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Linked Data Approach for
                       Integration of Human Health and
                              Environmental Data
             Building for Better Decisions: Multi-scale Integration of Human Health
                                    and Environmental Data
                                          8-11 May 2012


                                   By: Bernadette Hyland,
                          Chair, W3C Government Linked Data WG
                                  CEO, 3 Round Stones, Inc

                              Email. bhyland@3roundstones.com
                                     Twitter: @BernHyland
                     This presentation: http://slideshare.net/3roundstones



Tuesday, May 8, 12                                                                    1
• Linked Data is
            about publishing
            and consuming
            data using
            international data
            standards
       • Based on 20 year
            old idea
       • A system of linked
            information systems




Tuesday, May 8, 12                2
Tuesday, May 8, 12   3
Photo credit: http://www.flickr.com/photos/sjungling/5974860/

Tuesday, May 8, 12                                                                  4
A HISTORY OF SILOS




                                 $ cat foo.txt
                                 | grep blah |
                                 sort




                           1970s                  1980s           1990s
                      A neat little package      Client-Server   The Early Web



Tuesday, May 8, 12                                                               5
There is a better way to connect
        data ...
              • No   one vendor owns it
              • It scales ... to Web-scale
              • Doesn’t require a super model
              • Based on International Data Exchange
                Standards (RDF, SPARQL)


Tuesday, May 8, 12                                     6
What is next for Data in the
                 Web?

            •   What is next for Open Data on the Web

                 •   Structured data on the Web is quickly
                     becoming mainstream

                 •   Authorities beginning to appreciate a new way
                     to publish and consume content


Tuesday, May 8, 12                                                   7
Tuesday, May 8, 12   8
Tuesday, May 8, 12   9
“Linked    Data means
          Cooperation without coordination”

                              -- David Wood, PhD




Tuesday, May 8, 12                                 10
Governments
           Goals: Governmental transparency and/or improved
                  internal efficiencies (data warehouses)




Tuesday, May 8, 12                                            11
Hardware/Software
                         Vendors
        Goal: Improve interoperability between products and
                           product lines




Tuesday, May 8, 12                                            12
Retailers
               Goal: Improve click-throughs on search results




Tuesday, May 8, 12                                              13
Book Publishers
        Goals: Improve internal manuscript pipelines, expose
            additional ways of finding and using content




Tuesday, May 8, 12                                             14
New Media




Tuesday, May 8, 12               15
Linked Data in Context
                             Universal Client                 Ubiquitous,
                                                          reusable applications



                                                          URL Curation


                      Universal Connection                      Logic and interlinking


                                                 Web
                                                of Data
                       Universal Database




Tuesday, May 8, 12                                                                       16
Tuesday, May 8, 12   17
Tuesday, May 8, 12   18
Tuesday, May 8, 12   19
Why is RDF important?
              •      It is an international standard for publishing data on
                     the Web (public and private)

              •      Data exchange model

                     •   Serializations include RDF/XML, N-triples, N3,
                         Turtle ...

              •      It is the future of using the Web




Tuesday, May 8, 12                                                            20
What you can do ...
            •   Good = Use Data Standards (RDF) to publish
                metadata about data and models, at a minimum

            •   Better = Use RDF to publish   all your data
            •   Best = Link your data + models

            •   Web architecture, Web-scale




Tuesday, May 8, 12                                             21
Tuesday, May 8, 12   22
Tuesday, May 8, 12   23
WE VE SEEN THIS BEFORE




Tuesday, May 8, 12           24
Tuesday, May 8, 12   25
Tuesday, May 8, 12   26
Tuesday, May 8, 12   27
Tuesday, May 8, 12   28
Tuesday, May 8, 12   29
Tuesday, May 8, 12   30
Tuesday, May 8, 12   31
Tuesday, May 8, 12   32
Tuesday, May 8, 12   33
CDC        Open	
  Government	
            Linked	
  Data
                  EPA                Data                      Cloud                 DBpedia
         US	
  Census                                                                Pub	
  Med
                                                 Clinical
                                                Ontology                             NLM

                                                Business
                                                Ontology
                        Social	
  Media                              Internal
                                                                    Portal	
  Data

           Facebook                                                                    Physicians
             TwiCer                                                                    Services
                                                     EMR                               Loca*ons
                                                     Data




                              Clinical	
  Condi*on	
  Specific

Tuesday, May 8, 12                                                                                  34
Value Proposition
         • Decrease   costly emergency department visits

         • Reduce    hospital re-admissions after treatment

         • Improved    self-care and medication compliance

         • Education   of triggers and disease management




Tuesday, May 8, 12                                            35
Func*onal	
  Model
                     1.	
  Define	
  target	
  popula*on	
  and	
  clinical	
  data	
  from	
  electronic	
  
                             medical	
  record
                     2.	
  Iden*fy	
  sources	
  of	
  open	
  government	
  data	
  related	
  to	
  
                              environmental,	
  weather,	
  and	
  other	
  variables	
  related	
  to	
  
                              chronic	
  pulmonary	
  disease	
  exacerba*ons
                     3.	
  Combine	
  open	
  content	
  from	
  NLM,	
  PubMed,	
  Medline	
  to	
  
                             support	
  educa*on
                     4.	
  Leverage	
  a	
  Linked	
  Data	
  approach,	
  using	
  Open	
  Source	
  and	
  
                             interna*onal	
  data	
  exchange	
  standards	
  (RDF)
                     5.	
  	
  Alert	
  pa*ent	
  of	
  possible	
  hazardous	
  condi*ons	
  and	
  
                                 recommend	
  appropriate	
  ac*ons




Tuesday, May 8, 12                                                                                              36
Leverage	
  Linked	
  Data,	
  Open	
  Source	
  &	
  Standards


                 Web	
  of	
  Data                               SMS
                    CDC          DBpedia
                     EPA        Pub	
  Med
               US	
  Census        NLM                                  Email

                                             CA-­‐email-­‐message.jpg
                                                                        Web
                        EMR




Tuesday, May 8, 12                                                              37
Tuesday, May 8, 12   38
Shows:

                     1) Air Quality data from US EPA

                     2) Anonymized EMR data

                     3) Doctor’s details from CSV file


                     Uses Callimachus,
                     a Linked Data Management
                     Platform




Tuesday, May 8, 12                                       39
Tools & best practices?
    •   Large and small vendors are involved in Linked Data
         •   From Oracle, IBM to 3 Round Stones
         •   Listing of active projects, companies and research See
             http://dir.w3.org/
         •   Best practices, see http://www.w3.org/2011/gld/charter




Tuesday, May 8, 12                                                    40
• Callimachus   is a framework for data-driven applications
              based on Linked Data principles
          • Callimachus    allows Web developers to easily create data
              driven applications for the Web
          • It       is Open Source (FLOSS)
          • http://callimachusproject.org




Tuesday, May 8, 12                                                       41
http://www.w3.org/2011/gld/charter
Tuesday, May 8, 12                             42
DELIVERABLES

            Community Directory

            Best Practices for Publishing Linked Data

                     Procurement, vocabulary selection, URI construction,
                     versioning, stability, legacy data issues

                     Cookbook for Linked Open Data

                     Standard Vocabularies

                       Metadata, Statistical “Cube” Data, People,
                       Organizational structures
Tuesday, May 8, 12                                                          43
Tuesday, May 8, 12   44
Recommendations
          •   Be prepared for the scientific community & public to demand that your data be
              published in re-usable  format (RDF)
          •   Demand your vendors use Open Source whenever possible
          •   Incentivize industry & STM publishers to do the right thing
          •   Open vs. proprietary technologies & data formats ... be OPEN
          •   Beware of semantic “pixie dust” - be “an educated consumer” (and scientist!)
          •   Solutions must embrace International Standards and published Best Practices (W3C,
              OMG, IETF)
          •   Define a URI Policy and Strategy, document it and ensure scientists use it!
          •   Leverage the work of others and work cooperatively...

          • Our        future is all connected through your work...

Tuesday, May 8, 12                                                                                45
This work is Copyright © 2011-2012 3 Round Stones Inc.
                     It is licensed under the Creative Commons Attribution 3.0 Unported License
                     Full details at: http://creativecommons.org/licenses/by/3.0/

                     You are free:

                             to Share — to copy, distribute and transmit the work



                             to Remix — to adapt the work



                     Under the following conditions:
                             Attribution. You must attribute the work in the manner specified by the
                             author or licensor (but not in any way that suggests that they endorse
                             you or your use of the work).

                             Share Alike. If you alter, transform, or build upon this work, you may
                             distribute the resulting work only under the same or similar license to this
                             one.




Tuesday, May 8, 12                                                                                          46

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Linked Data Approach for Integration of Human Health & Environmental Data

  • 1. Linked Data Approach for Integration of Human Health and Environmental Data Building for Better Decisions: Multi-scale Integration of Human Health and Environmental Data 8-11 May 2012 By: Bernadette Hyland, Chair, W3C Government Linked Data WG CEO, 3 Round Stones, Inc Email. bhyland@3roundstones.com Twitter: @BernHyland This presentation: http://slideshare.net/3roundstones Tuesday, May 8, 12 1
  • 2. • Linked Data is about publishing and consuming data using international data standards • Based on 20 year old idea • A system of linked information systems Tuesday, May 8, 12 2
  • 5. A HISTORY OF SILOS $ cat foo.txt | grep blah | sort 1970s 1980s 1990s A neat little package Client-Server The Early Web Tuesday, May 8, 12 5
  • 6. There is a better way to connect data ... • No one vendor owns it • It scales ... to Web-scale • Doesn’t require a super model • Based on International Data Exchange Standards (RDF, SPARQL) Tuesday, May 8, 12 6
  • 7. What is next for Data in the Web? • What is next for Open Data on the Web • Structured data on the Web is quickly becoming mainstream • Authorities beginning to appreciate a new way to publish and consume content Tuesday, May 8, 12 7
  • 10. “Linked Data means Cooperation without coordination” -- David Wood, PhD Tuesday, May 8, 12 10
  • 11. Governments Goals: Governmental transparency and/or improved internal efficiencies (data warehouses) Tuesday, May 8, 12 11
  • 12. Hardware/Software Vendors Goal: Improve interoperability between products and product lines Tuesday, May 8, 12 12
  • 13. Retailers Goal: Improve click-throughs on search results Tuesday, May 8, 12 13
  • 14. Book Publishers Goals: Improve internal manuscript pipelines, expose additional ways of finding and using content Tuesday, May 8, 12 14
  • 16. Linked Data in Context Universal Client Ubiquitous, reusable applications URL Curation Universal Connection Logic and interlinking Web of Data Universal Database Tuesday, May 8, 12 16
  • 20. Why is RDF important? • It is an international standard for publishing data on the Web (public and private) • Data exchange model • Serializations include RDF/XML, N-triples, N3, Turtle ... • It is the future of using the Web Tuesday, May 8, 12 20
  • 21. What you can do ... • Good = Use Data Standards (RDF) to publish metadata about data and models, at a minimum • Better = Use RDF to publish all your data • Best = Link your data + models • Web architecture, Web-scale Tuesday, May 8, 12 21
  • 24. WE VE SEEN THIS BEFORE Tuesday, May 8, 12 24
  • 34. CDC Open  Government   Linked  Data EPA Data Cloud DBpedia US  Census Pub  Med Clinical Ontology NLM Business Ontology Social  Media Internal Portal  Data Facebook Physicians TwiCer Services EMR Loca*ons Data Clinical  Condi*on  Specific Tuesday, May 8, 12 34
  • 35. Value Proposition • Decrease costly emergency department visits • Reduce hospital re-admissions after treatment • Improved self-care and medication compliance • Education of triggers and disease management Tuesday, May 8, 12 35
  • 36. Func*onal  Model 1.  Define  target  popula*on  and  clinical  data  from  electronic   medical  record 2.  Iden*fy  sources  of  open  government  data  related  to   environmental,  weather,  and  other  variables  related  to   chronic  pulmonary  disease  exacerba*ons 3.  Combine  open  content  from  NLM,  PubMed,  Medline  to   support  educa*on 4.  Leverage  a  Linked  Data  approach,  using  Open  Source  and   interna*onal  data  exchange  standards  (RDF) 5.    Alert  pa*ent  of  possible  hazardous  condi*ons  and   recommend  appropriate  ac*ons Tuesday, May 8, 12 36
  • 37. Leverage  Linked  Data,  Open  Source  &  Standards Web  of  Data SMS CDC DBpedia EPA Pub  Med US  Census NLM Email CA-­‐email-­‐message.jpg Web EMR Tuesday, May 8, 12 37
  • 39. Shows: 1) Air Quality data from US EPA 2) Anonymized EMR data 3) Doctor’s details from CSV file Uses Callimachus, a Linked Data Management Platform Tuesday, May 8, 12 39
  • 40. Tools & best practices? • Large and small vendors are involved in Linked Data • From Oracle, IBM to 3 Round Stones • Listing of active projects, companies and research See http://dir.w3.org/ • Best practices, see http://www.w3.org/2011/gld/charter Tuesday, May 8, 12 40
  • 41. • Callimachus is a framework for data-driven applications based on Linked Data principles • Callimachus allows Web developers to easily create data driven applications for the Web • It is Open Source (FLOSS) • http://callimachusproject.org Tuesday, May 8, 12 41
  • 43. DELIVERABLES Community Directory Best Practices for Publishing Linked Data Procurement, vocabulary selection, URI construction, versioning, stability, legacy data issues Cookbook for Linked Open Data Standard Vocabularies Metadata, Statistical “Cube” Data, People, Organizational structures Tuesday, May 8, 12 43
  • 45. Recommendations • Be prepared for the scientific community & public to demand that your data be published in re-usable format (RDF) • Demand your vendors use Open Source whenever possible • Incentivize industry & STM publishers to do the right thing • Open vs. proprietary technologies & data formats ... be OPEN • Beware of semantic “pixie dust” - be “an educated consumer” (and scientist!) • Solutions must embrace International Standards and published Best Practices (W3C, OMG, IETF) • Define a URI Policy and Strategy, document it and ensure scientists use it! • Leverage the work of others and work cooperatively... • Our future is all connected through your work... Tuesday, May 8, 12 45
  • 46. This work is Copyright © 2011-2012 3 Round Stones Inc. It is licensed under the Creative Commons Attribution 3.0 Unported License Full details at: http://creativecommons.org/licenses/by/3.0/ You are free: to Share — to copy, distribute and transmit the work to Remix — to adapt the work Under the following conditions: Attribution. You must attribute the work in the manner specified by the author or licensor (but not in any way that suggests that they endorse you or your use of the work). Share Alike. If you alter, transform, or build upon this work, you may distribute the resulting work only under the same or similar license to this one. Tuesday, May 8, 12 46