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Patient-Centered Digital Health

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IPPOSI CEO Derick Mitchell delivered a presentation on Dec 6th 2019 at the Digital health Conference, organised as part of the Royal College of Physicians, Ireland

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Patient-Centered Digital Health

  1. 1. Patient-Centered Digital Health Derick Mitchell, PhD CEO
  2. 2. IPPOSI? Who? IPPOSI A patient-led organisation that works with patients, government, industry, & science to put patients at the heart of health innovation
  3. 3. Priorities 22 Actively advocate for improved + equitable patient access to Health Innovation Promote meaningful patient involvement in Health Research and Policy
  4. 4. Public Private Partnership IPPOSI Board 8 Patient Organisations 6 Scientific Members 6 Industry Members 50:50 Public : Private Public: • Grant from Department of Health • EU- & National-level grants Private: • Industry membership fee • Industry member sponsorships IPPOSI Funding
  5. 5. Our Resources INFORM ENGAGE EMPOWER
  6. 6. Patient Data THEME & WORKPLAN for 2019 https://www.ipposi.ie /our-work/health- innovation/patient- data/
  7. 7. What do patients want re: Digital Health? CONNECTIVITY IN THE HEALTH SYSTEM TO BUILD THEIR OWN DATA RESOURCES TO LEARN FROM THEIR OWN DATA AND FOR THE HEALTH SYSTEM TO LEARN TO HELP ASK THE RIGHT QUESTIONS
  8. 8. Patient Engagement / Involvement?
  9. 9. Why educate patients in digital health? • Trustworthiness is vital…. • Patient involvement opportunities increasing • Need informed advocates to contribute meaningfully to design, development and roll-out of health services in Ireland • Equally….create the situation where • patients are the drivers of their own health data, ensuring it is utilised to improve their health • patient experience data moves up the hierarchy of evidence in service design, re-design
  10. 10. Building a new Irish healthcare + research environment In 2019, Patient Reps are full members of: • HSE Board • Many National Clinical Programmes • Cancer Strategy Implementation • HSE Drugs Committee • Rare Disease Tech Review Committee • Health Innovation Hub Steering Committee • Ehealth Ireland Committee • Health Research Board – PPI reviewers • National Clinical Effectiveness Committee • HSE National Patient Forum
  11. 11. IPPOSI & The European Patients Academy • EUPATI produces Expert Patients on Medicines Research & Development • Provides Training, Education at EU-level • 20-member national platform network www.eupati.eu The project received support from the Innovative Medicines Initiative Joint Undertaking under grant agreement n° 115334, resources of which are composed of financial contribution from the European Union's Seventh Framework Programme (FP7/2007-2013) and EFPIA companies.
  12. 12. Role changes as a result of EUPATI course - creating patient leaders Role Before EUPATI After Member of patient organisation, not actively involved 17% 2% Active role in a patient organisation 62% 71% Leadership role in a patient organisation 62% 71% Employee of a patient organisation 25% 23% Volunteer role in a patient organisation 60% 67% Presenting at conferences, workshops etc. 63% 83% Advising a pharmaceutical company 13% 44% Advising a regulatory agency 21% 42% Advising a reimbursement agency 4% 8% EUPATI Fellows increasingly taking leadership roles and are engaging with pharma, regulators and HTA bodies. Role changes also imply identity shifts.
  13. 13. IPPOSI Patient Education Programme in Health Innovation 10-month programme Blended Learning – online + workshops 3 x 10-week modules • Clinical Trials • Regulatory Affairs • Health Technology Assessment Current Education Partners UCD, TCD, HPRA, HIQA, NCPE 1 elearning website - www.patientsinvolved.ie By end of 2019: 45 ‘graduates’
  14. 14. Power of Education CHAMELEON PROJECT: Championing A Multi-Sectoral Education and Learning Experience to Open New Pathways for Doctoral Students Dr. Tara Cusack, UCD (Coordinator) HSE DIGITAL ACADEMY: MSc. in Digital Health Transformation University of Limerick led
  15. 15. ‘Sometimes it is the people no one imagines anything of who do the things that no one can imagine’ Alan Turing ‘The Imitation Game’ (2014)
  16. 16. Thank you! dmitchell@ipposi.ie www.ipposi.ie

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