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shinecharity.org.uk
                                               info@shinecharity.org.uk
                                                         42 Park Road
                                                         Peterborough
                                                             PE1 2UQ
                                                        01733 555988




Vaccinations and Spina Bifida
and Hydrocephalus

Vaccines are made from parts          made to ensure that all children are
of bacteria or viruses that cause     immunized, even if they are older
infections; when people are           than the recommended age range;
vaccinated they will make their own   no opportunity to immunize should
immunity to the specific diseases.    be missed.”

Modern vaccines are very safe         Pertussis immunisation –
and will not cause the infections     whooping cough
they are designed to prevent.
Vaccination is considered to be       Pertussis or whooping cough is
safe for children with spina bifida   a serious infection that can last
and hydrocephalus, indeed far safer   for months and lead to significant
than the consequences of acquiring    complications. Modern pertussis
any of the serious diseases. In       vaccines have a very good safety
many cases vaccination will not       record, and have succeeded in
only protect those vaccinated but     bringing down the number of
also help to prevent the disease in   cases of whooping cough from
other contacts at home or school.     over 120,000 a year to just over
In each case there are some people    1000. The vaccine is now available
who should not receive a certain      only as part of a combined vaccine
vaccine, or who should seek           against diphtheria and tetanus and
medical advice if in doubt.           pertussis (DTaP) or one containing
                                      polio and Haemophilus vaccine in
The official Department of Health     addition.
advice is: “Every effort should be
Vaccinations and Spina Bifida
and Hydrocephalus
					                                     a contraindication to immunization.
The Department of Health                  When there is a personal or family
Immunisation Handbook (2006)              history of febrile seizures [that is fits
states:                                   when you get a fever] there is an
                                          increased risk of these occurring
”The presence of a neurological           after any fever, including that
condition is NOT a contraindication       following immunization. When a child
to immunization. If a child has a         has had a febrile seizure in the past,
stable pre – existing neurological        with no evidence of neurological
abnormality, such as spina bifida,        deterioration, immunisation should
congenital abnormality of the brain       go ahead.”
etc, they should be immunized
according to the recommended              This means that a history of fits is
schedule. When there has been             not a reason to avoid vaccination.
a documented history of cerebral          Advice on post – vaccination fevers
damage in the neonatal period,            should be obtained.
immunization should be carried
out unless there is evidence of an        If parents are concerned about a
evolving neurological abnormality.”       child being immunised, they should
                                          consult their doctor.
This means that children with
hydrocephalus or spina bifida should      MMR II vaccination –
have the vaccine. The only exceptions     measles, mumps, rubella
are when there is a neurological
condition that is unstable and still     Childhood diseases such as
developing, and where the cause          measles, mumps and rubella
remains unknown. In this case            (German measles) are often thought
vaccination can be deferred until        of as trivial, but they can give rise
later, but this period during which the  to serious complications. Measles
child is unprotected should be kept      is a cause of ear infection and can
to a minimum.                            cause pneumonia. Mumps causes
                                         painful swelling of the saliva glands
With regard to children with a history in the mouth, but it is also a cause
of epilepsy, the Handbook states: “A of meningitis and deafness. In older
family history of seizures [fits] is NOT boys it can cause inflammation
of the testicles. Rubella is a          (that is an extreme emergency, not
relatively mild disease with only       just a rash) following a previous
rare complications, but if it is        dose of the same vaccine or to
caught in pregnancy (usually from       some vaccine components such
unvaccinated children) it can result    as streptomycin or polymyxin
in miscarriage or the birth of a baby   (uncommon antibiotics).
with serious abnormalities of the
heart, eye and other organs.            b) The presence of malignant
                                        disease or an immunosuppressive
The introduction of the updated         illness such as HIV, or treatment
MMR II vaccine in September             with immune suppressive drugs.
1996 was intended to continue the
process of elimination of measles,      c) MMR is contraindicated in
mumps and rubella (Population           pregnancy.
Association for Spina Bifida and
Hydrocephalus 42 Park Road,             d) The administration of MMR
Peterborough PE1 2UQ Registered         vaccine (or one of its three
charity no.249338 To see our full       component vaccines) by injection
range of information sheets and to      within the past four weeks. MMR
find out how to donate to Shine         is the only one of the “childhood
please visit www.shinecharity.org.      diseases” vaccines in this category.
uk) from the population. Following
this, rubella in pregnancy has been     e) Illness with a high temperature.
almost eliminated. Until 1999,          The vaccine should be given later,
when vaccination rates fell again,      when the child has recovered.
the number of mumps cases also
fell dramatically. Similarly, cases     There may be a raised temperature
of measles have also fallen, with       or a rash showing about a week
virtual elimination of the most         to 10 days after receiving the
serious complications.                  vaccine, but this can be controlled
                                        with paracetamol. A history of
The reasons for NOT receiving           convulsions is not a contra-
the vaccine are:                        indication to this vaccine. Measles
                                        vaccination can cause febrile
a) A confirmed anaphylactic reaction    convulsion (not the same as
Vaccinations and Spina Bifida
and Hydrocephalus
epileptic convulsions). If your child    bacterial meningitis in UK. These
has a history of febrile convulsions     are Haemophilus influenzae type
your doctor may recommend giving         b (Hib), Meningococcus C (Men C)
paracetamol for 72 hours following       and Pneumococcus. In addition
vaccination to prevent his/her           to protection from meningitis they
temperature from rising.                 often prevent other complications of
                                         infection. Bacterial meningitis is itself
Allergy to eggs is not a                 a potential cause of hydrocephalus.
contraindication to MMR vaccine
and children who have shown egg          Haemophilus (Hib): Haemophilus is
allergy in the past should receive the   a bacterium that lives in the nose
vaccine. If in doubt parents should      and throat. Unfortunately it can
consult their GP or paediatrician.       cause serious infections including
Hydrocephalus is not a reason for        pneumonia and meningitis. From
withholding the vaccine.                 October 1992, immunisation against
                                         Haemophilus influenzae type b
MMR Vaccine and Autism:                  meningitis (Hib) became routine for
The issue of whether there is a          all babies in the UK.
link between MMR and autism or
inflammatory bowel disease has           Hib is the commonest cause of
been extensively investigated in         bacterial meningitis in children under
several countries. NO SUCH LINK          four years. It is important that babies
HAS BEEN FOUND, and evidence             and children who have spina bifida
now shows that the original report       and/or hydrocephalus should be
from a single source was not             vaccinated against Hib.
correct. (See Department of Health
website: www.mmrthefacts.nhs.            Since routine Hib immunization
uk) For more information, parents        began, there has been a 95% fall in
are advised to consult their family      infection in children most at risk.
doctor.
                                         Reasons for NOT receiving the
Vaccines against meningitis              vaccine are:

There are now three vaccines             A confirmed anaphylactic reaction
against the commonest forms of           (that is an extreme emergency, not
just a rash) following a previous      is an extremely rare event. A minor
dose of the same vaccine or to         reaction to the first dose such as
some vaccine components. This          rash or transient fever should not
is an extremely rare event. A minor    deter further administration.
reaction to the first dose such as
rash or transient fever should not     Pneumococcus: like Haemophilus
deter further administration.          and                  Meningococcus,
                                       Pneumococcus is a bacterium
Meningococcus          C     (MenC):   that lives in the nose and throat.
Meningococcus is a bacterium           Unfortunately     it   can    cause
that lives in the nose and throat.     serious infections, particularly ear
Unfortunately it can cause serious     infections, pneumonia, septicaemia
infections, particularly septicaemia   (blood infection) and meningitis.
(blood infection) and meningitis.
Two types (B and C) cause infection    From      2002,     pneumococcus
in UK, but at the moment a vaccine     vaccine has been available but
is available only against Group C.     immunisation with the new, more
                                       effective    polyvalent    (effective
From 1999, Men C immunisation          against more than one strain of
became routine for all babies in the   pneumococcus) type became
UK, following which the number of      routine for all babies in the UK in
cases fell by over 90%.                2006.

It is important that babies and        It is important that babies and
children who have spina bifida         children who have spina bifida
and/or hydrocephalus should be         and/or hydrocephalus should be
vaccinated against Meningococcus       vaccinated against Pneumococcus.
C.
                                       Reasons for NOT receiving the
Reasons for NOT receiving the          vaccine are:
vaccine are:
                                       A confirmed anaphylactic reaction
A confirmed anaphylactic reaction      (that is an extreme emergency, not
(that is an extreme emergency, not     just a rash) following a previous
just a rash) following a previous      dose of the same vaccine or to
dose of the same vaccine or to         some vaccine components. This
some vaccine components. This          is an extremely rare event. A minor
reaction to the first dose such as possible to have all the protection
rash or transient fever should not with fewer injections. Vaccination
deter further administration.         should begin at 2 months of age,
                                      with repeat doses at intervals. Your
Contrary to previous advice, people GP or paediatrician will be able to
with shunts are NOT at any more risk tell you which combination vaccines
from pneumococcus than people are available and when to have your
without shunts, and adults who have child vaccinated.
(or are about to have) shunts should
not be more concerned about risk Vaccines for Travellers
of pneumococcal disease. However,
Department of Health policy is that People with Spina Bifida and
all children and all those over 65yrs Hydrocephalus      travelling     to
of age should be immunized.           countries where vaccines are
                                      recommended (e.g. yellow fever,
Vaccination schedules for children: typhoid etc) should receive exactly
Most of the major childhood disease the same vaccinations as any other
can now be covered by the UK
immunization programme. Some traveller.
of these are dealt with here, but
others including polio, diphtheria     For further information on travel
and tetanus are also very important.   health please refer to: 		
These have all now been put together   www.fitfortravel.nhs.uk or 	
into combined vaccines, so it is       www.nathnac.org/travel


Help us
Shine relies on people’s generosity and support so we can help our clients
who depend on us for help and advice - people with hydrocephalus,
spina bifida, their families and carers. To donate to Shine please visit
www.shinecharity.org.uk or call 01733 421329.

This information has been produced by Shine’s medical advisers and
approved by Shine’s Medical Advisory Committee of senior medical
professionals.

Shine - Registered charity no.249338
To see our full range of information sheets and to find out how to donate
to Shine please visit www.shinecharity.org.uk

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Vaccinations and Spina Bifida

  • 1. shinecharity.org.uk info@shinecharity.org.uk 42 Park Road Peterborough PE1 2UQ 01733 555988 Vaccinations and Spina Bifida and Hydrocephalus Vaccines are made from parts made to ensure that all children are of bacteria or viruses that cause immunized, even if they are older infections; when people are than the recommended age range; vaccinated they will make their own no opportunity to immunize should immunity to the specific diseases. be missed.” Modern vaccines are very safe Pertussis immunisation – and will not cause the infections whooping cough they are designed to prevent. Vaccination is considered to be Pertussis or whooping cough is safe for children with spina bifida a serious infection that can last and hydrocephalus, indeed far safer for months and lead to significant than the consequences of acquiring complications. Modern pertussis any of the serious diseases. In vaccines have a very good safety many cases vaccination will not record, and have succeeded in only protect those vaccinated but bringing down the number of also help to prevent the disease in cases of whooping cough from other contacts at home or school. over 120,000 a year to just over In each case there are some people 1000. The vaccine is now available who should not receive a certain only as part of a combined vaccine vaccine, or who should seek against diphtheria and tetanus and medical advice if in doubt. pertussis (DTaP) or one containing polio and Haemophilus vaccine in The official Department of Health addition. advice is: “Every effort should be
  • 2. Vaccinations and Spina Bifida and Hydrocephalus a contraindication to immunization. The Department of Health When there is a personal or family Immunisation Handbook (2006) history of febrile seizures [that is fits states: when you get a fever] there is an increased risk of these occurring ”The presence of a neurological after any fever, including that condition is NOT a contraindication following immunization. When a child to immunization. If a child has a has had a febrile seizure in the past, stable pre – existing neurological with no evidence of neurological abnormality, such as spina bifida, deterioration, immunisation should congenital abnormality of the brain go ahead.” etc, they should be immunized according to the recommended This means that a history of fits is schedule. When there has been not a reason to avoid vaccination. a documented history of cerebral Advice on post – vaccination fevers damage in the neonatal period, should be obtained. immunization should be carried out unless there is evidence of an If parents are concerned about a evolving neurological abnormality.” child being immunised, they should consult their doctor. This means that children with hydrocephalus or spina bifida should MMR II vaccination – have the vaccine. The only exceptions measles, mumps, rubella are when there is a neurological condition that is unstable and still Childhood diseases such as developing, and where the cause measles, mumps and rubella remains unknown. In this case (German measles) are often thought vaccination can be deferred until of as trivial, but they can give rise later, but this period during which the to serious complications. Measles child is unprotected should be kept is a cause of ear infection and can to a minimum. cause pneumonia. Mumps causes painful swelling of the saliva glands With regard to children with a history in the mouth, but it is also a cause of epilepsy, the Handbook states: “A of meningitis and deafness. In older family history of seizures [fits] is NOT boys it can cause inflammation
  • 3. of the testicles. Rubella is a (that is an extreme emergency, not relatively mild disease with only just a rash) following a previous rare complications, but if it is dose of the same vaccine or to caught in pregnancy (usually from some vaccine components such unvaccinated children) it can result as streptomycin or polymyxin in miscarriage or the birth of a baby (uncommon antibiotics). with serious abnormalities of the heart, eye and other organs. b) The presence of malignant disease or an immunosuppressive The introduction of the updated illness such as HIV, or treatment MMR II vaccine in September with immune suppressive drugs. 1996 was intended to continue the process of elimination of measles, c) MMR is contraindicated in mumps and rubella (Population pregnancy. Association for Spina Bifida and Hydrocephalus 42 Park Road, d) The administration of MMR Peterborough PE1 2UQ Registered vaccine (or one of its three charity no.249338 To see our full component vaccines) by injection range of information sheets and to within the past four weeks. MMR find out how to donate to Shine is the only one of the “childhood please visit www.shinecharity.org. diseases” vaccines in this category. uk) from the population. Following this, rubella in pregnancy has been e) Illness with a high temperature. almost eliminated. Until 1999, The vaccine should be given later, when vaccination rates fell again, when the child has recovered. the number of mumps cases also fell dramatically. Similarly, cases There may be a raised temperature of measles have also fallen, with or a rash showing about a week virtual elimination of the most to 10 days after receiving the serious complications. vaccine, but this can be controlled with paracetamol. A history of The reasons for NOT receiving convulsions is not a contra- the vaccine are: indication to this vaccine. Measles vaccination can cause febrile a) A confirmed anaphylactic reaction convulsion (not the same as
  • 4. Vaccinations and Spina Bifida and Hydrocephalus epileptic convulsions). If your child bacterial meningitis in UK. These has a history of febrile convulsions are Haemophilus influenzae type your doctor may recommend giving b (Hib), Meningococcus C (Men C) paracetamol for 72 hours following and Pneumococcus. In addition vaccination to prevent his/her to protection from meningitis they temperature from rising. often prevent other complications of infection. Bacterial meningitis is itself Allergy to eggs is not a a potential cause of hydrocephalus. contraindication to MMR vaccine and children who have shown egg Haemophilus (Hib): Haemophilus is allergy in the past should receive the a bacterium that lives in the nose vaccine. If in doubt parents should and throat. Unfortunately it can consult their GP or paediatrician. cause serious infections including Hydrocephalus is not a reason for pneumonia and meningitis. From withholding the vaccine. October 1992, immunisation against Haemophilus influenzae type b MMR Vaccine and Autism: meningitis (Hib) became routine for The issue of whether there is a all babies in the UK. link between MMR and autism or inflammatory bowel disease has Hib is the commonest cause of been extensively investigated in bacterial meningitis in children under several countries. NO SUCH LINK four years. It is important that babies HAS BEEN FOUND, and evidence and children who have spina bifida now shows that the original report and/or hydrocephalus should be from a single source was not vaccinated against Hib. correct. (See Department of Health website: www.mmrthefacts.nhs. Since routine Hib immunization uk) For more information, parents began, there has been a 95% fall in are advised to consult their family infection in children most at risk. doctor. Reasons for NOT receiving the Vaccines against meningitis vaccine are: There are now three vaccines A confirmed anaphylactic reaction against the commonest forms of (that is an extreme emergency, not
  • 5. just a rash) following a previous is an extremely rare event. A minor dose of the same vaccine or to reaction to the first dose such as some vaccine components. This rash or transient fever should not is an extremely rare event. A minor deter further administration. reaction to the first dose such as rash or transient fever should not Pneumococcus: like Haemophilus deter further administration. and Meningococcus, Pneumococcus is a bacterium Meningococcus C (MenC): that lives in the nose and throat. Meningococcus is a bacterium Unfortunately it can cause that lives in the nose and throat. serious infections, particularly ear Unfortunately it can cause serious infections, pneumonia, septicaemia infections, particularly septicaemia (blood infection) and meningitis. (blood infection) and meningitis. Two types (B and C) cause infection From 2002, pneumococcus in UK, but at the moment a vaccine vaccine has been available but is available only against Group C. immunisation with the new, more effective polyvalent (effective From 1999, Men C immunisation against more than one strain of became routine for all babies in the pneumococcus) type became UK, following which the number of routine for all babies in the UK in cases fell by over 90%. 2006. It is important that babies and It is important that babies and children who have spina bifida children who have spina bifida and/or hydrocephalus should be and/or hydrocephalus should be vaccinated against Meningococcus vaccinated against Pneumococcus. C. Reasons for NOT receiving the Reasons for NOT receiving the vaccine are: vaccine are: A confirmed anaphylactic reaction A confirmed anaphylactic reaction (that is an extreme emergency, not (that is an extreme emergency, not just a rash) following a previous just a rash) following a previous dose of the same vaccine or to dose of the same vaccine or to some vaccine components. This some vaccine components. This is an extremely rare event. A minor
  • 6. reaction to the first dose such as possible to have all the protection rash or transient fever should not with fewer injections. Vaccination deter further administration. should begin at 2 months of age, with repeat doses at intervals. Your Contrary to previous advice, people GP or paediatrician will be able to with shunts are NOT at any more risk tell you which combination vaccines from pneumococcus than people are available and when to have your without shunts, and adults who have child vaccinated. (or are about to have) shunts should not be more concerned about risk Vaccines for Travellers of pneumococcal disease. However, Department of Health policy is that People with Spina Bifida and all children and all those over 65yrs Hydrocephalus travelling to of age should be immunized. countries where vaccines are recommended (e.g. yellow fever, Vaccination schedules for children: typhoid etc) should receive exactly Most of the major childhood disease the same vaccinations as any other can now be covered by the UK immunization programme. Some traveller. of these are dealt with here, but others including polio, diphtheria For further information on travel and tetanus are also very important. health please refer to: These have all now been put together www.fitfortravel.nhs.uk or into combined vaccines, so it is www.nathnac.org/travel Help us Shine relies on people’s generosity and support so we can help our clients who depend on us for help and advice - people with hydrocephalus, spina bifida, their families and carers. To donate to Shine please visit www.shinecharity.org.uk or call 01733 421329. This information has been produced by Shine’s medical advisers and approved by Shine’s Medical Advisory Committee of senior medical professionals. Shine - Registered charity no.249338 To see our full range of information sheets and to find out how to donate to Shine please visit www.shinecharity.org.uk