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Safe Haven In a Box
Project Overview
AS-IS Process Analysis
Petros Papapanagiotou
presented at SOCIAM all-hands, Oxford, 18-21 September 2017
Current
architecture
Level 4
Administrative data (e.g., housing, education,
local authority)
Level 3
Health Board data x 14 regions
Level 2
NSS data beyond the 10 datasets
Level 1
NSH
10 datasets
Datasets by location
Proposed architecture
Visualisation
Data integration
Data provision Knowledge integration
entity
integration
Knowledge
Base
Entity Base
(Hub)
knowledge
integration
Spoke
spoke
visualisation
knowledge
management
import
query
import
search,
query
import
project data
preparation
query
CSV
conversion
DCAT
CSV
Spoke
import
DCAT
MySQL
DB
CSV
data
extraction
standards,
conven-
tions
Processes Infrastructure and Deployment Business Model
WP1
Specification
WP2
Knowledge
WP3
Data integration
and storage
WP5
Analytics and
visualization
WP6
Deployment
WP4
Process
W7
Business model
WP1
Specification
WP2
Knowledge
WP3
Data integration
and storage
WP5
Analytics and
visualization
WP6
Deployment
WP4
Process
W7
Business model
WP1
Specification
WP2
Knowledge
WP3
Data integration
and storage
WP5
Analytics and
visualization
WP6
Deployment
WP4
Process
AS-IS TO-BE
W7
Business model
✔
Business analysis – Process mapping
• Interviews w/ 4 eDRIS members
• Documents:
• SOP, checklists, process maps, guidelines
• Iterative BPMN Workflow modelling
• Different levels: 1  1  10  25 workflows
• Survey
• Report
Roles
Information Consultant
Research Coordinator
Analyst
Admin
Stakeholders
Researcher Organisation Data Provider
Safe Haven
(EPCC)
Public Benefit and
Privacy Panel for
Health and Social
Care (PBPP)
Indexing Team
Stages
Scoping Preparation Study Archive
Data
Extraction
Advice +
Approvals
Analysis +
Disclosure
High-level workflow
Timings survey
Step eDRIS Work Time Total Time
Min Max Min Max
Triage ??? ??? ??? ???
Request ??? ??? ??? ???
Check Approved Researcher ??? ??? ??? ???
Approvals ??? ??? ??? ???
Request Data Extraction ??? ??? ??? ???
Extract Data ??? ??? ??? ???
Indexing ??? ??? ??? ???
Sign Agreements ??? ??? ??? ???
Request Study Setup ??? ??? ??? ???
Linkage Process ??? ??? ??? ???
Analysis ??? ??? ??? ???
Disclosure ??? ??? ??? ???
Archive ??? ??? ??? ???
Return from Archive ??? ??? ??? ???
Study Closure ??? ??? ??? ???
(results redacted pending approval for public disclosure)
Timings survey
• 11 responses across eDRIS
• Total time to data: 20 days – 5.5 years
• Extreme cases – include Researcher delays
• 4 – 50 days worth of eDRIS work
• Half on Request and Data Extraction
Timings survey
Max eDRIS Work Time Max Total Time
Triage
4%
Request
15%
Check Approved
Researcher
15%
Approvals
7%
Request Data
Extraction
4%
Extract Data
6%
Indexing
1%
Sign Agreements
1%
Request
Study Setup
0%
Linkage
Process
1%
Analysis
45%
Disclosure
1%
Archive
0%
Return from Archive
0%
Study Closure
0%
Triage
2%
Request
31%
Check
Approved
Researcher
0%Approvals
11%
Request Data
Extraction
0%
Extract Data
21%
Indexing
2%
Sign
Agreements
2%
Reque
st
Study
Setup
0%
Linkage Process
11%
Analysis
10%
Disclosure
10%
Archive
0%
Return from
Archive
0%
Study
Closure
0%
Process Improvement
Knowledge
Management
• Dataset
Schemata
• Cohorts
• Synthetic data
• Query
Formalisation
• Data Extraction
• External Data
• Data Verification
• Disclosure
Verification
Operation
• Documentation
• Supportive
Documents
• Tracking &
Reminders
• Auditing
• Workflow
Automation
Integration
• Cost Estimation
• Redundant
Specifications
• PBPP
Integration
• Version Control
Process Improvement
Knowledge
Management
• Dataset
Schemata
• Cohorts
• Synthetic data
• Query
Formalisation
• Data Extraction
• External Data
• Data
Verification
• Disclosure
Verification
Operation
• Documentation
• Supportive
Documents
• Tracking &
Reminders
• Auditing
• Workflow
Automation
Integration
• Cost
Estimation
• Redundant
Specifications
• PBPP
Integration
• Version Control
Coming up…
• Validation with higher-ups
• Communication across team
• Dissemination
• TO-BE model

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Safe Haven in a Box, Petros Papapanagiotou

  • 1. Safe Haven In a Box Project Overview AS-IS Process Analysis Petros Papapanagiotou presented at SOCIAM all-hands, Oxford, 18-21 September 2017
  • 3. Level 4 Administrative data (e.g., housing, education, local authority) Level 3 Health Board data x 14 regions Level 2 NSS data beyond the 10 datasets Level 1 NSH 10 datasets Datasets by location
  • 4. Proposed architecture Visualisation Data integration Data provision Knowledge integration entity integration Knowledge Base Entity Base (Hub) knowledge integration Spoke spoke visualisation knowledge management import query import search, query import project data preparation query CSV conversion DCAT CSV Spoke import DCAT MySQL DB CSV data extraction standards, conven- tions Processes Infrastructure and Deployment Business Model
  • 5. WP1 Specification WP2 Knowledge WP3 Data integration and storage WP5 Analytics and visualization WP6 Deployment WP4 Process W7 Business model
  • 6. WP1 Specification WP2 Knowledge WP3 Data integration and storage WP5 Analytics and visualization WP6 Deployment WP4 Process W7 Business model
  • 7. WP1 Specification WP2 Knowledge WP3 Data integration and storage WP5 Analytics and visualization WP6 Deployment WP4 Process AS-IS TO-BE W7 Business model ✔
  • 8. Business analysis – Process mapping • Interviews w/ 4 eDRIS members • Documents: • SOP, checklists, process maps, guidelines • Iterative BPMN Workflow modelling • Different levels: 1  1  10  25 workflows • Survey • Report
  • 10. Stakeholders Researcher Organisation Data Provider Safe Haven (EPCC) Public Benefit and Privacy Panel for Health and Social Care (PBPP) Indexing Team
  • 11. Stages Scoping Preparation Study Archive Data Extraction Advice + Approvals Analysis + Disclosure
  • 13. Timings survey Step eDRIS Work Time Total Time Min Max Min Max Triage ??? ??? ??? ??? Request ??? ??? ??? ??? Check Approved Researcher ??? ??? ??? ??? Approvals ??? ??? ??? ??? Request Data Extraction ??? ??? ??? ??? Extract Data ??? ??? ??? ??? Indexing ??? ??? ??? ??? Sign Agreements ??? ??? ??? ??? Request Study Setup ??? ??? ??? ??? Linkage Process ??? ??? ??? ??? Analysis ??? ??? ??? ??? Disclosure ??? ??? ??? ??? Archive ??? ??? ??? ??? Return from Archive ??? ??? ??? ??? Study Closure ??? ??? ??? ??? (results redacted pending approval for public disclosure)
  • 14. Timings survey • 11 responses across eDRIS • Total time to data: 20 days – 5.5 years • Extreme cases – include Researcher delays • 4 – 50 days worth of eDRIS work • Half on Request and Data Extraction
  • 15. Timings survey Max eDRIS Work Time Max Total Time Triage 4% Request 15% Check Approved Researcher 15% Approvals 7% Request Data Extraction 4% Extract Data 6% Indexing 1% Sign Agreements 1% Request Study Setup 0% Linkage Process 1% Analysis 45% Disclosure 1% Archive 0% Return from Archive 0% Study Closure 0% Triage 2% Request 31% Check Approved Researcher 0%Approvals 11% Request Data Extraction 0% Extract Data 21% Indexing 2% Sign Agreements 2% Reque st Study Setup 0% Linkage Process 11% Analysis 10% Disclosure 10% Archive 0% Return from Archive 0% Study Closure 0%
  • 16. Process Improvement Knowledge Management • Dataset Schemata • Cohorts • Synthetic data • Query Formalisation • Data Extraction • External Data • Data Verification • Disclosure Verification Operation • Documentation • Supportive Documents • Tracking & Reminders • Auditing • Workflow Automation Integration • Cost Estimation • Redundant Specifications • PBPP Integration • Version Control
  • 17. Process Improvement Knowledge Management • Dataset Schemata • Cohorts • Synthetic data • Query Formalisation • Data Extraction • External Data • Data Verification • Disclosure Verification Operation • Documentation • Supportive Documents • Tracking & Reminders • Auditing • Workflow Automation Integration • Cost Estimation • Redundant Specifications • PBPP Integration • Version Control
  • 18. Coming up… • Validation with higher-ups • Communication across team • Dissemination • TO-BE model