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Emily Vardell, PhD
May 29, 2017
@evardell
Health Insurance Information Needs: How Librarians Can Help
health insurance literacy
“the extent to which consumers can make informed
purchase and use decisions”
(Kim, Braun, & Williams, 2013, p. 3)
2
What is the problem?
Quantitative research studies have shown that
individuals are often unable to select the most
financially appropriate health insurance coverage.
Most studies have employed experiments and/or
surveys, suggesting there may be a need to employ
other methods to create a broader picture of the
underlying factors.
3
Research Questions
How do people understand health insurance concepts?
How do individuals make their own health insurance decisions?
What are the factors that impact health insurance literacy and decision-
making?
4
Participants
Participants were recruited through the pool of new
employees who participate in benefits training from
the Human Resources Department at a large
university in the southeastern United States.
5
Study Design
• Demographic questionnaire
• Interviews
• Photographs of materials
• Health Insurance Literacy Measurement (HILM)*
6
*Paez, K.A., Mallery, C.J., Noel, H., Pugliese, C., McSorely, V.E., Lucado, J.L., & Ganachari, D. (2014). Development of the Health
Insurance Literacy Measure (HILM): Conceptualizing and Measuring Consumer Ability to Choose and Use Private Health Insurance.
Journal of Health Communication, 19(Supplement 2), 225-239.
Model of the Health Insurance Decision-Making Process
7
Obtain Overview
• Orientation session (n=21)
• Review printed materials (n=24)
• Review information on state
health plan website (n=16)
• Side-by-side plan comparison
chart (n=9)
• Coverage scenarios (n=9)
• Chart of monthly premiums (n=6)
8
Orientation Session
• Present the information in a
variety of formats to
accommodate multiple learning
styles
• Benefits officers should be
aware of the bias they may be
imparting
• "Psychologically reassuring" to
have in-person sessions
9
Information Tactics
• Comparing plans side-by-side (n=30)
• Reviewing costs (n=30)
• Calculating costs (n=18)
• Ignoring/Eliminating information (n=16)
• Avoiding Overthinking (n=9)
• Should have done more (n=4)
• Not a logical choice (n=4)
10
Information Tactics
• Comparing plans side-by-side
Continued use of online
calculators
• Eliminate/ignore information
Preferences for smaller size set
Interactive health materials where
users could hide irrelevant
information
11
Personal Reflection
• Past experience with health insurance (n=27)
• Forecasting needs for the next year (n=26)
• Forecasting worst case scenario/unknown (n=15)
• Reflecting on health status (n=16)
• Age as a factor (n=14)
• Reflecting on past year’s use of coverage (n=9)
12
Interpersonal Information Sources
13
Spouse/partner (n=13)
Colleague (n=12)
Parents (n=10)
Benefits officer (n=10)
Friends (n=8)
Other source (n=5)
• due to domain expertise, familiarity with available plans, and awareness of health care needs
• through a variety of media, including in person, by phone, through text, and via social media
Health Insurance Literacy
“Well I've never actually told someone what I'm doing right
now which is really good exercise and shows me that maybe I
should have done that. I'm not totally naïve when it comes to
trying to understand it. I guess I'm a little bit confused, what is
the difference between a coinsurance maximum and an out of
pocket maximum?” (P19)
14
HILM Scores
15
Outcomes
Provide better assistance with enrollment
16
ACA Navigators
Support process and provide access to quality
health insurance informational materials
Human resources officers
Librarians and information
professionals
Policy implications for funding information
assistance
Save large employers money with savvier
insurance purchasers
Possible Solutions
• Dictionary of insurance terminology
• Unbiased information sources
• One-on-one assistance
• Step-by-step enrollment instructions
• Ability to customize the information displayed in a comparison chart
17
Possible Solutions
• Dictionary of insurance terminology
• Unbiased information sources
• One-on-one assistance
• Step-by-step enrollment instructions
• Ability to customize the information displayed in a comparison chart
18
Know Your Health Insurance (MerckEngage®)
http://www.merckengage.com/knowyourhealthinsurance
My Health, My Voice
All available in English and Spanish:
A Woman’s Step-by-Step Guide to
Using Health Insurance
5 Steps to Using Your Health
Insurance Wisely
The 4 Kinds of Costs You May Pay
What is a Well-Woman Visit?
My Health, My Voice: My Personal
Health Journal
http://www.myhealthmyvoice.com/get-a-copy
Learn how to use your insurance card
From Coverage to Care (CMS)
• English (PDF, 7.2MB)
• Arabic / ‫ية‬ ‫عرب‬ ‫ال‬( PDF, 64KB)
• Chinese / 中文 (PDF, 145KB)
• Haitian Creole/Kreyòl Ayisyen (PDF,
58KB)
• Korean / 한국어 (PDF, 97KB)
• Russian / Русский (PDF, 63KB)
• Spanish / Español (PDF, 160KB)
• Vietnamese/TIẾNG VIỆT (PDF, 61KB)
http://www.cms.gov/About-CMS/Agency-Information/OMH/OMH-Coverage2Care.html
Acknowledgements
• Study participants
• Office of Human Resources
• Medical Library Association/ Thomson Reuters Doctoral Fellowship
22
Questions?
@evardell
emily.vardell@gmail.com
Extra Slides
24
Recruitment
Participant eligibility criteria:
employment at the university in the southeastern United
States
fluent in English
25
Introduction Methods Findings Discussion
Collect Data – Demographic Questionnaire
• Gender
• Age
• Racial/ethnic identity
• Education level
• Marital status
• Family status
• Job title
26
Introduction Methods Findings Discussion
Participants’ Characteristics (n=30)
• 80% of participants were female and 20% male.
• 46.67% of participants were between 27-35 years old, 20% 18-26 years
old, 20% 36-45 years old, 10% 46-55 years old, and 3.33% 56-64 years
old.
• 63.33 % of participants were White/Caucasian, 13.33% Black/African
American, 13.33% Asian or Asian American, 6.67% Hispanic/Latino, and
3.33% American Indian.
• 43.33% of participants had a Master's degree, 36.67% had a Bachelor's
degree, 13.33% had a Doctoral degree, and 6.67% had some college.
• 56.67% of participants were single, 36.67% were married, and 6.67%
had a domestic partner.
27
Collect Data – Interviews
Broad, Opening Questions (e.g., reflecting on choice(s))
Micro-Moment Time-Line Interview
Semi-Structured Interview Questions about the Decision-Making
Process (e.g., preferred option desired characteristics)
Questions Design to Gauge Direct Change to Individual following the
Affordable Care Act (e.g., changes in the last 5 years)
Questions about Health Insurance Materials (e.g., most helpful and
least helpful information provided)
Wrap-Up (e.g., compare with other purchases)
28
Introduction Methods Findings Discussion
Collect Data – Health Insurance Literacy
Measurement (HILM)
Choosing a Health Plan
Scale 1: Confidence
How confident are you that… Not at all
confident
Slightly
confident
Moderately
confident
Very
confident
1. You understand health
insurance terms?
2. You know where to find the
information you need to choose
a health plan if you were not
offered insurance through an
employer?
3. You know how to estimate
what you have to pay for your
health care needs in the next
year, not including emergencies?
4. You know where to go for help
if you were having trouble
affording health insurance
outside an employer?
5. You know what questions to
ask so you can choose the best
health plan for you?
6. You would choose the health
plan that is best for you?
Choosing a Health Plan
Scale 2: Behavior
29
When comparing health
insurance plans, how likely are
you to…
Not at all
confident
Slightly
confident
Moderately
confident
Very
confident
1. Understand how the plans
differ?
2. Find out if you have to meet a
deductible for health care
services? A deductible is the
amount of money you have to
pay before your health insurance
will pay anything for your health
care.
3. Look to see which doctors and
hospitals are covered in each
plan?
4. Understand what you have to
pay for prescription drugs?
5. Understand what you would
have to pay for emergency
department visits?
6. Understand what you would
have to pay for specialist visits?
Introduction Methods Findings Discussion
Step 4. Analyze Data – Process
30
Micro-Moment
Time-Lines
Coding
Interviews
Analysis
• Hand coded individually
• Codes = participants’ words
• Compared w/ info seeking & use models
• Reviewed Integrated Framework
Memos
Introduction Methods Findings Discussion
• Identified strategies and sources
Trustworthiness/Reliability
• Constant-comparison method of content analysis
• Transcripts were coded individually by inductive reasoning,
allowing themes to emerge
• After identifying more than 62 individual codes, identified
connections between the codes to develop larger themes
• Wrote reflective memos
• Documented the research process in detail
31
Introduction Methods Findings Discussion

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Health Insurance Information Needs: How Librarians Can Help

  • 1. Emily Vardell, PhD May 29, 2017 @evardell Health Insurance Information Needs: How Librarians Can Help
  • 2. health insurance literacy “the extent to which consumers can make informed purchase and use decisions” (Kim, Braun, & Williams, 2013, p. 3) 2
  • 3. What is the problem? Quantitative research studies have shown that individuals are often unable to select the most financially appropriate health insurance coverage. Most studies have employed experiments and/or surveys, suggesting there may be a need to employ other methods to create a broader picture of the underlying factors. 3
  • 4. Research Questions How do people understand health insurance concepts? How do individuals make their own health insurance decisions? What are the factors that impact health insurance literacy and decision- making? 4
  • 5. Participants Participants were recruited through the pool of new employees who participate in benefits training from the Human Resources Department at a large university in the southeastern United States. 5
  • 6. Study Design • Demographic questionnaire • Interviews • Photographs of materials • Health Insurance Literacy Measurement (HILM)* 6 *Paez, K.A., Mallery, C.J., Noel, H., Pugliese, C., McSorely, V.E., Lucado, J.L., & Ganachari, D. (2014). Development of the Health Insurance Literacy Measure (HILM): Conceptualizing and Measuring Consumer Ability to Choose and Use Private Health Insurance. Journal of Health Communication, 19(Supplement 2), 225-239.
  • 7. Model of the Health Insurance Decision-Making Process 7
  • 8. Obtain Overview • Orientation session (n=21) • Review printed materials (n=24) • Review information on state health plan website (n=16) • Side-by-side plan comparison chart (n=9) • Coverage scenarios (n=9) • Chart of monthly premiums (n=6) 8
  • 9. Orientation Session • Present the information in a variety of formats to accommodate multiple learning styles • Benefits officers should be aware of the bias they may be imparting • "Psychologically reassuring" to have in-person sessions 9
  • 10. Information Tactics • Comparing plans side-by-side (n=30) • Reviewing costs (n=30) • Calculating costs (n=18) • Ignoring/Eliminating information (n=16) • Avoiding Overthinking (n=9) • Should have done more (n=4) • Not a logical choice (n=4) 10
  • 11. Information Tactics • Comparing plans side-by-side Continued use of online calculators • Eliminate/ignore information Preferences for smaller size set Interactive health materials where users could hide irrelevant information 11
  • 12. Personal Reflection • Past experience with health insurance (n=27) • Forecasting needs for the next year (n=26) • Forecasting worst case scenario/unknown (n=15) • Reflecting on health status (n=16) • Age as a factor (n=14) • Reflecting on past year’s use of coverage (n=9) 12
  • 13. Interpersonal Information Sources 13 Spouse/partner (n=13) Colleague (n=12) Parents (n=10) Benefits officer (n=10) Friends (n=8) Other source (n=5) • due to domain expertise, familiarity with available plans, and awareness of health care needs • through a variety of media, including in person, by phone, through text, and via social media
  • 14. Health Insurance Literacy “Well I've never actually told someone what I'm doing right now which is really good exercise and shows me that maybe I should have done that. I'm not totally naïve when it comes to trying to understand it. I guess I'm a little bit confused, what is the difference between a coinsurance maximum and an out of pocket maximum?” (P19) 14
  • 16. Outcomes Provide better assistance with enrollment 16 ACA Navigators Support process and provide access to quality health insurance informational materials Human resources officers Librarians and information professionals Policy implications for funding information assistance Save large employers money with savvier insurance purchasers
  • 17. Possible Solutions • Dictionary of insurance terminology • Unbiased information sources • One-on-one assistance • Step-by-step enrollment instructions • Ability to customize the information displayed in a comparison chart 17
  • 18. Possible Solutions • Dictionary of insurance terminology • Unbiased information sources • One-on-one assistance • Step-by-step enrollment instructions • Ability to customize the information displayed in a comparison chart 18
  • 19. Know Your Health Insurance (MerckEngage®) http://www.merckengage.com/knowyourhealthinsurance
  • 20. My Health, My Voice All available in English and Spanish: A Woman’s Step-by-Step Guide to Using Health Insurance 5 Steps to Using Your Health Insurance Wisely The 4 Kinds of Costs You May Pay What is a Well-Woman Visit? My Health, My Voice: My Personal Health Journal http://www.myhealthmyvoice.com/get-a-copy
  • 21. Learn how to use your insurance card From Coverage to Care (CMS) • English (PDF, 7.2MB) • Arabic / ‫ية‬ ‫عرب‬ ‫ال‬( PDF, 64KB) • Chinese / 中文 (PDF, 145KB) • Haitian Creole/Kreyòl Ayisyen (PDF, 58KB) • Korean / 한국어 (PDF, 97KB) • Russian / Русский (PDF, 63KB) • Spanish / Español (PDF, 160KB) • Vietnamese/TIẾNG VIỆT (PDF, 61KB) http://www.cms.gov/About-CMS/Agency-Information/OMH/OMH-Coverage2Care.html
  • 22. Acknowledgements • Study participants • Office of Human Resources • Medical Library Association/ Thomson Reuters Doctoral Fellowship 22
  • 25. Recruitment Participant eligibility criteria: employment at the university in the southeastern United States fluent in English 25 Introduction Methods Findings Discussion
  • 26. Collect Data – Demographic Questionnaire • Gender • Age • Racial/ethnic identity • Education level • Marital status • Family status • Job title 26 Introduction Methods Findings Discussion
  • 27. Participants’ Characteristics (n=30) • 80% of participants were female and 20% male. • 46.67% of participants were between 27-35 years old, 20% 18-26 years old, 20% 36-45 years old, 10% 46-55 years old, and 3.33% 56-64 years old. • 63.33 % of participants were White/Caucasian, 13.33% Black/African American, 13.33% Asian or Asian American, 6.67% Hispanic/Latino, and 3.33% American Indian. • 43.33% of participants had a Master's degree, 36.67% had a Bachelor's degree, 13.33% had a Doctoral degree, and 6.67% had some college. • 56.67% of participants were single, 36.67% were married, and 6.67% had a domestic partner. 27
  • 28. Collect Data – Interviews Broad, Opening Questions (e.g., reflecting on choice(s)) Micro-Moment Time-Line Interview Semi-Structured Interview Questions about the Decision-Making Process (e.g., preferred option desired characteristics) Questions Design to Gauge Direct Change to Individual following the Affordable Care Act (e.g., changes in the last 5 years) Questions about Health Insurance Materials (e.g., most helpful and least helpful information provided) Wrap-Up (e.g., compare with other purchases) 28 Introduction Methods Findings Discussion
  • 29. Collect Data – Health Insurance Literacy Measurement (HILM) Choosing a Health Plan Scale 1: Confidence How confident are you that… Not at all confident Slightly confident Moderately confident Very confident 1. You understand health insurance terms? 2. You know where to find the information you need to choose a health plan if you were not offered insurance through an employer? 3. You know how to estimate what you have to pay for your health care needs in the next year, not including emergencies? 4. You know where to go for help if you were having trouble affording health insurance outside an employer? 5. You know what questions to ask so you can choose the best health plan for you? 6. You would choose the health plan that is best for you? Choosing a Health Plan Scale 2: Behavior 29 When comparing health insurance plans, how likely are you to… Not at all confident Slightly confident Moderately confident Very confident 1. Understand how the plans differ? 2. Find out if you have to meet a deductible for health care services? A deductible is the amount of money you have to pay before your health insurance will pay anything for your health care. 3. Look to see which doctors and hospitals are covered in each plan? 4. Understand what you have to pay for prescription drugs? 5. Understand what you would have to pay for emergency department visits? 6. Understand what you would have to pay for specialist visits? Introduction Methods Findings Discussion
  • 30. Step 4. Analyze Data – Process 30 Micro-Moment Time-Lines Coding Interviews Analysis • Hand coded individually • Codes = participants’ words • Compared w/ info seeking & use models • Reviewed Integrated Framework Memos Introduction Methods Findings Discussion • Identified strategies and sources
  • 31. Trustworthiness/Reliability • Constant-comparison method of content analysis • Transcripts were coded individually by inductive reasoning, allowing themes to emerge • After identifying more than 62 individual codes, identified connections between the codes to develop larger themes • Wrote reflective memos • Documented the research process in detail 31 Introduction Methods Findings Discussion

Editor's Notes

  1. Familiarity with the United States health care system culture played an important role in individuals’ perceived health insurance literacy abilities. The two participants most familiar with non-U.S. health care systems had the lowest HILM scores of any of the participants. It can reasonably be concluded that a lack of familiarity with the health care and health insurance system in the United States leads to a lower HILM score. Individuals who are new to the United States will most likely require additional assistance navigating the U.S. health care system including insurance. The average cumulative HILM score for those selecting health insurance for the first time was 2.82, also below the average HILM score for participants in this study (3.00). This data suggests that unfamiliarity with selecting health insurance may be reflected through lower health insurance decision-making self-efficacy, as demonstrated through HILM. There may be different types of information needs for those selecting health insurance for the first time or those more familiar with non-US health care systems.
  2. Participants also expressed a need for unbiased information resources they could use to obtain clarity on topics with which they are unfamiliar (e.g., CDHP). This sentiment offers a promising opportunity for librarians to provide information resources, as they may be best equipped to locate sources outside of those with a vested interest (i.e., insurance companies). Also, participants relished the opportunity to share advice when asked. There might be a good amount of interest in user-driven or crowdsourced websites where users could review insurance plans and share guidance on how to select a plan.
  3. Participants also expressed a need for unbiased information resources they could use to obtain clarity on topics with which they are unfamiliar (e.g., CDHP). This sentiment offers a promising opportunity for librarians to provide information resources, as they may be best equipped to locate sources outside of those with a vested interest (i.e., insurance companies). Also, participants relished the opportunity to share advice when asked. There might be a good amount of interest in user-driven or crowdsourced websites where users could review insurance plans and share guidance on how to select a plan.
  4. One of the helpful resources for learning about how to use health insurance is Know Your Health Insurance from Merck Engage. Know Your Health Insurance is an interactive guide to health insurance. The FAQ covers many questions. It is created by the pharmaceutical company Merck, but I have not noticed any bias in the information provided on the site. ARROW This section clearly outlines what types of services are covered. NEXT SLIDE
  5. While it was developed specifically with women in mind, it works with a diverse audience and is available in Spanish and English, with several print-ready resources. You can see a full list of them in the right-hand column here. The Step-by-Step guide includes a lengthy section with clear, easy-to-read information on understanding costs when using health insurance. For example, it provides descriptions of premiums, deductibles, copay, and coinsurance.
  6. The Centers for Medicare & Medicaid Services also offer a helpful guide called “From Coverage to Care,” which offers similar information to the previous examples I have shared. They also offer a sheet on how to decode your insurance card and this handout (which is shown in a small version on the left-hand side) is also available in several languages from CMS. This unique aspect makes this a very valuable resource for those working with populations for whom English is not a native language.
  7. White alone, percent, July 1, 2015, (V2015) 71.2% Black or African American alone, percent, July 1, 2015, (V2015) 22.1% American Indian and Alaska Native alone, percent, July 1, 2015, (V2015) 1.6% Asian alone, percent, July 1, 2015, (V2015) (a) 2.8% Native Hawaiian and Other Pacific Islander alone, (V2015) 0.1% Hispanic or Latino, percent, July 1, 2015, (V2015) 9.1%