Nicole discussed issues around accessible information, the perfect patient information journey and provided a chance for attendees to test their own levels of health literacy.
#cilipconf19
CILIP Conference - Information as an asset "rediscovering gold" - Sandra WardCILIP
Today’s organisations are information driven. As a critical and strategic asset, management of information requires leadership and action at Board level. In February 2019, a consortium of CILIP, KPMG, CIO Connect, and IK SpringBoard (supported by the Network for Information and Knowledge Exchange) published “Information as an Asset – Today’s Board Agenda”. This reinforces Board responsibilities for leading their organisation’s information vision, strategy, policies and governance. It is intended as a wake up call and updates the pivotal Hawley report (1995) with its agenda for Board action, highly relevant to today. Hence, its subtitle: 'rediscovering gold'.
#cilipconf19
CILIP Conference 2019 - Looking ahead: the implications of the Topol Review f...CILIP
We are at a unique juncture in the history of medicine. This update teases out some of the implications of the Topol Review for information professionals. In preparing to deliver the digital future, lifelong learning is far more than a 'nice to do', it is essential for librarians and knowledge specialists – as for the healthcare workforce. What next?
#cilipconf19
CILIP Conference 2019 - From idea to impact: a health literacy project - Nata...CILIP
Natasha discussed the genesis of NELFT’s current health literacy project, the scope and impact of the work so far and future plans. The project aims to demonstrate the value of raising health literacy awareness and skills across the health economy and through the life course. Its delivery sees NHS library staff working across professional, organisational and sector boundaries, extending our influence and sharing our expertise.
#cilipconf19
CILIP Conference 2020: Supporting digital health literacy and combating digit...CILIP
Bob Gann, Digital inclusion Specialist, National Health Service
Health information and services are increasingly delivered digitally, a trend which has been accelerated by the Covid-19 pandemic. Digital health literacy skills have become essential for people to participate actively in their own health. Library and knowledge services are taking the lead in supporting people to access digital technologies, engage with services online, and use high quality health information.
#CILIPConf20
#empowereddigitalcitizens
Top 5 reasons to attend the International digital health and care congressThe King's Fund
The document discusses an upcoming International digital health and care congress. It notes that digital health solutions are already having an impact by giving people easy access to health information online and through tools like telehealth. Technologies allowing individuals to monitor their health at home are growing in popularity for managing long-term conditions. When underpinned by IT solutions, digital technologies are also creating healthcare capacity by shifting some services from professionals to patients. The congress aims to explore future opportunities from digital health and allow attendees to learn about innovative projects and trends, network with peers, and gain international perspectives.
This document discusses Mayo Clinic's digital innovations for coping with COVID-19. It summarizes how Mayo Clinic used social media and a new employee app to keep staff informed during the pandemic when many lost regular intranet access. It also discusses using private Facebook groups to listen to staff needs and concerns. Finally, it outlines how Mayo Clinic updated patients through their news network website and coordinating with their main website. The rapid app deployment and social media efforts helped Mayo Clinic overcome disrupted communication channels during the crisis.
Digitally Transforming Primary Care – Making it Happen at Scale ConferenceRachelHatfield7
Digitally Transforming Primary Care – Making it Happen at Scale Conference, held on Wednesday 19th June 2019, London.
For NHS leaders - Commissioning, workforce development, digital delivery; practising GPs, general practice nurses, practice managers; everyone involved in delivery of primary care and evolving Primary Care Networks
This document discusses building public trust for data use in new technologies. It covers the philosophy and ethics around data use, including the four pillars of ethics: autonomy, beneficence, non-maleficence, and justice. It discusses how tragedy can change public opinion and the values of society. It also discusses the role of Caldicott Guardians in bringing ethical considerations to decisions around data use and ensuring compliance with the Caldicott Principles of data protection.
CILIP Conference - Information as an asset "rediscovering gold" - Sandra WardCILIP
Today’s organisations are information driven. As a critical and strategic asset, management of information requires leadership and action at Board level. In February 2019, a consortium of CILIP, KPMG, CIO Connect, and IK SpringBoard (supported by the Network for Information and Knowledge Exchange) published “Information as an Asset – Today’s Board Agenda”. This reinforces Board responsibilities for leading their organisation’s information vision, strategy, policies and governance. It is intended as a wake up call and updates the pivotal Hawley report (1995) with its agenda for Board action, highly relevant to today. Hence, its subtitle: 'rediscovering gold'.
#cilipconf19
CILIP Conference 2019 - Looking ahead: the implications of the Topol Review f...CILIP
We are at a unique juncture in the history of medicine. This update teases out some of the implications of the Topol Review for information professionals. In preparing to deliver the digital future, lifelong learning is far more than a 'nice to do', it is essential for librarians and knowledge specialists – as for the healthcare workforce. What next?
#cilipconf19
CILIP Conference 2019 - From idea to impact: a health literacy project - Nata...CILIP
Natasha discussed the genesis of NELFT’s current health literacy project, the scope and impact of the work so far and future plans. The project aims to demonstrate the value of raising health literacy awareness and skills across the health economy and through the life course. Its delivery sees NHS library staff working across professional, organisational and sector boundaries, extending our influence and sharing our expertise.
#cilipconf19
CILIP Conference 2020: Supporting digital health literacy and combating digit...CILIP
Bob Gann, Digital inclusion Specialist, National Health Service
Health information and services are increasingly delivered digitally, a trend which has been accelerated by the Covid-19 pandemic. Digital health literacy skills have become essential for people to participate actively in their own health. Library and knowledge services are taking the lead in supporting people to access digital technologies, engage with services online, and use high quality health information.
#CILIPConf20
#empowereddigitalcitizens
Top 5 reasons to attend the International digital health and care congressThe King's Fund
The document discusses an upcoming International digital health and care congress. It notes that digital health solutions are already having an impact by giving people easy access to health information online and through tools like telehealth. Technologies allowing individuals to monitor their health at home are growing in popularity for managing long-term conditions. When underpinned by IT solutions, digital technologies are also creating healthcare capacity by shifting some services from professionals to patients. The congress aims to explore future opportunities from digital health and allow attendees to learn about innovative projects and trends, network with peers, and gain international perspectives.
This document discusses Mayo Clinic's digital innovations for coping with COVID-19. It summarizes how Mayo Clinic used social media and a new employee app to keep staff informed during the pandemic when many lost regular intranet access. It also discusses using private Facebook groups to listen to staff needs and concerns. Finally, it outlines how Mayo Clinic updated patients through their news network website and coordinating with their main website. The rapid app deployment and social media efforts helped Mayo Clinic overcome disrupted communication channels during the crisis.
Digitally Transforming Primary Care – Making it Happen at Scale ConferenceRachelHatfield7
Digitally Transforming Primary Care – Making it Happen at Scale Conference, held on Wednesday 19th June 2019, London.
For NHS leaders - Commissioning, workforce development, digital delivery; practising GPs, general practice nurses, practice managers; everyone involved in delivery of primary care and evolving Primary Care Networks
This document discusses building public trust for data use in new technologies. It covers the philosophy and ethics around data use, including the four pillars of ethics: autonomy, beneficence, non-maleficence, and justice. It discusses how tragedy can change public opinion and the values of society. It also discusses the role of Caldicott Guardians in bringing ethical considerations to decisions around data use and ensuring compliance with the Caldicott Principles of data protection.
The document discusses a program that helps vulnerable people improve their digital health literacy. It trained over 200,000 people to use digital health resources, reached nearly 400,000 with health messages, and trained over 8,000 digital health champions. The program targeted socially excluded groups and showed positive impacts, including 41% accessing health information online for the first time, potential NHS savings of £6.40 for every £1 invested, and case studies of people improving their lives and health through gained digital skills.
The IFLA Trends Report identifies 5 trends that will impact libraries and the knowledge economy over the next 5 years:
1. New technologies will both expand access to information for some while limiting it for others without internet access or literacy. This could advantage some and disadvantage others.
2. Online education will transform traditional learning models and make learning more accessible but questions remain around the value and impact on social learning.
3. Privacy and data protection boundaries will be redefined, raising issues around who profits from personal data and who can be trusted with it - governments, search engines, or neither.
This document discusses eHealth, including its meanings, scope, scale, successes, and implications for policymaking. It defines eHealth broadly as health services and information delivered through the internet and related technologies. The scope of eHealth includes various telehealth applications and services as well as the technologies that enable them such as telecommunications, computing, and medical devices. EHealth initiatives have been implemented at various scales, from small pilot programs to large national programs, but success is difficult to define and measure due to the many stakeholders and goals involved. The document concludes that developing coherent eHealth policies remains challenging in terms of determining appropriate scope, scale of implementation, and how to define and measure success.
The document discusses the digital transformation of the UK healthcare system. It notes that digital technology allows for a radical redesign of services that can make them cheaper, better, and faster, freeing up resources for frontline work. Realizing this vision will require addressing gaps in digital skills for both patients and staff, designing services around user needs, and creating the right conditions for digital innovation. A national digital service called NHS.UK is being developed to help achieve this ambition.
The document discusses the growing use of digital health tools and smartphones. It notes that 50% of UK adults own smartphones, which they use to look up health information online in increasing amounts. It then describes the work of the Health Innovation Network to build the global digital health capital by connecting digital health companies to NHS experts, investors, and potential pilot opportunities through workshops, webinars, and other support over 50 hours. Their efforts have helped speed discussions and led to reductions in outpatient visits and missed appointments. The network encourages applications for their second cohort and provides contact information.
The Connecting Care programme aims to improve information sharing between local health and social care organizations in Bristol, North Somerset and South Gloucestershire. So far the programme has delivered a shared electronic patient record containing demographics, clinical history, appointments and referrals for over 500 users. Benefits include improved decision making, care quality and efficiency. The next stage will expand the system to over 10,000 users and include additional clinical data like discharge letters.
The document discusses getting knowledge into action for health and social care in Scotland through a collaborative knowledge network approach. It outlines the national knowledge strategy and implementation through networks to improve service delivery, roles and skills. Examples of knowledge tools and resources are provided, including a digital knowledge platform, communities of practice, and evidence summaries. Opportunities for libraries, health services, and other groups to get involved in the knowledge network are discussed.
Tg clinical senate slides v2 accessibleNHS England
Tracey Grainger is the Head of Digital Primary Care Development at NHS England. Her role involves transforming primary care through technology including developing a single child record, reducing bureaucracy in general practice, and improving digital access for patients. Her key goals are ensuring 95% of GP patients can access digital services like e-consultations and 95% of test results are digitally transferred by 2020. Local areas are developing Local Digital Roadmaps to achieve being "paper-free at the point of care" by 2020 and exploit digital technology to support transformation and sustainability in the NHS. Digital maturity assessments are being used to track progress towards this vision of primary care.
The Use of Social Networks in the prevention of childhood obesityRomina Cialdella
The document discusses using social networks to help prevent childhood obesity. It notes that childhood obesity rates have doubled or tripled in most countries over the past 30 years. Social networks can help educate the public, reach large audiences, strengthen support networks, and mobilize key actors. Objectives include facilitating the dissemination of health information through social networks. Research is needed to identify influential online figures to engage and help spread information. Messages should be clear, concise, relevant and call people to action. Social networks allow two-way communication and participation in health.
Making a real difference to child health - Digital strategic workshopNHS England
This document outlines an agenda and presentation for a meeting on developing a digital strategy for child health information systems in England. The meeting will include introductions, a discussion of the strategic context and why a digital strategy is needed now. Presentations will cover the challenges with the current fragmented systems, a vision for a shared core clinical record and digital health hub, and options and a timeline for implementation. The goal is to simplify and standardize child health information so it can be accessed and updated in a consolidated way by parents, professionals and the public health system.
The document summarizes key takeaways from a discussion on how open data could contribute to poverty eradication in Kenya and Uganda. There are several main points:
1) Open data can help with resource allocation and poverty reduction by providing statistics on services, access, and demand. Data needs to be more accessible and relevant to needs.
2) Technological advances in both countries provide opportunities to increase data access and awareness, while demographic and cultural shifts also support more open data.
3) While some government data is collected, it often goes unused. More needs to be done to transform data into usable information to support development goals.
Opening Keynote - Personalised Health and Care 2020HIMSS UK
Beverley Bryant, Director of Digital Technology at NHS England, outlines plans to make the NHS paperless by 2020 through increasing digital inclusion and skills training. Evaluation of previous digital skills training programs found that it reduced GP visits, saved time and money, and improved health outcomes like diet for many participants. The plan is to give patients more responsibility for their health by conveniently accessing NHS services online, while freeing up clinicians' time spent on administrative tasks. This would benefit the NHS through improved health outcomes, patient satisfaction, and lower administrative costs.
A digital health platform was developed through a collaboration between an NHS foundation trust and a digital health company to develop new digital care pathways. The platform enables self-management for patients, improves triage and access, and increases health system efficiency. It was developed using a problem-based approach with clinical champions and patient engagement. The digital pathways are now fully integrated and invisible to clinicians. The platform provides several options for patients to connect including a patient portal, mobile app, automated phone calls, SMS, and integration with third party apps and websites. It aims to give patients choice while meeting standards for security, governance, and interoperability.
The document discusses building public trust for data use in new health technologies. It summarizes the Patients Association's position that while patients support data sharing under proper controls to improve care, many have low awareness of current data practices. Specifically, the PA advocates for opt-in consent by default, clear descriptions of what data is shared and why, and strengthened security assurances. The document also notes some past issues that undermined public trust and the need for transparency regarding any AI decision-making in the future.
Learning Disabilities: Share and Learn Webinar – 25 August 2016NHS England
Topic 1: Co production – a long term relationship and different Conversations
Guest Speakers: Samantha Clark, Chief Executive, Inclusion North
In health & social care we are constantly grappling with how we can work differently and think differently about people who come to our services (willingly and otherwise) needing support. With so many new ways of thinking & working around – co production, person centred approaches, asset based community development, strengths based approaches, community capacity - sometimes it's hard for people who work in services, as well as the people and families they support, to work out what it those mean to their practice. This webinar will focus on the practical values driven implementation of co production – the long term relationship, shifting power but building on all contributions.
Topic 2: Transforming Care and Building the Right Support – the CQC approach to registering services for adults with learning disabilities
Guest Speakers: Theresa Joyce and Sue Mitchell, Care Quality Commission
This webinar will be an opportunity for commissioners to consider the CQC policy on registering providers who apply to deliver services for adults with learning disabilities. The policy is called ‘Registering the Right Support’ and outlines the factors we will consider in both approving and refusing applications for either new services or changes in existing services. We will consider specific issues, such as applications to change the registration of a hospital ward or unit, to register large or congregate services or to increase the size of an existing location. These factors are all important when commissioners are developing their plans under the Transforming Care program, and the webinar will enable discussion and questions about the registration approach and process.
This document discusses mHIMSS (mobile Health Information Management Systems Society), a division of HIMSS focused on mobile health technologies. It provides an overview of mHIMSS, including its goals of promoting the use of mobile technologies to improve healthcare delivery. It also outlines mHIMSS' stakeholders, activities, benefits of membership, and barriers to adoption of mobile technologies in healthcare. The document aims to encourage participation and engagement with mHIMSS initiatives.
Giles Wilmore: How will the NHS Information Strategy support the new NHS?The King's Fund
Giles Wilmore, Director of Quality Framework and QIPP, Department of Health, discusses the NHS Information Strategy at The King's Fund's NHS Information Revolution conference.
One London conversation workshop 18 July slide deck Katie Harrison
This document provides background information on the One London Local Health and Care Record Programme. It discusses how currently in the NHS and social care systems, there is no single shared record of a person's care across organizations. This can lead to fragmented and reactive care. The One London proposal aims to address this by creating a local health and care record that is shared across London. It would contain a person's medical history, test results, diagnoses, procedures, appointments, prescriptions, care plans and more. This would allow care teams to access all relevant information about a person. It would also enable more proactive management of populations and empower people to access and contribute to their own records. The document outlines how a One London record could transform
The document discusses a program that helps vulnerable people improve their digital health literacy. It trained over 200,000 people to use digital health resources, reached nearly 400,000 with health messages, and trained over 8,000 digital health champions. The program targeted socially excluded groups and showed positive impacts, including 41% accessing health information online for the first time, potential NHS savings of £6.40 for every £1 invested, and case studies of people improving their lives and health through gained digital skills.
The IFLA Trends Report identifies 5 trends that will impact libraries and the knowledge economy over the next 5 years:
1. New technologies will both expand access to information for some while limiting it for others without internet access or literacy. This could advantage some and disadvantage others.
2. Online education will transform traditional learning models and make learning more accessible but questions remain around the value and impact on social learning.
3. Privacy and data protection boundaries will be redefined, raising issues around who profits from personal data and who can be trusted with it - governments, search engines, or neither.
This document discusses eHealth, including its meanings, scope, scale, successes, and implications for policymaking. It defines eHealth broadly as health services and information delivered through the internet and related technologies. The scope of eHealth includes various telehealth applications and services as well as the technologies that enable them such as telecommunications, computing, and medical devices. EHealth initiatives have been implemented at various scales, from small pilot programs to large national programs, but success is difficult to define and measure due to the many stakeholders and goals involved. The document concludes that developing coherent eHealth policies remains challenging in terms of determining appropriate scope, scale of implementation, and how to define and measure success.
The document discusses the digital transformation of the UK healthcare system. It notes that digital technology allows for a radical redesign of services that can make them cheaper, better, and faster, freeing up resources for frontline work. Realizing this vision will require addressing gaps in digital skills for both patients and staff, designing services around user needs, and creating the right conditions for digital innovation. A national digital service called NHS.UK is being developed to help achieve this ambition.
The document discusses the growing use of digital health tools and smartphones. It notes that 50% of UK adults own smartphones, which they use to look up health information online in increasing amounts. It then describes the work of the Health Innovation Network to build the global digital health capital by connecting digital health companies to NHS experts, investors, and potential pilot opportunities through workshops, webinars, and other support over 50 hours. Their efforts have helped speed discussions and led to reductions in outpatient visits and missed appointments. The network encourages applications for their second cohort and provides contact information.
The Connecting Care programme aims to improve information sharing between local health and social care organizations in Bristol, North Somerset and South Gloucestershire. So far the programme has delivered a shared electronic patient record containing demographics, clinical history, appointments and referrals for over 500 users. Benefits include improved decision making, care quality and efficiency. The next stage will expand the system to over 10,000 users and include additional clinical data like discharge letters.
The document discusses getting knowledge into action for health and social care in Scotland through a collaborative knowledge network approach. It outlines the national knowledge strategy and implementation through networks to improve service delivery, roles and skills. Examples of knowledge tools and resources are provided, including a digital knowledge platform, communities of practice, and evidence summaries. Opportunities for libraries, health services, and other groups to get involved in the knowledge network are discussed.
Tg clinical senate slides v2 accessibleNHS England
Tracey Grainger is the Head of Digital Primary Care Development at NHS England. Her role involves transforming primary care through technology including developing a single child record, reducing bureaucracy in general practice, and improving digital access for patients. Her key goals are ensuring 95% of GP patients can access digital services like e-consultations and 95% of test results are digitally transferred by 2020. Local areas are developing Local Digital Roadmaps to achieve being "paper-free at the point of care" by 2020 and exploit digital technology to support transformation and sustainability in the NHS. Digital maturity assessments are being used to track progress towards this vision of primary care.
The Use of Social Networks in the prevention of childhood obesityRomina Cialdella
The document discusses using social networks to help prevent childhood obesity. It notes that childhood obesity rates have doubled or tripled in most countries over the past 30 years. Social networks can help educate the public, reach large audiences, strengthen support networks, and mobilize key actors. Objectives include facilitating the dissemination of health information through social networks. Research is needed to identify influential online figures to engage and help spread information. Messages should be clear, concise, relevant and call people to action. Social networks allow two-way communication and participation in health.
Making a real difference to child health - Digital strategic workshopNHS England
This document outlines an agenda and presentation for a meeting on developing a digital strategy for child health information systems in England. The meeting will include introductions, a discussion of the strategic context and why a digital strategy is needed now. Presentations will cover the challenges with the current fragmented systems, a vision for a shared core clinical record and digital health hub, and options and a timeline for implementation. The goal is to simplify and standardize child health information so it can be accessed and updated in a consolidated way by parents, professionals and the public health system.
The document summarizes key takeaways from a discussion on how open data could contribute to poverty eradication in Kenya and Uganda. There are several main points:
1) Open data can help with resource allocation and poverty reduction by providing statistics on services, access, and demand. Data needs to be more accessible and relevant to needs.
2) Technological advances in both countries provide opportunities to increase data access and awareness, while demographic and cultural shifts also support more open data.
3) While some government data is collected, it often goes unused. More needs to be done to transform data into usable information to support development goals.
Opening Keynote - Personalised Health and Care 2020HIMSS UK
Beverley Bryant, Director of Digital Technology at NHS England, outlines plans to make the NHS paperless by 2020 through increasing digital inclusion and skills training. Evaluation of previous digital skills training programs found that it reduced GP visits, saved time and money, and improved health outcomes like diet for many participants. The plan is to give patients more responsibility for their health by conveniently accessing NHS services online, while freeing up clinicians' time spent on administrative tasks. This would benefit the NHS through improved health outcomes, patient satisfaction, and lower administrative costs.
A digital health platform was developed through a collaboration between an NHS foundation trust and a digital health company to develop new digital care pathways. The platform enables self-management for patients, improves triage and access, and increases health system efficiency. It was developed using a problem-based approach with clinical champions and patient engagement. The digital pathways are now fully integrated and invisible to clinicians. The platform provides several options for patients to connect including a patient portal, mobile app, automated phone calls, SMS, and integration with third party apps and websites. It aims to give patients choice while meeting standards for security, governance, and interoperability.
The document discusses building public trust for data use in new health technologies. It summarizes the Patients Association's position that while patients support data sharing under proper controls to improve care, many have low awareness of current data practices. Specifically, the PA advocates for opt-in consent by default, clear descriptions of what data is shared and why, and strengthened security assurances. The document also notes some past issues that undermined public trust and the need for transparency regarding any AI decision-making in the future.
Learning Disabilities: Share and Learn Webinar – 25 August 2016NHS England
Topic 1: Co production – a long term relationship and different Conversations
Guest Speakers: Samantha Clark, Chief Executive, Inclusion North
In health & social care we are constantly grappling with how we can work differently and think differently about people who come to our services (willingly and otherwise) needing support. With so many new ways of thinking & working around – co production, person centred approaches, asset based community development, strengths based approaches, community capacity - sometimes it's hard for people who work in services, as well as the people and families they support, to work out what it those mean to their practice. This webinar will focus on the practical values driven implementation of co production – the long term relationship, shifting power but building on all contributions.
Topic 2: Transforming Care and Building the Right Support – the CQC approach to registering services for adults with learning disabilities
Guest Speakers: Theresa Joyce and Sue Mitchell, Care Quality Commission
This webinar will be an opportunity for commissioners to consider the CQC policy on registering providers who apply to deliver services for adults with learning disabilities. The policy is called ‘Registering the Right Support’ and outlines the factors we will consider in both approving and refusing applications for either new services or changes in existing services. We will consider specific issues, such as applications to change the registration of a hospital ward or unit, to register large or congregate services or to increase the size of an existing location. These factors are all important when commissioners are developing their plans under the Transforming Care program, and the webinar will enable discussion and questions about the registration approach and process.
This document discusses mHIMSS (mobile Health Information Management Systems Society), a division of HIMSS focused on mobile health technologies. It provides an overview of mHIMSS, including its goals of promoting the use of mobile technologies to improve healthcare delivery. It also outlines mHIMSS' stakeholders, activities, benefits of membership, and barriers to adoption of mobile technologies in healthcare. The document aims to encourage participation and engagement with mHIMSS initiatives.
Giles Wilmore: How will the NHS Information Strategy support the new NHS?The King's Fund
Giles Wilmore, Director of Quality Framework and QIPP, Department of Health, discusses the NHS Information Strategy at The King's Fund's NHS Information Revolution conference.
One London conversation workshop 18 July slide deck Katie Harrison
This document provides background information on the One London Local Health and Care Record Programme. It discusses how currently in the NHS and social care systems, there is no single shared record of a person's care across organizations. This can lead to fragmented and reactive care. The One London proposal aims to address this by creating a local health and care record that is shared across London. It would contain a person's medical history, test results, diagnoses, procedures, appointments, prescriptions, care plans and more. This would allow care teams to access all relevant information about a person. It would also enable more proactive management of populations and empower people to access and contribute to their own records. The document outlines how a One London record could transform
The document discusses initiatives in the UK to improve access to health information for patients and the public. It outlines programs and policies from various UK government documents and health organizations that aim to provide individuals with information prescriptions, access to online health resources, and support for managing long-term conditions. The goal is to empower people with information and tools to make informed health decisions and better manage their own care.
Keynote Presentation: Mayo Clinic Embraces Social Media to Improve Clinical Practice, Research & Education
Presented by: Dr. Farris Timimi, Medical Director, Mayo Clinic Center for Social Media, Mayo Clinic
Dr. Timimi, a practicing Cardiologist, will share how Mayo Clinic fosters conversations and improves care with patients through social technologies. Dr. Timimi will provide specific case study examples of how The Center for Social Media at Mayo clinic is helping transition the patient-provider relationship from its current transactional nature to the future two-way partnership and open engagement model. Dr. Timimi will also present how social media progresses the patient education process.
www.bdionline.com
11.9 million people in the UK lack essential digital skills needed for online health tools. Good Things Foundation addressed this through two phases of their Widening Digital Participation program (2013-2016 and 2017-2020). Phase 1 trained 221,941 people and engaged 157,391 more through signposting and events. Phase 2 included "pathfinder" projects targeting specific groups that found increased health screening, reduced GP visits, and improved well-being. Based on these, Good Things launched 27 pilot Digital Health Hubs providing a community space for digital skills training and health information searching, helping over 50% of users feel more confident and informed about managing their health.
The mismatch between information that people need and what we provide them withCILIP
The document discusses the mismatch between the health information people need and what is currently provided. It notes that 43% of working adults do not understand health information and 61% do not understand information with numeracy elements. This can negatively impact health outcomes. The document provides examples of information misunderstandings and suggests using simple language, chunking information, and tools like The Information Standard quality mark to help close this mismatch. It emphasizes the importance of understanding users and involving them in developing easily understood information.
Digital skills to widen participation Bob Gann Health Promoting Hospitals Con...bgann
This document discusses a NHS England program aimed at increasing digital skills and health literacy to reduce health inequalities. It notes that those with low digital skills and health literacy have poorer health outcomes. The program trains 100,000 citizens annually in basic digital skills through online and community-based courses. Early evaluations found these courses increased participants' confidence in managing their health online and reduced dependence on health services. The program highlights several community organizations successfully helping vulnerable groups improve digital and health literacy.
This document discusses consumer demand for health information and how technology can help meet those needs. It explores health literacy and eHealth initiatives to promote access to information. Approaches by health organizations to provide education include patient portals, social media, websites and mobile apps. Challenges include the digital divide and ensuring information is understandable. Future directions may include more audio/video and personalized behavior change tools to improve disease management.
E-Referrals Service Update - Michelle Durham, NHS EnglandStraight Talkers
The document discusses making NHS e-referral services more accessible to vulnerable patients. It describes consulting with organizations representing various groups to understand their needs, such as ensuring information is at appropriate reading levels and clinics can accommodate disabilities. Wireframes were developed for updating patient details and selecting clinics with accessibility in mind. The presentation reviews progress implementing accessibility standards and improving assisted digital support in line with user requirements.
1) Healthwatch England conducted research to understand what matters most to people using health and social care services. They identified 8 proposed consumer rights based on feedback from over 2,000 people.
2) While most people believe they receive good quality care, deeper discussions revealed that 1 in 3 people have experienced a serious mistake or abuse in care. Despite this, over half of people who had a problem did not report it.
3) Healthwatch England is working to establish these 8 consumer rights in health and social care for the first time. They will collaborate with various groups to understand how the rights apply and ensure decision makers address people's experiences. They are seeking feedback and partnership from local Healthwatch organizations.
Healthwatch England aims to give a national voice to issues affecting users of health and social care services. It seeks views from all sections of the community, especially vulnerable groups, and works with local Healthwatch organizations and others representing users. Healthwatch England will develop an evidence-based understanding of issues, raise the most important issues to decision-makers, and support local Healthwatch organizations in fulfilling their roles.
Tameside patient conference Information Governanceamirhannan
This document discusses information governance challenges and opportunities across Greater Manchester and England. It provides an overview of the speaker's professional journey in information governance and describes initiatives like the Local Health and Care Record to improve data sharing and integrated care. Key points discussed include the need for digitally transforming healthcare, adhering to privacy and security standards, and meaningfully involving patients and citizens in the process.
This document discusses plans to create an integrated customer service platform for the NHS to provide patients with more transparency, opportunities for participation, and transactions online. It notes high demand for digital health information and services. The new platform will consolidate NHS Choices and NHS Direct, allowing people to access health records, book appointments, provide feedback, and use apps to self-manage conditions. It aims to improve outcomes by empowering patients through access to data and services.
Kevin Conlon ehealth Strategy, Department of HealthInvestnet
This document outlines Ireland's national eHealth strategy. It defines eHealth and discusses how technology is transforming other industries but healthcare has lagged behind. The strategy calls for establishing "eHealth Ireland" to oversee implementation of key eHealth programs and enabling functions. These include electronic prescribing, online appointment scheduling, telehealth, legal/regulatory standards, and a national patient identifier. The goals are to empower patients, improve care quality and access, support healthcare reform, and create jobs through an eHealth innovation ecosystem involving academia, industry, and health services. A phased implementation timeline is proposed to begin establishing eHealth Ireland and priority eHealth programs over the next few years.
Why the Accessible Information Standard - Jane Fox, NHS EnglandStraight Talkers
The document provides information about the Accessible Information Standard developed by NHS England to ensure that patients and service users who have disabilities or sensory losses receive information and communication support. It requires health and social care organizations to identify, record, flag, share, and meet the communication needs of users. Organizations must implement the standard by identifying needs at first contact, recording them, and providing accessible information and communication assistance. The standard aims to support effective communication for patients and improve their access, choices, safety, and experience with services.
Jeremy Hunt advocates for "intelligent transparency" in the healthcare system, which involves an open conversation with the public about improving health. Intelligent transparency unleashes self-directed improvement and allows for true devolution of power through transparency of outcomes. It fosters a learning culture where doctors, nurses and managers are empowered to constantly improve care for patients. The goal of intelligent transparency is to engage the public in their health, support informed choice for patients, improve safety and quality of care, and create a more patient-centered system. Several government initiatives aim to achieve intelligent transparency through making quality and performance data publicly available and accessible online via sites like "My NHS."
Communicating Palliative Care of Needs of Patients to Out Of Hours Services Irish Hospice Foundation
The document discusses communicating palliative care needs of patients to out-of-hours services. It describes the work of the Irish Hospice Foundation including their Primary Palliative Care Programme. It emphasizes the need for improved communication between primary care teams and out-of-hours services for patients with palliative care needs. The document proposes a GP to Out-of-Hours palliative care handover form to facilitate information transfer and continuity of care for patients outside regular hours. It outlines the development and piloting of this form.
Well-being and impact have become very familiar terms in recent times. Since 2015 many public bodies in Wales have a duty under the Well-being of Future Generations (Wales) Act to carry out sustainable development. This is about improving the way that we can achieve our economic, social, environmental and cultural well-being. Dr Owain Rhys Roberts presents how this has been considered and applied at The National Library of Wales and gives participants the opportunity to reflect and consider how this can be applied to their own context.
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The British Library is taking steps to address climate change through reducing emissions, engaging audiences, collaborating with partners, and supporting staff initiatives. Emissions have been reduced 67% since 2009 through efficiency projects. Infrastructure projects will pursue sustainability certifications. Programs will increase climate literacy and engage communities. Networks will support green businesses and best practices. A staff sustainability group promotes action within the Library. The Green Libraries Partnership aims to place libraries at the heart of environmental change.
The document discusses the benefits of exercise for mental health. Regular physical activity can help reduce anxiety and depression and improve mood and cognitive functioning. Exercise boosts blood flow, releases endorphins, and promotes changes in the brain which help regulate emotions and stress levels.
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The University of Glasgow, one of the oldest and largest university libraries in Europe, holds an extensive range of unique and internationally significant collections. Martina McChrystal describes the Scottish funding landscape that enables cross sectoral library collaboration, the hybrid service innovations that her colleagues at Glasgow have implemented and explores some recent Scotland-wide collaborative projects they have participated in.
Making an impact by optimising space: How to keep track of print material in ...CILIP
Christine Brennan presents Marjan Baas-Harmsma's paper: The three campus libraries at Bangor University are merging into a single library. Much of the print stock is being relegated to an offsite storage unit to deal with space issues, preserve unique items and safeguard collections of special interest. Instead of using a conventional classification system, Bangor University uses Caia software and solutions, a modern storage solution that promises 100% discoverability and optimisation of available space.
Looking to improve your library’s sustainable environmental practices? In this opening address, CILIP President Kate Robinson explores the central role that librarians and information professionals play in helping their organisations and users work towards a more sustainable society. Kate shares highlights of CILIP’s sustainability initiatives including the new Green Libraries Partnership.
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This document summarizes Margaret Haig's presentation on exceptions to copyright. It discusses what types of works are protected by copyright (literary, dramatic, musical, artistic, films, broadcasts, sound recordings, published editions, and performances). It also outlines what is not protected by copyright (ideas, facts, and works where copyright has expired). The presentation explains different exceptions to copyright like fair dealing for non-commercial research and quotation, as well as exceptions that are useful for libraries, archives, museums, education, and more widely. It provides an overview of the orphan works licensing scheme and considerations for making new copyrighted materials.
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Histololgy of Female Reproductive System.pptxAyeshaZaid1
Dive into an in-depth exploration of the histological structure of female reproductive system with this comprehensive lecture. Presented by Dr. Ayesha Irfan, Assistant Professor of Anatomy, this presentation covers the Gross anatomy and functional histology of the female reproductive organs. Ideal for students, educators, and anyone interested in medical science, this lecture provides clear explanations, detailed diagrams, and valuable insights into female reproductive system. Enhance your knowledge and understanding of this essential aspect of human biology.
Travel Clinic Cardiff: Health Advice for International TravelersNX Healthcare
Travel Clinic Cardiff offers comprehensive travel health services, including vaccinations, travel advice, and preventive care for international travelers. Our expert team ensures you are well-prepared and protected for your journey, providing personalized consultations tailored to your destination. Conveniently located in Cardiff, we help you travel with confidence and peace of mind. Visit us: www.nxhealthcare.co.uk
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A proprietary approach developed by bringing together the best of learning theories from Psychology, design principles from the world of visualization, and pedagogical methods from over a decade of training experience, that enables you to: Learn better, faster!
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CILIP Conference - Information as a Therapy - Nicole Naylor
1. Information as a Therapy
Wednesday 3 July 2019
Nicole Naylor, Head of Operations, Patient
Information Forum
Twitter: @PiFonline
2. The Patient Information Forum (PIF)
• Who we are: An independent, not for profit, UK membership organisation
for people working in, and involved with, healthcare information and
support.
• Our members: More than 650 members from 300 cross-sector
organisations. Our members work in the NHS, voluntary, commercial,
academic and freelance sectors.
• What we do: We support individuals and organisations by providing
resources, events, services and practical tools.
We also influence to ensure the quality of health information is high up on
the agenda and champion the expertise of those working in this field.
3. PIF is 21 and so is Google!
https://www.pifonline.org.uk/wp-content/uploads/2012/11/PIF-Timeline-21-Years-of-
Health-Information.pdf
4.
5. Patient information is more than just a
leaflet
• Printed leaflets or booklets
• Digital media (including websites, apps,
video)
• Patient education programmes
• Decision aids including risk-benefit data
• Social media
• Personal health records
• Signage
• Appointment letters
• Blogs
• Verbal factual information given during
an appointment with a health
professional
6. What is high-quality health information?
• Clearly communicated and health literate
• Evidence-based and explains areas of uncertainty or where evidence is
limited
• Developed with users of all background
• Accessible (dyslexia and other learning difficulty, visual or hearing
impairments)
• It allows people act, to take control and to make informed decisions
about their health
8. Finding high-quality health
information
• The Information Standard kitemark scheme is
coming to an end.
• Real concern from PIF members – many NHS
Trusts automatically accept information that
carries the kitemark.
• New NHS approved Apps. This hosts third party
apps and uses different quality criteria.
• How will we signpost to high-quality
information in the future?
9. Do you think there should be a quality mark so that
patients can identify high-quality information?
10. Disruptors – a lot of change in 21 years
• ‘Dr Google’ the world’s favourite Doctor?
• 1 in 20 Google searches relate to health
• Most people find the Anthony Nolan Trust’s
website by Googling ‘What is blood cancer?’
• Digital has transformed the health
information landscape.
• Patients are much more active in seeking
information and less likely to be passive
recipients of care
11. What is digital literacy?
• 12.6 million people in the UK
lack these skills.
• More than 5 million have
never used the internet.
• More likely to be people who
are already considered
socially excluded.
12. Digital skills training has an impact
220,000 people trained in digital skills by Tinder Foundation
• 41% learned to access health information online for the first time (a
further 32% have learned to do this more effectively).
• 65% feel more informed about their health.
• 59% feel more confident using online tools to manage their health.
• 54% of learners in need of non-urgent medical advice said they would now
go to the internet before consulting their GP, to look at sites such as NHS
Choices.
• Health and digital: Reducing inequalities, improving society, Tinder
Foundation, July 2016
14. Accessible Information Standard
• From 1st August 2016, all organisations that provide NHS care and
/ or publicly-funded adult social care were legally required to
follow the Accessible Information Standard. Includes NHS Trusts,
GP practices and local government.
• The Standard sets out a specific, consistent approach to identifying,
recording, flagging, sharing and meeting the information and
communication support needs of patients, service users, carers and
parents with a disability, impairment or sensory loss.
https://www.england.nhs.uk/ourwork/accessibleinfo/
15. Accessible Information Standard
• All providers of NHS care or other publicly-funded adult social care
must meet the Accessible Information Standard (AIS).
• AIS applies to people who use a service and have information or
communication needs because of a:
o disability
o impairment
o sensory loss
16. Accessible Information Standard
• It covers the needs of people who are deaf/Deaf, blind, or
deafblind, or who have a learning disability. This includes
interpretation or translation for people whose first language is
British Sign Language. It does not cover these needs for other
languages.
• It can also be used to support people who have aphasia, autism or
a mental health condition which affects their ability to
communicate.
• When appropriate, AIS also applies to their carers and parents.
https://www.england.nhs.uk/ourwork/accessibleinfo/
17. Accessible Information Standard
• Identify – Find out if a person has any communication or information needs
because of a disability or sensory loss and if so what they are
• Record – Record those needs in a clear way that everyone agrees with
• Flag – Make sure a person’s needs stand out whenever their records are
checked.
• Share – Include information about a person’s needs as part of data sharing
and make sure it is in line with other information you have.
• Act – Make sure that people get information which they can access and
understand and receive communication support if they need it.
18. “I can do my banking on my phone, I can shop on my
phone, I can hail a cab on my phone, but the NHS throws
me back into the darkness”
Adi Latif from Ability Net speaking at a PIF event
19. Information provision is not a one off process
Perfect Patient Information Journey
• Each of these circles on the
patient journey represents a
point where information is
needed.
• A validated process of insight
work with healthcare teams
and patients to identify
information gaps in a patient
journey with a long term
condition.
20. • We want to remove the stigma of people being afraid
to say ‘I don’t understand the information I have
been given’.
• We want people to ask for high-quality information.
• We believe information should be seen as a therapy
in its own right.
21. “Producing and providing high-quality
health information is a skill which takes
practice, experience and reflective,
thoughtful evaluation to get right”