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The South Asian Community:  Barriers to Accessing Personality Disorder Services Janet Feigenbaum 1  and Malvinder Matharu 2   1  Senior Lecturer UCL; Consultant Clinical Psychologist,  Strategic and Clinical Lead for Personality Disorder, NELFT 2  Community Development Worker, NELFT
Scope of the Problem Suicide rates high amongst South Asian Women  (Bhugra & Desai, 2002) Self harm rates high amongst South Asian Women  (Husain et al., 2006) 0.5 % referrals to specialist PD service Asian  (Geraghty & Warren, 2003) 12.5% local Waltham Forest population South Asian (India, Pakistan, Bangladesh) 1% referrals to local specialist PD service Asian 90% of Asian people referred to IMPART accept treatment
Initial anecdote – from an Asian receptionist “ An Asian friend of mine went to her GP to talk about how unhappy she was. When she arrived the receptionist rang her uncle to say she was at the surgery. Her mother and uncle came to the surgery during her appointment.  Her GP told them she had been self harming. She was sent to India.”
Methodology 14 Semi-structured interviews (w/ vignettes) with Asian    Mental health workers, community organizations staff, health staff, local authority, and service users 4 Focus groups Mental Health Staff Community Organizations Service users from Asian Counselling Service Sikh community group  Qualitative method – Framework Analysis
Participants Interviews:   All Asian:  1 service user, 1 domestic violence worker, 1 community day centre worker, 1 support worker, 1 GP, 1 Drug & Alcohol worker 1 counsellor, 2 psychiatrists, 1 religious leader, 1 social worker, 1 young persons counsellor  Focus groups :  Community groups: 8 Asian / 7 Caucasian faith ambassador, community managers, CDW, Support workers, therapists Mental health:  4 Asian / 1 Chinese / 3 Caucasian psychologists, CPN, youth counsellors, OT, Dual diagnosis, psychotherapist Sikh community centre: all female, Asian Asian counselling service users:  mixed male/female, Urdu/Punjabi,  mostly  Muslim
Lack of Awareness ,[object Object],[object Object],[object Object],[object Object],Contributing factors ,[object Object],[object Object],[object Object],[object Object],Both about mental health and about PD
The Family ,[object Object],[object Object],[object Object],[object Object],[object Object],[object Object],[object Object],“…  there’s definitely a kind of hiding or covering up if there’s someone in your family with a mental illness…  they are very quick to kind of point fingers and put them down…” “…  they don’t know how to ask their child ‘are you ok?’ Even though you  might be crying in the corner, it’s not really the thing to do or say ‘I love you’.”
Respect / Shame / Izzat ,[object Object],[object Object],[object Object],[object Object],[object Object],[object Object],“ How could you do that to your parents? How could  you do that to  anyone else?” “  being a South Asian woman, the pressure is immense that how you act how you are it comes back to your family, everything comes back to your family”
Concepts of Self Harm/ D & A ,[object Object],[object Object],[object Object],[object Object],[object Object],[object Object],[object Object],[object Object],[object Object]
Help Seeking  ,[object Object],[object Object],[object Object],[object Object],[object Object],“ Why are you going to sit there and talk to somebody about your  problems, that’s your business, it’s your family’s business, don’t talk to anybody.” “ …  had a fantasy of Jinns, which are evil spirits trying to take over my   body”
GPs ,[object Object],[object Object],[object Object],[object Object],[object Object],[object Object],[object Object],“ .. my GP is a Muslim… he might be Asian Dr. but he could be very prejudiced.”
Fear / Stigma ,[object Object],[object Object],[object Object],[object Object],[object Object],[object Object],“  I have a friend who has received counselling, … but she never openly acknowledges that she’s had some sort of help… so she’s a bit  ashamed of it” “…  if someone in Walthamstow [Asian] has a problem, the whole of  Walthamstow is aware of it… even minor problem they’re exaggerated to the extent and talked about widely…”
Other themes ,[object Object],[object Object],[object Object],[object Object],[object Object],[object Object]
Conceptual Issues ,[object Object],[object Object],[object Object],[object Object],[object Object]
Solutions Generated ,[object Object],[object Object],[object Object],[object Object],[object Object],[object Object],[object Object],[object Object]
Solutions Generated (cont) ,[object Object],[object Object],[object Object]
Solutions Generated (cont) ,[object Object],[object Object],[object Object],[object Object]
Solutions Generated (cont) ,[object Object],[object Object],[object Object],[object Object],[object Object],[object Object]
Major Barriers to Tackle ,[object Object],[object Object],[object Object],[object Object],[object Object],[object Object]

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The South Asian Community: Barriers to accessing PD services

  • 1. The South Asian Community: Barriers to Accessing Personality Disorder Services Janet Feigenbaum 1 and Malvinder Matharu 2 1 Senior Lecturer UCL; Consultant Clinical Psychologist, Strategic and Clinical Lead for Personality Disorder, NELFT 2 Community Development Worker, NELFT
  • 2. Scope of the Problem Suicide rates high amongst South Asian Women (Bhugra & Desai, 2002) Self harm rates high amongst South Asian Women (Husain et al., 2006) 0.5 % referrals to specialist PD service Asian (Geraghty & Warren, 2003) 12.5% local Waltham Forest population South Asian (India, Pakistan, Bangladesh) 1% referrals to local specialist PD service Asian 90% of Asian people referred to IMPART accept treatment
  • 3. Initial anecdote – from an Asian receptionist “ An Asian friend of mine went to her GP to talk about how unhappy she was. When she arrived the receptionist rang her uncle to say she was at the surgery. Her mother and uncle came to the surgery during her appointment. Her GP told them she had been self harming. She was sent to India.”
  • 4. Methodology 14 Semi-structured interviews (w/ vignettes) with Asian Mental health workers, community organizations staff, health staff, local authority, and service users 4 Focus groups Mental Health Staff Community Organizations Service users from Asian Counselling Service Sikh community group Qualitative method – Framework Analysis
  • 5. Participants Interviews: All Asian: 1 service user, 1 domestic violence worker, 1 community day centre worker, 1 support worker, 1 GP, 1 Drug & Alcohol worker 1 counsellor, 2 psychiatrists, 1 religious leader, 1 social worker, 1 young persons counsellor Focus groups : Community groups: 8 Asian / 7 Caucasian faith ambassador, community managers, CDW, Support workers, therapists Mental health: 4 Asian / 1 Chinese / 3 Caucasian psychologists, CPN, youth counsellors, OT, Dual diagnosis, psychotherapist Sikh community centre: all female, Asian Asian counselling service users: mixed male/female, Urdu/Punjabi, mostly Muslim
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