This document contains tweets from a TweetChat discussion about whether hospice organizations should have blogs and what they should write about. Some key points discussed include: - Blogs from hospice organizations could help introduce more people to hospice care and show that hospice provides comfortable deaths. - To stay HIPAA compliant, blogs would need to avoid sharing patient identifiers and personal experiences, and instead generalize situations and share stories with permission. - Suggestions for what hospice blogs could write about include explaining services, sharing staff and family stories/testimonials, and helping put a human face on hospice for the outside world.

1. 8/25/2010 TweetChat - #hpm
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jodyms @ctsinclair @renee_berry @docj @mpalso @compandchoices
@rebeccacaroe This is really important work & discussion. Thanks so much.
#hpm -9:04 PM Aug 25th, 2010
dockj RT @ctsinclair: Closing Thought: Hospice &Pall Med has a lot of focus
this summer but we must make a lasting good public impression #hpm -9:04 PM
Aug 25th, 2010
ctsinclair Good night everyone! Feel free to stay after class and continue
talking! #hpm -9:03 PM Aug 25th, 2010
renee_berry @dockj really??!! ... I think I could write about 'death panels'
for a year! :) #hpm -9:03 PM Aug 25th, 2010
ctsinclair Closing Thought: Hospice &Palliative Medicine has a lot of public
focus this summer but we must make a lasting good public impression #hpm -
9:03 PM Aug 25th, 2010
inhousehospice Good discussion tonight, all! Same time next week? ;) #hpm
-9:03 PM Aug 25th, 2010
CompAndChoices As always @ctsinclair, thanks for hosting and for the great
work you do. We appreciate you very much. #hpm -9:03 PM Aug 25th, 2010
renee_berry @mpalko I agree, I think there have been a few out there, I
know @ctsinclair knows of some. (you might find Art Buchwald interesting)
#hpm -9:03 PM Aug 25th, 2010
dockj I think the curse for most HPM blogs, is: What is controversial about
what they post? Very few firestorms. #hpm -9:02 PM Aug 25th, 2010
ctsinclair @mpalko They are probably blogging on CaringBridge, Blogger and
other sites. Not well publicized. Here are 2: http://bit.ly/9V4hK1 #hpm -9:02
PM Aug 25th, 2010
renee_berry & that's a thanks for everyone who participates in this because I
honestly think it has a strong potential for meaningful impact! #hpm -9:02 PM Aug
25th, 2010
http://tweetchat.com/room/hpm 1/21

2. 8/25/2010 TweetChat - #hpm
renee_berry More authentic dedicated #hospice & #palliative medicine
professionals engaging in social media will create greater public awareness of
#hpm -9:00 PM Aug 25th, 2010
mpalko @renee_berry wondering if those receiving #hospice care are
blogging. That might shed a diffrent light on it for JQ Public #hpm -9:00 PM Aug
25th, 2010
CompAndChoices Facebook "like" button can cool commenting, but if you
generate content that looks discussion, that helps a lot. #hpm -9:00 PM Aug 25th,
2010
dockj But it's a tweetchat last right to do last thoughts... #hpm -9:00 PM Aug 25th,
2010
ctsinclair (maybe I should rename 'last thoughts' for this group [grin]) #hpm -
8:59 PM Aug 25th, 2010
dockj Blogs must track Retweets, Likes #hpm -8:59 PM Aug 25th, 2010
ctsinclair OK, class got delayed a bit but I want to be respectful of everyone's
time. Let's wrap up with last thoughts... #hpm -8:58 PM Aug 25th, 2010
dockj Since "like" showed up, comments are much less common #hpm -8:58 PM
Aug 25th, 2010
chemosabe @ctsinclair that and tend to get alot of personal thoughts
experience rather than fact, science and evidence #hpm -8:58 PM Aug 25th, 2010
ctsinclair RT @dockj: The dreaded FaceBook "like" button curse "Greatly
diminishes commenting" #hpm -8:58 PM Aug 25th, 2010
ctsinclair @CompAndChoices Oh you were talking about @alivehospice and
2-3k hits? Was that blog or whole site? #hpm -8:58 PM Aug 25th, 2010
rebeccacaroe @CompAndChoices agreed. Definitely a need for end-of-life
care blogging #hpm -8:58 PM Aug 25th, 2010
renee_berry @mpalko I think a lot of people enter hospice for very personal
or specific reasons, this creates dedicated workers= insightful blogs #hpm -
8:58 PM Aug 25th, 2010
http://tweetchat.com/room/hpm 2/21

3. 8/25/2010 TweetChat - #hpm
dockj The dreaded FaceBook "like" button curse #hpm -8:57 PM Aug 25th, 2010
ctsinclair @chemosabe forums tend to feel more 'niche and closed' to me
compared to a blog. #hpm -8:57 PM Aug 25th, 2010
CompAndChoices @ctsinclair Bummer. Maybe there's someone doing end-of-
life care blogging in-general that would be a good candidate? #hpm -8:57 PM Aug
25th, 2010
rebeccacaroe @CompAndChoices interesting still getting visitors and NO
new content. Has long life. Seekers? #hpm -8:57 PM Aug 25th, 2010
ctsinclair RT @mpalko: @renee_berry I recently met a nurse who was
leaving hospital-based pt care for #hospice She was SO excited about it.
#hpm -8:56 PM Aug 25th, 2010
renee_berry I've been a long time blog lurker, only recently started
commenting RT @ctsinclair @AliveHospice has very few comments on their
blog? #hpm -8:56 PM Aug 25th, 2010
ctsinclair @CompAndChoices I have been trying to find hospiceguy but he no
longer answers his email. #hpm -8:56 PM Aug 25th, 2010
LifeHealthDiary @edgery RT @CompAndChoices: A lot of people don't know
what hospice is. Blogging could definitely introduce hospice to new audiences.
#hpm -8:56 PM Aug 25th, 2010
jodyms @TWITTER?? in middle of #HPM chat. -8:56 PM Aug 25th, 2010
ctsinclair RT @LifeHealthDiary: #hpm just did web search for hospice blog -
"@Pallimed list of hospice related blogs http://bit.ly/avJBWm"; #hpm -8:56
PM Aug 25th, 2010
mpalko @renee_berry I recently met a nurse who was leaving hospital-based
pt care for #hospice She was SO excited about it. #Blogging #hpm -8:56 PM Aug
25th, 2010
CompAndChoices @ctsinclair looks like they're getting about 2-3k unique
visitors a month according to Statsaholic. #hpm -8:55 PM Aug 25th, 2010
rebeccacaroe @chemosabe purpose of consumer forum different from blog
purpose #hpm -8:55 PM Aug 25th, 2010
http://tweetchat.com/room/hpm 3/21

4. 8/25/2010 TweetChat - #hpm
rebeccacaroe RT @SheyontheBay: @rebeccacaroe GREAT!! (and now youre
the one doing the teaching!). blogging is my specialist subject of choice!
#hpm -8:55 PM Aug 25th, 2010
chemosabe T3 hi new to this chat. There are plenty of consumer forums out
there. Does this not acheive similar dis/information to an org blog? #hpm -8:55
PM Aug 25th, 2010
edgery RT @CompAndChoices: A lot of people don't know what hospice is.
Blogging could definitely introduce hospice to new audiences. #hpm -8:55 PM Aug
25th, 2010
rebeccacaroe RT @SheyontheBay: WE could start the blog! - blogger of the
week! #hpm -8:54 PM Aug 25th, 2010
renee_berry #cool #shoutout ! RT @ctsinclair: Best example of a #hospice
org #blog @AliveHospice http://alivehospice.org/blog/ #hpm -8:54 PM Aug 25th,
2010
LifeHealthDiary #hpm just did web search for 'hospice blog' and V few -
many started 2008/9 and not continued. why? -8:54 PM Aug 25th, 2010
CompAndChoices It would be good for a hospice blogger to become part of a
#hcr group blog as well, to widen the audience even more. #hpm -8:54 PM Aug
25th, 2010
SheyontheBay @rebeccacaroe GREAT!! (and now you're the one doing the
teaching!) #hpm -8:54 PM Aug 25th, 2010
ctsinclair RT @rebeccacaroe: Take a look http://www.hospiceblog.org/ "A
once-great blog, sadly dormant for over a year" #hpm -8:54 PM Aug 25th, 2010
SheyontheBay WE could stat the blog! - blogger of the week! #hpm -8:53 PM
Aug 25th, 2010
ctsinclair But @AliveHospice has very few comments on their blog? Wonder if
they are getting hits, but everyone lurking, not commenting. #hpm -8:53 PM Aug
25th, 2010
renee_berry agree RT @CompAndChoices: A lot of people dont know what
#hospice is. #Blogging could definitely introduce hospice to new audiences.
#hpm -8:52 PM Aug 25th, 2010
http://tweetchat.com/room/hpm 4/21

5. 8/25/2010 TweetChat - #hpm
rebeccacaroe Take a look http://www.hospiceblog.org/ #hpm -8:52 PM Aug
25th, 2010
ctsinclair Best example of a hospice org blog @AliveHospice
http://alivehospice.org/blog/ #hpm -8:52 PM Aug 25th, 2010
renee_berry @rebeccacaroe agree!!! Wouldn't it be great to have a voice to
the fact that Hospice is more than the common perception of 'depressing'
#hpm -8:51 PM Aug 25th, 2010
ctsinclair Just kidding, it is working again. We'll keep tweeting until 9pm
#hpm -8:51 PM Aug 25th, 2010
CompAndChoices A lot of people don't know what hospice is. Blogging could
definitely introduce hospice to new audiences. #hpm -8:51 PM Aug 25th, 2010
rebeccacaroe @MeredithGould its back on line. Twitter problem #500 #hpm
-8:50 PM Aug 25th, 2010
LifeHealthDiary @subatomicdoc @rebeccacaroe yes use blog to tell 'stories'
about real life (with permission) #hpm #HIPAA -8:50 PM Aug 25th, 2010
BeverlySTho Late Hello :) T3- I think blogs from hospice organizations could
be an awesome opportunity to show that comfortable deaths happen #hpm...
-8:50 PM Aug 25th, 2010
CompAndChoices Should hospices blog? Absolutely. Explain hospice goals
and services. Family testimonials, etc. #hpm -8:50 PM Aug 25th, 2010
ctsinclair Looks like Twitter was over-capacity. The rest of Tweetchat class
will be outside. See you next week! #hpm -8:49 PM Aug 25th, 2010
dockj fail whale #hpm -8:49 PM Aug 25th, 2010
renee_berry internal server error for everyone I assume! :( #hpm -8:49 PM Aug
25th, 2010
rebeccacaroe @subatomicdoc write about the staff, interview family
members, show photographs of hospice / garden / gifts. Play music, podcast
#hpm -8:49 PM Aug 25th, 2010
http://tweetchat.com/room/hpm 5/21

6. 8/25/2010 TweetChat - #hpm
MeredithGould Don't seem to be able to post to #HPM -8:49 PM Aug 25th, 2010
dockj RT @subatomicdoc: @ctsinclair T3: this is where I struggle as a
clinician. How do you #blog and stay #HIPAA compliant? #hpm -8:49 PM Aug 25th,
2010
SheyontheBay @subatomicdoc HIPAA definition includes pt identifiers - no
pics-no names-no locations, etc #hpm -8:49 PM Aug 25th, 2010
ctsinclair @subatomicdoc I don't blog about personal experiences. I
generalize the situation as much as possible for @Pallimed #hpm -8:49 PM Aug
25th, 2010
CompAndChoices RT @renee_berry: Late Hello :) T3- I think blogs from
hospice organizations could be an awesome opportunity to show that
comfortable deaths happen #hpm -8:49 PM Aug 25th, 2010
renee_berry Late Hello :) T3- I think blogs from hospice organizations could
be an awesome opportunity to show that comfortable deaths happen #hpm -
8:48 PM Aug 25th, 2010
subatomicdoc @ctsinclair T3: this is where I struggle as a clinician. How do
you #blog and stay #HIPAA compliant? #hpm -8:44 PM Aug 25th, 2010
renee_berry RT @ctsinclair: Moving on to Topic #3: Should hospice
organizations have blogs? And if so what should they write about? #hpm -8:44
PM Aug 25th, 2010
CompAndChoices Oops..forgetting #hpm. Sorry gang. -8:44 PM Aug 25th, 2010
rebeccacaroe @ctsinclair Purpose of hospice blog: to put human face to
outside world by providing insight into daily life. DEFINITELY #hpm -8:44 PM Aug
25th, 2010
inhousehospice RT @dockj: more exposure=more opportunity to see peaceful
death=more understanding #hpm -8:43 PM Aug 25th, 2010
dockj RT @ctsinclair: Moving on to Topic #3: Should hospice organizations
have blogs? And if so what should they write about? #hpm -8:43 PM Aug 25th, 2010
http://tweetchat.com/room/hpm 6/21

7. 8/25/2010 TweetChat - #hpm
LifeHealthDiary @SheyontheBay I'm thinking of PC Road Show ever thought
of working online via patient groups? They have HUGE blog followinngs #hpm -
8:43 PM Aug 25th, 2010
dockj more exposure=more opportunity to see peaceful death=more
understanding #hpm -8:43 PM Aug 25th, 2010
LifeHealthDiary RT @jodyms: Unfortunately medical ed often separates
patient from real-life family context. Not one patient has cancer. Family does.
#hpm -8:43 PM Aug 25th, 2010
jodyms RT @ctsinclair: @SheyontheBay A peaceful passing is a good advert,
but like Woody Allen said (parphrase): 'I want to die peacefully, just not now."
#hpm -8:42 PM Aug 25th, 2010
ctsinclair Moving on to Topic #3: Should hospice organizations have blogs?
And if so what should they write about? #hpm -8:42 PM Aug 25th, 2010
CompAndChoices @jodyms Loved ones are the consumers, too. All involved
need to be empowered to ask questions and get info. #hpm -8:42 PM Aug 25th, 2010
dockj RT @jodyms: Unfortunately medical ed often separates patient from
real-life family context. Not one patient has cancer. Family does. #hpm -8:41 PM
Aug 25th, 2010
CompAndChoices Peaceful death is optimum RT @SheyontheBay (I come
from hospice perspective):witness of a peaceful passing is the best
advertisement. #hpm -8:41 PM Aug 25th, 2010
subatomicdoc RT @jodyms: Unfortunately medical education often separates
'patient' from real-life 'family context. Not one 'patient' has cancer. Family
does. #hpm -8:41 PM Aug 25th, 2010
ctsinclair RT @jodyms: Not one patient has cancer. Family does. "Life-
threatening illness affects more than just patient, true" #hpm -8:41 PM Aug 25th,
2010
LifeHealthDiary join us now in Tweetchat #hpm http://is.gd/eDXje Hospice
and Palliative Medicine weekly chat -8:41 PM Aug 25th, 2010
SheyontheBay I'm thinking of PC Road Show - in local libraries, PTAs - got a
"gotcha" draw of a name??? :) #hpm -8:40 PM Aug 25th, 2010
http://tweetchat.com/room/hpm 7/21

8. 8/25/2010 TweetChat - #hpm
ctsinclair RT @SheyontheBay: @ctsinclair Only if they know its available!
Back to mainstream media...and OUTREACH before the crisis "Yes!" #hpm -8:40
PM Aug 25th, 2010
jodyms Unfortunately medical education often separates 'patient' from real-
life 'family context. Not one 'patient' has cancer. Family does. #hpm -8:40 PM Aug
25th, 2010
ctsinclair @SheyontheBay A peaceful passing is a good advert, but like
Woody Allen said (parphrase): 'I want to die peacefully, just not now." #hpm -
8:39 PM Aug 25th, 2010
SheyontheBay @ctsinclair Only if they know it's available! Back to
mainstream media...and OUTREACH before the crisis #hpm -8:38 PM Aug 25th, 2010
inhousehospice RT @SheyontheBay: @rebeccacaroe: For hospital amins,
early palliative care minimizes the revolving door of hospital admissions
#hpm -8:38 PM Aug 25th, 2010
rebeccacaroe RT @SheyontheBay: @lifehealthdiary: For hospital amins,
early palliative care minimizes the revolving door of hospital admissions
#hpm -8:38 PM Aug 25th, 2010
jodyms So much funding based on cure but not enough understanding of QOL
when cure & #PM not available for people NOW #hpm -8:38 PM Aug 25th, 2010
ctsinclair @SheyontheBay If that were true I would imagine palliative care
taking off like wildfire and ebing demanded by pt/fam. My exp: not so. #hpm -
8:37 PM Aug 25th, 2010
SheyontheBay @rebeccacaroe: For hospital amins, early palliative care
minimizes the revolving door of hospital admissions #hpm -8:37 PM Aug 25th, 2010
subatomicdoc RT @jodyms: Survivor understanding & survivor family
understanding of #HPM? huge. Many misunderstanding. -8:37 PM Aug 25th, 2010
rebeccacaroe @SheyontheBay So, family involvement is key support tool? I
am trying to improve our app and this is REALLY helpful #hpm -8:37 PM Aug 25th,
2010
http://tweetchat.com/room/hpm 8/21

9. 8/25/2010 TweetChat - #hpm
dockj RT @ctsinclair: RT @jodyms: Survivor understanding & survivor family
understanding of #HPM? huge. Many misunderstanding. "Good point" #hpm -
8:37 PM Aug 25th, 2010
MeredithGould RT @SheyontheBay: (I come from hospice
perspective):witness of a peaceful passing is the best advertisement. #hpm -
8:37 PM Aug 25th, 2010
ctsinclair RT @jodyms: Survivor understanding & survivor family
understanding of #HPM? huge. Many misunderstanding. "Good point" #hpm -
8:36 PM Aug 25th, 2010
SheyontheBay (I come from hospice perspective):witness of a peaceful
passing is the best advertisement. #hpm -8:36 PM Aug 25th, 2010
ctsinclair @rebeccacaroe But the story from the media was all headlines and
hyperbole. Google 'morphine cancer' and you see poor research #hpm -8:36 PM
Aug 25th, 2010
rebeccacaroe @ctsinclair thx. Will read quickly #hpm -8:36 PM Aug 25th, 2010
jodyms Survivor understanding & survivor family understanding of #HPM?
huge. Many misunderstanding. -8:35 PM Aug 25th, 2010
SheyontheBay Families who participate in care, decisions, etc and witness
symptoms managed and Improved QOL tell everyone - so do those NOT happy
#hpm -8:35 PM Aug 25th, 2010
dockj 10000 foot view from hospital admin does not equal troop view #hpm -
8:35 PM Aug 25th, 2010
ctsinclair @rebeccacaroe There was a story about morphine making #cancer
worse that @geripalblog debunked http://bit.ly/b7ekzA #hpm -8:35 PM Aug 25th,
2010
dockj How that is provided in a context of payment and administration is what
keeps our mission moving forward. #hpm -8:34 PM Aug 25th, 2010
ctsinclair RT @rebeccacaroe: @ctsinclair media attention is a poor measure
of research success IMO 'but public opinion/awareness important' #hpm -8:34 PM
Aug 25th, 2010
http://tweetchat.com/room/hpm 9/21

10. 8/25/2010 TweetChat - #hpm
mcgaula RT @ctsinclair: RT @jodyms:Simple (seemingly) concept: when
survivors eat, sleep, have pain managed, & anxiety lessened? QOL increases
#hpm -8:33 PM Aug 25th, 2010
jodyms RT @dockj: Separate mission from margin. How we help each patient,
one by one, is most important. #hpm -8:33 PM Aug 25th, 2010
ctsinclair RT @jodyms:Simple (seemingly) concept: when survivors eat, sleep,
have pain managed, & anxiety lessened? QOL increases #hpm -8:33 PM Aug 25th,
2010
tymeyer RT @ctsinclair: Interesting though this study would't have had the
media attention w/o improved survival piece (which was 2nd analysis) #hpm -
8:33 PM Aug 25th, 2010
rebeccacaroe @ctsinclair media attention is a poor measure of research
success IMO #hpm -8:33 PM Aug 25th, 2010
dockj Separate mission from margin. How we help each patient, one by one,
is most important. #hpm -8:33 PM Aug 25th, 2010
jodyms @ctsinclair @erinrbreedlove Simple (seemingly) concept: when
survivors eat, sleep, have pain managed, & anxiety lessened? QOL increases
#hpm -8:32 PM Aug 25th, 2010
rebeccacaroe @erinrbreedlove grin. Thanks. learning fast with you guys!
#hpm -8:32 PM Aug 25th, 2010
subatomicdoc RT @rebeccacaroe: @ctsinclair Thanks. So collaboration
around each patient is *essential* #hpm -8:32 PM Aug 25th, 2010
ctsinclair Interesting though t this study would not have had the media
attention w/o improved survival piece (which was secondary analysis) #hpm -
8:32 PM Aug 25th, 2010
subatomicdoc RT @SheyontheBay: For #hpm workers, Hospital admins -
focus on improved outcoms, pt/family satisfaction, reduced cost #hpm -8:31 PM
Aug 25th, 2010
rebeccacaroe @SheyontheBay any proof for hospital admins that
patient/family engagement with care process reduces costs / improves
outcomes? #hpm -8:31 PM Aug 25th, 2010
http://tweetchat.com/room/hpm 10/21

11. 8/25/2010 TweetChat - #hpm
ctsinclair RT @rebeccacaroe: @ctsinclair So collaboration around each
patient is *essential* 'Palliative care does communication/collab well!' #hpm -
8:31 PM Aug 25th, 2010
erinrbreedlove @rebeccacaroe You hit the nail on the head. :) #hpm -8:31 PM
Aug 25th, 2010
SheyontheBay For #hpm workers, Hospital admins - focus on improved
outcoms, pt/family satisfaction, reduced cost #hpm -8:30 PM Aug 25th, 2010
rebeccacaroe @ctsinclair Thanks. So collaboration around each patient is
*essential* #hpm -8:30 PM Aug 25th, 2010
ctsinclair RT @dockj: We all do what we do & that will not change what HPM
is/does. Article served as wake up for some outsiders, then worth it. #hpm -
8:30 PM Aug 25th, 2010
rebeccacaroe RT @SheyontheBay: @rebeccacaroe : Were ALL learning! :)
#hpm -8:29 PM Aug 25th, 2010
rebeccacaroe RT @dockj: We all do what we do, that will not change what
HPM is/does. Article served as wake up for outsiders, then worth it. #hpm -8:29
PM Aug 25th, 2010
ctsinclair @rebeccacaroe Palliative care is usually a team approach pulling
from one medical dept, but other disciplines #hpm -8:29 PM Aug 25th, 2010
SheyontheBay @rebeccacaroe : We're ALL learning! :) #hpm -8:29 PM Aug 25th,
2010
ctsinclair Here is the other one from @DiscoverMag http://bit.ly/dl1yAC
(RE: Gawande writing style from NYT article) #hpm #hcsm -8:28 PM Aug 25th, 2010
erinrbreedlove RT @ctsinclair: RT @tymeyer: When I return to wk tmrw, will
be focused on improved QOL & improvement in symptoms as opposed to
survival #hpm -8:28 PM Aug 25th, 2010
rebeccacaroe is Palliative care delivered by one department or a range of
individuals (excuse ignorance - learning) #hpm -8:28 PM Aug 25th, 2010
http://tweetchat.com/room/hpm 11/21

12. 8/25/2010 TweetChat - #hpm
dockj We all do what we do, and that will not change what HPM is/does.
Article served as wake up for some outsiders, then worth it. #hpm -8:27 PM Aug
25th, 2010
MeredithGould <--Late...thanks to yet another bunch o' hours w/Verizon.
Where's the palliative care for THAT?!? #hpm -8:27 PM Aug 25th, 2010
SheyontheBay Think focus should be on main fears abut dying:
abandonment, pain, air hunger, for patients and families - #hpm -8:27 PM Aug 25th,
2010
subatomicdoc RT @ctsinclair: RT @tymeyer: When I return to work
tomorrow, will be focusing on improved QOL and improvement in symptoms as
opposed to survival #hpm -8:27 PM Aug 25th, 2010
ctsinclair Found one of them from Wachter's World http://bit.ly/dky2vy
(Gawande writing style) #hpm #hcsm -8:27 PM Aug 25th, 2010
sharingstrength Sorry to miss #hpm chat tonight. Too much work. (but
exciting stuff) -8:27 PM Aug 25th, 2010
ctsinclair RT @tymeyer: When I return to work tomorrow, will be focusing on
improved QOL and improvement in symptoms as opposed to survival #hpm -
8:26 PM Aug 25th, 2010
inhousehospice RT @dockj: T2b - Anything that strong to rattle the cage, you
have to push the shock factor. "Good point" #hpm -8:26 PM Aug 25th, 2010
subatomicdoc @ctsinclair I'm in a smaller community hospital with interest in
#hpm but nascent. This news is a good stimulus with motivated admins. -8:26
PM Aug 25th, 2010
erinrbreedlove T2: And because of that, I think the study sheds light on the
fact that when pts are treated as ppl, they live longer and are happy #hpm -
8:26 PM Aug 25th, 2010
jodyms @ctsinclair I've got them starred. I'll go get them. #HPM -8:26 PM Aug
25th, 2010
dockj T2b - Anything that strong to rattle the cage, you have to push the
shock factor. #hpm -8:25 PM Aug 25th, 2010
http://tweetchat.com/room/hpm 12/21

13. 8/25/2010 TweetChat - #hpm
erinrbreedlove T2: Probably not, but PC is one of the most underappreciated
yet effective specialties in medicine. Palliative care is about people. #hpm -
8:25 PM Aug 25th, 2010
tymeyer When I return to work tomorrow, will be focusing on improved QOL
and improvement in symptoms as opposed to survival, esp with our Oncs
#hpm -8:25 PM Aug 25th, 2010
inhousehospice T2b: True. We want to emphasize quality vs. quantity. But
maybe that's not what people want to hear. #hpm -8:25 PM Aug 25th, 2010
ctsinclair @jodyms I have seen a couple articles deconstructing Gawande
writing style. Will try and find links. #hpm -8:25 PM Aug 25th, 2010
SheyontheBay Getting good coverage inNY - mainstream mags, NYTimes
#hpm -8:25 PM Aug 25th, 2010
ctsinclair @subatomicdoc How was it taken?Do you not have an active
palliative care team now? Outpt/Inpt? #hpm -8:24 PM Aug 25th, 2010
subatomicdoc @erinrbreedlove I agree, just hypothesizing #hpm -8:24 PM Aug
25th, 2010
jodyms Both Gawande article & NEJM terrific teaching moments RT @ctsinclair
Topic 2: Did NEJM study on early PC in LC get adequate attn? #hpm -8:24 PM Aug
25th, 2010
inhousehospice T2: Probably not. But we've all been posting everywhere:
twitter, FB, website, linkedin, newsletter... Phew. It's gotten around. #hpm -
8:24 PM Aug 25th, 2010
ctsinclair @dockj Funny! #hpm -8:24 PM Aug 25th, 2010
dockj RT @erinrbreedlove: @ctsinclair Link, please? Missed it due to school!
:( <- obviousy not!!! LOL #hpm -8:23 PM Aug 25th, 2010
ctsinclair @erinrbreedlove http://www.pallimed.org/2010/08/game-
changer-early-palliative-care-for.html #hpm -8:23 PM Aug 25th, 2010
http://tweetchat.com/room/hpm 13/21

14. 8/25/2010 TweetChat - #hpm
ctsinclair Topic 2b) Did the right message get out? Some are saying too much
focus on survival gains could be hard to prove again, wrong message #hpm -
8:22 PM Aug 25th, 2010
subatomicdoc @ctsinclair I brought the NEJM article up with a hospital VP to
review and implement #hpm -8:22 PM Aug 25th, 2010
dockj RT @ctsinclair: T 2: One week after the release of the @NEJM study
about early PC in Lung Ca, did it get the attention it needed? #hpm -8:22 PM Aug
25th, 2010
erinrbreedlove @ctsinclair Link, please? Missed it due to school! :( #hpm -
8:21 PM Aug 25th, 2010
dockj T1 problem isn't proof of, it's disproving... #hpm -8:21 PM Aug 25th, 2010
ctsinclair OK Moving on to Topic 2: One week after the release of the @NEJM
study about early PC in Lung Ca, did it get the attention it needed? #hpm -8:21
PM Aug 25th, 2010
inhousehospice RT @dockj: T1- the power of suggestion and the strong
desire to believe makes any research with animal behavior shaky at best.
#hpm -8:20 PM Aug 25th, 2010
erinrbreedlove @subatomicdoc It's possible, but to say that they are able to
accurately predict death is a bit of a stretch right now, I think. #hpm -8:20 PM
Aug 25th, 2010
dockj RT @ctsinclair: may be many cognitive biases at work with seeing Oscar
predict. Looking at False Positives and False Negatives.... #hpm -8:20 PM Aug 25th,
2010
ctsinclair RT @dockj: T1- the power of suggestion and the strong desire to
believe makes any research with animal behavior shaky at best. #hpm -8:20 PM
Aug 25th, 2010
jodyms TY @ctsinclair @jodyms Hey Jody - Talking about the upcoming film
about Oscar the Cat who predicts death in NH patients #hpm -8:19 PM Aug 25th,
2010
dockj T1- the power of suggestion and the strong desire to believe makes any
research with animal behavior shaky at best. #hpm -8:19 PM Aug 25th, 2010
http://tweetchat.com/room/hpm 14/21

15. 8/25/2010 TweetChat - #hpm
ctsinclair I suspect their may be many cognitive biases at work with 'seeing'
Oscar predict. Looking at False Positives and False Negatives.... #hpm -8:19 PM
Aug 25th, 2010
inhousehospice @tymeyer Congrats on the new baby! #hpm -8:18 PM Aug 25th,
2010
ctsinclair @subatomicdoc Or maybe animals are picking up on the human
activity too? Patient, family, staff. #hpm -8:18 PM Aug 25th, 2010
ctsinclair Has anyone here read the book about Oscar?
http://amzn.to/ccT59Z #hpm -8:17 PM Aug 25th, 2010
dockj RT @tymeyer: @ctsinclair Two weeks old tomorrow. Shes good,
sleeping as well as could be expected< awww congrats daddy-o! #hpm -8:17 PM
Aug 25th, 2010
subatomicdoc @erinrbreedlove Do you think there might be a death
pheromone that certain animals might be able to smell? #hpm -8:17 PM Aug 25th,
2010
tymeyer @ctsinclair Two weeks old tomorrow. She's good, sleeping as well as
could be expected #hpm -8:16 PM Aug 25th, 2010
ctsinclair @ctsinclair I think it would be reasonable to study Oscar. Shouldn't
be hard to do with a little private grant. #hpm -8:16 PM Aug 25th, 2010
dockj T1- let's not forget we now have a CAM branch of NIH... #hpm -8:16 PM Aug
25th, 2010
subatomicdoc @tymeyer Hi Ty #hpm -8:16 PM Aug 25th, 2010
ctsinclair @tymeyer Welcome Ty, how's the new baby? #hpm -8:15 PM Aug 25th,
2010
subatomicdoc @dockj LOL. I doubt this would make the cutoff @NIH. Private
funding makes sense. #hpm -8:15 PM Aug 25th, 2010
rebeccacaroe I have a question: in hospice / palliative care do you need to
co-ordinate patient records with several care-givers not in 1 location? #hpm -
8:15 PM Aug 25th, 2010
http://tweetchat.com/room/hpm 15/21

16. 8/25/2010 TweetChat - #hpm
jodyms Cover story of Time mag a few weeks ago --What do Animals think:
http://www.time.com/time/health/article/0,8599,2008759,00.html #hpm
-8:14 PM Aug 25th, 2010
ctsinclair RT @dockj: T1 if an octopus can call world cup 'Animals and
prediction, the Greeks used to look at innards, now we r more humane!' #hpm
-8:14 PM Aug 25th, 2010
tymeyer Hello All, Ty here from Victoria, TX. HPM doc #hpm -8:14 PM Aug 25th, 2010
inhousehospice @ctsinclair I think animals can sense changes in people.
Sense death? Not so sure. It's worth looking into, yes. #hpm -8:14 PM Aug 25th,
2010
dockj RT @subatomicdoc: @ctsinclair Nothing wrong with studying it. The
issue will be obtaining funding. #hpm #clinicaltrial<-if pvt funded. #hpm -8:14
PM Aug 25th, 2010
tymeyer RT @dockj: T1 if an octopus can call world cup games.... True #hpm
-8:14 PM Aug 25th, 2010
erinrbreedlove @ctsinclair I don't think that animals can necessarily predict
DEATH, but they may detect certain frequent symptoms. Study all you want
#hpm -8:13 PM Aug 25th, 2010
subatomicdoc @ctsinclair Nothing wrong with studying it. The issue will be
obtaining funding. #hpm #clinicaltrial -8:13 PM Aug 25th, 2010
ctsinclair @jodyms Hey Jody - Talking about the upcoming film about Oscar
the Cat who predicts death in NH patients #hpm -8:13 PM Aug 25th, 2010
dockj T1 if an octopus can call world cup games.... #hpm -8:13 PM Aug 25th, 2010
ctsinclair RT @rebeccacaroe: In UK we call stories like Oscar that debut in
August the "Silly Season" = no real news! "Good point, quite likely" #hpm -8:12
PM Aug 25th, 2010
jodyms Coming in to chat late #HPM -8:12 PM Aug 25th, 2010
ctsinclair Do you think animals have a sense about predicting the impending
death of a person? Should we study it if docs are not always accurate? #hpm -
8:12 PM Aug 25th, 2010
http://tweetchat.com/room/hpm 16/21

17. 8/25/2010 TweetChat - #hpm
rebeccacaroe In UK we call stories like Oscar that debut in August the "Silly
Season" = no real news! #hpm #hpm -8:11 PM Aug 25th, 2010
bacigalupe RT @ctsinclair Topic #1: Oscar the death predicting cat is getting
a film. http://bit.ly/bXdfiW Good idea or bad idea? #hpm -8:11 PM Aug 25th, 2010
ctsinclair For more background reading later on Oscar the Cat here is the
@Pallimed post on the @NEJM article debut: http://bit.ly/cSRsfw #hpm -
8:10 PM Aug 25th, 2010
erinrbreedlove T1: Even the title's horribly inaccurate. Docs estimate TOD
based on sx's and knowledge, but it's even off at times! #hpm -8:10 PM Aug 25th,
2010
rebeccacaroe yes, in NZ it it lunchtime - perfect for #tweetchat ting #hpm
#hpm -8:10 PM Aug 25th, 2010
subatomicdoc Good idea but it's all in how they execute it. #hpm -8:09 PM Aug
25th, 2010
bacigalupe discovering #hpm @ctsinclair http://tweetchat.com/room/hpm
with Twitter account to see stream http://slidesha.re/d4aVII #hpm -8:09 PM
Aug 25th, 2010
rebeccacaroe I work for @lifeHealthDiary which is a personal health record
#phr app. #hpm -8:09 PM Aug 25th, 2010
ctsinclair (Hat tip to @Hospicepharmacy for the Oscar the Cat in the Movies
link) #hpm -8:09 PM Aug 25th, 2010
erinrbreedlove @rebeccacaroe Welcome! Delighted to have you...all the
way from NZ?! Wow! #hpm -8:08 PM Aug 25th, 2010
ctsinclair @rebeccacaroe Welcome ,please tell us a little about yourself
#hpm -8:08 PM Aug 25th, 2010
ctsinclair Topic #1: Oscar the death predicting cat is getting a film.
http://bit.ly/bXdfiW Good idea or bad idea? #hpm -8:08 PM Aug 25th, 2010
dockj RT @rebeccacaroe: just joining for the first time- welcome! #hpm -8:08
PM Aug 25th, 2010
http://tweetchat.com/room/hpm 17/21

18. 8/25/2010 TweetChat - #hpm
rebeccacaroe just joining for the first time #hpm -8:07 PM Aug 25th, 2010
ctsinclair Looks like we have a small group to start tonight, but same thing
happened last week and then it exploded! #hpm -8:07 PM Aug 25th, 2010
HealthIsSocial RT @nickdawson: RT @ctsinclair: Welcome to #HPM
tweetchat covering all thing hospice & palliative medicine w/ a little social
media thrown in for fun. -8:06 PM Aug 25th, 2010
ctsinclair @subatomicdigg Thanks for digging this story btw:
http://bit.ly/aDOXTp Got 242 diggs! #hpm -8:06 PM Aug 25th, 2010
nickdawson RT @ctsinclair: Welcome to #HPM tweetchat covering all thing
hospice & palliative medicine w/ a little social media thrown in for fun. -8:05 PM
Aug 25th, 2010
ctsinclair @subatomicdigg I was just messing around with logging in and
having a heck of a time. Interface is much more clunky/slow #hpm -8:05 PM Aug
25th, 2010
inhousehospice @ctsinclair Not yet. We're filming another tomorrow and I'll
be editing this weekend. Will let you know when they're up! :) #hpm -8:04 PM Aug
25th, 2010
subatomicdigg @ctsinclair Got it! Thanks, just adapting to @Digg's v4,
possible demise #hpm -8:04 PM Aug 25th, 2010
ctsinclair Hi Ash, Matt and Erin! Ash did you get your video up today? #hpm -
8:03 PM Aug 25th, 2010
dockj Kevin- Family Med Residency Ed, HPM/Geri-LTC jack of many trades...
#hpm -8:03 PM Aug 25th, 2010
subatomicdigg HI Matt Katz here #hpm -8:02 PM Aug 25th, 2010
ctsinclair @subatomicdoc Don't forget your #hpm tag (using Tweetchat
helps) -8:02 PM Aug 25th, 2010
ctsinclair [Tweetchat Tip] join us at http://tweetchat.com/room/hpm with
Twitter account to see the whole stream Howto: http://slidesha.re/d4aVII
#hpm -8:02 PM Aug 25th, 2010
http://tweetchat.com/room/hpm 18/21

19. 8/25/2010 TweetChat - #hpm
erinrbreedlove I'm Erin, a pre-medical student from GA heavily interested in
pall med and social media! #hpm -8:01 PM Aug 25th, 2010
inhousehospice Hey, hey! It's Ash @ In-House Hospice & Palliative Care in MI
and OH. #hpm -8:01 PM Aug 25th, 2010
ctsinclair Let's start with some introductions and see who is in the room
tonight! #hpm -8:00 PM Aug 25th, 2010
ctsinclair Welcome to #HPM tweetchat covering all thing hospice and
palliative medicine with a little social media thrown in for fun. #hcsm #hpm -
8:00 PM Aug 25th, 2010
mcgaula RT @ctsinclair: RT @SanDiegoHospice Leader talks about goals for
the one of largest nonprofit #hospice in the country http://bit.ly/9rU1IE
#palliative #hpm -7:34 PM Aug 25th, 2010
ctsinclair RT @SanDiegoHospice Leader talks about goals for the one of
largest nonprofit #hospice in the country http://bit.ly/9rU1IE #palliative
#hpm -7:33 PM Aug 25th, 2010
Pallimed Getting excited about #hpm Tweetchat come join us! in one hour at
8p CT #hospice #palliative #hcsm #RNchat -7:00 PM Aug 25th, 2010
DianeEMeier RT @CompAndChoices: Patientsusing POLST forms more likely
to have wishes honored http://ow.ly/2uQ3r What's POLST?
http://ow.ly/2uQ6A #hpm -6:55 PM Aug 25th, 2010
SheyontheBay RT @ctsinclair: RT @hospicepharmacy: Oscar the Death-
Predicting Cat Gets His Own Movie http://bit.ly/bU3JrW #hospice
#palliative #hpm 'really?' -6:38 PM Aug 25th, 2010
sharingstrength #hpm Tweetchat tonight 9pm EST! Come talk about
#hospice and #palliative medicine topics How to:
http://slidesha.re/9W47fF -5:58 PM Aug 25th, 2010
thaddeuspope @ctsinclair wish I could make it. Teaching EMTALA tonite
#hpm #hospice #palliative -5:44 PM Aug 25th, 2010
CompAndChoices Patientsusing POLST forms more likely to have end-of-life
wishes honored http://ow.ly/2uQ3r What's POLST? Go here:
http://ow.ly/2uQ6A #hpm -5:30 PM Aug 25th, 2010
http://tweetchat.com/room/hpm 19/21

20. 8/25/2010 TweetChat - #hpm
lprscp1 RT @ctsinclair: @haslingerppc Hope you can make it too, but family
is important too 'hope to make it tonight to" #hpm -4:57 PM Aug 25th, 2010
lprscp1 RT @ctsinclair: @haslingerppc Hope you can make it too, but family
is important too, will try and make it tonight #hpm -4:56 PM Aug 25th, 2010
lprscp1 RT @hospicepharmacy: missed in the Avastin debate: the
importance of early #palliative intervention was ignored
http://bit.ly/bOgznH #hpm -4:55 PM Aug 25th, 2010
lprscp1 looking for tweetchat tonight #hpm -4:54 PM Aug 25th, 2010
CompAndChoices Articulating the goals of hospice and educating the public
about palliative care: http://ow.ly/2uPFe #hpm -4:31 PM Aug 25th, 2010
dikakid Kalo puasa jgn lupa SAyUR, Spy gak LAyAR dan LEyES di siang hari
#HPM #mudah-mudahanadaygngerti #sawityowit @desta80s
@vincentrompies -4:13 PM Aug 25th, 2010
AYHFamilycare RT @SanDiegoHospice Leader talks about goals for the one
of largest nonprofit #hospices in the country http://bit.ly/9rU1IE #palliative
#hpm -4:04 PM Aug 25th, 2010
PRProSanDiego RT @SanDiegoHospice: Leader talks about goals for the one
of the largest nonprofit #hospices in the country (via @sdut)
http://bit.ly/9rU1IE #palliative #hpm -4:01 PM Aug 25th, 2010
hospicepharmacy Archimedes Pharma sets up shop in Bedminster, seeks
approval for nasal form of fentanyl http://bit.ly/bOj8oV #hpm #hospice -3:54
PM Aug 25th, 2010
hospicepharmacy What we missed in the Avastin debate: the importance of
early #palliative intervention was ignored http://bit.ly/bOgznH #hpm -3:53 PM
Aug 25th, 2010
hospicepharmacy Health Care Gap May Raise Rates of Colorectal Cancer
Death in Blacks http://bit.ly/bkYXoV #hospice #cancer #hpm -3:53 PM Aug 25th,
2010
hospicepharmacy Accreditation Council for CME provides input for FDA’s REMS
initiatives http://bit.ly/9JHPRC #hospice #hpm -3:52 PM Aug 25th, 2010
http://tweetchat.com/room/hpm 20/21

21. 8/25/2010 TweetChat - #hpm
erinrbreedlove @ctsinclair Whoosh. Long day. Hoping to relax with #hpm
chat tonight! ;) -3:40 PM Aug 25th, 2010
ctsinclair @haslingerppc Hope you can make it too, but family is important
too #hpm -3:31 PM Aug 25th, 2010
ctsinclair Thx for the #hpm Tweetchat RT's @MatthewBrowning @FHShealth
@hospicepharmacy @emarnold14 @KPNurseRecruit @haslingerppc
@inhousehospice -3:30 PM Aug 25th, 2010
MeredithGould #hpm Tweetchat! Come talk about #hospice and #palliative
medicine topics Wed @ 8pm CT How to: http://slidesha.re/9W47fF -3:23 PM
Aug 25th, 2010
MatthewBrowning RT @ctsinclair: #hpm Tweetchat! Come talk about
#hospice and #palliative medicine topics Wed @ 8pm CT How to:
http://slidesha.re/9W47fF -3:20 PM Aug 25th, 2010
http://tweetchat.com/room/hpm 21/21