Welcome to Marathon Club 2020
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An overview of the Sarcoma UK Marathon Club day
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Welcome to Marathon Club 2020
- 2. Today • Hello to Facebook Live! • Louisa, Juley, Emma, Enda, Catherine, Jeff and Matt • How you are helping • What to expect on the big day! • Fundraising help • Training advice from Matt • Plenty of tips
- 3. Thank you You are making all the difference by... • funding sarcoma research to help find answers, new treatments and kinder drugs • keeping our Support Line open, and our information up to date and relevant • driving sarcoma awareness • ensuring we can keep campaigning
- 4. Research Over £3million invested • Investing in scientific and medical research at institutions across the UK • Better understand sarcoma and look for kinder, more effective treatments and outcomes for patients. • Funding the next generation of sarcoma researchers ⚬ £3,000 funds 1 student for 1 month
- 5. Support & Information Providing expert information and personal support • Support Line has helped more than 1,700 individuals across 6,200 phone calls and emails • In a poll conducted in 2019, 9 in 10 users of the Support Line told us the service had helped them. • £20 funds a Support Line call • Text messaging service rolled out • 7 new leaflets, booklets and factsheets planned
- 6. Policy and Campaigning Sarcoma UK is the voice of the 5,300 people diagnosed with sarcoma every year, and everyone affected by sarcoma. • We work in partnership with other organisations to address early diagnosis as it can improve survival rates by 20% • Committed to helping people with sarcoma access the most effective treatments for their cancer • Working with national governing bodies and sarcoma specialist centers to improve data collection and publishing
- 7. In 92 days... You'll be running for research You'll be running for awareness You'll be running for support THANK YOU !
Editor's Notes
- Thank you all for coming We are currently Facebook live, hello to everyone watching. Please do ask any questions you may have Quickly introduce everyone… What to expect from today
- Can’t thank you all enough for signing up to do this incredible challenge for Sarcoma UK As you know without your help we will be unable to… In the 2018-19 year, 74p in every pound we spend goes into research, information, support and education. The remaining 26p is spent on fundraising activity, administration and governance.
- We have funded 52 research projects and invested over £3mil into scientific and medical research pilot grants allow researchers to explore fresh innovative new ideas, whilst our larger grants take those seeds to the next level flagship studentship programme invests in the research leaders of the future, with each studentship contributing an average of 40 years to sarcoma research. Our Clinical research seeks effective and improved care for patients during treatment.
- For a lot of people who use the service, it’s a lifeline, a source of up-to-date, advice and guidance from experts who understand the patient and family perspective Clinical teams do not necessarily have time or resource to be able to support all of their patients in a way that they would like to, which is where the Support Line can make a real difference.
- The policy team looks for evidence to develop policy which will influence key decision makers in the Government, NHS, and research communities Sarcoma UK is focussed on increasing sarcoma awareness where it matters: earlier diagnosis, access to treatment, funding scientific and medical research Our supporters, healthcare professionals, and researchers work closely with us to ensure that the biggest issues they face are addressed.