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1 st   National Personality Disorder Congress Birmingham, 19 November 2009 Workshop ‘Doing Research Together: Breaking Down Barriers’ ,[object Object],[object Object],[object Object],[object Object]
Workshop: Doing Research Together Aims of Workshop ,[object Object],[object Object],[object Object]
Workshop: Doing Research Together Teambuilding   ,[object Object],[object Object],[object Object],[object Object],[object Object],[object Object]
[object Object],[object Object],[object Object],[object Object],Workshop: Doing Research Together Your research project
Workshop: Doing Research Together Group Tasks I ,[object Object],[object Object],[object Object],[object Object],[object Object]
Workshop: Doing Research Together Group Tasks II ,[object Object],[object Object],[object Object],[object Object],[object Object]
Workshop: Doing Research Together Titles/ Carers     Titles/Recovery ,[object Object],[object Object],[object Object],[object Object],[object Object]
Workshop: Doing Research Together Questions/Carers    Questions/Recovery ,[object Object],[object Object],[object Object],[object Object],[object Object],[object Object],[object Object]
Workshop: Doing Research Together Questions/Carers    Questions/Recovery ,[object Object],[object Object],[object Object],[object Object]
Workshop: Doing Research Together Reflection ,[object Object],[object Object],[object Object],[object Object]
Knowing what it means to care:    towards the development of a  National Carers’ Strategy for Personality Disorder Project team: Steve Gillard:   Academic Researcher & Lead Investigator,  St George’s, University of London (SGUL) Alexia Demetriou: Service User Researcher, SGUL Ian Griggs:   Freelance Carer Researcher Kati Turner:   Service User Researcher, SGUL & Chair of Emergence Kath Lovell:   National Project Development Manager, Emergence Stephen Miller:   Consultant Psychiatrist in Psychotherapy & Clinical  Lead for PD at South West London & St George’s  Mental Health NHS Trust (SWL&StG)
Developing an understanding of Recovery for people with Personality Disorder living in the community Project team: Steve Gillard:   Academic Researcher & Lead Investigator,  St George’s, University of London (SGUL) Kati Turner:   Service User Researcher, SGUL & Chair of Emergence Marion Neffgen: Psychiatry Specialty Trainee ,  South West London &  St George’s Mental Health NHS Trust (SWL&StG) Kath Lovell:   National Project Development Manager, Emergence Stephen Miller:   Clinical Lead for PD at South West London & St  George’s Mental Health NHS Trust (SWL&StG)
Aims and Objectives Phase 1:  Contribute to filling knowledge gap through in-depth qualitative exploration of: what it means to care: what are carers’ experiences of support and what are carers’ priorities for support Phase 2:  To inform and help develop a National Carers’ Strategy for Personality Disorder Throughout:  Service users, carers, academics and clinicians working together as researchers
Service user and carer involvement ,[object Object],[object Object],[object Object],[object Object],[object Object]
Project Design & Methodology ,[object Object],[object Object],[object Object],[object Object],[object Object],[object Object],[object Object]
Project Design & Methodology ,[object Object],[object Object],[object Object],[object Object],[object Object]
Findings
Qualitative data to support themes ,[object Object],[object Object],[object Object]
Qualitative data to support themes ,[object Object],[object Object],[object Object]
Qualitative data to support themes ,[object Object],[object Object],[object Object]
Aims and Objectives ,[object Object],[object Object],[object Object],[object Object],[object Object]
Service user involvement Service user researchers at St George’s involved in developing proposal and drawing up of original interview schedule across all four domains Service user and carer researchers involved in all aspects of research (design of interview schedule, focus groups and interviews, analysis, writing up and dissemination) Service user researcher and doctor undertook all interviews jointly: particular attention paid to the impact of this collaborative working on the research process and findings Reflective diaries kept by all members of research team throughout project in order to explore the impact of service user involvement and collaborative research
Project Design & Methodology ,[object Object],[object Object],[object Object],[object Object],[object Object]

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National Personality Disorder Congress workshop research projects

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  • 11. Knowing what it means to care: towards the development of a National Carers’ Strategy for Personality Disorder Project team: Steve Gillard: Academic Researcher & Lead Investigator, St George’s, University of London (SGUL) Alexia Demetriou: Service User Researcher, SGUL Ian Griggs: Freelance Carer Researcher Kati Turner: Service User Researcher, SGUL & Chair of Emergence Kath Lovell: National Project Development Manager, Emergence Stephen Miller: Consultant Psychiatrist in Psychotherapy & Clinical Lead for PD at South West London & St George’s Mental Health NHS Trust (SWL&StG)
  • 12. Developing an understanding of Recovery for people with Personality Disorder living in the community Project team: Steve Gillard: Academic Researcher & Lead Investigator, St George’s, University of London (SGUL) Kati Turner: Service User Researcher, SGUL & Chair of Emergence Marion Neffgen: Psychiatry Specialty Trainee , South West London & St George’s Mental Health NHS Trust (SWL&StG) Kath Lovell: National Project Development Manager, Emergence Stephen Miller: Clinical Lead for PD at South West London & St George’s Mental Health NHS Trust (SWL&StG)
  • 13. Aims and Objectives Phase 1: Contribute to filling knowledge gap through in-depth qualitative exploration of: what it means to care: what are carers’ experiences of support and what are carers’ priorities for support Phase 2: To inform and help develop a National Carers’ Strategy for Personality Disorder Throughout: Service users, carers, academics and clinicians working together as researchers
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  • 22. Service user involvement Service user researchers at St George’s involved in developing proposal and drawing up of original interview schedule across all four domains Service user and carer researchers involved in all aspects of research (design of interview schedule, focus groups and interviews, analysis, writing up and dissemination) Service user researcher and doctor undertook all interviews jointly: particular attention paid to the impact of this collaborative working on the research process and findings Reflective diaries kept by all members of research team throughout project in order to explore the impact of service user involvement and collaborative research
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Editor's Notes

  1. Develop applications for further study that are aimed specifically at supporting people with PD in their individual recovery Not quite sure I understand what the above means. Could it be better to say: ‘develop themes for further research’ . Then maybe another bullet point: e.g. ‘use results to inform development of services that are aimed specifically at supporting people with PD in their individual recovery’
  2. 2nd paragraph: could carer researchers be taken out as not relevant in this project? 3 rd paragraph: Could we use clincical researcher instead of doctor (also on next slide), somehow doctor sounds funny. Last paragraph ; could that come under project design and methodology (would also mean less words on this slide)?
  3. I am not sure we need to go into further detail about the interview schedule, but we may want to have a few copies lying around for people to have a look if they want to?