On 16 September 2022, IPPOSI CEO Derick Mitchell presented on our Citizens' Jury on Future Use of Genomics at the ISHG 2022 Conference.

1. IPPOSI Citizens’ Jury on Future Use of Genomics

2. Jury Mission
To what extent should we increase the use of
genomics in Irish health care and research in
the coming years?
Is the increased use of genomics in Irish health
care and research an opportunity or a
challenge 1) for individuals 2) for the public
health system?
Is genomic information more sensitive than
other types of health information (e.g. mental
health, sexual health)? Should there be special
safeguards for this type of information? What
do these safeguards look like?

3. Jury Process
Appropriate use
Ownership
National programme
Consent
Public engagement & trust
Data Security
Obstacles, Bureaucracy
Public Understanding
Effective rollout

4. Jury Verdict – plus patient survey!
Appropriate use
National programme
Data Security
Consent
Public engagement

5. Delivered in Partnership
• Royal College of Surgeons Ireland, Public
Patient Involvement (PPI) Office + FutureNeuro
• based on the Citizens’ Jury verdict, organising
additional discussions in November 2022
• Thanks to our sponsors:
• IPPOSI financial reserves + unrestricted grants from
• Irish Society for Human Genetics
• Roche (Ireland)
• Pfizer (USA)

6. www.ipposi.ie
info@ipposi.ie
@ipposi
Irish Platform for Patient Organisations, Science and Industry