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Texting4Health Conference
February 29, 2008           InSTEDD Proprietary Level I
…that you will help build a global
system to detect each new
disease or disaster as quickly as it
emerges…
Specificity                             Urge frequent
                                          reporting


                                    50 Shigella notifications (5%)
                     Report

                  Pos. specimen

                Clinical specimen

              Seek medical attention

                    Symptoms

                     Infected                     1000 Shigella infections (100%)
                    Exposed
                                                            Get as close to the
Sensitivity                                                bottom of the pyramid
                                                                as possible
  2/29/2008         InSTEDD Proprietary Level I                                     3
To address these challenges by adopting a social 
  network and cognitive model approach in order to 
  facilitate
  early identification of potential health threats 
  their verification, assessment and investigation 
  in order to recommend  measures (public health 
  and others) to control them.

                  Prototyped for MDBS
        Generalized to other regions and conditions
2/29/2008        InSTEDD Proprietary Level I          4
Indicator‐based surveillance
      computation of indicators upon which unusual 
      disease patterns to investigate are detected  
      (number of cases, rates, proportion of strains…)

  Event‐based surveillance
      the detection of public health events based on the 
      capture of ad‐hoc unstructured reports issued by 
      formal or informal sources.

2/29/2008        InSTEDD Proprietary Level I                5
Multiple data streams               Alert and Health           Time Series Visualization      Spatio-Temporal Analysis
(structured and unstructured)       Events Board
• Moderated Lists, News
   Feeds, Articles, Blogs,
   Emails, wikis (e.g., fluwiki),                                                       Time Slider
                                                                                                        Signal
   Videos, Audios
• Human health, animal health,
   plant health, water quality,
   Internet traffic, utilities,                                    Data Visualization
                                    Asset Status and
   intelligence. etc.
                                    Readiness
• SMS, SMS Geo-Chat

Contact Tracing and
                                                                                                 Remote Sensing
Network Modeling



                                                                                 Response
                                             User Alerts

                                                                                                Risk Visualization, Simulation
                                                                                                and Modeling


    Riff


                               Biosurveillance Tags
    2/29/2008                        InSTEDD Proprietary Level I                                                             6
InSTEDD Platform
Open source applications, services, and frameworks
Field Lab and Platform Synergy
            Learning at the edge, building for the future




                                 Component                      New Features
                                 Integration                    & Services
                  Emerging                     Design
                  Requirements                 Validation




2/29/2008                                             InSTEDD Proprietary Level I   8
Serious
infectious
disease
hotspot.
  2/29/2008   InSTEDD Proprietary Level I   9
2/29/2008   InSTEDD Proprietary Level I   10
Steung Treng Province
EWARN database                             Northern Cambodia
SYNCHRONIZES via SMS. 
Cell phones to laptops.

 The outbreak, the lab 
 confirmation, and the 
 contact tracking, can all be 
 done over SMS.




2/29/2008         InSTEDD Proprietary Level I                     11
The Golden Shadow Demonstration
Community Disaster
                                         Network
First Responders   Community  Orgs      Neighborhoods
Emergency
          Command Center




GeoChat             GeoBlogging   GeoForms
Cell phone SMS messages show up on Google 
     Earth
     Time, date, person, location, text
     Reply directly from Google Earth
     See movements as paths over time
     The status display ages (colors…)




2/29/2008          InSTEDD Proprietary Level I    15
2/29/2008   InSTEDD Proprietary Level I   16
2/29/2008   InSTEDD Proprietary Level I   17
Creating a collaborative environment where 
     human epidemiologists decision makers and 
     responders interact with automated systems, 
     using their existing tools and services when 
     possible

     Application of Social Network Model 
     approach and Collaborative decision making 
     technology into the process
2/29/2008      InSTEDD Proprietary Level I           18
Taha Kass-Hout, MD, MS
Director, Health Informatics
InSTEDD
kasshout@instedd.org
                                                      400 Hamilton Avenue, Suite 120
Mary Jane Marcus, MSW                                 Palo Alto, CA 94301
Program Manager                                       USA
InSTEDD                                               +1.650.353.4440
415-269-9079                                          +1.877.650.4440 (toll-free in the US)
marcus@instedd.org




  2/29/2008             InSTEDD Proprietary Level I                                      19
The likelihood of disasters and disease outbreaks is 
     growing
        According to a recent Oxfam report, there has been a four‐
        fold increase in the annual number of natural disasters
                                          http://www.oxfam.org/en/policy/briefingpapers/bp108_climate_change_alarm_0711



        30 infectious diseases identified since 1973

     Potential impact is getting greater
        Impact on health, economies & security
        Capable of spreading faster than ever before

2/29/2008          InSTEDD Proprietary Level I                                                                            20
Current systems design, analysis and evaluation has been 
     geared towards specific data sources and detection 
     algorithms – not humans
            Much less has been towards interaction with responders and domain 
            experts across agencies and at multiple levels
            Often provide contradictory interpretations of ongoing events

     We have systems in place for those threats we have been 
     faced with before
            We are more vulnerable to those we know about, but have not faced 
            on a major scale
            Even more vulnerable to those that we don’t know about

2/29/2008                InSTEDD Proprietary Level I                             21
Research Triangle International


     Harvard MIT – Healthmap


     NASA Goddard Space Flight 
     Center

     IBM: Public Health Information 
     Affinity Domain (PHIAD)

     ProMed


2/29/2008            InSTEDD Proprietary Level I   22
Those who had not used text messaging before the 
     demonstration (mainly seniors) reverted to their 
     preferred methods (FRS radio) during the 
     emergency.   It is hard to say what would have 
     happened if they only had text messaging as an 
     option

     Those who were experienced with text messaging 
     loved using it for reporting


2/29/2008       InSTEDD Proprietary Level I              23
Those who had failures in all other forms of 
     communication (their FRS radios failed) reverted to 
     SMS text messaging and used it for their internal 
     communication

     The lack of responses to text messaging (and all 
     forms of comm.) was very difficult

     All of the other things we learned around how info 
     needs to be meaningful…triaging at the field level…
2/29/2008        InSTEDD Proprietary Level I                24

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Technologies for Early Disease Detection and Rapid Disaster Response

  • 1. Texting4Health Conference February 29, 2008 InSTEDD Proprietary Level I
  • 2. …that you will help build a global system to detect each new disease or disaster as quickly as it emerges…
  • 3. Specificity Urge frequent reporting 50 Shigella notifications (5%) Report Pos. specimen Clinical specimen Seek medical attention Symptoms Infected 1000 Shigella infections (100%) Exposed Get as close to the Sensitivity bottom of the pyramid as possible 2/29/2008 InSTEDD Proprietary Level I 3
  • 4. To address these challenges by adopting a social  network and cognitive model approach in order to  facilitate early identification of potential health threats  their verification, assessment and investigation  in order to recommend  measures (public health  and others) to control them. Prototyped for MDBS Generalized to other regions and conditions 2/29/2008 InSTEDD Proprietary Level I 4
  • 5. Indicator‐based surveillance computation of indicators upon which unusual  disease patterns to investigate are detected   (number of cases, rates, proportion of strains…) Event‐based surveillance the detection of public health events based on the  capture of ad‐hoc unstructured reports issued by  formal or informal sources. 2/29/2008 InSTEDD Proprietary Level I 5
  • 6. Multiple data streams Alert and Health Time Series Visualization Spatio-Temporal Analysis (structured and unstructured) Events Board • Moderated Lists, News Feeds, Articles, Blogs, Emails, wikis (e.g., fluwiki), Time Slider Signal Videos, Audios • Human health, animal health, plant health, water quality, Internet traffic, utilities, Data Visualization Asset Status and intelligence. etc. Readiness • SMS, SMS Geo-Chat Contact Tracing and Remote Sensing Network Modeling Response User Alerts Risk Visualization, Simulation and Modeling Riff Biosurveillance Tags 2/29/2008 InSTEDD Proprietary Level I 6
  • 8. Field Lab and Platform Synergy Learning at the edge, building for the future Component New Features Integration & Services Emerging Design Requirements Validation 2/29/2008 InSTEDD Proprietary Level I 8
  • 9. Serious infectious disease hotspot. 2/29/2008 InSTEDD Proprietary Level I 9
  • 10. 2/29/2008 InSTEDD Proprietary Level I 10
  • 11. Steung Treng Province EWARN database  Northern Cambodia SYNCHRONIZES via SMS.  Cell phones to laptops. The outbreak, the lab  confirmation, and the  contact tracking, can all be  done over SMS. 2/29/2008 InSTEDD Proprietary Level I 11
  • 13. Community Disaster Network First Responders Community  Orgs Neighborhoods
  • 14. Emergency Command Center GeoChat GeoBlogging GeoForms
  • 15. Cell phone SMS messages show up on Google  Earth Time, date, person, location, text Reply directly from Google Earth See movements as paths over time The status display ages (colors…) 2/29/2008 InSTEDD Proprietary Level I 15
  • 16. 2/29/2008 InSTEDD Proprietary Level I 16
  • 17. 2/29/2008 InSTEDD Proprietary Level I 17
  • 18. Creating a collaborative environment where  human epidemiologists decision makers and  responders interact with automated systems,  using their existing tools and services when  possible Application of Social Network Model  approach and Collaborative decision making  technology into the process 2/29/2008 InSTEDD Proprietary Level I 18
  • 19. Taha Kass-Hout, MD, MS Director, Health Informatics InSTEDD kasshout@instedd.org 400 Hamilton Avenue, Suite 120 Mary Jane Marcus, MSW Palo Alto, CA 94301 Program Manager USA InSTEDD +1.650.353.4440 415-269-9079 +1.877.650.4440 (toll-free in the US) marcus@instedd.org 2/29/2008 InSTEDD Proprietary Level I 19
  • 20. The likelihood of disasters and disease outbreaks is  growing According to a recent Oxfam report, there has been a four‐ fold increase in the annual number of natural disasters http://www.oxfam.org/en/policy/briefingpapers/bp108_climate_change_alarm_0711 30 infectious diseases identified since 1973 Potential impact is getting greater Impact on health, economies & security Capable of spreading faster than ever before 2/29/2008 InSTEDD Proprietary Level I 20
  • 21. Current systems design, analysis and evaluation has been  geared towards specific data sources and detection  algorithms – not humans Much less has been towards interaction with responders and domain  experts across agencies and at multiple levels Often provide contradictory interpretations of ongoing events We have systems in place for those threats we have been  faced with before We are more vulnerable to those we know about, but have not faced  on a major scale Even more vulnerable to those that we don’t know about 2/29/2008 InSTEDD Proprietary Level I 21
  • 22. Research Triangle International Harvard MIT – Healthmap NASA Goddard Space Flight  Center IBM: Public Health Information  Affinity Domain (PHIAD) ProMed 2/29/2008 InSTEDD Proprietary Level I 22
  • 23. Those who had not used text messaging before the  demonstration (mainly seniors) reverted to their  preferred methods (FRS radio) during the  emergency.   It is hard to say what would have  happened if they only had text messaging as an  option Those who were experienced with text messaging  loved using it for reporting 2/29/2008 InSTEDD Proprietary Level I 23
  • 24. Those who had failures in all other forms of  communication (their FRS radios failed) reverted to  SMS text messaging and used it for their internal  communication The lack of responses to text messaging (and all  forms of comm.) was very difficult All of the other things we learned around how info  needs to be meaningful…triaging at the field level… 2/29/2008 InSTEDD Proprietary Level I 24