1. Web copy
Project: Home page copy
Client: National Rehab, a medical products company - Moon, Pennsylvania
For patients, families and friends, a diagnosis of epidermolysis bullosa carries with it great uncertainty.
There is so much to learn about this rare disorder: about symptoms, about treatment and about living with
it.
As an industry leader in wound care, National Rehab is in a unique position to help ease the burden. Our
experience and expertise give us the ability to be an ally to those with EB and their loved ones.
This Web site, ebnurse.org, is part of our effort to do just that.
Education is a critical component of EB care, and we hope that ebnurse.org can be a trusted resource for
information. Here, you can connect with National Rehab experts to learn about products, treatment and
insurance. There also is information about the genetic origins of EB and practical advice for dealing with
everyday concerns such as hygiene, diet and travel.
The rare nature and profound daily challenges of EB make emotional support just as important. We want
ebnurse.org to be a place where people can connect with others who understand the physical, mental and
emotional demands. A place where people can come to seek answers, find understanding, share wisdom
and offer encouragement.
At the same time, we hope that ebnurse.org can be a catalyst for something even greater. By working with
other advocates, we hope to create awareness, raise money and support research that will lead to more
effective treatment and, ultimately, a cure.
In the meantime, we are committed to do all that we can to ensure those affected by EB have the best
quality of life possible.
