This document provides information about Dementia UK, including their contact details and registered charity number. It discusses the growing issue of dementia and the challenges faced by those living with the condition and their families. It defines key terms like stigma and discrimination and explores how to reduce stigma. The document advocates for supporting people with dementia to live independently for longer through personalized support plans focused on their strengths and interests, meaningful activities, social inclusion and active involvement in decisions.

1. www.dementiauk.org
356 Holloway road. London N7
6PA
020 7697 4174
info@dementiauk.org
@DementiaUK
Registered Charity Number
1039404
People with
dementia living
independently
for longer.
Dr Hilda Hayo
Chief Admiral Nurse/CEO
Dementia UK www.dementiauk.org
356 Holloway road. London N7 6PA
020 7697 4174
info@dementiauk.org
@DementiaUK
Registered Charity Number 1039404
21/04/2017

2. Current Context: What are the
Issues?
• Growing numbers of people with
dementia
• Majority live in their own homes
• Growing number of family members
providing care and support
• Patchy resources
• Stigma & discrimination
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3. Definitions
Stigma- attributes that when observed may
lead to stereotyping or labelling.
Prejudice- emotional reactions to a
stereotyped person.
Discrimination- behaviours associated with
prejudice e.g. avoidance, isolation
From: Rahman, S. (2015) Living Better with Dementia.
London. JKP
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4. Stigma, discrimination and
dementia.
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• Label of dementia
• Media portrayal
• Discrimination
• Reluctance to seek a diagnosis
• Loss of self esteem and confidence
• Changes in roles and relationships
• Effects on family
• Social separation

5. What do people living with
dementia and their families
say they want?
• Maintain relationships and roles
• Meaningful occupation
• Choice and decision making
• Active involvement
• Social inclusion
• To be listened to
• Advice and support after diagnosis
• Specialist help in times of difficulty
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6. How can we reduce stigma
and discrimination?
Person
living
with
dementia
Societal
change
Local
change
Individual
change
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7. How can we make a
difference?
• National and local awareness raising
• Workplace (Equality Act 2010)
• Education and training
• Promotion of well-being
• Strengths focus
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8. What helps?
• Reablement
• Promotion of independence
• Activity
• Maintaining community connections
• Coordination and collaboration
• Use of technology and adaptations
• New ways of working e.g. Buurtzorg
• Respite
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9. Living at home
• Sense of home important to people
• Awareness & involvement of carer
• Active involvement in support plan
• Support with activities of living
• Think “outside the box”
• Positive risk taking
• Flexibility
• Working in partnership
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10. Conclusion
• Challenge stigma and discrimination
• Active involvement in decisions
• Personalised plans which are:
• Strengths focused
• Activities and interest based
• Provide meaningful occupation
• Social inclusion
• Listen to person with dementia and
their family!
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11. Thank you for Listening
Any questions?
For help and advice please contact:
National dementia helpline staffed by
Admiral Nurses:
0800 888 6678
or direct@dementiauk.org
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