6. Patients have a key role in all aspects of health-
related research
Public
Research Ethics
Committees
Competent
authorities
Policy makers
/ Research Policy
HTA agencies
& committees
Research subject
Info provider
Advisor
Reviewer
Co-researcher
Driving force
Clinical Research
Research design
Informed consent
Ethical review
Value assessment
Health policy
8. Educated Patient Communities
IPPOSI Training for Members
• Clinical Research
• Health Technology Assessment
• eHealth (coming soon!)
IMI-EUPATI develops Patient Education on Medicines R&D
• Training & Education
• Disseminates through national platforms
9. EUPATI Patient Experts
Training Course
EUPATI develops patient education
targeted towards different audiences
100
patient
experts
EUPATI Educational
Toolbox
EUPATI
Internet Library
English
French
German
Spanish
Polish
Italian
Russian
English
Patient
advocates
(12,000)
Health-
interested
public
(100,000)
10. EUPATI contributing to paradigm shift
Key Objectives:
1. Develop and disseminate objective, credible, correct and up-to-date public knowledge
about medicines R&D
2. Build competencies & expert capacity among patients & public
3. Facilitate patient involvement in R&D to collaborate in academic research, industry
research, authorities and ethics committees
…and NOT:
develop indication- or therapy-specific information!
11. Areas covered
1. Medicines development process from research to approval
2. Personalized and predictive medicine
3. Drug safety and risk/benefit assessment of medicines
4. Pharmaco-economics, health economics, health technology assessment
5. Design and objectives of clinical trials (& roles of stakeholders)
6. Patients roles & responsibilities in medicines development
12. EUPATI Toolbox – www.eupati.eu
The EUPATI project is receiving support from the Innovative Medicines Initiative Joint Undertaking under grant agreement n° 115334, resources of which are
composed of financial contribution from the European Union's Seventh Framework Programme (FP7/2007-2013) and EFPIA companies.