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![PracticalWisdom RT @renee_berry: T1 I think many psychosocial issues R overlooked as pt's loose
ability 2 communicate, people still feel presence #HPM
Wed Mar 30 18:12:56 PDT 2011
KathyKastner RT @aliciabloom: challenge: helping families understand that dementia is a chronic,
yet ultimately terminal illness #hpm #eldercarechat
Wed Mar 30 18:13:09 PDT 2011
EldrcareConsult @renee_berry good point renee....communication is a big issue. what some may
see as "acting out" may be pain an suffering underneath #hpm
Wed Mar 30 18:13:16 PDT 2011
ctsinclair T1: challenges occur when patient has cancer or other sig disease as main illness
but dementia (mild to mod) impairs decision making #hpm
Wed Mar 30 18:13:31 PDT 2011
MatthewsMichele RT @EldrcareConsult: good point renee....commu is a big issue. what some may
see as "acting out" may be pain an suffering underneath #hpm
Wed Mar 30 18:14:02 PDT 2011
SheyontheBay RT @RossJeanette: Let’s start T1: what are some unique issues in caring for
patients with dementia? #hpm
Wed Mar 30 18:14:12 PDT 2011
renee_berry T1 I also think families grieve the loss of the person as dementia progresses &
sometimes don't 'see the point' in continuing to visit #hpm
Wed Mar 30 18:14:14 PDT 2011
PracticalWisdom ConfusionRT@EldrcareConsult:@renee_berry good pt. renee.com. is a big
issue.some may C as "acting out" may B pain suffering underneath #HPM
Wed Mar 30 18:14:42 PDT 2011
koehlerjo RT @ctsinclair: T1: challenges occur when pt has ca or other sig disease as main
illness but dementia (mild to mod) impairs dec makin #hpm
Wed Mar 30 18:14:53 PDT 2011
ctsinclair [OT My wife saw the laptop & said, "Oh I see you are talking to yr Twitter friends, I can
read the kids a book tonight." Thanks Kelly!] #hpm
Wed Mar 30 18:15:26 PDT 2011
MatthewsMichele @EldrcareConsult @renee_berry: agree when worked @ nursing home, even some
staff didnt get the psychosocial effect of dementia on pts #hpm
Wed Mar 30 18:15:30 PDT 2011
EldrcareConsult @renee_berry yeah avoidance is a huge issue i see with my GCM clients #hpm
Wed Mar 30 18:15:32 PDT 2011
aliciabloom @renee_berry agree! dementia is a disease of multiple losses along its trajectory
#hpm
Wed Mar 30 18:15:47 PDT 2011](https://image.slidesharecdn.com/20110330hpmtweetchattranscript-110630004234-phpapp02/75/2011-03-30-hpm-tweetchat-transcript-7-2048.jpg)
Uploaded byChristian Sinclair
2011 03 30 hpm tweetchat transcript
This document is a transcript of tweets from a #hpm (hospice and palliative medicine) tweetchat that took place on March 30, 2011 from 5:00-6:00pm PDT. Participants introduced themselves and discussed unique issues in caring for patients with dementia, including difficulty determining pain/discomfort and explaining functional decline given limitations of assessment scales. The chat focused on sharing knowledge and experience in hospice and palliative care.
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2011 03 30 hpm tweetchat transcript
- 1. #hpm Healthcare Hashtag TwitterTranscript From: Wed Mar 30 17:55:00 PDT 2011 To: Wed Mar 30 19:05:00 PDT 2011 Customize transcript dates and layout Learn more about #hpm at The Healthcare Hashtag Project healthpolicygrp RT @PracticalWisdom: Doing some reading getting ready for #HPM tonight. Future looking bright for my #HPM Folks. Important validation. h ... Wed Mar 30 17:55:18 PDT 2011 Kaviraj2 RT @renee_berry: Demand Grows for #Palliative Care http://ow.ly/4pZ1W via @DianeEMeier #hpm Wed Mar 30 17:56:17 PDT 2011 BuddhishMD Given that we will die is the ONLY thing we can all count on for sure, how could we not make it a #1 priority in medicine? #hpm #palliative Wed Mar 30 17:56:36 PDT 2011 KathyKastner Gr8 news abt Joint Commission and #hpm. http://tinyurl.com/4cfaql4 hope Canada follows suit. Wed Mar 30 17:59:17 PDT 2011 aliciabloom a few minutes away from the best hour on Twitter-- it's the #hospice & #palliative medicine tweetchat! #hpm Wed Mar 30 17:59:48 PDT 2011 ctsinclair Sending out last minute Tweetchat invites to @BuddishMD @Kaviraj2 @DianeEMeier @Ewidera @FischMD @Rabob @Dweissma #hpm Wed Mar 30 18:00:51 PDT 2011 KathyKastner 2 true! RT @aliciabloom: a few minutes away from the best hour on Twitter-- it's the #hospice & #palliative medicine tweetchat! #hpm Wed Mar 30 18:00:59 PDT 2011 ctsinclair RT @aliciabloom: a few minutes away from the best hour on Twitter-- its the #hospice & #palliative medicine tweetchat! "follow #hpm Wed Mar 30 18:01:17 PDT 2011 Intlphysicians RT @fischmd: Another new peer-reviewed journal: Journal of Adolescent and Young Adult Oncology, launches in April, http://ow.ly/4ntJi, #hpm #oncology
- 2. Wed Mar 3018:01:25 PDT 2011 renee_berry --> passionate about early palliative care & advance care planning, love this group! hi everyone! #hpm Wed Mar 30 18:01:55 PDT 2011 renee_berry :) RT @EldrcareConsult: We interrupt this program for a specail program.....its the #hospice & #palliative medicine tweetchat! #hpm Wed Mar 30 18:02:05 PDT 2011 EldrcareConsult We interrupt this program for a special announcement.....it's the #hospice & #palliative medicine tweetchat! #hpm Wed Mar 30 18:02:41 PDT 2011 RossJeanette For the next hour, Im tweeting from #hpm tweetchat. Feel free to lurk or join. Learn how http://bit.ly/dcA3ic #hpm Wed Mar 30 18:02:46 PDT 2011 DrSnit RT @EldrcareConsult: We interrupt this program for a special announcement.....it's the #hospice & #palliative medicine tweetchat! #hpm Wed Mar 30 18:03:11 PDT 2011 renee_berry RT @RossJeanette: For the next hour, Im tweeting from #hpm tweetchat. Feel free to lurk or join. Learn how http://bit.ly/dcA3ic #hpm Wed Mar 30 18:03:15 PDT 2011 DrSnit @EldrcareConsult LOL - nice. #hpm Wed Mar 30 18:03:21 PDT 2011 ctsinclair Hey @KUKidsHP @HaslingerPPC and @BuddishMD check out tweet from @FischMD *New* Journal of Adolescent/YA Oncology http://ow.ly/4ntJi #hpm Wed Mar 30 18:03:31 PDT 2011 RossJeanette Welcome to the Hospice and Palliative Medicine Tweetchat. I am your host Jeanette Ross Let’s start with some introductions #hpm Wed Mar 30 18:03:31 PDT 2011 ctsinclair RT @RossJeanette: For the next hour, Im tweeting from #hpm tweetchat. Feel free to lurk or join. Learn how http://bit.ly/dcA3ic #hpm Wed Mar 30 18:03:41 PDT 2011 PracticalWisdom Remember Romber Room. Sounds like Christian is looking for our Friends! I see @KathyKastner @EldrcareConsult @renee_berry @DrSnit, etc #HPM Wed Mar 30 18:03:41 PDT 2011 EldrcareConsult There I finally got my announcement right! #hpm Wed Mar 30 18:03:51 PDT 2011 ctsinclair Tweets are my Own (TAMO) #hpm Wed Mar 30 18:03:59 PDT 2011
- 3. ctsinclair And I see @PracticalWisdom being a smarty pants! #hpm Wed Mar 30 18:04:17 PDT 2011 revdoc RT @ctsinclair: For the next hour, Im tweeting from #hpm tweetchat. Feel free to lurk or join. Learn how http://bit.ly/dcA3ic #hpm Wed Mar 30 18:04:17 PDT 2011 DrSnit *Steals your tweets* *runs away* RT @ctsinclair: Tweets are my Own (TAMO) #hpm Wed Mar 30 18:04:22 PDT 2011 PracticalWisdom We are not picky it was great. Lisa The Rascal RT @EldrcareConsult: There I finally got my announcement right! #HPM Wed Mar 30 18:04:26 PDT 2011 Kaviraj2 RT @renee_berry: :) RT @EldrcareConsult: We interrupt this program for a specail program.....its the #hospice & #palliative medicine tweetchat! #hpm Wed Mar 30 18:04:37 PDT 2011 Kaviraj2 RT @renee_berry: --> passionate about early palliative care & advance care planning, love this group! hi everyone! #hpm Wed Mar 30 18:04:44 PDT 2011 EldrcareConsult Hi everyone! This is Shon from Knoxville, TN and I am a GCM and aspiring author! #hpm Wed Mar 30 18:04:44 PDT 2011 inhousehospice Hello, again! I'm Ash, marketing coordinator @inhousehospice & palliative care of MI & OH. :) #hpm Wed Mar 30 18:04:52 PDT 2011 equijada @RossJeanette Hi Jeanette. Earl here. Thanks for hosting. #hpm Wed Mar 30 18:05:09 PDT 2011 PracticalWisdom Lisa Curious Adult Education Scholar who morphs the ho-hum into compelling. Speaker, Trainer, Presentation Designer, #HPM Wed Mar 30 18:05:19 PDT 2011 RossJeanette I'm Jeanette Ross I'm HPM doctor in San Antonio TX, Associate HPM fellowship director @uthscsa passionate about teaching #hpm Wed Mar 30 18:05:21 PDT 2011 PracticalWisdom yes, thanks RT @equijada: @RossJeanette Hi Jeanette. Earl here. Thanks for hosting. #HPM Wed Mar 30 18:05:38 PDT 2011 renee_berry @Kaviraj2 great to see you here, are you joining our chat tonight? (group he's a great supporter of my live tweeting!!) #hpm Wed Mar 30 18:05:40 PDT 2011 MeriLizzie @DrSnit are you causing trouble again? #hpm Wed Mar 30 18:05:43 PDT 2011
- 4. ElusiveEm RT @ctsinclair: RT @RossJeanette: For the next hour, Im tweeting from #hpm tweetchat. Feel free to lurk or join. Learn how http://bit.ly ... Wed Mar 30 18:06:36 PDT 2011 renee_berry Hey Earl!!! Are you non-lurking tonight?! RT @equijada: @RossJeanette Hi Jeanette. Earl here. Thanks for hosting. #hpm Wed Mar 30 18:06:40 PDT 2011 ctsinclair I just posted a link to http://tweetchat.com/room/hpm and invited my FB friends to come. Don't know ROI, but something to try #hpm Wed Mar 30 18:06:44 PDT 2011 revdoc @equijada Hi, Earl--Pam Harris from KC here #hpm Wed Mar 30 18:06:46 PDT 2011 KathyKastner Hello to all wonderful #hpm-ers. Health blogger and working on app to help facilitate completing AD. (possibly also Looking for trouble :) Wed Mar 30 18:06:55 PDT 2011 MatthewsMichele Hi everyone! Michele here: a #socialmedia junkie, #pr , #healthpolicy communications, and #hpm enthusiast now working for @klxmedia #hpm Wed Mar 30 18:06:58 PDT 2011 EldrcareConsult <-----the aspiring author sits back in from of the fire and smokes his pipe..... :) #hpm Wed Mar 30 18:07:13 PDT 2011 ctsinclair Hi all, Christian Sinclair, palliative care MD @KCHospice, editor @Pallimed, founder/CEO @KLXmedia, advocate for @NHDD, dancer #hpm Wed Mar 30 18:07:45 PDT 2011 jsequoia RT @BuddhishMD: Given that we will die is the ONLY thing we can all count on for sure, how could we not make it a #1 priority in medicine? #hpm #palliative Wed Mar 30 18:07:52 PDT 2011 koehlerjo Hello everyone! Jo from kc here #hpm Wed Mar 30 18:07:53 PDT 2011 KathyKastner Trust you have smoking jacket RT @EldrcareConsult: <-----the aspiring author sits back in from of the fire and smokes his pipe..... :) #hpm Wed Mar 30 18:07:54 PDT 2011 EldrcareConsult err FRONT....cant type tonight #hpm Wed Mar 30 18:07:56 PDT 2011 RossJeanette Welcome @equijada @ctsinclair @renee_berry @drsnit @practical Wisdom @kajviraj2 @matthewsMichele @eldrcareconsult @kathykastner! #hpm Wed Mar 30 18:08:14 PDT 2011 PracticalWisdom @MatthewsMichele: Congrats on your new Job. Heard you have a great boss and team. #HPM
- 5. team. #HPM Wed Mar 30 18:08:18 PDT 2011 emilybarryPR Hi all! Emily Barry with Transcend Hospice Marketing Group, @hospice_mktg #hpm Wed Mar 30 18:08:24 PDT 2011 EldrcareConsult @KathyKastner of course! #hpm Wed Mar 30 18:08:30 PDT 2011 ctsinclair @MatthewsMichele I'll have my story done tonight for @NHDD http://hpm.md/hVaENa #hpm Wed Mar 30 18:08:46 PDT 2011 equijada @renee_berry Non-lurking tonight. I'm on vacation! @sanaquijadamd at spa. Kids getting to bed! #hpm Wed Mar 30 18:08:58 PDT 2011 RossJeanette Let’s start T1: what are some unique issues in caring for patients with dementia? #hpm Wed Mar 30 18:09:00 PDT 2011 KathyKastner hehehe bet you look dashing RT @EldrcareConsult: @KathyKastner of course! #hpm Wed Mar 30 18:09:18 PDT 2011 aliciabloom <-- social worker & ommunity liaison with @VITASHospice & Palliative Care in Philadelphia #hpm Wed Mar 30 18:09:19 PDT 2011 ctsinclair @emilybarryPR Hi Emily! #hpm Wed Mar 30 18:09:34 PDT 2011 equijada @revdoc nice to tweet you again. #hpm Wed Mar 30 18:09:42 PDT 2011 renee_berry LOVE that Earl's joining the chat -->because he's on vacation!! RT @equijada: @renee_berry Non-lurking tonight. Im on vacation! #hpm Wed Mar 30 18:09:53 PDT 2011 revdoc T1: Difficulty in explaining decline of function given "floor effects" of typical scales #hpm Wed Mar 30 18:09:58 PDT 2011 KathyKastner #hpm T1 Is it hard to determine pain/discomfort w dementia pts? Wed Mar 30 18:10:03 PDT 2011 ctsinclair RT @RossJeanette: Let’s start T1: what are some unique issues in caring for patients with dementia? "in hospice settings?" #hpm Wed Mar 30 18:10:17 PDT 2011
- 6. EldrcareConsult @RossJeanette The kids left wondering what happend to mom and dad! #hpm Wed Mar 30 18:10:22 PDT 2011 aliciabloom <--- social worker & community liaison/clinical educator with @VITASHospice & Palliative Care in Philadelphia. #hpm Wed Mar 30 18:10:25 PDT 2011 emilybarryPR Hi there @ctsinclair! #hpm Wed Mar 30 18:10:27 PDT 2011 ctsinclair @revdoc Tell us more about your theory on floor effect of scales #hpm Wed Mar 30 18:10:45 PDT 2011 revdoc @KathyKastner You can use a PAIN AD scale that looks for nonverbal s/s of pain #hpm Wed Mar 30 18:10:49 PDT 2011 renee_berry RT @RossJeanette: Let’s start T1: what are some unique issues in caring for patients with dementia? #hpm Wed Mar 30 18:11:07 PDT 2011 KathyKastner Thnx good 2 know RT @revdoc: @KathyKastner You can use a PAIN AD scale that looks for nonverbal s/s of pain #hpm Wed Mar 30 18:11:17 PDT 2011 inhousehospice RT @RossJeanette: Let’s start T1: what are some unique issues in caring for patients with dementia? #hpm Wed Mar 30 18:11:38 PDT 2011 revdoc @ctsinclair have to get really bad to jump down to the next level. At some point, we have nothing left to measure (except weight loss) #hpm Wed Mar 30 18:11:56 PDT 2011 aliciabloom challenge: helping families understand that dementia is a chronic, yet ultimately terminal illness #hpm Wed Mar 30 18:12:04 PDT 2011 renee_berry T1 I think many psychosocial issues are overlooked as patients loose their ability to communicate, people still feel presence #hpm Wed Mar 30 18:12:11 PDT 2011 equijada @RossJeanette t1 Misunderstood cause of death. Many families believe/hope pt will just "go in their sleep" #hpm Wed Mar 30 18:12:26 PDT 2011 EldrcareConsult @aliciabloom exactly #hpm Wed Mar 30 18:12:28 PDT 2011 inhousehospice We give those to all docs we work w/ & meet. RT @revdoc: @KathyKastner You can use a PAIN AD scale that looks for nonverbal s/s of pain #hpm Wed Mar 30 18:12:48 PDT 2011
- 7. PracticalWisdom RT @renee_berry: T1 I think many psychosocial issues R overlooked as pt's loose ability 2 communicate, people still feel presence #HPM Wed Mar 30 18:12:56 PDT 2011 KathyKastner RT @aliciabloom: challenge: helping families understand that dementia is a chronic, yet ultimately terminal illness #hpm #eldercarechat Wed Mar 30 18:13:09 PDT 2011 EldrcareConsult @renee_berry good point renee....communication is a big issue. what some may see as "acting out" may be pain an suffering underneath #hpm Wed Mar 30 18:13:16 PDT 2011 ctsinclair T1: challenges occur when patient has cancer or other sig disease as main illness but dementia (mild to mod) impairs decision making #hpm Wed Mar 30 18:13:31 PDT 2011 MatthewsMichele RT @EldrcareConsult: good point renee....commu is a big issue. what some may see as "acting out" may be pain an suffering underneath #hpm Wed Mar 30 18:14:02 PDT 2011 SheyontheBay RT @RossJeanette: Let’s start T1: what are some unique issues in caring for patients with dementia? #hpm Wed Mar 30 18:14:12 PDT 2011 renee_berry T1 I also think families grieve the loss of the person as dementia progresses & sometimes don't 'see the point' in continuing to visit #hpm Wed Mar 30 18:14:14 PDT 2011 PracticalWisdom ConfusionRT@EldrcareConsult:@renee_berry good pt. renee.com. is a big issue.some may C as "acting out" may B pain suffering underneath #HPM Wed Mar 30 18:14:42 PDT 2011 koehlerjo RT @ctsinclair: T1: challenges occur when pt has ca or other sig disease as main illness but dementia (mild to mod) impairs dec makin #hpm Wed Mar 30 18:14:53 PDT 2011 ctsinclair [OT My wife saw the laptop & said, "Oh I see you are talking to yr Twitter friends, I can read the kids a book tonight." Thanks Kelly!] #hpm Wed Mar 30 18:15:26 PDT 2011 MatthewsMichele @EldrcareConsult @renee_berry: agree when worked @ nursing home, even some staff didnt get the psychosocial effect of dementia on pts #hpm Wed Mar 30 18:15:30 PDT 2011 EldrcareConsult @renee_berry yeah avoidance is a huge issue i see with my GCM clients #hpm Wed Mar 30 18:15:32 PDT 2011 aliciabloom @renee_berry agree! dementia is a disease of multiple losses along its trajectory #hpm Wed Mar 30 18:15:47 PDT 2011
- 8. controversiesSW Hi all -- bit late, sorry. LCSW and certified case manager from Louisiana. #hpm Wed Mar 30 18:15:47 PDT 2011 PracticalWisdom T1: Loss issues continue to come over and over again. So hard on Friends and Family. Loss of dignity. #HPM Wed Mar 30 18:15:51 PDT 2011 RossJeanette T1 good points.. communication/decision making challenges, accepting dementia as terminal, families grieving twice! #hpm Wed Mar 30 18:15:55 PDT 2011 ctsinclair Does anyone know if #dementia or #alzheimers or #alz are freq used hashtags? #hpm Wed Mar 30 18:15:57 PDT 2011 ctsinclair @controversiesSW Welcome! First time here? #hpm Wed Mar 30 18:16:09 PDT 2011 EldrcareConsult @MatthewsMichele Your right! I saw that all the time when i was a NH admin #hpm Wed Mar 30 18:16:18 PDT 2011 DrSnit We need more respite & education for caretakers because dementia is not simply a "put them in a home" *dust off hands* issue #hpm Wed Mar 30 18:16:26 PDT 2011 ctsinclair RT @EldrcareConsult: communication is a big issue. what some may see as "acting out" may be pain an suffering underneath #hpm Wed Mar 30 18:16:27 PDT 2011 emilybarryPR RT @RossJeanette: T1 good points.. communication/decision making challenges, accepting dementia as terminal, families grieving twice! #hpm Wed Mar 30 18:16:35 PDT 2011 michaelbmoore RT @DrSnit: We need more respite & education for caretakers because dementia is not simply a "put them in a home" *dust off hands* issue #hpm Wed Mar 30 18:16:41 PDT 2011 equijada @RossJeanette My mom to me in ICU re: my demented grandma "I didn't know she was this sick...I thought she would make it to 100" #hpm Wed Mar 30 18:16:50 PDT 2011 PracticalWisdom RT @DrSnit: We need # respite & education for caretakers because dementia is not simply a "put them in a home" *dust off hands* issue #HPM Wed Mar 30 18:16:58 PDT 2011 controversiesSW @ctsinclair Thanks -- yes, a newbee. #hpm Wed Mar 30 18:17:01 PDT 2011 KathyKastner I tweeted from an #alzheimers conference (w real alz patients!) RT @ctsinclair: Does anyone know if #dementia or #alzheimers ? #hpm Wed Mar 30 18:17:03 PDT 2011
- 9. Wed Mar 3018:17:03 PDT 2011 ctsinclair RT @DrSnit: We need more respite & education for caretakers b/c dementia is not simply a "put them in a home" *dust off hands* issue #hpm Wed Mar 30 18:17:09 PDT 2011 renee_berry T1 As a Vol manager I heard people say, this patient doesnt need a volunteer because they can't talk, I disagreed & trained vols for it #hpm Wed Mar 30 18:17:28 PDT 2011 aliciabloom in the case of dementia: caregiver education is essential, and advance care planning is critically important #hpm Wed Mar 30 18:17:31 PDT 2011 revdoc RT @revdoc: have to get really bad to jump down to the next level. At some point, we have nothing left to measure (except weight loss) #hpm Wed Mar 30 18:17:34 PDT 2011 JoshGriffin @ctsinclair They appear to be Christian. #hpm Wed Mar 30 18:17:40 PDT 2011 PracticalWisdom RT @equijada: @RossJeanette Mom 2 me in ICU re: my demented g/ma "I didnt know she was this sick...I thought she would make it to 100" #HPM Wed Mar 30 18:17:42 PDT 2011 revdoc Sorry--am on call and was on the phone with the ICU #hpm Wed Mar 30 18:17:51 PDT 2011 joshgriffin RT @DrSnit: We need more respite & education for caretakers because dementia is not simply a "put them in a home" *dust off hands* issue #hpm Wed Mar 30 18:17:52 PDT 2011 joshgriffin RT @ctsinclair: RT @EldrcareConsult: communication is a big issue. what some may see as "acting out" may be pain an suffering underneath #hpm Wed Mar 30 18:18:00 PDT 2011 MatthewsMichele Yes! RT @aliciabloom: in the case of dementia: caregiver education is essential, and advance care planning is critically important #hpm Wed Mar 30 18:18:05 PDT 2011 renee_berry RT @aliciabloom: in the case of dementia: caregiver education is essential, and advance care planning is critically important #hpm Wed Mar 30 18:18:07 PDT 2011 PracticalWisdom RT @aliciabloom: in the case of dementia: caregiver education is essential, and advance care planning is critically important #HPM Wed Mar 30 18:18:09 PDT 2011 KathyKastner RT @MatthewsMichele: Yes! RT @aliciabloom: in the case of dementia: caregiver education is essential, and advance care planning is critically important #hpm Wed Mar 30 18:18:15 PDT 2011
- 10. ctsinclair @KathyKastner That is great to see patients at a conference regarding the issues they are facing. #hpm Wed Mar 30 18:18:43 PDT 2011 koehlerjo CG's need much support. Was just talking to a spouse today to make sure he continues to participate in "his" life #hpm Wed Mar 30 18:18:57 PDT 2011 JoshGriffin RT @ctsinclair: @KathyKastner That is great to see patients at a conference regarding the issues they are facing. #hpm Wed Mar 30 18:19:24 PDT 2011 inhousehospice RT @renee_berry: seen family be very confused about early signs of dementia on a persons personality #publichealht education is so impt #hpm Wed Mar 30 18:20:23 PDT 2011 ctsinclair T1: big topic as many have noted here, is including the caregivers early and often in planning process especially as autonomy shifts #hpm Wed Mar 30 18:20:26 PDT 2011 EldrcareConsult I tell my folks all the time, they have to take care of themselves before they can take care of their elderly loved ones #hpm Wed Mar 30 18:20:36 PDT 2011 renee_berry T1 I've seen family members be very confused about early signs of dementia on a person's personality #publichealth education is so impt #hpm Wed Mar 30 18:20:39 PDT 2011 renee_berry RT @EldrcareConsult: I tell my folks all the time, they have to take care of themselves before they can take care of their elderly loved ones #hpm Wed Mar 30 18:21:02 PDT 2011 RossJeanette T1 yes caregiver support and involvement, education very important. #hpm Wed Mar 30 18:21:04 PDT 2011 PracticalWisdom @renee_berry: Denial on both sides would be challenging too. Who really wants to admit this? Double Loss. #HPM Wed Mar 30 18:21:23 PDT 2011 revdoc I saw my 65 yo grandmother go from prude matron to pulling off clothes and swearing like a sailor over the stupid dx #hpm Wed Mar 30 18:21:29 PDT 2011 ctsinclair I have seen more patients with #dementia getting involved in advocacy early in the disease process. very #epatient empowered #hpm Wed Mar 30 18:21:45 PDT 2011 MatthewsMichele RT @ctsinclair: T1: big topic as many have noted here, including caregivers early and often in planning process esp as autonomy shifts #hpm Wed Mar 30 18:21:49 PDT 2011 mpf2011 @ctsinclair Click on any hashtag and you can see if and how it is being used and by
- 11. mpf2011 what audience. #hpm Wed Mar 30 18:21:54 PDT 2011 emilybarryPR Agree x3! RT @RossJeanette: T1 yes caregiver support and involvement, education very important. #hpm Wed Mar 30 18:22:03 PDT 2011 KathyKastner RT @RossJeanette: T1 yes caregiver support and involvement, education very important. #hpm Wed Mar 30 18:22:03 PDT 2011 renee_berry @EldrcareConsult caregiver support sooooo important! I used to refer people to the Family Caregiver Alliance constantly! #hpm Wed Mar 30 18:22:18 PDT 2011 erinrbreedlove Is it too late to join #hpm?! Wed Mar 30 18:22:22 PDT 2011 PracticalWisdom So Hard RT @revdoc: I saw my 65 yo grandmother go from prude matron to pulling off clothes & swearing like a sailor over the stupid dx #HPM Wed Mar 30 18:22:29 PDT 2011 healthpolicygrp RT @ctsinclair: T1: big topic as many have noted here, is including the caregivers early and often in planning process especially as autonomy shifts #hpm Wed Mar 30 18:22:29 PDT 2011 ctsinclair @revdoc That is always hard to see, and the shock of family. I often ask about the patients normal attitude/behavior pre-dementia #hpm Wed Mar 30 18:22:32 PDT 2011 revdoc @erinrbreedlove Never--nice to tweet you again #hpm Wed Mar 30 18:22:48 PDT 2011 MatthewsMichele @EldrcareConsult my mom is a caregiver for her mom and I'll tell you that's the hardest thing for them to grasp #hpm Wed Mar 30 18:22:50 PDT 2011 renee_berry (have to go for a minute) be back in a few #hpm Wed Mar 30 18:22:51 PDT 2011 ctsinclair RT @erinrbreedlove: Is it too late to join #hpm?! "never, we are open 24/7" #hpm Wed Mar 30 18:22:55 PDT 2011 renee_berry RT @ctsinclair: @revdoc That is always hard to see, and the shock of family. I often ask about the patients normal attitude/behavior pre-dementia #hpm Wed Mar 30 18:23:09 PDT 2011 renee_berry RT @ctsinclair: RT @erinrbreedlove: Is it too late to join #hpm?! "never, we are open 24/7" #hpm Wed Mar 30 18:23:14 PDT 2011
- 12. KathyKastner RT @ctsinclair: @revdoc That is always hard to see, and the shock of family. I often ask about the patients normal attitude/behavior pre-dementia #hpm Wed Mar 30 18:23:14 PDT 2011 ctsinclair @mpf2011 Just was wondering if there was any unification under a certain hashtag by the community. #hpm Wed Mar 30 18:23:25 PDT 2011 elderpages What are people doing to attract caregivers earlier in the process? #hpm Wed Mar 30 18:23:26 PDT 2011 DrSnit @renee_berry we'll keep your space for you. #hpm Wed Mar 30 18:23:26 PDT 2011 PracticalWisdom T1: Don't stats show us that care givers become so stressed they too have greater chance of significant health decline? #HPM Wed Mar 30 18:23:28 PDT 2011 renee_berry @DrSnit ;) great #hpm Wed Mar 30 18:23:49 PDT 2011 RossJeanette Moving on to T2 soon #hpm Wed Mar 30 18:23:50 PDT 2011 revdoc @PracticalWisdom Yes, it is not uncommon for caregivers to die before recipients #hpm Wed Mar 30 18:24:06 PDT 2011 elderpages Sorry, I signed in late. Glad to see a family caregiver topic, near and dear to my heart (I'm a family caregiver researcher) #hpm Wed Mar 30 18:24:15 PDT 2011 DrSnit @ctsinclair I used to follow a beautiful blogger who was taking care of her father but she dropped off. #hpm Wed Mar 30 18:24:20 PDT 2011 ctsinclair @MatthewsMichele @EldrcareConsult we need to somehow use the online resources to return the sense of family participation in eldercare #hpm Wed Mar 30 18:24:33 PDT 2011 EldrcareConsult @elderpages That has been one of my goals. Here in east TN, GCM's are not well known so it been a learning curve. #hpm Wed Mar 30 18:24:41 PDT 2011 PracticalWisdom Maybe too stressed. RT @DrSnit: @ctsinclair I used to follow a beautiful blogger who was taking care of her father but she dropped off. #HPM Wed Mar 30 18:24:59 PDT 2011 aliciabloom early intervention palliative care would offer education, additional support & care planning assistance for dementia patients/families #hpm Wed Mar 30 18:25:03 PDT 2011
- 13. MatthewsMichele @PracticalWisdom That's what I've been reading and have seen it in my own family : (...working on showing my mom the light. :) #hpm Wed Mar 30 18:25:04 PDT 2011 elderpages @PracticalWisdom Yes, significantly higher mortality of family caregivers that are stressed than those not stressed #hpm Wed Mar 30 18:25:14 PDT 2011 ctsinclair @DrSnit really powerful caregiver blogs out there #hpm Wed Mar 30 18:25:36 PDT 2011 elderpages I'd love to see more interactive tools so families are part of the care team. Think myremcare.com, for example #hpm Wed Mar 30 18:25:40 PDT 2011 inhousehospice RT @aliciabloom: early intervention pall care would offer education, additional support & care planning for dementia patients/families #hpm Wed Mar 30 18:25:46 PDT 2011 DrSnit @PracticalWisdom There is body of work right now on both caregiver stress & the struggle for OUTSIDERS to keep identity of the patient #hpm Wed Mar 30 18:25:47 PDT 2011 ctsinclair If there is an unheard voice in America providing billions of hours of labor for the price of love and obligation it is the caregiver #hpm Wed Mar 30 18:26:03 PDT 2011 RossJeanette T2: The Joint Commission Accredits Hospital Based Palliative Care Programs http://t.co/ui3YORK what will it mean? #hpm Wed Mar 30 18:26:04 PDT 2011 PracticalWisdom @DrSnit: You are the supportive Twitter Fairy Godmother. Amazing~ #HPM Wed Mar 30 18:26:05 PDT 2011 DrSnit RT @ctsinclair: If there is an unheard voice in America providing billions of hours of labor for the price of love and obligation it is the caregiver #hpm Wed Mar 30 18:26:25 PDT 2011 equijada Caring For A Spouse With Dementia Leaves Caregiver At Risk - Science News http://bit.ly/gDv9lM #hpm Wed Mar 30 18:26:35 PDT 2011 ctsinclair RT @revdoc: @PracticalWisdom Yes, it is not uncommon for caregivers to die before recipients "seen it dramatically twice recently" #hpm Wed Mar 30 18:26:39 PDT 2011 elderpages @DrSnit @PracticalWisdom Can you say more about what you mean by "OUTSIDERS". Who are they? #hpm Wed Mar 30 18:27:00 PDT 2011 renee_berry RT @equijada: Caring For A Spouse With Dementia Leaves Caregiver At Risk -
- 14. renee_berry RT @equijada: Caring For A Spouse With Dementia Leaves Caregiver At Risk - Science News http://bit.ly/gDv9lM #hpm Wed Mar 30 18:27:23 PDT 2011 ctsinclair RT @RossJeanette: T2: The Joint Commission Accredits Hospital Based Palliative Care Programs http://t.co/ui3YORK what will it mean? #hpm Wed Mar 30 18:27:30 PDT 2011 MatthewsMichele RT @ctsinclair: If there are unheard voices in US providing billions of hrs of labor for price of love and obligation its caregivers #hpm Wed Mar 30 18:27:32 PDT 2011 renee_berry RT @equijada: @RossJeanette My mom to me in ICU re: my demented grandma "I didn't know she was this sick...I thought she would make it to 100" #hpm Wed Mar 30 18:27:34 PDT 2011 inhousehospice RT @RossJeanette: T2: The Joint Commission Accredits Hospital Based Palliative Care Programs http://t.co/ui3YORK what will it mean? #hpm Wed Mar 30 18:27:40 PDT 2011 elderpages AARP estimates family caregivers provide $375 billion in unpaid care (that's at min. wage & is more than is spent on Medicare) #hpm Wed Mar 30 18:27:46 PDT 2011 ctsinclair As we talk about T2 and the Joint commission make sure to use @TJCommission so they hear our wise words. #hpm Wed Mar 30 18:27:56 PDT 2011 DrSnit @elderpages Label used to describe the people who remember the patient for who they were, not who they are becoming. #hpm Wed Mar 30 18:28:01 PDT 2011 PracticalWisdom So many lose their jobs RT @equijada: Caring For A Spouse With Dementia Leaves Caregiver At Risk - Science News http://bit.ly/gDv9lM #HPM Wed Mar 30 18:28:15 PDT 2011 renee_berry @equijada wow, I find it really challenging to be balanced in discussing these issues with family #hpm Wed Mar 30 18:28:15 PDT 2011 equijada @ctsinclair @CAPC has nice data on this. Wish I had it off the top of my head #hpm Wed Mar 30 18:28:20 PDT 2011 DrSnit RT @elderpages: AARP estimates family caregivers provide $375 billion in unpaid care (that's at min. wage & is more than is spent on Medicare) #hpm Wed Mar 30 18:28:21 PDT 2011 revdoc RT @elderpages: AARP est family caregivers provide $375 billion in unpaid care (thats at min. wage & is more than is spent on Medicare) #hpm Wed Mar 30 18:28:23 PDT 2011 emilybarryPR RT @ctsinclair: As we talk about T2 and the Joint commission make sure to use @TJCommission so they hear our wise words. #hpm
- 15. Wed Mar 3018:28:33 PDT 2011 MeredithGould Hey #HPM folks, sorry to be late for the chat. Great explanation: spending time with my friend and colleague @EdBennett Wed Mar 30 18:28:40 PDT 2011 ctsinclair T2: in the short term @TJCommission focusing on palliative care will mean more work for potentially understaffed PC teams #hpm Wed Mar 30 18:28:48 PDT 2011 TheRealLisaBain RT @DrSnit: We need more respite & education for caretakers because dementia is not simply a "put them in a home" *dust off hands* issue #hpm Wed Mar 30 18:28:50 PDT 2011 elderpages @DrSnit @elderpages Ah, I get it. "OUTSIDERS" are the ones who have the true continuity of care across all settings. #hpm Wed Mar 30 18:28:54 PDT 2011 ctsinclair RT @equijada: @ctsinclair @CAPC has nice data on this. Wish I had it off the top of my head "instead of your beautiful hair?" #hpm Wed Mar 30 18:29:11 PDT 2011 DrSnit @elderpages There are some estimates that "welfare/disabled mothers" provide similar services for their working kids at a similar rate. #hpm Wed Mar 30 18:29:20 PDT 2011 renee_berry I wish I had all of their data in my head! RT @equijada @CAPCpalliative has nice data on this. Wish I had it off the top of my head #hpm Wed Mar 30 18:29:27 PDT 2011 equijada RT @elderpages: AARP estimates family caregivers provide $375 billion in unpaid care (that's at min. wage & is more than is spent on Medicare) #hpm Wed Mar 30 18:29:34 PDT 2011 PracticalWisdom @MeredithGould Lucky Duck Re: Friend/colleague @EdBennett classy man. #HPM Wed Mar 30 18:29:52 PDT 2011 ctsinclair T2: excited that @TJCommission as a major non-palliative org (i.e not @AAHPM @NHPCO_News @CAPCpallaitive) is paying attention. #hpm Wed Mar 30 18:30:18 PDT 2011 DrSnit @MeredithGould YAY! YOU WERE MISSED! #hpm Wed Mar 30 18:30:25 PDT 2011 KathyKastner RT @ctsinclair: T2: excited that @TJCommission as a major non-palliative org (i.e not @AAHPM @NHPCO_News @CAPCpallaitive) is paying attention. #hpm Wed Mar 30 18:30:35 PDT 2011 elderpages T2: I would hope @TJCommission accreditation means there is accountability for quality. Anyone care to talk about the criteria? #hpm Wed Mar 30 18:30:41 PDT 2011
- 16. renee_berry agree!! RT @elderpages @DrSnit Ah, I get it. "OUTSIDERS" are the ones who have the true continuity of care across all settings. #hpm Wed Mar 30 18:30:54 PDT 2011 ctsinclair T2: I know the @TJCommission can make the C-Suite jump into action in most hospitals across the US. Palliative care = #Winning #hpm Wed Mar 30 18:31:04 PDT 2011 MeredithGould @DrSnit Yeah, yeah...hahah. Indian food was involved, too! Yum. #hpm Wed Mar 30 18:31:09 PDT 2011 revdoc T2 I hope new JCAHO process isn't just hospitals reassembling their procedure manuals to show how good they do PC on paper #hpm Wed Mar 30 18:31:18 PDT 2011 renee_berry RT @RossJeanette: T2: The Joint Commission Accredits Hospital Based Palliative Care Programs http://t.co/ui3YORK what will it mean? #hpm Wed Mar 30 18:31:23 PDT 2011 RossJeanette @MeredithGould welcome we are talking about @TJCommission accrediting Hospitals in Palliative care and what it will mean #hpm Wed Mar 30 18:31:28 PDT 2011 healthpolicygrp RT @ctsinclair: T2: excited that @TJCommission as a major non-palliative org (i.e not @AAHPM @NHPCO_News @CAPCpallaitive) is paying attention. #hpm Wed Mar 30 18:32:04 PDT 2011 ctsinclair RT@Revdoc RT @elderpages: @AARP est family caregivers provide $375B in unpaid care (thats at min. wage/more than is spent on Medicare) #hpm Wed Mar 30 18:32:06 PDT 2011 joshgriffin RT @revdoc: RT @elderpages: AARP est family caregivers provide $375 billion in unpaid care (thats at min. wage & is more than is spent on Medicare) #hpm Wed Mar 30 18:32:07 PDT 2011 ctsinclair RT @revdoc: T2 I hope @TJCommission process isnt just hospitals reassembling procedure manuals to show how good they do PC on paper #hpm Wed Mar 30 18:32:33 PDT 2011 EldrcareConsult @TJCommission if its just all paperwork it wont mean a whole lot...policies dont change care.....people do #hpm Wed Mar 30 18:32:34 PDT 2011 PracticalWisdom T2: @stsinclair: @TJCommission brings public credibility to the Hospitals. This has to add more visibility. #HPM Wed Mar 30 18:32:47 PDT 2011 elderpages @TJCommission I am hoping this is so PC programs aren't like "Birthing Rooms" used to be: same practice just in a pretty room. #hpm Wed Mar 30 18:32:59 PDT 2011 renee_berry T2 HOPE @TJComission accreditation will help integrate earlier #palliative care
- 17. renee_berry T2 HOPE @TJComission accreditation will help integrate earlier #palliative care across specialties & settings! #hpm Wed Mar 30 18:33:05 PDT 2011 ctsinclair @elderpages I know @TJCommission is looking at palliative care across continuum of hospital care, not sure about outpatient #hpm Wed Mar 30 18:33:16 PDT 2011 ctsinclair RT @elderpages: @TJCommission I am hoping PC programs arent like "Birthing Rooms" used to be: same practice just in a pretty room. #hpm Wed Mar 30 18:33:46 PDT 2011 renee_berry @ctsinclair thanks for hopping into the chat!!! You are welcome to stay in the conversation!! #hpm Wed Mar 30 18:33:53 PDT 2011 emilybarryPR Agree! RT @renee_berry: T2 HOPE @TJComission accreditation will help integrate earlier #palliative care across specialties & settings! #hpm Wed Mar 30 18:33:57 PDT 2011 PracticalWisdom T2: Liked the idea the this @TJCommission will include the whole Hospital not just the team I think @ctsinclair wrote. #HPM Wed Mar 30 18:34:05 PDT 2011 ctsinclair @elderpages Yes it has to be about the program and human capital used to make a pallaitive program work not just the infrastructure #hpm Wed Mar 30 18:34:14 PDT 2011 equijada @ctsinclair @TJCommission @AAHPM @NHPCO_News @CAPCpallaitive While it's nice, I'd rather a bottom up push rather than top down pull #hpm Wed Mar 30 18:34:15 PDT 2011 MatthewsMichele Agree. RT @renee_berry: T2 HOPE @TJComission accreditation will help integrate earlier #palliative care across specialties & settings! #hpm Wed Mar 30 18:34:32 PDT 2011 aliciabloom hope @TJCommission certification for #palliative care will raise awareness about the many benefits of this interdisciplinary speciality #hpm Wed Mar 30 18:34:38 PDT 2011 renee_berry (so that was supposed to go to @healthpolicygroup ) sorry brb again @ grandma's ...family pic time #hpm Wed Mar 30 18:34:39 PDT 2011 elderpages @pallimed notes @TJCommission is looking at whole hospital, not just PC team. Perhaps we can achieve integration across ICU, ED, etc. #hpm Wed Mar 30 18:34:43 PDT 2011 ctsinclair @ElusiveEm Where are you at? Love to hear your input! #hpm Wed Mar 30 18:34:50 PDT 2011 PracticalWisdom RT @equijada: @ctsinclair@TJCommission @AAHPM @NHPCO_News @CAPCpallaitive its nice, rather a bottom up push rather than top down pull #HPM Wed Mar 30 18:35:10 PDT 2011
- 18. ctsinclair @renee_berry Go take pics with the family, we will be here next week! #hpm Wed Mar 30 18:35:10 PDT 2011 ctsinclair RT @elderpages: @TJCommission is looking at whole hospital, not just PC team. Perhaps we can achieve integration across ICU, ED, etc. #hpm Wed Mar 30 18:35:30 PDT 2011 elderpages @ctsinclair @ElusiveEm Perhaps he/she is hiding? (Elusive?) :-) #hpm Wed Mar 30 18:35:34 PDT 2011 undercovernun RT @revdoc: RT @elderpages: AARP est family caregivers provide $375 billion in unpaid care (thats at min. wage & is more than is spent on Medicare) #hpm Wed Mar 30 18:35:41 PDT 2011 ctsinclair RT @EldrcareConsult: @TJCommission if its just all paperwork it wont mean a whole lot...policies dont change care.....people do #hpm Wed Mar 30 18:36:29 PDT 2011 ctsinclair @elderpages Good one! #hpm Wed Mar 30 18:36:42 PDT 2011 KathyKastner LOL RT @elderpages: @ctsinclair @ElusiveEm Perhaps he/she is hiding? (Elusive?) :-) #hpm Wed Mar 30 18:36:46 PDT 2011 PracticalWisdom T2: How does @TJCommission Impact funding/bring more MD's and other HCP into the field? #HPM Wed Mar 30 18:36:48 PDT 2011 EldrcareConsult @ctsinclair @EldrcareConsult @TJCommission do mean to sound snotty, but it comes from personal experience #hpm Wed Mar 30 18:37:31 PDT 2011 equijada @renee_berry yes. I had the talk with my grandmother years before she died (though didn't fill out forms). Glad we did. Helpful #hpm Wed Mar 30 18:37:39 PDT 2011 ctsinclair @PracticalWisdom no direct funding but it might get administration of a hospital to direct funds towards building/reinforcing a program #hpm Wed Mar 30 18:37:44 PDT 2011 elderpages @PracticalWisdom Perhaps @TJCommission allows PC programs to serve as "extra credit" giving the entire hospital score a boost? #hpm Wed Mar 30 18:37:51 PDT 2011 ctsinclair @EldrcareConsult I presume you meant 'do not mean to sound snotty' ? ;-) #hpm Wed Mar 30 18:38:12 PDT 2011 DoctorFisher Hi everyone T2 bottom up has been happening for a while, some top down would be nice- need both to cement #hpm
- 19. DoctorFisher nice- need both to cement #hpm Wed Mar 30 18:38:13 PDT 2011 equijada @PracticalWisdom It's the age where people can let their voices be heard #hpm Wed Mar 30 18:38:14 PDT 2011 PracticalWisdom RT @elderpages: @PracticalWisdom Perhaps @TJCommission allows PC programs 2 serve "extra credit" giving entire hospital score a boost? #HPM Wed Mar 30 18:38:32 PDT 2011 elderpages RT @doctorfisher: Hi everyone T2 bottom up has been happening for a while, some top down would be nice- need both to cement #hpm Wed Mar 30 18:38:40 PDT 2011 ctsinclair RT @doctorfisher: T2 bottom up has been happening for a while, some top down would be nice- need both to cement "dont get smashed!" #hpm Wed Mar 30 18:38:51 PDT 2011 ctsinclair @doctorfisher HULK SMASH! #hpm Wed Mar 30 18:38:58 PDT 2011 MatthewsMichele RT @doctorfisher: Hi everyone T2 bottom up has been happening for a while, some top down would be nice- need both to cement #hpm Wed Mar 30 18:39:13 PDT 2011 EldrcareConsult @ctsinclair @EldrcareConsult sigh....yes #hpm Wed Mar 30 18:39:20 PDT 2011 aliciabloom interesting piece from @HuffingtonPost about dementia as a public health issue (http://huff.to/dNBdty) #hpm is a solution Wed Mar 30 18:39:28 PDT 2011 revdoc RT @doctorfisher: Hi everyone T2 bottom up has been happening for a while, some top down would be nice- need both to cement #hpm Wed Mar 30 18:39:57 PDT 2011 elderpages @ctsinclair "Don't get smashed" We should have such a problem of too much energy moving toward the middle! I'd love it! #hpm Wed Mar 30 18:40:15 PDT 2011 DoctorFisher @ctsinclair was that for being late? #hpm Wed Mar 30 18:40:25 PDT 2011 koehlerjo RT @aliciabloom: interesting piece from @HuffingtonPost about dementia as a pub health issue (http://huff.to/dNBdty) #hpm is a solution #hpm Wed Mar 30 18:40:33 PDT 2011 PracticalWisdom T2: Since this goal has been achieved what comes next? #HPM Wed Mar 30 18:41:02 PDT 2011 MatthewsMichele RT @aliciabloom: interesting piece from @HuffingtonPost abt dementia as a public
- 20. MatthewsMichele RT @aliciabloom: interesting piece from @HuffingtonPost abt dementia as a public health issue (http://huff.to/dNBdty) #hpm is solution #hpm Wed Mar 30 18:41:22 PDT 2011 RossJeanette T3:@PalliativeMed_j seeks applicants 4 editorial panel 4 their #hcsm portal. http://bit.ly/g7JY8t What content would u like to see? #hpm Wed Mar 30 18:41:48 PDT 2011 elderpages @aliciabloom @HuffingtonPost Dementia as public health. Indeed NIA funding many family caregiver interventions as they recognize need. #hpm Wed Mar 30 18:41:56 PDT 2011 PracticalWisdom @RossJeanette: Sorry you are the Question Lady tonight! #HPM Wed Mar 30 18:42:06 PDT 2011 elderpages 2011 is Year of Caregiver honoring 10 yrs of Family CG Support Program http://www.celebratingfamilycaregivers.org #hpm Wed Mar 30 18:43:06 PDT 2011 ctsinclair @doctorfisher no it was for my warning about getting smashed between top down and bottom up #hpm Wed Mar 30 18:43:45 PDT 2011 ctsinclair RT @RossJeanette: T3:@PalliativeMed_j seeks editorial panel 4 their #hcsm portal. http://bit.ly/g7JY8t What would u like to see? #hpm Wed Mar 30 18:44:10 PDT 2011 renee_berry (I'm back are we on T3?) #hpm Wed Mar 30 18:44:21 PDT 2011 ctsinclair T3: I am just impressed a journal is taking on something like a social media editorial board - embracing the community = good #hpm Wed Mar 30 18:44:46 PDT 2011 elderpages t3: This is a panel of professionals. I would like to see family caregivers engaged so they AREN'T outsiders & become part of team. #hpm Wed Mar 30 18:44:55 PDT 2011 PracticalWisdom T3: I continue to remain passionate about more Public Education re: Palliative Med. So # just don't know. #HPM Wed Mar 30 18:45:06 PDT 2011 DoctorFisher @ctsinclair I know I know- to avoid we must get many bottom up people seated at the top down table #hpm Wed Mar 30 18:45:33 PDT 2011 GeroAmericano late to T1 for #hpm chat, but see great new free curricula out today for direct caregivers funded by Scan http://bit.ly/dICi0B @PHInational Wed Mar 30 18:45:43 PDT 2011 ctsinclair T3: Looks like @PalliativeMed_J social media portal is aiming to be quite ambitious with lots of virtual events -> good outreach #hpm Wed Mar 30 18:45:52 PDT 2011
- 21. Wed Mar 3018:45:52 PDT 2011 PracticalWisdom YesRT @elderpages: t3: This is a panel of prof. I'd like 2 see family caregivers engaged so they ARENT outsiders & become part of team. #HPM Wed Mar 30 18:45:56 PDT 2011 elderpages T3 More on collaboration across the continuum #hpm Wed Mar 30 18:45:58 PDT 2011 ctsinclair @doctorfisher Hopefully not upside down! #hpm Wed Mar 30 18:46:05 PDT 2011 MeredithGould T3 How are they defining their hcsm portal? #HPM Wed Mar 30 18:46:25 PDT 2011 renee_berry RT @RossJeanette: T3:@PalliativeMed_j seeks applicants 4 editorial panel 4 their #hcsm portal. http://bit.ly/g7JY8t What content would u like to see? #hpm Wed Mar 30 18:46:42 PDT 2011 PracticalWisdom Just like we do every Wed Night 9:00PM. So much Respect both ways RT @elderpages: T3 More on collaboration across the continuum #HPM Wed Mar 30 18:46:47 PDT 2011 elderpages RT @MeredithGould: T3 How are they defining their hcsm portal?...I have same question #hpm Wed Mar 30 18:46:57 PDT 2011 inhousehospice RT @ctsinclair: T3: just impressed a journal is taking on something like a social media editorial board - embracing the community=good #hpm Wed Mar 30 18:47:01 PDT 2011 ctsinclair @GeroAmericano The @SCAN_foundation does some great work. Met some of their leadership. Nice people! #hpm Wed Mar 30 18:47:02 PDT 2011 PracticalWisdom RT @elderpages: T3 More on collaboration across the continuum #HPM Wed Mar 30 18:47:04 PDT 2011 ctsinclair RT @MeredithGould: T3 How are they defining their hcsm portal? "Here is the link: http://hpm.md/h9987u blogs, tweets, virtual webinars #hpm Wed Mar 30 18:47:54 PDT 2011 RossJeanette @MeredithGould I understand @PalliativeMed_j intends to use facebook, twittwer, linked in and blogs @palliator could tell us more. #hpm Wed Mar 30 18:47:57 PDT 2011 elderpages RT @inhousehospice: RT @ctsinclair: T3: impressed a journal is taking on a social media editorial board...YES! #hpm Wed Mar 30 18:48:00 PDT 2011 renee_berry T3 (I applied even though not a doc) on app said I'd LOVE to see professionals tell
- 22. renee_berry T3 (I applied even though not a doc) on app said I'd LOVE to see professionals tell their story: Why do you work in #palliative care #hpm Wed Mar 30 18:48:14 PDT 2011 ctsinclair @MeredithGould Also I think they are getting the board together first and then probably going to determine/refine scope of coverage #hpm Wed Mar 30 18:48:38 PDT 2011 DoctorFisher T3 where can I find this magical portal? Or does it yet exist #hpm Wed Mar 30 18:48:57 PDT 2011 PracticalWisdom T3: @SCAN_Foundation; No Tweets yet though. @ctsinclair need U to teach? #HPM Wed Mar 30 18:49:00 PDT 2011 ctsinclair @renee_berry I think it would be great to have some non-medical people on the board. Why not!? #hpm Wed Mar 30 18:49:03 PDT 2011 ctsinclair @renee_berry I think it would be great to have some non-medical people on the board. Why not!? #hpm Wed Mar 30 18:49:03 PDT 2011 ctsinclair @renee_berry I think it would be great to have some non-medical people on the board. Why not!? #hpm Wed Mar 30 18:49:03 PDT 2011 MatthewsMichele @MeredithGould Seems like they are looking to the participants to define what it will be: http://bit.ly/gJDCFN #hpm Wed Mar 30 18:49:09 PDT 2011 RossJeanette @PalliativeMed_j wants all professions To apply to be @PalliativeMed_j editorial panel member go to http://bit.ly/gJDCFN #hpm Wed Mar 30 18:49:29 PDT 2011 elderpages T3: WIll their portal be like private Facebook or LinkedIn community? How different from CAPC Connect or My.NHCPO? #hpm Wed Mar 30 18:49:34 PDT 2011 ctsinclair @RossJeanette If @Palliatior would use Twitter more...she might ;-) I need to talk to VJ #hpm Wed Mar 30 18:49:42 PDT 2011 equijada @renee_berry I love that you do that. #jfdi #hpm Wed Mar 30 18:49:47 PDT 2011 MeredithGould @RossJeanette @ctsinclair It looks to me like they want people to provide or curate content for their blog, Twitter & FB accts? #hpm Wed Mar 30 18:49:53 PDT 2011 renee_berry :) #hopeful RT @ctsinclair @renee_berry I think it would be great to have some non- medical people on the board. Why not!? #hpm Wed Mar 30 18:50:20 PDT 2011
- 23. Wed Mar 3018:50:20 PDT 2011 ctsinclair @doctorfisher Portal doesn't exist as I know yet, (if i showed it to you it would blow your mind) #hpm Wed Mar 30 18:50:21 PDT 2011 PracticalWisdom Me too! RT @equijada: @renee_berry I love that you do that. #jfdi #HPM Wed Mar 30 18:50:23 PDT 2011 ctsinclair By the way i am not applying to be on the social media board but I am encouraging anyone else who particiaptes in this chat to do so #hpm Wed Mar 30 18:50:59 PDT 2011 KathyKastner O good. I want to apply 2RT @ctsinclair: @renee_berry I think it would be great to have some non-medical people on the board. Why not!? #hpm Wed Mar 30 18:51:08 PDT 2011 renee_berry T3 I think interdisciplinary perspectives drive innovation & progress, we need to collaborate & listen to each other to improve #hpm Wed Mar 30 18:51:33 PDT 2011 EldrcareConsult sorry guys i am here...trying to decide if i need a tablet pc #hpm Wed Mar 30 18:51:35 PDT 2011 KathyKastner RT @renee_berry: T3 I think interdisciplinary perspectives drive innovation & progress, we need to collaborate & listen to each other to improve #hpm Wed Mar 30 18:51:44 PDT 2011 ctsinclair @doctorfisher Sorry I am being goofy with you tonight, you are just setting me up well! #hpm Wed Mar 30 18:51:49 PDT 2011 elderpages I applied but I have not heard back, even about when I would hear back. #hpm Wed Mar 30 18:51:54 PDT 2011 PracticalWisdom @KathyKastner: Great news! #HPM Wed Mar 30 18:51:59 PDT 2011 healthpolicygrp RT @MatthewsMichele: @MeredithGould Seems like they are looking to the participants to define what it will be: http://bit.ly/gJDCFN #hpm Wed Mar 30 18:52:00 PDT 2011 MeredithGould @ctsinclair NEVER apologize for being goofy!!! #hpm Wed Mar 30 18:52:05 PDT 2011 KathyKastner @PracticalWisdom Hi Lisa! Loved yr tweet abt Romper room #HPM Wed Mar 30 18:52:27 PDT 2011 ctsinclair RT @MeredithGould: @ctsinclair NEVER apologize for being goofy!!! "I just didnt want @DoctorFisher to think I was pickin on him!" #hpm Wed Mar 30 18:52:45 PDT 2011
- 24. Wed Mar 3018:52:45 PDT 2011 elderpages I do have something of a concern about fragmenting into different conversations. AAHPM, NHPCO, CAPC. Is this the umbrella over all? #hpm Wed Mar 30 18:53:01 PDT 2011 DianeEMeier Foundation’s Path to Expanding #Palliative Care in CA’s Public Hospitals http://bit.ly/ff3rRP Thank you, private sector philanthropy! #hpm Wed Mar 30 18:53:02 PDT 2011 PracticalWisdom Guess I"m Goofy? Thanks~RT @KathyKastner: @PracticalWisdom Hi Lisa! Loved yr tweet abt Romper room #HPM Wed Mar 30 18:53:09 PDT 2011 MeredithGould @ctsinclair Ok, I amend it to: NEVER apologize for picking on colleagues. Wait....that doesn't sound right. #hpm Wed Mar 30 18:53:19 PDT 2011 healthpolicygrp RT @ctsinclair: RT @MeredithGould: T3 How are they defining their hcsm portal? "Here is the link: http://hpm.md/h9987u blogs, tweets, virtual webinars #hpm Wed Mar 30 18:53:20 PDT 2011 renee_berry I need to work on that, I'm super quirky & apologize 4it too often RT @MeredithGould: @ctsinclair NEVER apologize for being goofy!!! #hpm Wed Mar 30 18:53:29 PDT 2011 ctsinclair @DianeEMeier Hey you can join the end of Tweetchat (unless you are using your phone then it is kind of hard!) #hpm Wed Mar 30 18:53:34 PDT 2011 healthpolicygrp RT @RossJeanette: @MeredithGould I understand @PalliativeMed_j intends to use facebook, twittwer, linked in and blogs @palliator could tell us more. #hpm Wed Mar 30 18:53:36 PDT 2011 GeroAmericano @ctsinclair great to see @Scan_foundation on twitter - 3 modules on End of Life are for 20 minute stand-ups in LTC http://bit.ly/ie1pes #hpm Wed Mar 30 18:53:42 PDT 2011 PracticalWisdom @DoctorFisher My NC Neighbor. #HPM Wed Mar 30 18:53:45 PDT 2011 renee_berry RT @DianeEMeier: Foundation’s Path to Expanding #Palliative Care in CA’s Public Hospitals http://bit.ly/ff3rRP Thank you, private sector philanthropy! #hpm Wed Mar 30 18:54:03 PDT 2011 mpf2011 @ctsinclair #hpm Whoever claims the hashtag first uses it. But others may use it too and the stream is mixed w/ several conversations. Wed Mar 30 18:54:04 PDT 2011 DoctorFisher T3 do "needs assessment" with the lesser #hcsm engaged (both clinicians and patients)- must avoid becoming echo chamber #hpm Wed Mar 30 18:54:11 PDT 2011
- 25. elderpages @DianeEMeier Hi Diane! Can you speak to CAPC Connect and how it relates to this new social media portal? #hpm Wed Mar 30 18:54:12 PDT 2011 revdoc Oh, c'mon, guys--don't encourage Christian. YOU don't have to work with him every day! #hpm Wed Mar 30 18:54:25 PDT 2011 PracticalWisdom Yes, comeRT @ctsinclair: @DianeEMeier Hey you can join the end of Tweetchat (unless you are using your phone then it is kind of hard!) #HPM Wed Mar 30 18:54:27 PDT 2011 KathyKastner #hpm silly joke: Micky Mouse's shrink asks: You're want 2 divorce minnie cuz she's crazy? "No" says Micky. "Cuz she's f'n Goofy." Wed Mar 30 18:54:41 PDT 2011 MatthewsMichele RT @doctorfisher: T3 do "needs assessment" w/ the lesser #hcsm engaged (both clinicians and patients)- must avoid becoming echo chamber #hpm Wed Mar 30 18:54:45 PDT 2011 ctsinclair RT @doctorfisher: T3 do "needs assessment" with the lesser #hcsm engaged (both clinicians and patients)-avoid becoming echo chamber #hpm Wed Mar 30 18:54:59 PDT 2011 MeredithGould Seriously, am I the only one who thinks this looks like the Journal editors are looking for content providers? #HPM Wed Mar 30 18:55:06 PDT 2011 DoctorFisher @ctsinclair every comedian needs a good straight man #hpm Wed Mar 30 18:55:13 PDT 2011 ctsinclair T3: Would love for them to do some teaching to the offline folks and incorporate it into paper journal. #hpm Wed Mar 30 18:55:28 PDT 2011 PracticalWisdom G8 RT @KathyKastner: #hpm Micky Mouses shrink asks: Youre want 2 divorce minnie cuz shes crazy? "No" says Micky. "Cuz shes fn Goofy." #HPM Wed Mar 30 18:55:40 PDT 2011 MatthewsMichele @doctorfisher I agree wholeheartedly...w/ ppl like me and @renee_berry on the board (fingers crossed) that won't happen :) #hpm Wed Mar 30 18:55:49 PDT 2011 KathyKastner My thot 2RT @MeredithGould: Seriously, am I only one who thinks this looks like the Journal editors are looking 4 content providers? #HPM Wed Mar 30 18:55:53 PDT 2011 ctsinclair RT @MeredithGould: am I the only one who thinks Journal editors are looking for content providers? 'isnt that their job?' #hpm Wed Mar 30 18:56:10 PDT 2011 RossJeanette @MeredithGould agree they are looking for content providers #hpm
- 26. RossJeanette @MeredithGould agree they are looking for content providers #hpm Wed Mar 30 18:56:19 PDT 2011 elderpages @MeredithGould Content & perhaps facilitators of the conversation? Application looked like they were interested in #hcsm experience #hpm Wed Mar 30 18:56:28 PDT 2011 healthpolicygrp RT @DianeEMeier: Foundation’s Path to Expanding #Palliative Care in CA’s Public Hospitals http://bit.ly/ff3rRP Thank you, private sector philanthropy! #hpm Wed Mar 30 18:56:31 PDT 2011 MeredithGould @KathyKastner Whew, thanks for the reality check. #HPM Wed Mar 30 18:56:32 PDT 2011 ctsinclair T3: would love to see highlights from Twitter/Blogs as an official column in a journal #hpm Wed Mar 30 18:56:46 PDT 2011 EldrcareConsult ok i am back...what are we talking about? #hpm Wed Mar 30 18:56:49 PDT 2011 MatthewsMichele RT @elderpages: @MeredithGould Content & perhaps facilitators of the conversation? App looked like they were interested in #hcsm exp #hpm Wed Mar 30 18:57:21 PDT 2011 elderpages RT @ctsinclair: T3: Would love ... incorporate it into paper journal...I LOVE paper.li. Wondering again about echo chamber/repetition #hpm Wed Mar 30 18:57:27 PDT 2011 PracticalWisdom @MeredithGould @KathyKastner And others. Seems like a trend in many other SoMe Areas too. #HPM Wed Mar 30 18:57:29 PDT 2011 MeredithGould @elderpages @RossJeanette If that's the case, then as a working writer, I have a real problem with that. #hpm Wed Mar 30 18:57:31 PDT 2011 DoctorFisher RT @ctsinclair: T3: would love to see highlights from Twitter/Blogs as an official column in a journal #hpm Wed Mar 30 18:57:32 PDT 2011 ctsinclair @EldrcareConsult @PalliativeMed_J has a call out for a social media editorial board #hpm Wed Mar 30 18:57:37 PDT 2011 aliciabloom @ctsinclair especially from the #hpm twitterchat! Wed Mar 30 18:57:53 PDT 2011 KathyKastner ANd all for free :)RT @PracticalWisdom: @MeredithGould @KathyKastner And others. Seems like a trend in many other SoMe Areas too. #HPM Wed Mar 30 18:57:57 PDT 2011
- 27. PracticalWisdom You. We've elected you~You'll be great! :<) RT @EldrcareConsult: ok i am back...what are we talking about? #HPM Wed Mar 30 18:58:00 PDT 2011 RossJeanette @EldrcareConsult talking about @PalliativeMed_j seeks applicants for editorial panel 4 their #hcsm portal. http://bit.ly/g7JY8t #hpm Wed Mar 30 18:58:03 PDT 2011 MatthewsMichele @MatthewsMichele @elderpages @MeredithGould think it might be both #hpm Wed Mar 30 18:58:04 PDT 2011 EldrcareConsult @ctsinclair @EldrcareConsult @PalliativeMed_J gotcha #hpm Wed Mar 30 18:58:19 PDT 2011 ctsinclair @MeredithGould The value of writing is a great topic for debate! #hpm Wed Mar 30 18:58:21 PDT 2011 MeredithGould @PracticalWisdom A trend? Hopefully not. #HPM Wed Mar 30 18:58:31 PDT 2011 equijada @ctsinclair One of my patients re: my hair "You look like you were left on the trail" #dementia or #needahaircut #hpm Wed Mar 30 18:58:38 PDT 2011 ctsinclair @PracticalWisdom Funny! #hpm Wed Mar 30 18:58:48 PDT 2011 MatthewsMichele oops, didnt mean to reply to myself! yikes. too excited about tweeting you guys...got carried away! #hpm Wed Mar 30 18:58:53 PDT 2011 EldrcareConsult @PracticalWisdom @EldrcareConsult Id like to thank all the little people our there that voted for me #hpm Wed Mar 30 18:59:04 PDT 2011 ctsinclair RT @equijada: One of my patients re: my hair "You look like you were left on the trail" #dementia or #needahaircut "poor Earl!" #hpm Wed Mar 30 18:59:22 PDT 2011 MeredithGould @ctsinclair Oh make me go crazy(er) on Twitter!!! Some of us are professional writers & editors; it's our livelihood. #hpm Wed Mar 30 18:59:22 PDT 2011 elderpages As a content curator, I have to balance what I give for free & what I charge for. Tough in a social media world. Thought ldrship. #hpm Wed Mar 30 18:59:29 PDT 2011 renee_berry agree RT @doctorfisher RT @ctsinclair T3 would love to see highlights from Twitter/Blogs as an official column in a journal #hpm Wed Mar 30 18:59:32 PDT 2011
- 28. Wed Mar 3018:59:32 PDT 2011 revdoc Oh, c'mon, guys...don't ELECT Christian--you don't have to cover for him if he can't be at work! #hpm Wed Mar 30 19:00:00 PDT 2011 ctsinclair @MeredithGould I would love to have a tipjar for good blogs that I read. I am all for a microcurrency system #hpm Wed Mar 30 19:00:02 PDT 2011 RossJeanette thanks for participating in #HPM tweetchat.. got to go know.. feel free to continue chatting #hpm Wed Mar 30 19:00:04 PDT 2011 KathyKastner RT @MeredithGould: @ctsinclair Oh make me go crazy(er) on Twitter!!! Some of us are professional writers & editors; it's our livelihood. #hpm Wed Mar 30 19:00:06 PDT 2011 MeredithGould @elderpages Yep, I do a lot of "pro bono" work, too but there's a limit -- especially if there's NO reciprocity. #hpm Wed Mar 30 19:00:25 PDT 2011 elderpages RT @renee_berry: agree T3 would love 2 see highlights of Twitter/Blogs as an official column in a journal...#hpm paper.li is doing this #hpm Wed Mar 30 19:00:40 PDT 2011 PracticalWisdom @EldrcareConsult: http://www.youtube.com/watch?v=y8Qqgx-Pq3s #HPM Wed Mar 30 19:00:55 PDT 2011 MatthewsMichele @RossJeanette Thanks for being a great host! #hpm Wed Mar 30 19:01:01 PDT 2011 ctsinclair Thanks to our host tonight @RossJeanette #hpm Wed Mar 30 19:01:07 PDT 2011 KathyKastner RT @MatthewsMichele: @RossJeanette Thanks for being a great host! #hpm Wed Mar 30 19:01:15 PDT 2011 PracticalWisdom @RossJeanette: Thank you so much for hosting. #HPM Wed Mar 30 19:01:33 PDT 2011 elderpages RT @ctsinclair: Thanks to our host tonight @RossJeanette. YES! #hpm Wed Mar 30 19:01:40 PDT 2011 ctsinclair We have no host for next week, any volunteers as I get the schedule ready for the next few months? #hpm Wed Mar 30 19:01:40 PDT 2011 revdoc RT @ctsinclair: Thanks to our host tonight @RossJeanette Thank you! #hpm Wed Mar 30 19:01:51 PDT 2011
- 29. equijada @RossJeanette thanks Jeanette! thanks everyone. Great chat #hpm Wed Mar 30 19:01:56 PDT 2011 MeredithGould @RossJeanette Thanks for moderating! You sure got me into the convo quickly!! #hpm Wed Mar 30 19:02:10 PDT 2011 DrSnit @RossJeanette great job!! Thanks!! xo #hpm Wed Mar 30 19:02:11 PDT 2011 PracticalWisdom @ctsinclair; Sure, I owe you one. #HPM Wed Mar 30 19:02:22 PDT 2011 aliciabloom *claps* for #hpm twitterchat host @RossJeanette Wed Mar 30 19:02:34 PDT 2011 doctorfisher Well that was fun you're a great crowd. Don't forget to tip your bloggers and tweet- hostesses @RossJeanette #hpm Wed Mar 30 19:02:48 PDT 2011 renee_berry !!! great to chat with everyone tonight! RT @PracticalWisdom @RossJeanette Thank you so much for hosting #hpm Wed Mar 30 19:03:05 PDT 2011 emilybarryPR Great chat - sorry I was in and out! RT @aliciabloom: *claps* for #hpm twitterchat host @RossJeanette #hpm Wed Mar 30 19:03:34 PDT 2011 RossJeanette thank you guys! I'll participate next week. #hpm Wed Mar 30 19:03:38 PDT 2011 PracticalWisdom @aliciabloom http://www.youtube.com/watch?v=y8Qqgx-Pq3s #HPM #HPM Wed Mar 30 19:03:40 PDT 2011 DrSnit Great job cats! Wonderful #hpm chat! Wed Mar 30 19:03:58 PDT 2011 revdoc Have a great rest of the week, everyone! #hpm Wed Mar 30 19:04:20 PDT 2011 EldrcareConsult i have to go too guys....here's the newest copy of our newsletter. feel free to read, pass on and join! http://conta.cc/i9aOor #hpm Wed Mar 30 19:04:33 PDT 2011 PracticalWisdom @ctsinclair: So you will send out list. Could you remind of the link later. #HPM Wed Mar 30 19:04:49 PDT 2011