Presentation to the HealthKick 2015 conference in Toronto, May 2015. Includes important definition of empowerment from the World Bank - highly applicable to how and why patients become empowered when they gain access to more information.

1. “e-Patient Dave” deBronkart
Twitter: @ePatientDave
facebook.com/ePatientDave
LinkedIn.com/in/ePatientDave
dave@epatientdave.com
What e-Patients Want
and WhyThey Need
to Be Empowered

2. TEDx Maastricht, 2011

3. This is the year
of patients
rising.

4. Patient
is not
a third person
word
Lesson 1, fromTEDx Maastricht, 2011

5. You can tell a lot
about a futurist
by how their
predictions pan out
Lesson 2, from 40 years in business:

6. 1969!

7. Equipped
Engaged
Empowered
Enabled
e-Patients are

8. What do we mean by
Empowered?

9. Empowerment
“Increasing the capacity !
of individuals or groups"
to make choices [about what they want]"
and to transform those choices !
into desired actions & outcomes”!
World Bank, 2002!

10. People perform better
when they’re
informed better.
Lesson 3, obvious in every industry but healthcare

11. It’s perverse
to keep people
in the dark
and call them ignorant
Corollary:

13. Median Survival:
24 weeks

15. How has that one panned out?

16. How can it be
that the most useful
and relevant and
up-to-the-minute information
can exist outside of
traditional channels?

17. How has this one turned out?

18. Closed system Open network
Transformation of Knowledge Access

20. How a kidney cancer wife
found the info she needed
• No insurance;
no treatment.Then:
• Three bad hospitals;
no help.Then:
• A friend said
“I know a guy...
on Twitter”

21. Regina Holliday’s
Medical Mural Advocacy Project
The Walking Gallery
ReginaHolliday.blogspot.com

22. You know
it’s a revolution
when the artists
and musicians
show up
Lesson 4 (a culture lesson)

24. Dr. EricTopol
How’s that one turned out?

25. bit.ly/topolthedata

26. “Gimme My DaM Data”
bit.ly/gimmedataDeloitte guys get on board

27. “Data Liberación!”
Todd Park
Innovator
Entrepreneur
HHS Chief Technical Officer
US Chief Technical Officer
Federal government gets on board

29. When assets digitize,
things change fast.
Lesson 5 (a shocker, in any pre-digital industry)

31. Why not “Google Earth for my body”?

33. Case Study:
Hugo Campos wants his ICD data

34. Patient Experience

35. AliveCor: iPhone EKG
12/3/12:
“FDA clears iPhone heart
monitor, doctors can pre-order”
Feb 2014: OTC

36. Hugo Campos
@hugooc
HugoOC@gmail.com
My first year with
the AliveCor
February 8, 2013

38. We perform better
when we’re
informed better.

39. #WeAreNotWaiting
#NightScout

40. #DIYPS
(“Do-it-yourself Pancreas System”

42. Who gets to say
what’s in the
patient’s best
interest?

43. Patient-Clinician Partnerships
Engaged, empowered patients—
A learning health care system is
anchored on patient needs and
perspectives
and promotes the inclusion of patients,
families, and other caregivers as vital
members of the continuously learning
care team.

44. “How can patients participate if they don’t
have the information?” – Dr.Danny Sands

45. How’s this one workin’ out?

46. WONDERFULLY, thank you.

47. It’s great
to be alive.

49. Withings
Withings Wi-Fi scale
Fitness wristband & heart band
YMCA Diabetes Prevention Class
(food training & physical activity)
MyFitnessPal diet tracking app
Strong spousal support
My doctors can’t see this in their computers!

51. TEDx Maastricht, 2011

52. Permettez-
moi de vous
présenter…
les Mini-Me’s.

54. Half of everyone who’s
ever been 65 is alive today
Population today: ~7.0 billion
End of World War II: ~2.3 billion

55. MayThe Fourth

60. Let My Data Go

61. We perform better
when we’re
informed better.

62. We are

63. (you are)

64. the most
under-used
resource in
healthcare.

66. Let Patients Help.