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[email protected]
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Lessons Taught by Miss Evers' Boys: The
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Donald H.J. Hermann
DePaul University
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Recommended Citation
Donald H.J. Hermann, Lessons Taught by Miss Evers' Boys: The Inadequacy of Benevolence and the Need for Legal Protection of
Human Subjects in Medical Research, 15 J.L. & Health 147 (2000-2001)
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147
LESSONS TAUGHT BY MISS EVERS’ BOYS: THE
INADEQUACY OF BENEVOLENCE AND THE NEED FOR
LEGAL PROTECTION OF HUMAN SUBJECTS IN MEDICAL
RESEARCH
DONALD H.J. HERMANN1
Legal regulation and ethical constraints on medical research are again at the
forefront of public policy concerns. The reported deaths of a volunteer in a gene
therapy research program at the University of Pennsylvania and of a participant in an
asthma experiment at the Johns Hopkins Medical Center have raised issues of the
adequacy of government surveillance of medical research and the adequacy of
current practices eliciting voluntary informed consent from research participants.2
The recognition of the need for legal constraints on medical research and for
protection of human subjects was greatly influenced by the reports of the research
conducted by Nazi doctors and scientists.3 While no one denies the atrocities
committed under the guise of medical research in the Third Reich, there has also
been recognition of the significant abuse of research subjects in the United States,
most recently in the reports of the Federal Advisory Committee on Human Radiation
experiments.4 Perhaps the most publicized research involving failure to pr ...
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During the twentieth century (1932-1972), white physicians representing the United States government
conducted a human experiment known as the Tuskegee Syphilis Study on black syphilis patients in Macon
County, Alabama. The creators of the study, who supported the idea of black inferiority and the concept
that black people’s bodies functioned differently from white people’s, observed the effects of a disease
called syphilis on untreated black patients in order to collect data for further research on syphilis. Black
individuals involved with the study believed that they were receiving treatment, although in truth,
treatments for syphilis were purposely held back from them. Not only this, but fluids from their bodies, such
as blood and spinal fluid, were extracted to serve as research material without their awareness of the
purpose of the collection. The physicians justified their approach by positioning it as mere observation,
asserting that they were not actively intervening with the patients participating in the experiment. However,
despite their claims of passivity, these white physicians engaged in various morally improper actions,
including deceit, which ultimately resulted in the deaths of numerous black patients who might have had a
chance at survival.
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O estabelecimento da amamentação e o manejo das principais intercorrências é contemplada.
Recomendamos muito.
Vamos discutir essas recomendações no nosso curso de pós-graduação em Aleitamento no Instituto Ciclos.
Esta publicação só está disponível em inglês até o momento.
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