Kathy Kastner: Health Literacy and End of Life Planning
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90 minute workshop to explore concepts and language that seem obvious and intuitive to professionals in the field of health care, but are often are interpreted, understood or perceived differently than intended by patients and caregivers.
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Kathy Kastner: Health Literacy and End of Life Planning
- 1. HEALTH LITERACY AND END OF LIFE PLANNING kathyk@bestendings.com KATHY KASTNER @kathykastner
- 3. KATHY KASTNER • BestEndings.com – the only website for end of life education developed by a patient/from patient’s point of view • Author: Death Kills.. and other things I learned on the internet • TEDtalk: Exit Laughing - on discovering palliative care • Twitter Influencer: Journal of Medical Internet Research • Stanford California: MedicineX ePatient Scholar; Patients 2.0 Presenter • Patient-Advisor: Palliative and Supportive Care Steering Committees • Published: • Canadian Medical Association Journal • Journal of Participatory Medicine • Society of Teachers of Family Medicine (STFM) board member • Managing Pain Video: Workshopped at STFM Conference • Medication Safety Video: STFM Award Winner • Journal of Palliative Medicine: Social Media Panelist kathyk@bestendings.com
- 14. Famous (Extreme) Cases Karen Ann Quinlan: New Jersey 1976 Nancy Cruzan: Missouri 1991 Terri Schiavo: Florida 1998-2005 Hassan Rasouli: Toronto 2010 kathyk@bestendings.com
- 15. Don’t want to be a vegetable Don’t want to be a burden Pull the plug Let nature takes its course kathyk@bestendings.com
- 17. POLST: Physician Orders for Life Sustaining Treatment MOLST: Medical Orders for Life Sustaining Treatment kathyk@bestendings.com
- 18. DNR CPR Heroic Measures Feeding Tubes Breathing Machines Dialysis kathyk@bestendings.com
- 19. OBJECTIVES Teach-back: Establish goal of Advance Directives, as perceived by patients and families 15 minutes Self-Awareness: how to improve end of life conversations 30 minutes Discussion: interpretation of content on forms, identifying health literacy issues 30 minutes kathyk@bestendings.com @kathykastner
- 20. kathyk@bestendings.com Goal of Advance Directives as perceived by patients and families 15 minutes
- 21. kathyk@bestendings.com “Health Literacy isn’t a patient’s problem: it’s a healthcare professional’s problem” Dr Diane Meier Director Center to Advance Palliative Care
- 23. kathyk@bestendings.com Self-Awareness: How to improve end of life conversations. 30 minutes
- 24. kathyk@bestendings.com Two aspects: 1.Language and Terminology 1. Interpretation of intent
- 26. Values Beliefs Goals of Care kathyk@bestendings.com
- 28. Quality of Life Suffering Hope Influences/Influencer s kathyk@bestendings.com
- 29. Withhold Withdraw Futile Measures Heroic Measures Doing Everything kathyk@bestendings.com
- 33. Surrogate Substitute Proxy Agent kathyk@bestendings.com
- 34. “Science tells us nothing about the individual” Dr Susan Pinker kathyk@bestendings.com
- 35. kathyk@bestendings.com Discussion: Interpretation of content on forms, identifying health literacy issues 30 minutes
- 37. kathyk@bestendings.com Living Will Advance Directives: Every State has a version POLST MOLST
- 39. kathyk@bestendings.com Suggested Sources Rebecca Sudore https://www.prepareforyourcare.org/page Angelo Volandes https://www.acpdecisions.org/about/ Jessica Zitter http://jessicazitter.com/ Diane Meier https://www.capc.org/about/staff/diane-meier/ Steve Pantilat http://profiles.ucsf.edu/steven.pantilat Atul Gawande http://atulgawande.com/book/being-mortal/
- 41. kathyk@bestendings.com Kathy Kastner TEDx: Exit Laughing