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Final Research
    Paper
      Ashlyn Burgess

     15, December 2011

           ENC
Book Summary
• Rachel Simon (the author) has lost her way.
  She has become disconnected from her family,
  single and alone, and is now a workaholic.

• Beth, Simon’s younger sister, has a mild form
  of mental retardation. She spends her days
  riding the city buses and talking to the drivers
  and their passengers.
Book Summary
• Simon and Beth reconnect, but Simon doesn’t
  understand why Beth lives the way she does.

• Simon accepts a 12 month challenge to ride the
  buses with Beth to gain perspective and
  understanding, and to see where she went
  wrong in her life, and how Beth, with all of her
  challenges, got it right.
Cool Beth


• Whimsical, fun loving, colorful
     • Lives independently
• Has a boyfriend named Jesse
• Rides the city buses everyday
         (except Sunday)
   • Knows all of the city bus
     routines, their drivers, and
        frequent passengers
• Mildly intellectually challenged
Beth and Jesse
1% to 3% of individuals in the world

have some sort of intellectual disability



      The National Social Development Institute (Katz, 2008)
About ID (Intellectual Disability)
Causes                            Tested areas of Limitations

•   Genetic                       •   leisure time



•   Hereditary                    •   Work


                                  •   personal care
•   Acquired

                                  •   home life
•   Environmental/sociocultural
                                  •   social skills
•   Developmental
                                  •   health and safety


                                  •   self-governance


                                  •   functional academic skills


                                  •   utilization of the community
Classification of ID

• Mild (Beth)
• Moderate
• Severe
• Profound
ID individuals are discriminated

against and have a negative stigma

      attached to their label.

               WHY???
Studies show…
                                 Top 6 Describing
5 categories of terms                 Words
• Slang/popular terms         • Disturbed

• Negative emotional          • Nuts
  terms
                              • Confused
• Confused terms
                              • Psycho
• Physically disabled terms   • Spastic
• Violent terms               • Crazy
Where are they learning
              this?
• Media
• Parents
• Peers

• Animated movies

• News
Rachel


      Older sister to Beth
       Writer, workaholic
 Left a good relationship out of
               fear
 No friends, no family, just work
  Searching to ‘be somebody’
              Lost
Psychologist Judy Dunn concluded that


   “children who live with a disabled or sick


 sibling respond with considerable variability:


 some siblings benefit from their experience,


others seem not to be affected, and still others


           are worse off” (Shuntermann, 2007).
A Meaningful Life

    3 Basic Needs                   True Self
• Relatedness              • Quality traits pertaining
  • be understood by         to the meaning of life
    others
                           • Also associated with true
• Competence                 self

• Autonomy                 • Find yourself first, get to
  • control own behavior     know you
It is suggested by history that if one

finds themself then they will find the

meaning of life and all that they have

         been searching for.
The Bus
      Challenge


12 months of riding the bus with
             Beth
What I learned
    About mental retardation
 Where does the stigmatism and
      discrimination come from?
   Capabilities of ID individuals
 How does growing up with an ID
        sibling affect children?
    What do people think the
           meaning of life is?
      What the 12 month bus
    challenge taught and changed
                 Rachel
Rachel learned…
      How to let things go
      Live in the moment
      Love unconditionally
 Accept people for who they are
       Be true to yourself
     How to let someone in
    Nothing compares to the
     relationship sisters have
Having a sister is like having a best friend you can't


get rid of. You know whatever you do, they'll still be


                there.   ~Amy Li
Power Point Final

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Power Point Final

  • 1. Final Research Paper Ashlyn Burgess 15, December 2011 ENC
  • 2. Book Summary • Rachel Simon (the author) has lost her way. She has become disconnected from her family, single and alone, and is now a workaholic. • Beth, Simon’s younger sister, has a mild form of mental retardation. She spends her days riding the city buses and talking to the drivers and their passengers.
  • 3. Book Summary • Simon and Beth reconnect, but Simon doesn’t understand why Beth lives the way she does. • Simon accepts a 12 month challenge to ride the buses with Beth to gain perspective and understanding, and to see where she went wrong in her life, and how Beth, with all of her challenges, got it right.
  • 4. Cool Beth • Whimsical, fun loving, colorful • Lives independently • Has a boyfriend named Jesse • Rides the city buses everyday (except Sunday) • Knows all of the city bus routines, their drivers, and frequent passengers • Mildly intellectually challenged
  • 6. 1% to 3% of individuals in the world have some sort of intellectual disability The National Social Development Institute (Katz, 2008)
  • 7. About ID (Intellectual Disability) Causes Tested areas of Limitations • Genetic • leisure time • Hereditary • Work • personal care • Acquired • home life • Environmental/sociocultural • social skills • Developmental • health and safety • self-governance • functional academic skills • utilization of the community
  • 8. Classification of ID • Mild (Beth) • Moderate • Severe • Profound
  • 9. ID individuals are discriminated against and have a negative stigma attached to their label. WHY???
  • 10. Studies show… Top 6 Describing 5 categories of terms Words • Slang/popular terms • Disturbed • Negative emotional • Nuts terms • Confused • Confused terms • Psycho • Physically disabled terms • Spastic • Violent terms • Crazy
  • 11. Where are they learning this? • Media • Parents • Peers • Animated movies • News
  • 12. Rachel  Older sister to Beth  Writer, workaholic  Left a good relationship out of fear  No friends, no family, just work  Searching to ‘be somebody’  Lost
  • 13. Psychologist Judy Dunn concluded that “children who live with a disabled or sick sibling respond with considerable variability: some siblings benefit from their experience, others seem not to be affected, and still others are worse off” (Shuntermann, 2007).
  • 14. A Meaningful Life 3 Basic Needs True Self • Relatedness • Quality traits pertaining • be understood by to the meaning of life others • Also associated with true • Competence self • Autonomy • Find yourself first, get to • control own behavior know you
  • 15. It is suggested by history that if one finds themself then they will find the meaning of life and all that they have been searching for.
  • 16. The Bus Challenge 12 months of riding the bus with Beth
  • 17. What I learned  About mental retardation  Where does the stigmatism and discrimination come from?  Capabilities of ID individuals  How does growing up with an ID sibling affect children?  What do people think the meaning of life is?  What the 12 month bus challenge taught and changed Rachel
  • 18. Rachel learned…  How to let things go  Live in the moment  Love unconditionally  Accept people for who they are  Be true to yourself  How to let someone in  Nothing compares to the relationship sisters have
  • 19. Having a sister is like having a best friend you can't get rid of. You know whatever you do, they'll still be there. ~Amy Li

Editor's Notes

  1. The biggest issue with society and mental disabilities is lack of knowledge and understanding.
  2. These categories and terms can from a study conducted with 14 year old students that were asked questions like “What sorts of words or phrases might you use to describe someone who experiences mental health problems?”
  3. Studies showed that children are learning this stigma from the media, parents, and peers, even from animated movies and cartoons. But with some education and direct social contact, that can be changed.
  4. Studies show that children with siblings that have mental illness can be positively, negatively, or neutrally affected. It’s hard to know if Rachel was affected and in which way, but the research shows that it does have an impact on life.
  5. Studies show that people have three basic needs: ; relatedness (understood by others), competence, and autonomy (control own behavior).These 5 studies proved that when the individuals named traits associated with the meaning of life, they were actually naming true-self traits that allowed them to directly relate that to the meaning of life, to have a personal concrete definition