SlideShare a Scribd company logo
Patientslikeme: An Analysis of Medicine 2.0 TashiaSutantio and Jessica Wallner
PLM Transparency “No surprises. Our members shouldn't be surprised by anything we do. Our goal is to disclose what we do with members' information, how we make money, as well as all of our partnerships on the site.” Structure of the Company ,[object Object]
No Ads
Where does info go?,[object Object]
Privacy - Anonymity/Pseudonymity
User Control,[object Object]
What do patients get in return?
Sharing information
Where is the medical professional knowledge?,[object Object]
WebMD
ShareCare
Mayoclinic,[object Object]
PatientslikemeHealth Management Sites ,[object Object]
Microsoft Health Vault
SugarStats,[object Object]
MDJunction

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Patientslikeme Presentation

Editor's Notes

  1. TASHIA:Show profile, treatments, symptoms, blog
  2. TASHIA: Show q&a - how Patients Like Me makes moneyInvisibility of cash flow – third party and no ads, etc.Purpose – rare conditions and knowledge sharingLack of disclosure about data farming
  3. Show Philosophy of OpennessJESS: PLM believes in open sharing of personal info, but they do not share company info and income generationPLM does not openly disclose third party contributors who may have access to patient dataPseudo privacy with Pseudonymity – future implications of sharing such information without more advanced privacy controlCreating patient profile – anyone can join, but not as a researcher, under the desire to share knowledgeLack of User control over info: Centralization of PLM user experience without transparency of profit structure and third party contributors
  4. JESS:What do patients get?Options for sharing knowledge - limited
  5. TASHIA: MEDICINE 2.0Centralized
  6. TASHIA: CENTRALIZEDEXTREMELY PERSONALIZED
  7. TASHIA:Openness between professionals and other users- different levels of gatekeeping
  8. TASHIA
  9. TASHIA:PROBLEMS:Profit vs. nonprofit – values on each side and conflictsCentralized professional feature and decentralized knowledge sharing feature
  10. JESS:
  11. JESS:
  12. JESS:
  13. JESS:
  14. JESS:
  15. JESS:
  16. TASHIA:JESS: