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Short Generic PROMs
Tim Benson
R-Outcomes Ltd
10 January 2017
Overview
• Exercise
• Our approach
• Our tools
• Results
Exercise
• Please complete form for yourself
(anonymously)
• 4 parts
– HowRu health status
– Personal wellbeing score
– Health confidence score
– HowRwe patient experience (most recent GP visit)
• We will process and compare with social
prescribing clients to show differences
Donabedian Model
Structure ➡ Process ➡ Outcome
• Structure:
Inputs – staff, equipment and facilities
• Process:
Activities – e.g., hospital episodes, outpatient visits,
investigations etc.
• Outcome:
impact on individuals
Donabedian A. The quality of care: how can it be assessed?
JAMA. 1988;260(12):1743-8
R-Outcomes
• howRu – health status
• howRwe – patient experience
• Personal wellbeing score
• Health confidence score
Link to Logo
• Happy – personal wellbeing score
• Healthy – howRu
• At home – health confidence score
• Heart – patient experience – howRwe
Design Principles
1. Generic
– Almost all people want the same things
e.g. Happy, healthy at home
2. Easy to use surveys
– Short with low reading age
3. Standardised
– Validated, comparisons and benchmarking
4. Automated
5. Reporting, feedback, easy to understand results
6. Separate scores for each dimension and overall
Methods of data collection
Person’s own device
Providers device
Paper
Telephone
Add to other survey
Best method depends on local
context
howRu Health Tracker
howRu
A short generic patient-reported
outcome measure (PROM)
Physical symptoms
Mental symptoms
Disability
Dependency
Scoring:
none = 3, a little = 2, quite a lot = 1, extreme = 0.
Overall score is sum of parts 0-12 scale
High is always good
Benson T et al. Evaluation of a new short
generic measure of health status: howRu. Inf
Prim Care 18 (2) 89-101. PDF
Sources:
SF-12 vs howRu: Benson T et al. Evaluation of a new short generic measure of health status: howRu. Inf Prim Care 2010; 18 (2): 89-101. PDF
EQ—5D vs howRu: Benson T et al. Comparison of howRu and EQ-5D measures of health-related quality of life in an outpatient clinic. Inf Prim Care 2013; 21
(1) 12-17. PDF
Validation 1/2
Validation 2/2
Correlations of outcome
(Post-op score minus post-op score) Hips Knees
howRu vs Oxford score 0.78 0.86
EQ-5D vs Oxford Score 0.67 0.59
EQ-VAS vs Oxford Score 0.33 0.31
Source: Benson T, Williams DH, Potts HWW. Performance of EQ-5D, howRu and Oxford hip &
knee scores in assessing the outcome of hip and knee replacements. BMC Health Services
Research 2016; 16:512
2. Personal Wellbeing
I was happy yesterday
I was NOT anxious yesterday
What I do in my life is worthwhile
I am satisfied with my life
Strongly
agree
Agree Not sure Disagree
How much do you agree?Personal Wellbeing
Based on UK ONS personal
wellbeing questions (2011)
Evaluative
Life satisfaction
Eudemonic
Overall worthwhileness
Experience
Happiness yesterday
Anxiety yesterday
Dolan P, Metcalfe R. Measuring subjective wellbeing:
recommendations on measures for use by national
governments. Journal of social policy 2012, 41 (2), pp. 409-
427.
3. Health Confidence
I can get the right help if I need it
I am involved in decisions about me
I can look after my health
I know enough about my health
Strongly
agree
Agree Not sure Disagree
How much do you agree?
Health Confidence
The Health Confidence Score (HCS) is
a short generic measure of person’s
confidence to engage fully in their
own health and care.
Knowledge
Self-care
Access to help
Shared decision-making
Benson T, Bowman C, Potts HWW Development and validation
of the Health Confidence Score. Submitted for publication 2016
6
7
8
9
10
4 5 6 7 8 9 10 11 12
Mean MHC
score
Actual HCS Score
Mean MHC vs. actual HCS (n=364)
HCS Validation
Benson T, Bowman C, Potts HWW Development and
validation of the Health Confidence Score. 2016
howRwe
Short generic measure of patient
experience:
Clinical aspects
1. Kindness
2. Communication
Admin aspects
3. Promptness
4. Organisation
Benson T, Potts H. A short generic patient
experience questionnaire: howRwe
development and validation. BMC Health
Services Research 2014, 14:499 PDF
Benson T, Bowman C. Health-Related Quality of Life and Patient Experience in Care
Homes. Medicine 2.0 London, Sept 2013
Before and After
Q & A
If you want to know more please contact us:
Tim Benson or Jess Done
R-Outcomes Ltd
07855 682 037
tim.benson@r-outcomes.com
http://www.r-outcomes.com

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NEHF Happy, Healthy, at Home symposium 100117 Workshop 3 - R-Outcomes

  • 1. Short Generic PROMs Tim Benson R-Outcomes Ltd 10 January 2017
  • 2. Overview • Exercise • Our approach • Our tools • Results
  • 3. Exercise • Please complete form for yourself (anonymously) • 4 parts – HowRu health status – Personal wellbeing score – Health confidence score – HowRwe patient experience (most recent GP visit) • We will process and compare with social prescribing clients to show differences
  • 4. Donabedian Model Structure ➡ Process ➡ Outcome • Structure: Inputs – staff, equipment and facilities • Process: Activities – e.g., hospital episodes, outpatient visits, investigations etc. • Outcome: impact on individuals Donabedian A. The quality of care: how can it be assessed? JAMA. 1988;260(12):1743-8
  • 5. R-Outcomes • howRu – health status • howRwe – patient experience • Personal wellbeing score • Health confidence score
  • 6. Link to Logo • Happy – personal wellbeing score • Healthy – howRu • At home – health confidence score • Heart – patient experience – howRwe
  • 7. Design Principles 1. Generic – Almost all people want the same things e.g. Happy, healthy at home 2. Easy to use surveys – Short with low reading age 3. Standardised – Validated, comparisons and benchmarking 4. Automated 5. Reporting, feedback, easy to understand results 6. Separate scores for each dimension and overall
  • 8. Methods of data collection Person’s own device Providers device Paper Telephone Add to other survey Best method depends on local context howRu Health Tracker
  • 9.
  • 10. howRu A short generic patient-reported outcome measure (PROM) Physical symptoms Mental symptoms Disability Dependency Scoring: none = 3, a little = 2, quite a lot = 1, extreme = 0. Overall score is sum of parts 0-12 scale High is always good Benson T et al. Evaluation of a new short generic measure of health status: howRu. Inf Prim Care 18 (2) 89-101. PDF
  • 11. Sources: SF-12 vs howRu: Benson T et al. Evaluation of a new short generic measure of health status: howRu. Inf Prim Care 2010; 18 (2): 89-101. PDF EQ—5D vs howRu: Benson T et al. Comparison of howRu and EQ-5D measures of health-related quality of life in an outpatient clinic. Inf Prim Care 2013; 21 (1) 12-17. PDF Validation 1/2
  • 12. Validation 2/2 Correlations of outcome (Post-op score minus post-op score) Hips Knees howRu vs Oxford score 0.78 0.86 EQ-5D vs Oxford Score 0.67 0.59 EQ-VAS vs Oxford Score 0.33 0.31 Source: Benson T, Williams DH, Potts HWW. Performance of EQ-5D, howRu and Oxford hip & knee scores in assessing the outcome of hip and knee replacements. BMC Health Services Research 2016; 16:512
  • 13. 2. Personal Wellbeing I was happy yesterday I was NOT anxious yesterday What I do in my life is worthwhile I am satisfied with my life Strongly agree Agree Not sure Disagree How much do you agree?Personal Wellbeing Based on UK ONS personal wellbeing questions (2011) Evaluative Life satisfaction Eudemonic Overall worthwhileness Experience Happiness yesterday Anxiety yesterday Dolan P, Metcalfe R. Measuring subjective wellbeing: recommendations on measures for use by national governments. Journal of social policy 2012, 41 (2), pp. 409- 427.
  • 14. 3. Health Confidence I can get the right help if I need it I am involved in decisions about me I can look after my health I know enough about my health Strongly agree Agree Not sure Disagree How much do you agree? Health Confidence The Health Confidence Score (HCS) is a short generic measure of person’s confidence to engage fully in their own health and care. Knowledge Self-care Access to help Shared decision-making Benson T, Bowman C, Potts HWW Development and validation of the Health Confidence Score. Submitted for publication 2016
  • 15. 6 7 8 9 10 4 5 6 7 8 9 10 11 12 Mean MHC score Actual HCS Score Mean MHC vs. actual HCS (n=364) HCS Validation Benson T, Bowman C, Potts HWW Development and validation of the Health Confidence Score. 2016
  • 16. howRwe Short generic measure of patient experience: Clinical aspects 1. Kindness 2. Communication Admin aspects 3. Promptness 4. Organisation Benson T, Potts H. A short generic patient experience questionnaire: howRwe development and validation. BMC Health Services Research 2014, 14:499 PDF
  • 17. Benson T, Bowman C. Health-Related Quality of Life and Patient Experience in Care Homes. Medicine 2.0 London, Sept 2013
  • 19.
  • 20. Q & A If you want to know more please contact us: Tim Benson or Jess Done R-Outcomes Ltd 07855 682 037 tim.benson@r-outcomes.com http://www.r-outcomes.com