Clients with Immigrant Origin and a Disability or Long-Term Illness (Hilma ry)
1. CLIENTS WITH IMMIGRANT
ORIGIN AND A DISABILITY OR
LONG-TERM ILLNESS
Hilma – the Support Centre for Immigrant Persons with Disabilities
Coordinator Eeva Airikkala
DIAK 28.2.2017
2. Hilma- the Support Centre for Immigrant
Persons with Disabilities
Started as a project at Helsingin Invalidien Yhdistys in 2002
Since 2006 under the Finnish Disability Forum
Funded by STEA (Funding Centre for Social Welfare and Health Organisations)
Coordinator and a part time Service Advisor
Serves customers:
Nationally
All disability groups and languages
Location: Helsinki, Iiris Centre (Service and Activity Centre for the Visually Impaired) in Itäkeskus
3. What are we trying to achieve?
Promote integration and independent life of immigrants with disabilities or long-term illnesses
Strengthen the fulfillment of rights and equal treatment (authorities, service providers, third
sector)
Increase knowledge about this minority and thus prevent discrimination
4.
5.
6. What do we do in practice?
Client work: advice, guiding, support in applying for services and economic support, peer
support groups
Information and lectures: information about the situation about immigrant persons with
disabilities in Finland, newsletter, publications, seminars, lectures, experts by experience
Advocacy and cooperation: Hilma network, cooperation and consulting for projects, statements
7. Different understandings of disability
Medical model
◦ disability is the problem of the individual
◦ the disabled is faulty, unable
◦ s/he should adapt to society’s norms
◦ needs treatment and/or a cure
◦ dependant on external expertise
8. Different understandings of disability
The social model
◦ disability is everybody’s business
◦ the structures of society are ”disabling”
◦ society needs to adapt and change
◦ everybody should have equal rights and possibilities
◦ disabled persons to decide about things concerning them
-> “nothing about us without us”
9. Immigrants with disability/ long-term
illness in Finland
Quota refugees:
Asylum seekers
Work/studies
Disabled while already in Finland
”Second generation” immigrants
Undocumented persons
-A rough estimate of the amount of disabled/long-term ill immigrants in Finland: 3000 – 45 000
persons (depending on the severity of the disability)
-Double minority -> special needs and challenges
10. Cultural factors
how services and economic benefits are applied for and attributed (social status vs.
bureaucracy)
how people communicate in different situations
! BUT: do not overestimate the impact of cultural factors !
! Focus on the individual, Don't assume – ask !
11. Challenges in integration
Double minority: enhanced risk of marginalisation
The circumstances of migration and becoming disabled
Non-acceptance of the disability, experiences of discrimination
Trouble with motivation, no clear aims in life, few expectations for one’s own life
Lacking information about services
Barriers of communication (language skills and communication style)
Unfitting integration measures, trouble finding a job or study place
Complicated public service structure with many sectors and changing personnel
The system sometimes fails to see the needs of the whole family, changes in the internal roles in the family
Lack of social networks and peer support, loneliness
Mental health problems, trauma, PTSD
Prejudices and negative attitudes of others (unfortunately growing xenophobia now)
12. Supporting integration
Appropriate info about services, rights and obligations -> using an interpreter and alternative ways of
delivering information if needed
Access to services as soon as possible after moving to Finland
Special support (e.g. in case of traumas, mental health issues)
Multiprofessional cooperation
Paying attention to the family as a whole
Focusing on strengths and possibilities, empowerment
Participation in decisions conserning oneself
Individual approach, one size fits no-one
Rights-based approach in Finland
Strengthening positive attitude, active inclusion
13. A family with three children (girls aged 4 and 6 & a boy aged 10) move to Finland as quota refugees from Iraq. The
10-year-old boy has an progressive neurological disease that the parents don't know very much about.
At the refugee camp they were told that their son would be cured once they get to Finland. When they arrive, they
are given information about public services and treatments, along with instructions about how to apply for them.
The parents are very satisfied with their social worker.
Five years later:
The two girls have learned Finnish well at daycare and shool. The mother knows Finnish quite well and works part-
time in a store. The father is an informal carer for their son and has not had a chance to learn Finnish properly. He is
tired and says he would prefer a ”real” job. The relationship between the parents is tense.
Both parents are now dissatisfied with their social worker. They think she doesn't help them. They also feel they are
not getting equal treatment, as they've heard of another family with a child with the same disease, who has
received more benefits.
They are unhappy with the doctor who is treating their son, because their son's condition has deteriorated.
What things/problems are central in the situation?
What cultural factors might affect the situation?
http://www.vammaisfoorumi.fi/index.php Represents Finnish disability organisations in national and international (European forum) cowork.
STEA – Sosiaali- ja terveysjärjestöjen avustuskeskus
Nationally: (with or without residence permit)
We have access to intrepeter services
Previously: peer support group (visually impaired, improving Finnish)
In the future: Possibly groups, focus on support persons (volunteers) If interested, leave contact info!
Finnish for beginners in Braille (writing system for visually impaired)
What is equality?
http://culturalorganizing.org/the-problem-with-that-equity-vs-equality-graphic/
The fence: a metaphor for present-day systems of oppression
Immigrant: a person moving to another country
study, work, family, international protection (asylum)
Quota refugee: person who left their home country for another country, but cannot stay there, can be chosen for resettling in a third country under refugee quota
United Nations, UNHCR (United Nations' High Commissioner for Refugees)
approx. 25 countries
Finland 750 / year
asylum seeker: leaves their own country for a safer place to live (asks for international protection, asylum)
residence permit: a right (admitted by the state) to reside in a country and have a home there
right to social & health services, education
refugee: former asylum seeker who now has a residence permit
A couple: both have a disability, the wife is he spouse’s informal care taker.
-Exhaustion
Depression
Difficulties in the relationship
Inconvinient furniture
Spouse learning Finnish at school, wife is trying to get a work practice
Managing small tasks too much
-> Enjoyed field trip a lot
-> recommendations to couple’s therapy, also individual (The Finnish Association of Menthal Health)
-> longer term solution: trained volunteers as support persons