A guide to the EUPATI toolbox on all things relating to medicines develpoment, regulation, clinical trials, health technology assessment - and everything in between.

1. Introducing the European Patients’ Academy (EUPATI)
Toolbox on Medicines Research & Development

2. The EUPATI Toolbox www.eupati.eu
 EUPATI consortium started work on the Toolbox on 2014
 Used material from the EUPATI Patient Expert Training Course
 Converted the course modules into user-friendly and patient-
accessible tools
 Reviewed by a multi-stakeholder Editorial Board of patients, not-for-
profit, academic and industry representatives
 Supported by the EUPATI Project Advisory Board, Regulatory
Advisory Panel and Ethics Panel around transparency, accessibility
and accuracy.
 Launched the Toolbox on 27 January 2016 on www.eupati.eu

3.  Over 3000 pieces of content for patients who want to DISCOVER
more about the medicines research and development process and the
role they can play.
 Tools are published under a creative commons license, meaning that
you can ADAPT them, or add to them, or delete parts of them to suit
your learning needs, and the educational and training needs of your
patient community
 Mobile, tablet and desktop accessible, fully downloadable and
printable so that you can easily SHARE tools with other patients.
What is the EUPATI Toolbox?

4. The EUPATI Toolbox www.eupati.eu
By 27th February:
1 month after launch
•6000+ unique users
•30,000 page views
•120 countries

5. The EUPATI Toolbox – 6 languages

6. The EUPATI Toolbox – accessibility

7. The EUPATI Toolbox www.eupati.eu

8. Medicines development
Personalised medicine
Drug safety, risk/benefit
Clinical trials
Patient roles & responsibilities
The EUPATI Toolbox – word search

9. The EUPATI Toolbox

10. EUPATI Toolbox – Content available
Infographics
Articles
Fact sheets
PowerPoints
Videos

11. EUPATI Toolbox – Glossary

12.  What are National Platforms?
‘IPPOSI-like structures’ created
by EUPATI in over 12 countries
across Europe: UK, France,
Spain, Italy, Germany, Austria
etc
EUPATI Toolbox – Country pages

13. What we produce is free for unlimited use by the public
You may:
• Share tools: copy & redistribute in any medium/format
• Adapt tools: remix, transform, & build upon the material
You must:
• Give appropriate credit
• Provide a link to the license
• Indicate modifications
• Distribute adapted content under creative commons license
You may not:
• Use the licensed material for commercial purposes
The EUPATI Toolbox - Creative
Commons
Creative Commons Attribution-NonCommercial-
ShareAlike 4.0 International (CC BY-NC-SA 4.0)
license

14. For example, learn what a biologic is?
.
• Use articles to
prepare for your next
meeting
• Use tools to learn
about an aspect of
medicines R&D which
is new to you

15. .
• Use a factsheet &
add information
specific to your
community
• Use the information
& create a quiz or
poll for your
members
For example, take what HTA
agencies do & ADD information
about your national agency!

16. .
For example, explain what is a blind
clinical trial is to your patient
community
• Use an image or a
diagram for your
public information
material
• Use a slide in your
next training or
presentation

17. If I’ve missed anything, or you want a
recap!
https://vimeo.com/album/3755795

18. Introducing the European Patients’ Academy (EUPATI)
National Teams and Platform

19. .
What is a EUPATI National Platform?
ENP
PATIENTS,
advocates,
representatives,
organisations
ACADEMIA,
institutions,
think tanks,
researchers
INDUSTRY,
pharmaceutical
companies
OTHER,
regulators,
government,
policy shapers,
healthcare
professionals,
journalists
Public private
partnership
Patient-led

20. Where are the EUPATI National Platforms?
Country Established
Austria 3 October 2015
France 16 June 2015
Germany 20 January 2016
Ireland 16 September 2014
Italy 10 April 2015
Luxembourg 17 December 2014
Malta 30 April 2014
Poland Spring 2016
Spain 4 November 2014
Switzerland 3 February 2016
United Kingdom 6 March 2014
Denmark 30 March 2016
Slovakia 20 February 2016
The Netherlands Spring 2016

21.  Build a network – or a National Platform – of local partners
interested in patient involvement in medicines research &
development
 Share EUPATI educational opportunities [course & toolbox] with
patient communities and other partners
 Engage national partners to identify opportunities for patient
education and patient involvement in medicines R&D
 Sustain public-private partnership beyond the 2017 when
EUPATI ends
What do EUPATI National Platforms do?

22. Webcasts
Media interviews
Newspaper articles
Information days
Radio
Publicity material
TV appearances
What do EUPATI National Platforms do?
- Building a network and sharing EUPATI with national partners

23.  EUPATI AUSTRIA +
 EUPATI ITALY +
 EUPATI SPAIN +
 EUPATI IRELAND +
What do EUPATI National Platforms do?
- engaging national partners & sustaining public private partnerships
Memorandum of
understanding to engage
on patient involvement in
medicines regulation
Memorandum of
understanding to work
together to develop an
Italian EUPATI course
Joint event in June on
patient involvement in
medicines regulation
Joint event in May on
patient involvement in
health technology
assessments

24.  DISCOVER! the Toolbox at www.eupati.eu
 JOIN! your National Platform and get involved
 PARTNER! to organise a joint event with EUPATI around clinical trials,
early research design, health technology assessment, market regulation…
 SUPPORT! The identification of resources to develop more patient
education opportunities nationally
 FOLLOW! the online conversation on Twitter or on Facebook
 SHARE! the Toolbox in the next newsletter to your members
 INCLUDE! a link to the Toolbox on your organisation’s links page
 INVITE! the National Platform to speak at your General Assembly meeting
Final thoughts – What can YOU do?

25. Thanks & stay in contact!