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Affordable Care Act
  Opportunities for Care
for People with Hepatitis C

       Lorren Sandt
We Have a Cure, but…
     ~ 4 Million Americans exposed to HCV
         ~85% will have chronic disease
               ~75% Undiagnosed


                   25%
                                    Diagnosed
                                    Undiagnosed
        75%
We Have a Cure, but…

                                         250,000
                                                   306,000

                                                                        Cure
                                                                        Treated No Cure
                                                                        People with HCV


                       4,000,000
                                                               2002 - 2008 Estimated Number of
                                                                 Previously Treated and Cured

Assumptions
•The cure rate over time is 45% (taking into account the higher re-treatment in the early years, the
larger number of G2/G3 in the early years and higher G1 naive today)

Source: IMS Xponent Data (Retail TRx data)
We Have a Cure, but…

       Only 36% of HCV-positive patients who
        were eligible for antiviral therapy had
                   health insurance

   "Access to care for HCV patients is critical. Our
   results have important implications for HCV-
   infected patients and should be considered as
   new health care reform legislation takes effect,"
                              Dr. Younossi
"Insurance Status and Treatment Candidacy of Hepatitis C Patients:
Analysis of Population-based Data from the United States." Maria
Stepanova, Fasiha Kanwal, Hashem B. El-Serag, Zobair M. Younossi.
Hepatology; Published Online: February 11, 2011 (DOI:
10.1002/hep.24131); Print Issue Date: March 2011.
http://onlinelibrary.wiley.com/doi/10.1002/hep.24131/abstract.       4
Hepatitis C: Rarely A Single Disease

                   Depression

         Co-                           Liver
      infection                       Disease


                    HCV
                   Patient

                                Substance
        Diabetes
                                   Use

                                                5
ACA Opportunities for People with HCV




                         Public
                         Health
                         Prevention
                         Fund


                                        6
ACA Opportunities for People with HCV


                        Eliminate
                        Pre-Existing
                        Conditions
                        • National
                          Program
                             July 2010
                        • State Program
                             Jan 2014

                                          7
ACA Opportunities for People with HCV




                        Free
                        Preventive
                        Care



                                        8
ACA Opportunities for People with HCV



                          Patient-
                          Centered
                          Outcomes
                          Research
                          Institute
                          (PCORI)

                                        9
ACA Opportunities for People with HCV




                         Accountable
                         Care
                         Organizations




                                        10
ACA Opportunities for People with HCV



                          They Are
                          Listening

                           It is up to
                               us to
                          Participate
                                         11

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Syn cing chronic disease advocacy sandt

  • 1. Affordable Care Act Opportunities for Care for People with Hepatitis C Lorren Sandt
  • 2. We Have a Cure, but… ~ 4 Million Americans exposed to HCV ~85% will have chronic disease ~75% Undiagnosed 25% Diagnosed Undiagnosed 75%
  • 3. We Have a Cure, but… 250,000 306,000 Cure Treated No Cure People with HCV 4,000,000 2002 - 2008 Estimated Number of Previously Treated and Cured Assumptions •The cure rate over time is 45% (taking into account the higher re-treatment in the early years, the larger number of G2/G3 in the early years and higher G1 naive today) Source: IMS Xponent Data (Retail TRx data)
  • 4. We Have a Cure, but… Only 36% of HCV-positive patients who were eligible for antiviral therapy had health insurance "Access to care for HCV patients is critical. Our results have important implications for HCV- infected patients and should be considered as new health care reform legislation takes effect," Dr. Younossi "Insurance Status and Treatment Candidacy of Hepatitis C Patients: Analysis of Population-based Data from the United States." Maria Stepanova, Fasiha Kanwal, Hashem B. El-Serag, Zobair M. Younossi. Hepatology; Published Online: February 11, 2011 (DOI: 10.1002/hep.24131); Print Issue Date: March 2011. http://onlinelibrary.wiley.com/doi/10.1002/hep.24131/abstract. 4
  • 5. Hepatitis C: Rarely A Single Disease Depression Co- Liver infection Disease HCV Patient Substance Diabetes Use 5
  • 6. ACA Opportunities for People with HCV Public Health Prevention Fund 6
  • 7. ACA Opportunities for People with HCV Eliminate Pre-Existing Conditions • National Program July 2010 • State Program Jan 2014 7
  • 8. ACA Opportunities for People with HCV Free Preventive Care 8
  • 9. ACA Opportunities for People with HCV Patient- Centered Outcomes Research Institute (PCORI) 9
  • 10. ACA Opportunities for People with HCV Accountable Care Organizations 10
  • 11. ACA Opportunities for People with HCV They Are Listening It is up to us to Participate 11