1. Better and more services for
children with intellectual
disabilities in Kyrgyzstan
through empowerment of parents
HealthProm partnership project
funded by ICCO.
Bishkek, January 2011
www.kelechek.kg
2. Situation in KR: official
statistics
Population – about 5,5 mln
Over 122,000 persons with disabilities (2,4% out of
total population whereas UN indicates that on average this is about
10%)
Over 22,000 children with disabilities aged 18 and
younger
Over 3312 children with intellectual disabilities
Average monthly disability benefit – 1500 som
(about 23 Euro)
Minimum subsistence level – 3700 som (56 Euro)
Parents not paid any compensation for looking
after their child with a disability
3. Situation in KR
No strategy on disability issues.
No early intervention and support.
No multidisciplinary support.
Boarding special institutions for
children with disabilities work using
‘Soviet’ approach.
Medical model of disability still
dominates in the society and officials’
attitude.
4. Legislation
UN Convention on child rights (ratified by KR in
1994)
Constitution of KR 2010, art. 16.2 for the first time
states that no one can be discriminated on the
basis disability инвалидности (along with other
forms of discriminations)
Law on guarantees and rights of persons with
disabilities (2008)
Code of KR “About Children” (2006)
Ratified int’l law are above the local laws in KR.
5. Legislation
Collaboration between government and NGOs
considered within:
National programme on implementing children
rights “New generation” (2001)
Law on guarantees and rights of persons with
disabilities (2008)
Law on Social contracting (2008)
Law on Local authorities and local government
administration (2008)
Law on government public procurements of goods
produced by disability NGOs (2009)
6. HealthProm project
Increasing access to basic
services for children with
intellectual disabilities in
Kyrgyzstan
through empowerment of
parents and parent’s groups
Funded by ICCO.
For 2 years, from 2011.
Talas region, Bishkek
(capital) and Bokonbaevo.
7. Partners
In Talas region – Nur Bala
resource NGO and 7
parent-led organizations
with 6 day centres for
disabled children
In Bishkek – The
Association of Parents of
Disabled Children
In Bokonbaevo v. –
Shoola Kol NGO family
support centre
8. Project
based on needs assesment of
partners, joint planning,
implementation and monitoring
through participatory and rights-based
approach
Main aim: improve access to basic
services for children with intellectual
disabilities in Talas region.
9. Project objectives:
Increase access to state guaranteed basic services
for children with intellectual disabilities
Partners’ capacity building and parents
empowerment
Forming a network of parent-led organizations of 3
regions (Talas, Bishkek and Bokonbaevo)
Transforming day centres into family and child
support centres
Increasing public awareness and changing attitudes
toward disability among local communities
10. How: capacity building
17 people employed
(incl. 10 parents of
disabled children).
Technical, informational
and training support.
Created 2 steering
committees in Bishkek
and Talas.
11. How: forming network
Education: trainings, study
and exchange visits.
Purchase of office
equipment.
All partner organizations will
have access to internet.
Providing informational,
knowledge and skills support
to regional network.
Projects on behalf of
network.
Advocacy and lobby on
behalf of network with 9
organizations.
12. How: day centres
Day centres develop/improve their services to become family support centres
to provide more support to parents in the centre and outside (outreach work).
Purchase of furniture, development toys, literature.
Staff will go through trainings and study visits.
Inclusive events for children (summer camps, other social events).
2 boarding institutions for disabled children in Belovodskoe and Manas
districts will be provided basic support.
13. How: increase awareness
First web-site on children with intellectual
disabilities.
Existing general disability web-site
www.KELECHEK.kg, devoted to children with
disabilities and their families.
Quarterly newsletters about the project and
disability news in KR and abroad in electronic
and printed versions.
Informational e-network with regular updated
news about grants, news and events for
organizations and persons working on
disability issues.
Publications on disability issues.
Coverage in mass media and blogging.
Forums on disability issues.
Changing attitudes through round tables,
seminars on social model of disability.
14. Lessons from projects
Parents - experts.
Children – not only
beneficiaries, but participants
of the process.
Cooperation – not competition
– key to success.
Share positive knowledge and
skills for the betterment of
everyone.
The more we share the more
resources explored.
Networking – together we are
power.