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Personal Health Budgets: including
people with learning disabilities
Sue Turner, NDTi
Alison Giraud-Saunders
Why we developed the resource
•People with learning disabilities not always included
•Self-directed support can lead to better outcomes …
•… especially for people with complex needs
•Consider in relation to Winterbourne View programme
How we developed the resource
•We worked with three sites + network
•Interviews with other sites/key stakeholders
•Guide organised around ‘markers of progress’
Who can have a personal health budget?
•People on NHS CHC:
• From April 2014 - right to ask
• From October 2014 - right to have a PHB
•Other people with long term health conditions or
mental health problems
What does this mean for services?
•Planning with one person at a time, while ensuring
access to the range of specialist services
•Wide range of support required – not just health care
•Including people who lack capacity
•Involving people with learning disabilities and family
carers
•‘Can do’ approach to improving choice and control
Important things to think about (1)
•Strong leadership
•Working together with people and families
•Getting the message across
•Providing clear information
•Thinking about the whole person
Important things to think about (2)
•Treating people as equal partners – a positive
approach to risk
•Providing support to help people plan
•People can take their budgets in the way that suits
them
•Checking to see how things are going
URL:
Contacts: Sue Turner sue.turner@ndti.org.uk
Alison Giraud-Saunders alisongs@btinternet.com

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Personal Health Budgets: including people with learning disabilities

  • 1. Personal Health Budgets: including people with learning disabilities Sue Turner, NDTi Alison Giraud-Saunders
  • 2. Why we developed the resource •People with learning disabilities not always included •Self-directed support can lead to better outcomes … •… especially for people with complex needs •Consider in relation to Winterbourne View programme
  • 3. How we developed the resource •We worked with three sites + network •Interviews with other sites/key stakeholders •Guide organised around ‘markers of progress’
  • 4. Who can have a personal health budget? •People on NHS CHC: • From April 2014 - right to ask • From October 2014 - right to have a PHB •Other people with long term health conditions or mental health problems
  • 5. What does this mean for services? •Planning with one person at a time, while ensuring access to the range of specialist services •Wide range of support required – not just health care •Including people who lack capacity •Involving people with learning disabilities and family carers •‘Can do’ approach to improving choice and control
  • 6. Important things to think about (1) •Strong leadership •Working together with people and families •Getting the message across •Providing clear information •Thinking about the whole person
  • 7. Important things to think about (2) •Treating people as equal partners – a positive approach to risk •Providing support to help people plan •People can take their budgets in the way that suits them •Checking to see how things are going
  • 8. URL: Contacts: Sue Turner sue.turner@ndti.org.uk Alison Giraud-Saunders alisongs@btinternet.com