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Fighting to end Cystic Fibrosis
   Raise awareness for the organization and
    disease
   Education of Cystic Fibrosis and the effects on
    individual and family
   Getting people involved in the fight against
    Cystic Fibrosis
   Possibly raising money for the cure
   Those people who have the disease
   Family and friends of those suffering with the
    disease
   Young parents who may be starting a family or
    have just discovered they have a child with
    this horrible disease
   Any general group of people who care about
    their fellow man
The organization in which I found the most inspiration
from was the Cystic Fibrosis Foundation. They are
using a five tiered approach to their Social Media
Marketing, Facebook, Twitter, Google+, YouTube and
they have their own site, www.CFF.org. On most of
these social media platforms the CFF are providing
information about what new breakthroughs are being
made in the research of CF. In addition, they also
provide information about ways in which everyone
can help out the cause and join walks and bike rides
geared towards raising funds for research. On the
YouTube page they provide many inspirational stories
of people who have CF and struggle with it on a daily
basis as well as informational videos.
   People with CF
       A place to sign up for and take part in clinical trials or
        get connected to
       specific medical facilities performing these trials
       A place to share their story to help other like them
        and give them inspiration to keep fighting on
       Most importantly give them HOPE
   Family and Friends
       A place where family and friends can get involved to
        help, charity functions like cycle rides for the cure and
        walks for the cure
       A way for family and friends to interact and show that
        person who has this disease that they care and to give
        them strength to fight on.
       A place to give donations to finding a cure
   Young Parents
       For those who may be thinking about having a child and
        know they have a history of this disease in their family or
        have just had their first child that is diagnosed with CF,
        this SMM plan will have the resources and information to
        let them know what to expect and how to do the best
        things for their child
       Comfort from the stories of others who have fought with
        this disease and have added more time onto their life, to
        know that CF is not a death sentence at the age of 18
   General population
       A sense of caring for others
       A feeling of accomplishment in giving back to the (CF)
        community through volunteering and donations
       Write off for tax purposes and helping others in the
        process
   In the beginning those SM platforms that are
    cheap and would not cut into operational costs
    would be used:
       Facebook
       Twitter
       YouTube


   After gaining momentum and capital to cover
    the operational costs a website would be put in
    place to demonstrate a professional
    appearance
   Posts would be created by the administrators of
    the page on an as needed basis or on breaking
    news or upcoming events but most of the content
    will come from the community
   Posts would be on as needed basis. If naturally
    created content by the community is not being
    generated, the administrators of the page may
    create posts to encourage the community to get
    involved
   Content on the page would include news on new
    groundbreaking procedures or
    medication, creative charity drives, upcoming
    walks or cycles for the cure, post content from
    these events
   All content distributed by the administrators will
    be in some way related to finding a cure for CF,
    fund raising, awareness, generating hope, news
    on treatment and anything else positive toward
    finding a cure for this disease
   For Facebook most of the content here will be
    closely aligned with friends, family and those
    who have CF. Those who are on the CF Facebook
    page are people who have been dealing with this
    disease and are past the shock and awe of finding
    out a family member has a disease this is going
    to be a place to look toward the future and hope
    of a cure
   Many organizations have issues with the sites or
    pages they maintain, In the instance of
    something as sensitive as a life threatening
    disease most would hope that no one does
    anything to hurt an organization such as this.
    Comments posted on the page that are
    inappropriate and damaging to the families and
    people with CF will be removed. Our priority is
    to those suffering with this disease and to the
    friends and families of those suffering.
   Tweets would be created by the administrators of
    the twitter account with breaking news or
    upcoming events and would be very responsive to
    those following and tweeting to the account
   Tweets(posts) would be would be much more
    aggressive due to the nature of Twitter. Our
    Twitter account will also follow anyone who
    follows our account
   Content on the Twitter account would include
    news on new groundbreaking procedures or
    medication, creative charity drives, upcoming
    walks or cycles for the cure, post content from
    these events
   All content distributed by the administrators will
    be in some way related to finding a cure for
    CF, fund raising, awareness, generating
    hope, news on treatment and anything else
    positive toward finding a cure for this disease
   Our target audience here is of course those who
    have CF and their friends and family, but on
    Twitter our real focus will be on the younger
    crowd
   Twitter should not come across too many “trolls”
    but in the case that we do experience someone
    attacking our cause it will be dealt with on a
    case by case basis. In most cases we can just
    ignore it and it will not affect our cause.
    Comments tweeted on our Twitter feed that are
    inappropriate and damaging to the families and
    people with CF will be removed. Again, our
    priority is to those suffering with this disease and
    to the friends and families of those suffering.
   Our administrators would control what videos are
    loaded onto the site and posts would come from
    our viewers.
   The administrators would very rarely make a post
    on this site but videos would be posted as often
    as something positive to the fight against CF
    comes along
   Our content here will most likely all be in an
    effort to pull at the heart strings of others to get
    people involved in our cause to cure CF, along
    with informational videos as well
   All content distributed by the administrators will
    be in some way related to finding a cure for CF,
    fund raising, awareness, generating hope, news
    on treatment and anything else positive toward
    finding a cure for this disease
   Our target audience here is of course those who
    have CF and their friends and family, but on
    Twitter our real focus will be on the younger
    crowd
   Many organizations have issues with the sites or
    pages they maintain, In the instance of
    something as sensitive as a life threatening
    disease most would hope that no one does
    anything to hurt an organization such as this.
    Comments posted on the page that are
    inappropriate and damaging to the families and
    people with CF will be removed. Our priority is
    to those suffering with this disease and to the
    friends and families of those suffering.
   In every organization transparency with the
    public is important to maintain a certain level of
    trust, while protecting sensitive information
   All posts on any of our social media networks will
    be focused on Cystic Fibrosis related issues and
    all posts will be quality checked
   Any comments of negativity toward the
    organization will be evaluated, and if it in any
    way affects our members, it will be removed
   We need to take note of whether or not our
    social media marketing is effective
   All of the social media platforms we would be
    using has built in analytics which will be a cost
    effective way
   Looking forward, there are many other analytic
    tools that can be used when the organization
    needs to monitor all sites in one place

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Fighting CF with Social Media

  • 1. Fighting to end Cystic Fibrosis
  • 2. Raise awareness for the organization and disease  Education of Cystic Fibrosis and the effects on individual and family  Getting people involved in the fight against Cystic Fibrosis  Possibly raising money for the cure
  • 3. Those people who have the disease  Family and friends of those suffering with the disease  Young parents who may be starting a family or have just discovered they have a child with this horrible disease  Any general group of people who care about their fellow man
  • 4. The organization in which I found the most inspiration from was the Cystic Fibrosis Foundation. They are using a five tiered approach to their Social Media Marketing, Facebook, Twitter, Google+, YouTube and they have their own site, www.CFF.org. On most of these social media platforms the CFF are providing information about what new breakthroughs are being made in the research of CF. In addition, they also provide information about ways in which everyone can help out the cause and join walks and bike rides geared towards raising funds for research. On the YouTube page they provide many inspirational stories of people who have CF and struggle with it on a daily basis as well as informational videos.
  • 5. People with CF  A place to sign up for and take part in clinical trials or get connected to  specific medical facilities performing these trials  A place to share their story to help other like them and give them inspiration to keep fighting on  Most importantly give them HOPE  Family and Friends  A place where family and friends can get involved to help, charity functions like cycle rides for the cure and walks for the cure  A way for family and friends to interact and show that person who has this disease that they care and to give them strength to fight on.  A place to give donations to finding a cure
  • 6. Young Parents  For those who may be thinking about having a child and know they have a history of this disease in their family or have just had their first child that is diagnosed with CF, this SMM plan will have the resources and information to let them know what to expect and how to do the best things for their child  Comfort from the stories of others who have fought with this disease and have added more time onto their life, to know that CF is not a death sentence at the age of 18  General population  A sense of caring for others  A feeling of accomplishment in giving back to the (CF) community through volunteering and donations  Write off for tax purposes and helping others in the process
  • 7. In the beginning those SM platforms that are cheap and would not cut into operational costs would be used:  Facebook  Twitter  YouTube  After gaining momentum and capital to cover the operational costs a website would be put in place to demonstrate a professional appearance
  • 8. Posts would be created by the administrators of the page on an as needed basis or on breaking news or upcoming events but most of the content will come from the community  Posts would be on as needed basis. If naturally created content by the community is not being generated, the administrators of the page may create posts to encourage the community to get involved  Content on the page would include news on new groundbreaking procedures or medication, creative charity drives, upcoming walks or cycles for the cure, post content from these events
  • 9. All content distributed by the administrators will be in some way related to finding a cure for CF, fund raising, awareness, generating hope, news on treatment and anything else positive toward finding a cure for this disease  For Facebook most of the content here will be closely aligned with friends, family and those who have CF. Those who are on the CF Facebook page are people who have been dealing with this disease and are past the shock and awe of finding out a family member has a disease this is going to be a place to look toward the future and hope of a cure
  • 10. Many organizations have issues with the sites or pages they maintain, In the instance of something as sensitive as a life threatening disease most would hope that no one does anything to hurt an organization such as this. Comments posted on the page that are inappropriate and damaging to the families and people with CF will be removed. Our priority is to those suffering with this disease and to the friends and families of those suffering.
  • 11. Tweets would be created by the administrators of the twitter account with breaking news or upcoming events and would be very responsive to those following and tweeting to the account  Tweets(posts) would be would be much more aggressive due to the nature of Twitter. Our Twitter account will also follow anyone who follows our account  Content on the Twitter account would include news on new groundbreaking procedures or medication, creative charity drives, upcoming walks or cycles for the cure, post content from these events
  • 12. All content distributed by the administrators will be in some way related to finding a cure for CF, fund raising, awareness, generating hope, news on treatment and anything else positive toward finding a cure for this disease  Our target audience here is of course those who have CF and their friends and family, but on Twitter our real focus will be on the younger crowd
  • 13. Twitter should not come across too many “trolls” but in the case that we do experience someone attacking our cause it will be dealt with on a case by case basis. In most cases we can just ignore it and it will not affect our cause. Comments tweeted on our Twitter feed that are inappropriate and damaging to the families and people with CF will be removed. Again, our priority is to those suffering with this disease and to the friends and families of those suffering.
  • 14. Our administrators would control what videos are loaded onto the site and posts would come from our viewers.  The administrators would very rarely make a post on this site but videos would be posted as often as something positive to the fight against CF comes along  Our content here will most likely all be in an effort to pull at the heart strings of others to get people involved in our cause to cure CF, along with informational videos as well
  • 15. All content distributed by the administrators will be in some way related to finding a cure for CF, fund raising, awareness, generating hope, news on treatment and anything else positive toward finding a cure for this disease  Our target audience here is of course those who have CF and their friends and family, but on Twitter our real focus will be on the younger crowd
  • 16. Many organizations have issues with the sites or pages they maintain, In the instance of something as sensitive as a life threatening disease most would hope that no one does anything to hurt an organization such as this. Comments posted on the page that are inappropriate and damaging to the families and people with CF will be removed. Our priority is to those suffering with this disease and to the friends and families of those suffering.
  • 17. In every organization transparency with the public is important to maintain a certain level of trust, while protecting sensitive information  All posts on any of our social media networks will be focused on Cystic Fibrosis related issues and all posts will be quality checked  Any comments of negativity toward the organization will be evaluated, and if it in any way affects our members, it will be removed
  • 18. We need to take note of whether or not our social media marketing is effective  All of the social media platforms we would be using has built in analytics which will be a cost effective way  Looking forward, there are many other analytic tools that can be used when the organization needs to monitor all sites in one place