The document introduces the Brain Tumour Charity, the largest in the UK formed by the merger of three charities, focusing on support and information services for children and families affected by brain tumors. It highlights ongoing initiatives to reduce diagnosis times and fund research, with aims to cut the average diagnosis time significantly while also raising awareness of the issues facing patients. The charity seeks community and clinical champions to enhance its outreach and growth in support initiatives.

1. Introducing
The Brain Tumour Charity
Elissa Coster
Children and Families Worker

2. The UK’ s
largest
brain
tumour
charity
Merger of three
charities:
• Brain Tumour UK
• Joseph Foote
Trust
• The Brain Tumour
Charity

3. Support
and
Information
Service

4. The Support & Info Line

5. Support and Information Service

6. Support and Information
Service

7. Information

8. Informatio
n Days
around
the UK

9. “Quote can go
here”Research
< 2%
£2.5million every year
= largest dedicated
funder of brain
tumour research

10. “Quote can go
here”

11. Raising awareness
• Longer diagnosis times
in the UK
• More children dying
and suffering from severe
life-limiting disabilities
• Based on research
with professional support
• Aim: Reduce average diagnosis time
from 12-13 weeks to less than five
headsmart.org.uk

12. Professional
partnerships
• HeadSmart is run by a partnership between:
• Supported by many other organisations:
• Shortlisted for BMJ award, highly commended by QiC:

13. The campaign
• Public and professional awareness
• Promoted and funded by The Brain Tumour Charity
• Disseminated by:
• The Charity
• Community Champions & volunteers
• We need more Community Champions in Scotland!
• Clinical Champions in every paediatric
neuro-oncology centre

14. The resources
FREE mobile
symptoms guide
Text SMART to
81400

15. The impact
Average Symptom Interval
Pre-guideline
12-13 weeks
Pre HeadSmart launch
9.3 weeks
JUNE 2012
7.3 weeks
TODAY
6.9 weeks

16. Our incredible fundraisers
and supporters

17. Thank you
Find out more:
www.thebraintumourcharity.o
rg
Contact us:
0808 800 0004
support@thebraintumourcharity.org