities and Participation component are qualified through the constructs of Capacity and Performance. Capacity and Performance Qualifiers The domains of the Activities and Participation component are operationalized through the use of qualifiers Capacity and Perfor- mance. The Capacity qualifier “describes an individual’s ability to execute a task or an action,” or, more specifically, “the highest
  • 28. probable level of functioning that a person may reach in a given domain at a given moment” (i.e., what a person can do; WHO, 2001, p. 15). One needs to apply the Capacity qualifier in the context of a “uniform or standard environment, and thus reflect the environmentally adjusted ability of the individual” (WHO, 2001, p. 15). To make international comparisons, such environments have to be defined similarly across countries; this presents unique standardization challenges, which are being addressed in the de- velopment of the clinical implementation manual (see Reed et al., 2005; Threats & Worrall, 2004). The Performance qualifier describes “what a person does in his or her current environment” (WHO, 2001, p. 15). Another way to 110 PETERSON describe this qualifier is “involvement in a life situation” or “the lived experience” of a person in the environment (i.e., what a person does do; WHO, 2001, p. 15). The difference between Capacity and Performance could be used to consider what inter- ventions might be applied to the environment to maximize an individual’s ability and function and increase opportunity for full participation in his or her environment. The Performance and Capacity qualifiers are rated from 0 to 4, as with the first qualifier of Body Functions and Structures but substituting the term difficulty for impairment. Performance and
  • 29. Capacity can be considered both with and without assistive devices or personal assistance, forming four qualifiers (Performance with and without assistance and Capacity with and without assistance). Contextual Factors Environmental Factors (the physical, social, and attitudinal worlds) are considered as they influence (facilitate or hinder) all components of functioning and disability at the Body Functions and Structures levels, as well as the Activities and Participation levels. Environmental Factors are organized in three levels, the individual level (e.g., support network), the services level (e.g., vocational rehabilitation), and cultural–legal systems level (e.g., worldviews, laws). The individual level has the most immediate environmental influence, for example, one’s home, workplace, or school. The services and systems level addresses the more general environmental influences, such as formal and informal social struc- tures and service delivery systems. Table 1 includes the five chapters that comprise Environmental Factors. Evaluation of the Environmental Factors provides opportunity for exploration into determinants and risk factors of health condi- tions as they exist in the environment. There are three suggested coding conventions for the Environmental Factors. They can be coded independent of other components in the ICF, coded for every component, or coded for each of the Performance and Capacity qualifiers under Activities and Participation. The
  • 30. factors are qualified with respect to the extent to which they are facilitators or barriers. Similar to the first qualifier for the other components, the scale ranges from 0 to 4 (or no to complete), substituting barrier or facilitator for impairment or difficulty. Facilitators, a positive environmental support, are noted with a plus sign; barriers plainly follow the decimal point. Personal Factors may include gender, race, age, fitness, religion, lifestyle, habits, upbringing, coping styles, social background, education, profession, past and current experience, overall behav- ior pattern and character style, individual psychological assets, and other health conditions, all of which can affect health and func- tioning. Although Personal Factors are a consideration within the contextual factors, they are not coded specifically in the ICF for reasons already presented. However, they are important to con- sider within the overall model because they can influence the outcome of an intervention. Ethical Implications Eleven basic guidelines were established in Annex 6 of the ICF to reduce the risk of disrespectful or harmful use of the newly revised classification system. From the outset, WHO coordinators of the revision efforts made sure to include people with disabilities and their advocacy organizations in all phases of the revision
  • 31. process, which led to important changes in the content and struc- ture of the ICF. The provisions detailed in the ethical guidelines (WHO, 2001, pp. 244 –245) address three critical areas: respect and confidentiality, clinical use of the ICF, and social use of ICF information. Karen Strohm Kitchener’s (2000, p. 21) “Foundational Princi- ples for Thinking Well” can further inform ethical use of the ICF. The five concepts of nonmaleficence, beneficence, autonomy, fi- delity, and justice have been integral to the development of nu- merous ethical codes in psychology-related professions. These principles were derived from the “common morality” in biomed- ical ethics (Beauchamp & Childress, 1994, p. 102). According to Kitchener (2000, pp. 23–31), nonmaleficence means not causing others harm, including avoiding actions that risk harming others. Beneficence means doing good or benefiting others, including balancing the potential consequences of an action, both beneficial and harmful. Autonomy addresses freedom of action and choice, promoting autonomous action that is reciprocal in nature. Fidelity connotes faithful, loyal, honest, and trustworthy behavior. Finally, justice deals with issues of fairness, crossing individual, interper- sonal, organizational, and societal spheres of existence. The reader is encouraged to review the 11 guidelines and see how clearly they complement the intent of Kitchener’s five principles.
  • 32. The foundational principles provide aspirational guidance to health care professionals, fostering good judgment when applying the ICF to practice: treating all people respectfully and treating classification data confidentially, using the ICF in a collaborative and facilitative spirit, and ethically managing information gleaned from the ICF that is subsequently disseminated to society. The foundational principles may also inform the development of future standards guiding the ethical use of the ICF. Threats and Worrall (2004) summed it up nicely when they posited that the ICF is not something to be done to someone but rather something to be done with them. Conclusion The aim of this article was to increase the awareness of reha- bilitation psychologists regarding the developmental context of the ICF, its structure, key concepts, and potential utility in the hope that they will embrace it and apply it to clinical research and practice. The underlying conceptual framework of the ICF is informed by core principles and paradigms of practice of rehabil- itation psychologists, including the dignity and worth of all people, inclusion of people with disabilities in society to the fullest extent possible, consideration of not only functional limitations but also
  • 33. an individual’s health and functioning, and the need for advocacy to maximize their independence (Frank & Elliott, 2000; Riggar & Maki, 2004; Scherer et al., 2004). The ICF has the potential to contribute to rehabilitation psychology research, program evalua- tion, clinical intervention, and social policy development in sig- nificant and useful ways if it is carefully, ethically, and systemat- ically implemented in the same collaborative and international spirit in which it was conceived. References American Psychiatric Association. (2000). Diagnostic and statistical man- ual of mental disorders (4th ed., text rev.). Washington, DC: Author. 111SPECIAL SECTION: INTERNATIONAL CLASSIFICATION Bassett, S. S., Chase, G. A., Folstein, M. F., & Regier, D. A. (1998). Disability and psychiatric disorders in an urban community: Measure- ment, prevalence and outcomes. Psychological Medicine, 28, 509 –517. Bassett, S. S., & Folstein, M. F. (1991). Cognitive impairment and func- tional disability in the absence of psychiatric diagnosis. Psychological
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