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2016 ROTARY INTERNATIONAL CONVENTION
Polio – Beyond Eradication
The disease, the effects, life challenges
Ways for Rotarians to assist beyond eradication
Aging and Late Effects of Polio Survivors in Korea
Jae-Young Lim, MD, PhD
Seoul National University College of Medicine
Seoul National University Bundang Hospital
• Acute viral infectious disease by Poliovirus involves
CNS and destruction of motor neurons
• Now, 10-20 million survivors in the World (Headley,
2011, WHO)
• 1.6 million in US (Parsons, 1991)
• About 60,000 in Korea (National Survey Persons with
disabilities, 2008 )
Poliomyelitis
%
Outbreak of Poliomyelitis in Korea
0
500
1000
1500
2000
2500
3000
Outbreak of Poliomyelitis No of cases
Cohort study of aging and late effect of Korean polio survivors 2012
0
20
40
60
<40 40-49 50-59 >60
Age of polio survivors
• Post polio syndrome
• Secondary neuro-musculoskeletal problems (trauma, overuse, degeneration, etc)
• Other secondary condition (aging, obesity, metabolic syndrome, falls,
cardiopulmonary dysfunctions, psychosocial problems, etc)
Late Effects of Polio
Cohort study of aging and late effect of Korean polio survivors 2012
Falls in Korean Polio Survivors
68.5
30.5
Fall experience past 1 year
Yes
No
Unknown
28.7
42.5
23.6
5.2
Fall frequency among fallers
At least once a year
At least once a month
At least once a week
At least once a day
55.0
15.2
13.9
7.9
6.0
Consequences of falls
No injury
Bruise
Fracture
Abrasion
Sprain
Laceration
Nam GY et al. J Korean Med Sci 2016
Age & Late effects of polio (LEOP)
0
10
20
30
40
50
60
70
80
90
100
<40 40-49 50-59 >60
26.8
19.6
5.9
0
73.2
80.4
94.1
100
Robust
LEOP
Cohort study of aging and late effect of Korean polio survivors 2012
Future direction
• Growing burden of late effects in polio survivors in 30-40 years in Korea
• More sophisticated approach linking to aging process and survivorship.
• New guideline for the criteria and management of late effects of polio
survivors
• Establishment of proper health care system to prevention, management
for late effects
• Extended to other survivors who live for a longtime with disability.
Thank you for your attention
View from a Polio Survivor
How I got this way.
April 12,1955 vaccine
announced
Me 2 days earlier,
dressed up for Easter!
I contracted polio
May 4th 1955 Awoke paralyzed, checked
into Denver Children’s
Hospital, May 7th
And three weeks later
But I recovered well!
Big time jump… 1955 to 2005 and a great deal has changed…
In April of 2005 I was working
with my wife in Uganda when
I saw a woman who’s right foot
was touching the back of her
right shoulder…
Our first collection ~ 235 pairs of crutches
Shipped to Uganda, 2006
Our first distribution
Was the need real?
And this is what we found…
This is James..
This is James…
So we have begun…
73,000 mobility devices given away free to the disabled in 16
African countries & 10 countries in other parts of the
developing world.
Will you help?
Rtn. Dave Talbot
Founder:
www.crutches4africa.org
Mountain Foothills Rotary Club
District 5450
Polio Survivors Rotarian Action Group
• Where can you get help
or more information?
• What can you do?
OVERVIEW
“The goal of a support group is to empower
its members with the tools necessary to
make adjustments needed to continue a life
of dignity and independence.”
POST POLIO SUPPORT GROUPS
HEALTH PROFESSIONALS AND SUPPORT GROUPS AROUND THE WORLD
www.post-polio.org
• Orthopedic surgeries such as are found
in India and other developing
countries,
• Purchasing wheelchairs, crutches for
polio survivors internationally or to
local post-polio groups to assist
members in need with the purchase of
assistive devices.
What sort of Rotary projects might be suitable and contributive to aid
support for post-polio survivors?
• Creation of rehabilitation clinics or
expanding existing clinics to address
assistive devices needs as well as
proper therapies
• Addressing vocational training and
education for the disabled
• These are all capable of funding
through Rotary Foundation Global
Grants
Polio Survivors Rotarian Action Group is a resource
WHAT CAN WE DO
WHAT CAN WE DO
www.rotarypoliosurvivors.org
info@rotarypoliosurvivors.org
facebook.com/psarag/
Projects to assist polio survivors - Ethiopia
Children using wheel chairs at the Rehab Center.
Whirlpool at the Cheshire Home
Rotarian Dennis Wilford handing the facility key to the Cheshire Home.
Rotarian Gabor and disabled from polio vaccinating a child for the first
time
Rotarian Team from the US and Canada
Rate this session! Your feedback is valuable so remember to
complete the brief session evaluation in the convention
mobile app. To download the app, search for “Rotary Events”
in your Apple or Android app store.
This presentation and others from throughout the convention
are available through the convention mobile app and on
SlideShare at www.SlideShare.net/Rotary_International.

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Polio — Beyond Eradication

  • 1. 2016 ROTARY INTERNATIONAL CONVENTION Polio – Beyond Eradication The disease, the effects, life challenges Ways for Rotarians to assist beyond eradication
  • 2. Aging and Late Effects of Polio Survivors in Korea Jae-Young Lim, MD, PhD Seoul National University College of Medicine Seoul National University Bundang Hospital
  • 3. • Acute viral infectious disease by Poliovirus involves CNS and destruction of motor neurons • Now, 10-20 million survivors in the World (Headley, 2011, WHO) • 1.6 million in US (Parsons, 1991) • About 60,000 in Korea (National Survey Persons with disabilities, 2008 ) Poliomyelitis
  • 4. % Outbreak of Poliomyelitis in Korea 0 500 1000 1500 2000 2500 3000 Outbreak of Poliomyelitis No of cases Cohort study of aging and late effect of Korean polio survivors 2012 0 20 40 60 <40 40-49 50-59 >60 Age of polio survivors
  • 5. • Post polio syndrome • Secondary neuro-musculoskeletal problems (trauma, overuse, degeneration, etc) • Other secondary condition (aging, obesity, metabolic syndrome, falls, cardiopulmonary dysfunctions, psychosocial problems, etc) Late Effects of Polio Cohort study of aging and late effect of Korean polio survivors 2012
  • 6. Falls in Korean Polio Survivors 68.5 30.5 Fall experience past 1 year Yes No Unknown 28.7 42.5 23.6 5.2 Fall frequency among fallers At least once a year At least once a month At least once a week At least once a day 55.0 15.2 13.9 7.9 6.0 Consequences of falls No injury Bruise Fracture Abrasion Sprain Laceration Nam GY et al. J Korean Med Sci 2016
  • 7. Age & Late effects of polio (LEOP) 0 10 20 30 40 50 60 70 80 90 100 <40 40-49 50-59 >60 26.8 19.6 5.9 0 73.2 80.4 94.1 100 Robust LEOP Cohort study of aging and late effect of Korean polio survivors 2012
  • 8. Future direction • Growing burden of late effects in polio survivors in 30-40 years in Korea • More sophisticated approach linking to aging process and survivorship. • New guideline for the criteria and management of late effects of polio survivors • Establishment of proper health care system to prevention, management for late effects • Extended to other survivors who live for a longtime with disability.
  • 9. Thank you for your attention
  • 10. View from a Polio Survivor
  • 11. How I got this way. April 12,1955 vaccine announced Me 2 days earlier, dressed up for Easter!
  • 12. I contracted polio May 4th 1955 Awoke paralyzed, checked into Denver Children’s Hospital, May 7th And three weeks later
  • 14. Big time jump… 1955 to 2005 and a great deal has changed… In April of 2005 I was working with my wife in Uganda when I saw a woman who’s right foot was touching the back of her right shoulder…
  • 15. Our first collection ~ 235 pairs of crutches Shipped to Uganda, 2006
  • 16. Our first distribution Was the need real?
  • 17. And this is what we found…
  • 18.
  • 19.
  • 20.
  • 21.
  • 24. So we have begun… 73,000 mobility devices given away free to the disabled in 16 African countries & 10 countries in other parts of the developing world.
  • 26. Rtn. Dave Talbot Founder: www.crutches4africa.org Mountain Foothills Rotary Club District 5450
  • 27. Polio Survivors Rotarian Action Group
  • 28. • Where can you get help or more information? • What can you do? OVERVIEW
  • 29. “The goal of a support group is to empower its members with the tools necessary to make adjustments needed to continue a life of dignity and independence.” POST POLIO SUPPORT GROUPS
  • 30. HEALTH PROFESSIONALS AND SUPPORT GROUPS AROUND THE WORLD www.post-polio.org
  • 31. • Orthopedic surgeries such as are found in India and other developing countries, • Purchasing wheelchairs, crutches for polio survivors internationally or to local post-polio groups to assist members in need with the purchase of assistive devices. What sort of Rotary projects might be suitable and contributive to aid support for post-polio survivors?
  • 32. • Creation of rehabilitation clinics or expanding existing clinics to address assistive devices needs as well as proper therapies • Addressing vocational training and education for the disabled • These are all capable of funding through Rotary Foundation Global Grants Polio Survivors Rotarian Action Group is a resource
  • 34.
  • 35. WHAT CAN WE DO www.rotarypoliosurvivors.org info@rotarypoliosurvivors.org facebook.com/psarag/
  • 36. Projects to assist polio survivors - Ethiopia
  • 37. Children using wheel chairs at the Rehab Center.
  • 38. Whirlpool at the Cheshire Home
  • 39. Rotarian Dennis Wilford handing the facility key to the Cheshire Home.
  • 40. Rotarian Gabor and disabled from polio vaccinating a child for the first time
  • 41. Rotarian Team from the US and Canada
  • 42. Rate this session! Your feedback is valuable so remember to complete the brief session evaluation in the convention mobile app. To download the app, search for “Rotary Events” in your Apple or Android app store. This presentation and others from throughout the convention are available through the convention mobile app and on SlideShare at www.SlideShare.net/Rotary_International.

Editor's Notes

  1. 연령에 따른 후기장애의 비율 60대이상에서는 100% 후기장애(LEOP)에 해당함.
  2. Excerpt from the Handbook on the Late Effects of Poliomyelitis for Physicians and Survivors© Support Groups The goal of a support group is to empower its members with the tools necessary to make adjustments needed to continue a life of dignity and independence. Contrary to the image sometimes portrayed in the popular media, healthy support groups are not "pity-parties" and do not promote the idea that "misery loves company." Support groups provide a forum for people to learn from each other about how to enhance the quality of their lives (Koop, 1992).  == I have learned so much from my local Post Polio Group in Nebraska. While I am not a polio survivor, this group has adopted me into their ranks and I am a regular speaker to the group. But more importantly, I have become a regular listener to them. To hear about problems with anesthesia during surgery for post polio survivors was a real eye opener for me. And to hear about the quality of leather needed to be used in the braces – and the sharing of information between people is a necessary part of this support group. “What works for me” is even more important for polio survivors than it is for the rest of us. Because today’s doctors in most countries are not as exposed to polio – and that polio survivors are living to older ages than ever, a network of people who have found out what works is necessary – both for the survivors and for the physicians who treat them. Where do you go to find out about local support groups? One of my best resources is Post-Polio Health International – www.post-polio.org
  3. As found in the PostPolio Directory by PHI, there are health professionals and support groups found around the world, and (while not shown on the map) in 47 of the 50 states in the US. === Where do you go to find out about local support groups? One of my best resources is Post-Polio Health International – www.post-polio.org. For their members, and downloadable from their website is a directory of health professionals and support groups found around the world, and – while not shown on this map – in 47 of the 50 states in the US. A lot of this same information on groups is found on the European Polio Union site too. As webmaster for our Rotarian Action Group, I try to refer many the questions we receive to both of these locations for personal and local support. Talking more about the Rotarian Action Group…
  4. PLAY WITHOUT SOUND, let loop for rest of presentation Video was modified in Adobe Premeire – exported as H.264, exported as a .mp4 – which is the recommended format for PowerPoint 2013 or later. A lower resolution .wmv file is also in the folder with this presentation.
  5. Talking more about the Rotarian Action Group…