SlideShare a Scribd company logo
1 of 1
Download to read offline
TEMPLATE DESIGN © 2008
www.PosterPresentations.com
Engaging Diverse Communities in Cancer Conversations
Through Creation of Structure & Metadata Within Twitter
Patricia F. Anderson1
<pfa@umich.edu>, Matthew S. Katz2
, Audun Utengen3
, Michael A. Thompson4
, Michael Fisch5
,
Claire Johnston6
, Deanna J. Attai7
, Lee Aase8
, Robert S. Miller6
, Thomas Lee2
, Don S. Dizon9
1) University of Michigan, Ann Arbor, MI; 2) Lowell General Hospital, Lowell, MA; 3) Symplur, LLC, Los Angeles, CA; 4) Aurora Research Institute, Aurora Health Care, Milwaukee, WI; 5) AIM Specialty Health, Chicago, IL;
6) ASCO, Alexandria, VA; 7) David Geffen School of Medicine at University of California, Los Angeles, Los Angeles, CA; 8) Mayo Clinic, Rochester, MN; 9) Massachusetts General Hospital, Boston, MA
Objectives
Intending to develop an online space engaging to both clinicians and patients, we
created a cancer tag ontology for Twitter. The goal was to foster boundary-spanning
between diverse communities, to build off the successes and best practices of
existing Twitter cancer hashtag communities, and to encourage self-managed
communities for information quality, in the context of appropriate metadata practices.
Methods
Metadata Structures & Other Constraints on Tag Development
Tag ontologies designed for social media use face constraints based on the
technologies and communities of use which do not apply to more formally constructed
ontologies. Traditional ontologies clarify conceptual relationships, and facilitate
knowledge-sharing, coding, interrogation of the data, and analytic uses based on the
structured terminology. Social media tags have historically avoided the formalism of an
ontological structure, but have evolved certain common practices through communities
of use within the specific platform(s). Those common practices make it possible to
predict a likely tag for a novel concept as well as to discover existing tags and the
communities which use them. A well-designed tag ontology attempts to maximise the
benefits of both standard ontology design practices as well as common practices in the
targeted social media communities. At the same time, it attempts to minimise the
potential problems inherent in applying structure to what originated as an unstructured
user-driven folksonomic type of naming activity. These are some of the compromises
and negotiated prioritization we developed as criteria for tag ontology development.
● Adoption of broad and widely adopted best practices for tag creation driven by
technology limits such as limited character conventions in tweets.
● Incorporation of pre-existing tags and tag conventions created by the target
community (i.e. #bcsm, #btsm, #lcsm).
● Adoption of a standard tag format or structure convention for new tags (i.e. #—sm).
● Balance ease of identification & memorization with internal community jargon, which
helps to minimize spam initially.
● Capitalization standardization to encourage accessibility best practices through use
of CamelCase (i.e. #gyncsm vs. #GynCSM)
● Identify top level concepts and conceptual structures. Attempt to group tags on
related concepts under common stem. This facilitates identification of conceptual
relationships, portability, and facilitates data analysis derived from the tagged
content. Note, this is an ideal, and often not possible. Example: #GynCSM could
incorporate ovarian cancer. Ideally, for best practices with stemming, this would
take a format such as #GynCSMocsm or #GynCSMovca. For real world practice,
the ovarian cancer community is already actively using #OvCa and #OCSM.
Figure 1: Tweets & Participants by CTO Hashtag
Figure 2a: Stakeholder Mix Figure 2b: Tweet Activity by Type
Figure 3: Twitter Use by Stakeholder Type & Hashtag
Table 1: Hashtags in the Cancer Tag Ontology
Figure 4: Twitter Activity: a) Quarterly b) Monthly
Results
Conclusions
More Information
● For the entire study period, there were a total of 531,765 tweets by 77,454 users
[Figure 1]
● The two user-generated tags #bcsm and #btsm had the longest use and most
activity with 249,312 and 110,465 tweets, respectively
● The most active new hashtags were those with organized Twitter-based chats:
#ayacsm; #gyncsm; #lcsm; #mmsm; and #pancsm. These seven accounted for
93% of new hashtag use.
● In the cohort, 11% were patients, 20% doctors, 3% non-doctor healthcare
professional, 32% individual, 30% healthcare organization, 1% other
organization, and 3% spam. [Figure 2a]
● The most active top users were patients with a median of 46 tweets. [Figure 2b]
● Differences in user mix for the tags with chats are highlighted in Figure 3.
● Activity using the CTO increased from 13,778 tweets in Q3 2011 to 75,960
tweets in Q3 2014 [Figure 4a]
● For the 23 structured tags, quarterly use increased from 18,098 tweets in Q3
2013 to 39,761 tweets in Q3 2014 [Figure 4b]
● All NIH Comprehensive Cancer Centers use the tag ontology.
● Wide adoption has spawned five new independent tag ontologies, with more in
development: cardiology, oncology, pathology, radiology, urology.
● Typical hashtag adoption patterns have shown a reluctance to adopt prescribed
hashtags outside of formal events.
● The success of the tag ontology shows the desire for engagement and
partnership among the target communities.
● We have demonstrated the feasibility and growth of organized, cancer-specific
hashtags on Twitter used by a variety of stakeholders in cancer care.
● Use of the CTO indicates potential value of online interaction.
● Further study is needed to determine whether the CTO has any impact on
access, outcomes, information quality, as a model for other areas of medicine, or
as a resource for future research.
Based upon two de novo hashtags, #bcsm (breast cancer social media) and #btsm
(brain tumor social media), an organized system of hashtags was designed in July
2013 for online use. This system is now known as the cancer tag ontology (CTO).
Metadata criteria applied included factors such as length, standard formatting,
adherence to alphabetical sorting for related subtopics, and similar principles. All
tweets were archived in the Symplur Healthcare Hashtag Project for later analysis.
We conducted a retrospective study of 25 hashtags used on Twitter April 2011 –
September 2014 using data from Symplur, LLC. We classified up to 100 most active
users of each hashtag as follows: patient; doctor; non-doctor health care professional
(HCP); individual NOS (I); healthcare organization (HCO), other organization (OO); or
spam. Tweet activity was analyzed quarterly for all tags.
Background
● A majority of patients and health care professionals are now online
● Many cancer patients seek accurate health information online, which isn’t always
easy to access or identify
● Robust, active communities emerged on Twitter using hashtags for breast cancer
social media (#bcsm) and brain tumor social media (#btsm) in 2011 and 2012,
respectively
● Patient advocates started #bcsm and #btsm for advocacy and support, both
including doctors with #bcsm involving one author (DJA) as a collaborator
● A disease-specific ontology [structured tags without pre-existing use] was developed
by two authors (MSK and PFA) and shared online in July 2013
● After public commentary and discussion for community engagement, a finalized
version was posted online in November 2013 on Symplur.com
● Initially described as a folksonomy (user-generated system), we defined the hashtag
sets as an ontology, a structured system designed a priori
● Our hypothesis is that cancer-specific hashtags are a promising way to facilitate
access to accurate health information and positive interactions
● Our aim was to retrospectively evaluate Twitter use of the Cancer Tag Ontology
(CTO) and the types of users putting these hashtags into tweets
● Symplur: Healthcare Hashtags: Ontologies: <http://www.symplur.com/healthcare-hashtags/ontology/>
● Katz MS, Utengen A, Anderson PF, Thompson MA, Fisch M, Johnston C, Attai DJ, Aase L, Miller RS, Lee T,
Dizon DS. Disease specific hashtags for communication about cancer care. ASCO Annual Meeting 2015. <http:
//www.slideshare.net/subatomicdoc/disease-specific-hashtags-for-communication-about-cancer-care-48866106>
● Katz MS, Utengen A, Anderson PF, Thompson MA, Attai DJ, Johnston C, Dizon DS. Disease-Specific Hashtags
for Online Communication About Cancer Care. JAMA Oncol. 2016 Mar 1;2(3):392-4. doi: 10.1001/jamaoncol.
2015.3960.
● Attai DJ1, Sedrak MS2, Katz MS3, Thompson MA4, Anderson PF5, Kesselheim JC6, Fisch MJ7, Graham DL8,
Utengen A9, Johnston C10, Miller RS10, Dizon DS11; Collaboration for Outcomes on Social Media in Oncology
(COSMO). Social media in cancer care: highlights, challenges & opportunities. Future Oncol. 2016 Mar 30.
#adcsm Adrenal Cancer #lcsm Lung Cancer
#ancsm Anal Cancer #leusm Leukemia
#ayacsm Adolescent & Young Adult
Cancer
#lymsm Lymphoma
#bcsm Breast Cancer #melsm Melanoma
#blcsm Bladder Cancer #mmsm Multiple Myeloma
#btsm Brain Tumors #pancsm Pancreatic Cancer
#crcsm Colorectal Cancer #pcsm Prostate Cancer
#esocsm Esophageal Cancer #pedcsm Pediatric Cancer
#gyncsm Gynecologic Cancers #scmsm Sarcoma
#hncsm Head & Neck Cancers #stcsm Stomach Cancer
#hpbcsm Hepatobiliary Cancers #thmcsm Thymoma & Thymic
Carcinoma
#kcsm Kidney Cancer #thycsm Thyroid Cancer
#tscsm Testicular Cancer
Table 2: Classification of the Most Active Users of the Hashtags
Patient
(P)
Doctor
(D)
Healthcare
Professional,
Other (HCP)
Individual,
Other (I)
Healthcare
Organization
(HCO)
Organization,
Other (OO)
Spam
(S)
4a: Quarterly Twitter Activity of the CTO,
2011-2014
4a: Monthly Twitter Activity of the
Structured Tags, 2013-2014

More Related Content

What's hot

IBM Watson Health: How cognitive technologies have begun transforming clinica...
IBM Watson Health: How cognitive technologies have begun transforming clinica...IBM Watson Health: How cognitive technologies have begun transforming clinica...
IBM Watson Health: How cognitive technologies have begun transforming clinica...
Maged N. Kamel Boulos
 

What's hot (20)

Cancer Research Meets Data Science — What Can We Do Together?
Cancer Research Meets Data Science — What Can We Do Together?Cancer Research Meets Data Science — What Can We Do Together?
Cancer Research Meets Data Science — What Can We Do Together?
 
One View of Data Science
One View of Data ScienceOne View of Data Science
One View of Data Science
 
Participant-centered research design and “equal access” data sharing practice...
Participant-centered research design and “equal access” data sharing practice...Participant-centered research design and “equal access” data sharing practice...
Participant-centered research design and “equal access” data sharing practice...
 
Digital Access to the World's Literature: A Blueprint to Integrate Evidence w...
Digital Access to the World's Literature: A Blueprint to Integrate Evidence w...Digital Access to the World's Literature: A Blueprint to Integrate Evidence w...
Digital Access to the World's Literature: A Blueprint to Integrate Evidence w...
 
Classic Papers in Medical Informatics
Classic Papers in Medical InformaticsClassic Papers in Medical Informatics
Classic Papers in Medical Informatics
 
Utilize Digital and Social Media Data to Inform Your Research in Novel Ways
Utilize Digital and Social Media Data to Inform Your Research in Novel WaysUtilize Digital and Social Media Data to Inform Your Research in Novel Ways
Utilize Digital and Social Media Data to Inform Your Research in Novel Ways
 
How You can use Twitter as a Tool for PhD Health Research - Phdassistance.com
How You can use Twitter as a Tool for PhD Health Research - Phdassistance.comHow You can use Twitter as a Tool for PhD Health Research - Phdassistance.com
How You can use Twitter as a Tool for PhD Health Research - Phdassistance.com
 
Developing a World Leading Technology Enabled Health Programme of Research
Developing a World Leading Technology Enabled Health Programme of ResearchDeveloping a World Leading Technology Enabled Health Programme of Research
Developing a World Leading Technology Enabled Health Programme of Research
 
Ethics, Research & Society
Ethics, Research & SocietyEthics, Research & Society
Ethics, Research & Society
 
Accessing and Sharing Electronic Personal Health Data
Accessing and Sharing Electronic Personal Health DataAccessing and Sharing Electronic Personal Health Data
Accessing and Sharing Electronic Personal Health Data
 
Clinical trials and cohort studies
Clinical trials and cohort studiesClinical trials and cohort studies
Clinical trials and cohort studies
 
BYO App: Announcing Linq from Open mHealth
BYO App: Announcing Linq from Open mHealthBYO App: Announcing Linq from Open mHealth
BYO App: Announcing Linq from Open mHealth
 
Epic EMR to OMOP CDM to Clinical Research Data Mart: an Unmaintained Road or ...
Epic EMR to OMOP CDM to Clinical Research Data Mart: an Unmaintained Road or ...Epic EMR to OMOP CDM to Clinical Research Data Mart: an Unmaintained Road or ...
Epic EMR to OMOP CDM to Clinical Research Data Mart: an Unmaintained Road or ...
 
Shing Lee MedicReS World Congress 2015
Shing Lee MedicReS World Congress 2015Shing Lee MedicReS World Congress 2015
Shing Lee MedicReS World Congress 2015
 
Ethics in Infodemiology and Public Health 2.0
Ethics in Infodemiology and Public Health 2.0Ethics in Infodemiology and Public Health 2.0
Ethics in Infodemiology and Public Health 2.0
 
Clinical trials data sharing
Clinical trials data sharingClinical trials data sharing
Clinical trials data sharing
 
Information Technology: The Third Pillar of Medical Education
Information Technology: The Third Pillar of Medical EducationInformation Technology: The Third Pillar of Medical Education
Information Technology: The Third Pillar of Medical Education
 
International perspective for sharing publicly funded medical research data
International perspective for sharing publicly funded medical research dataInternational perspective for sharing publicly funded medical research data
International perspective for sharing publicly funded medical research data
 
Almaden presentation 15-dec-2015
Almaden presentation 15-dec-2015Almaden presentation 15-dec-2015
Almaden presentation 15-dec-2015
 
IBM Watson Health: How cognitive technologies have begun transforming clinica...
IBM Watson Health: How cognitive technologies have begun transforming clinica...IBM Watson Health: How cognitive technologies have begun transforming clinica...
IBM Watson Health: How cognitive technologies have begun transforming clinica...
 

Viewers also liked

Doa rosario ( p. mulia ), west palm beach
Doa rosario ( p. mulia ), west palm beachDoa rosario ( p. mulia ), west palm beach
Doa rosario ( p. mulia ), west palm beach
anthomaro
 
Pulse'15_CanadianHealthCareLeadershipForum_Brochure
Pulse'15_CanadianHealthCareLeadershipForum_BrochurePulse'15_CanadianHealthCareLeadershipForum_Brochure
Pulse'15_CanadianHealthCareLeadershipForum_Brochure
Samanta Farahnaz
 

Viewers also liked (13)

Teoría (y práctica) de la superación (en situaciones de discapacidad).
Teoría (y práctica) de la superación  (en situaciones de discapacidad).Teoría (y práctica) de la superación  (en situaciones de discapacidad).
Teoría (y práctica) de la superación (en situaciones de discapacidad).
 
Football-the best game
Football-the best gameFootball-the best game
Football-the best game
 
Transformación de la Percepción
Transformación de la PercepciónTransformación de la Percepción
Transformación de la Percepción
 
[IJCT-V3I2P36] Authors: Amarbir Singh
[IJCT-V3I2P36] Authors: Amarbir Singh[IJCT-V3I2P36] Authors: Amarbir Singh
[IJCT-V3I2P36] Authors: Amarbir Singh
 
[IJCT-V3I2P37] Authors: Amritpal Singh, Prithvipal Singh
[IJCT-V3I2P37] Authors: Amritpal Singh, Prithvipal Singh[IJCT-V3I2P37] Authors: Amritpal Singh, Prithvipal Singh
[IJCT-V3I2P37] Authors: Amritpal Singh, Prithvipal Singh
 
Formación humana ficha # 12
Formación humana ficha # 12Formación humana ficha # 12
Formación humana ficha # 12
 
imran resume
imran resumeimran resume
imran resume
 
Doa rosario ( p. mulia ), west palm beach
Doa rosario ( p. mulia ), west palm beachDoa rosario ( p. mulia ), west palm beach
Doa rosario ( p. mulia ), west palm beach
 
Pulse'15_CanadianHealthCareLeadershipForum_Brochure
Pulse'15_CanadianHealthCareLeadershipForum_BrochurePulse'15_CanadianHealthCareLeadershipForum_Brochure
Pulse'15_CanadianHealthCareLeadershipForum_Brochure
 
публичный доклад 2014 2015
публичный доклад 2014 2015публичный доклад 2014 2015
публичный доклад 2014 2015
 
[IJET-V2I1P15] Authors:Deepika Phutela (B.Ed, M.B.A, UGC-NET)
[IJET-V2I1P15] Authors:Deepika Phutela (B.Ed, M.B.A, UGC-NET)[IJET-V2I1P15] Authors:Deepika Phutela (B.Ed, M.B.A, UGC-NET)
[IJET-V2I1P15] Authors:Deepika Phutela (B.Ed, M.B.A, UGC-NET)
 
Football ppt
Football pptFootball ppt
Football ppt
 
Pelaj 6 mengapa dan bagaimana membaca alkitab
Pelaj 6 mengapa dan bagaimana membaca alkitabPelaj 6 mengapa dan bagaimana membaca alkitab
Pelaj 6 mengapa dan bagaimana membaca alkitab
 

Similar to Engaging Diverse Communities in Cancer Conversations Through Creation of Structure & Metadata Within Twitter

The “Meaningful Use” of Social Media by Physicians
The “Meaningful Use” of Social Media by PhysiciansThe “Meaningful Use” of Social Media by Physicians
The “Meaningful Use” of Social Media by Physicians
yan_stanford
 

Similar to Engaging Diverse Communities in Cancer Conversations Through Creation of Structure & Metadata Within Twitter (20)

Ontologies, Tag Collections, and Folksonomies: Curating Disease Hashtags to E...
Ontologies, Tag Collections, and Folksonomies: Curating Disease Hashtags to E...Ontologies, Tag Collections, and Folksonomies: Curating Disease Hashtags to E...
Ontologies, Tag Collections, and Folksonomies: Curating Disease Hashtags to E...
 
Ontologies, Tag Collections, and Folksonomies: Curating Disease Hashtags to E...
Ontologies, Tag Collections, and Folksonomies: Curating Disease Hashtags to E...Ontologies, Tag Collections, and Folksonomies: Curating Disease Hashtags to E...
Ontologies, Tag Collections, and Folksonomies: Curating Disease Hashtags to E...
 
Disease specific hashtags for communication about cancer care
Disease specific hashtags for communication about cancer careDisease specific hashtags for communication about cancer care
Disease specific hashtags for communication about cancer care
 
The “Meaningful Use” of Social Media by Physicians
The “Meaningful Use” of Social Media by PhysiciansThe “Meaningful Use” of Social Media by Physicians
The “Meaningful Use” of Social Media by Physicians
 
Meaningful use of Social Media by Physicians - Slides from Medicine 2pt0
Meaningful use of Social Media by Physicians - Slides from Medicine 2pt0Meaningful use of Social Media by Physicians - Slides from Medicine 2pt0
Meaningful use of Social Media by Physicians - Slides from Medicine 2pt0
 
Blogging, tweeting, sharing your work to reach policy makers
Blogging, tweeting, sharing your work to reach policy makersBlogging, tweeting, sharing your work to reach policy makers
Blogging, tweeting, sharing your work to reach policy makers
 
4 hemsley twitter slides
4 hemsley twitter slides4 hemsley twitter slides
4 hemsley twitter slides
 
Identifying Structures in Social Conversations in NSCLC Patients through the ...
Identifying Structures in Social Conversations in NSCLC Patients through the ...Identifying Structures in Social Conversations in NSCLC Patients through the ...
Identifying Structures in Social Conversations in NSCLC Patients through the ...
 
Identifying Structures in Social Conversations in NSCLC Patients through the ...
Identifying Structures in Social Conversations in NSCLC Patients through the ...Identifying Structures in Social Conversations in NSCLC Patients through the ...
Identifying Structures in Social Conversations in NSCLC Patients through the ...
 
Social media and the Oncology Nurse
Social media and the Oncology NurseSocial media and the Oncology Nurse
Social media and the Oncology Nurse
 
Pharma Social Media Listening: Unlocking Hidden Insights | Whitepaper
Pharma Social Media Listening: Unlocking Hidden Insights | WhitepaperPharma Social Media Listening: Unlocking Hidden Insights | Whitepaper
Pharma Social Media Listening: Unlocking Hidden Insights | Whitepaper
 
Unlocking Hidden Insights for Pharma with Social Media Listening
Unlocking Hidden Insights for Pharma with Social Media ListeningUnlocking Hidden Insights for Pharma with Social Media Listening
Unlocking Hidden Insights for Pharma with Social Media Listening
 
How to Use Digital and Social Media to Recruit Participants into Research Stu...
How to Use Digital and Social Media to Recruit Participants into Research Stu...How to Use Digital and Social Media to Recruit Participants into Research Stu...
How to Use Digital and Social Media to Recruit Participants into Research Stu...
 
IRJET- Analysis of Health-Tweets using K-means Clustering
IRJET- Analysis of Health-Tweets using K-means ClusteringIRJET- Analysis of Health-Tweets using K-means Clustering
IRJET- Analysis of Health-Tweets using K-means Clustering
 
Stone Altmetrics Measuring Success of New Approaches
Stone Altmetrics Measuring Success of New ApproachesStone Altmetrics Measuring Success of New Approaches
Stone Altmetrics Measuring Success of New Approaches
 
#CPLOL18 paper on #ResNetSLT community
#CPLOL18 paper on #ResNetSLT community#CPLOL18 paper on #ResNetSLT community
#CPLOL18 paper on #ResNetSLT community
 
Social media and cancer communities
Social media and cancer communitiesSocial media and cancer communities
Social media and cancer communities
 
#acehp12 preconference - Emerging Technology and Medical Education
#acehp12 preconference - Emerging Technology and Medical Education#acehp12 preconference - Emerging Technology and Medical Education
#acehp12 preconference - Emerging Technology and Medical Education
 
Social Media and Hospital Reputation
Social Media and Hospital ReputationSocial Media and Hospital Reputation
Social Media and Hospital Reputation
 
Marilyn mann slides for qcor 2018 final
Marilyn mann slides for qcor 2018 finalMarilyn mann slides for qcor 2018 final
Marilyn mann slides for qcor 2018 final
 

More from University of Michigan Taubman Health Sciences Library

More from University of Michigan Taubman Health Sciences Library (20)

Systematic Reviews, Tech Mining, and Other Knowledge Synthesis Beasts of Burden
Systematic Reviews, Tech Mining, and Other Knowledge Synthesis Beasts of BurdenSystematic Reviews, Tech Mining, and Other Knowledge Synthesis Beasts of Burden
Systematic Reviews, Tech Mining, and Other Knowledge Synthesis Beasts of Burden
 
It's Not Brain Surgery: Graphic Medicine, Graphic Justice, and More About Com...
It's Not Brain Surgery: Graphic Medicine, Graphic Justice, and More About Com...It's Not Brain Surgery: Graphic Medicine, Graphic Justice, and More About Com...
It's Not Brain Surgery: Graphic Medicine, Graphic Justice, and More About Com...
 
Methodology Mashups: Systematic Searches, Plus ...
Methodology Mashups: Systematic Searches, Plus ... Methodology Mashups: Systematic Searches, Plus ...
Methodology Mashups: Systematic Searches, Plus ...
 
#OwnVoices in Graphic Medicine: Creation and Collection
#OwnVoices in Graphic Medicine:  Creation and Collection#OwnVoices in Graphic Medicine:  Creation and Collection
#OwnVoices in Graphic Medicine: Creation and Collection
 
Introducing the "Librome Research Core"
Introducing the "Librome Research Core"Introducing the "Librome Research Core"
Introducing the "Librome Research Core"
 
Storytelling workshop: journeys in health care
Storytelling workshop: journeys in health careStorytelling workshop: journeys in health care
Storytelling workshop: journeys in health care
 
Research Methods: Searches & Systematic Reviews
Research Methods: Searches & Systematic ReviewsResearch Methods: Searches & Systematic Reviews
Research Methods: Searches & Systematic Reviews
 
NISO — Cutting Edges with Company: Emerging Technologies as a Collective Effort
NISO — Cutting Edges with Company: Emerging Technologies as a Collective EffortNISO — Cutting Edges with Company: Emerging Technologies as a Collective Effort
NISO — Cutting Edges with Company: Emerging Technologies as a Collective Effort
 
Ab Errantry: A Game to Build Awareness of the Aberrant and Abhorrent in Teens...
Ab Errantry: A Game to Build Awareness of the Aberrant and Abhorrent in Teens...Ab Errantry: A Game to Build Awareness of the Aberrant and Abhorrent in Teens...
Ab Errantry: A Game to Build Awareness of the Aberrant and Abhorrent in Teens...
 
Making Comics Fast — The Social Justice Version (2017)
Making Comics Fast — The Social Justice Version (2017)Making Comics Fast — The Social Justice Version (2017)
Making Comics Fast — The Social Justice Version (2017)
 
Making Comics Fast (2018)
Making Comics Fast (2018)Making Comics Fast (2018)
Making Comics Fast (2018)
 
Writing A Sexier Research Abstract: Making Research In Life Science More Disc...
Writing A Sexier Research Abstract: Making Research In Life Science More Disc...Writing A Sexier Research Abstract: Making Research In Life Science More Disc...
Writing A Sexier Research Abstract: Making Research In Life Science More Disc...
 
Rapid Reviews 101
Rapid Reviews 101 Rapid Reviews 101
Rapid Reviews 101
 
Making Research in the Life Sciences More Discoverable
Making Research in the Life Sciences More Discoverable Making Research in the Life Sciences More Discoverable
Making Research in the Life Sciences More Discoverable
 
Methods: Searching & Systematic Reviews
Methods: Searching & Systematic ReviewsMethods: Searching & Systematic Reviews
Methods: Searching & Systematic Reviews
 
Reinventing Normal 3: Connie Chang, Fast Forward Medical Innovation
Reinventing Normal 3: Connie Chang, Fast Forward Medical Innovation Reinventing Normal 3: Connie Chang, Fast Forward Medical Innovation
Reinventing Normal 3: Connie Chang, Fast Forward Medical Innovation
 
Reinventing Normal 2: David Chesney, Gaming for the Greater Good
Reinventing Normal 2: David Chesney, Gaming for the Greater Good Reinventing Normal 2: David Chesney, Gaming for the Greater Good
Reinventing Normal 2: David Chesney, Gaming for the Greater Good
 
Reinventing Normal 1: Michelle A. Meade, Technologies for Empowerment
Reinventing Normal 1: Michelle A. Meade, Technologies for Empowerment  Reinventing Normal 1: Michelle A. Meade, Technologies for Empowerment
Reinventing Normal 1: Michelle A. Meade, Technologies for Empowerment
 
Comic creation as an innovative library role
Comic creation as an innovative library roleComic creation as an innovative library role
Comic creation as an innovative library role
 
Try Not to Get Sued! The Pursuit of Accessibility and a Professional Captioni...
Try Not to Get Sued! The Pursuit of Accessibility and a Professional Captioni...Try Not to Get Sued! The Pursuit of Accessibility and a Professional Captioni...
Try Not to Get Sued! The Pursuit of Accessibility and a Professional Captioni...
 

Recently uploaded

Best medicine 100% Effective&Safe Mifepristion ௵+918133066128௹Abortion pills ...
Best medicine 100% Effective&Safe Mifepristion ௵+918133066128௹Abortion pills ...Best medicine 100% Effective&Safe Mifepristion ௵+918133066128௹Abortion pills ...
Best medicine 100% Effective&Safe Mifepristion ௵+918133066128௹Abortion pills ...
Abortion pills in Kuwait Cytotec pills in Kuwait
 
Sonia Journal club presentation (2).pptx
Sonia Journal club presentation (2).pptxSonia Journal club presentation (2).pptx
Sonia Journal club presentation (2).pptx
palsonia139
 
CAS 110-63-4 BDO Liquid 1,4-Butanediol 1 4 BDO Warehouse Supply For Excellent...
CAS 110-63-4 BDO Liquid 1,4-Butanediol 1 4 BDO Warehouse Supply For Excellent...CAS 110-63-4 BDO Liquid 1,4-Butanediol 1 4 BDO Warehouse Supply For Excellent...
CAS 110-63-4 BDO Liquid 1,4-Butanediol 1 4 BDO Warehouse Supply For Excellent...
ocean4396
 

Recently uploaded (20)

Best medicine 100% Effective&Safe Mifepristion ௵+918133066128௹Abortion pills ...
Best medicine 100% Effective&Safe Mifepristion ௵+918133066128௹Abortion pills ...Best medicine 100% Effective&Safe Mifepristion ௵+918133066128௹Abortion pills ...
Best medicine 100% Effective&Safe Mifepristion ௵+918133066128௹Abortion pills ...
 
World Hypertension Day 17th may 2024 ppt
World Hypertension Day 17th may 2024 pptWorld Hypertension Day 17th may 2024 ppt
World Hypertension Day 17th may 2024 ppt
 
DR. Neha Mehta Best Psychologist.in India
DR. Neha Mehta Best Psychologist.in IndiaDR. Neha Mehta Best Psychologist.in India
DR. Neha Mehta Best Psychologist.in India
 
Results For Love Spell Is Guaranteed In 1 Day +27834335081 [BACK LOST LOVE SP...
Results For Love Spell Is Guaranteed In 1 Day +27834335081 [BACK LOST LOVE SP...Results For Love Spell Is Guaranteed In 1 Day +27834335081 [BACK LOST LOVE SP...
Results For Love Spell Is Guaranteed In 1 Day +27834335081 [BACK LOST LOVE SP...
 
VVIP Yelahanka ℂall Girls 6350482085 Heat-immolating { Bangalore } Coveted Gi...
VVIP Yelahanka ℂall Girls 6350482085 Heat-immolating { Bangalore } Coveted Gi...VVIP Yelahanka ℂall Girls 6350482085 Heat-immolating { Bangalore } Coveted Gi...
VVIP Yelahanka ℂall Girls 6350482085 Heat-immolating { Bangalore } Coveted Gi...
 
Video capsule endoscopy (VCE ) in children
Video capsule endoscopy (VCE ) in childrenVideo capsule endoscopy (VCE ) in children
Video capsule endoscopy (VCE ) in children
 
5CL-ADB powder supplier 5cl adb 5cladba 5cl raw materials vendor on sale now
5CL-ADB powder supplier 5cl adb 5cladba 5cl raw materials vendor on sale now5CL-ADB powder supplier 5cl adb 5cladba 5cl raw materials vendor on sale now
5CL-ADB powder supplier 5cl adb 5cladba 5cl raw materials vendor on sale now
 
TEST BANK For Huether and McCance's Understanding Pathophysiology, Canadian 2...
TEST BANK For Huether and McCance's Understanding Pathophysiology, Canadian 2...TEST BANK For Huether and McCance's Understanding Pathophysiology, Canadian 2...
TEST BANK For Huether and McCance's Understanding Pathophysiology, Canadian 2...
 
Overview on the Automatic pill identifier
Overview on the Automatic pill identifierOverview on the Automatic pill identifier
Overview on the Automatic pill identifier
 
Integrated Neuromuscular Inhibition Technique (INIT)
Integrated Neuromuscular Inhibition Technique (INIT)Integrated Neuromuscular Inhibition Technique (INIT)
Integrated Neuromuscular Inhibition Technique (INIT)
 
Premium ℂall Girls In Mumbai Airport👉 Dail ℂALL ME: 📞9833325238 📲 ℂall Richa ...
Premium ℂall Girls In Mumbai Airport👉 Dail ℂALL ME: 📞9833325238 📲 ℂall Richa ...Premium ℂall Girls In Mumbai Airport👉 Dail ℂALL ME: 📞9833325238 📲 ℂall Richa ...
Premium ℂall Girls In Mumbai Airport👉 Dail ℂALL ME: 📞9833325238 📲 ℂall Richa ...
 
Unveiling Alcohol Withdrawal Syndrome: exploring it's hidden depths
Unveiling Alcohol Withdrawal Syndrome: exploring it's hidden depthsUnveiling Alcohol Withdrawal Syndrome: exploring it's hidden depths
Unveiling Alcohol Withdrawal Syndrome: exploring it's hidden depths
 
The Orbit & its contents by Dr. Rabia I. Gandapore.pptx
The Orbit & its contents by Dr. Rabia I. Gandapore.pptxThe Orbit & its contents by Dr. Rabia I. Gandapore.pptx
The Orbit & its contents by Dr. Rabia I. Gandapore.pptx
 
Making Patient-Centric Immunotherapy a Reality in Lung Cancer: Best Practices...
Making Patient-Centric Immunotherapy a Reality in Lung Cancer: Best Practices...Making Patient-Centric Immunotherapy a Reality in Lung Cancer: Best Practices...
Making Patient-Centric Immunotherapy a Reality in Lung Cancer: Best Practices...
 
Sonia Journal club presentation (2).pptx
Sonia Journal club presentation (2).pptxSonia Journal club presentation (2).pptx
Sonia Journal club presentation (2).pptx
 
Let's Talk About It: Ovarian Cancer (The Emotional Toll of Treatment Decision...
Let's Talk About It: Ovarian Cancer (The Emotional Toll of Treatment Decision...Let's Talk About It: Ovarian Cancer (The Emotional Toll of Treatment Decision...
Let's Talk About It: Ovarian Cancer (The Emotional Toll of Treatment Decision...
 
Unlocking Holistic Wellness: Addressing Depression, Mental Well-Being, and St...
Unlocking Holistic Wellness: Addressing Depression, Mental Well-Being, and St...Unlocking Holistic Wellness: Addressing Depression, Mental Well-Being, and St...
Unlocking Holistic Wellness: Addressing Depression, Mental Well-Being, and St...
 
SEMESTER-V CHILD HEALTH NURSING-UNIT-1-INTRODUCTION.pdf
SEMESTER-V CHILD HEALTH NURSING-UNIT-1-INTRODUCTION.pdfSEMESTER-V CHILD HEALTH NURSING-UNIT-1-INTRODUCTION.pdf
SEMESTER-V CHILD HEALTH NURSING-UNIT-1-INTRODUCTION.pdf
 
Evidence-based practiceEBP) in physiotherapy
Evidence-based practiceEBP) in physiotherapyEvidence-based practiceEBP) in physiotherapy
Evidence-based practiceEBP) in physiotherapy
 
CAS 110-63-4 BDO Liquid 1,4-Butanediol 1 4 BDO Warehouse Supply For Excellent...
CAS 110-63-4 BDO Liquid 1,4-Butanediol 1 4 BDO Warehouse Supply For Excellent...CAS 110-63-4 BDO Liquid 1,4-Butanediol 1 4 BDO Warehouse Supply For Excellent...
CAS 110-63-4 BDO Liquid 1,4-Butanediol 1 4 BDO Warehouse Supply For Excellent...
 

Engaging Diverse Communities in Cancer Conversations Through Creation of Structure & Metadata Within Twitter

  • 1. TEMPLATE DESIGN © 2008 www.PosterPresentations.com Engaging Diverse Communities in Cancer Conversations Through Creation of Structure & Metadata Within Twitter Patricia F. Anderson1 <pfa@umich.edu>, Matthew S. Katz2 , Audun Utengen3 , Michael A. Thompson4 , Michael Fisch5 , Claire Johnston6 , Deanna J. Attai7 , Lee Aase8 , Robert S. Miller6 , Thomas Lee2 , Don S. Dizon9 1) University of Michigan, Ann Arbor, MI; 2) Lowell General Hospital, Lowell, MA; 3) Symplur, LLC, Los Angeles, CA; 4) Aurora Research Institute, Aurora Health Care, Milwaukee, WI; 5) AIM Specialty Health, Chicago, IL; 6) ASCO, Alexandria, VA; 7) David Geffen School of Medicine at University of California, Los Angeles, Los Angeles, CA; 8) Mayo Clinic, Rochester, MN; 9) Massachusetts General Hospital, Boston, MA Objectives Intending to develop an online space engaging to both clinicians and patients, we created a cancer tag ontology for Twitter. The goal was to foster boundary-spanning between diverse communities, to build off the successes and best practices of existing Twitter cancer hashtag communities, and to encourage self-managed communities for information quality, in the context of appropriate metadata practices. Methods Metadata Structures & Other Constraints on Tag Development Tag ontologies designed for social media use face constraints based on the technologies and communities of use which do not apply to more formally constructed ontologies. Traditional ontologies clarify conceptual relationships, and facilitate knowledge-sharing, coding, interrogation of the data, and analytic uses based on the structured terminology. Social media tags have historically avoided the formalism of an ontological structure, but have evolved certain common practices through communities of use within the specific platform(s). Those common practices make it possible to predict a likely tag for a novel concept as well as to discover existing tags and the communities which use them. A well-designed tag ontology attempts to maximise the benefits of both standard ontology design practices as well as common practices in the targeted social media communities. At the same time, it attempts to minimise the potential problems inherent in applying structure to what originated as an unstructured user-driven folksonomic type of naming activity. These are some of the compromises and negotiated prioritization we developed as criteria for tag ontology development. ● Adoption of broad and widely adopted best practices for tag creation driven by technology limits such as limited character conventions in tweets. ● Incorporation of pre-existing tags and tag conventions created by the target community (i.e. #bcsm, #btsm, #lcsm). ● Adoption of a standard tag format or structure convention for new tags (i.e. #—sm). ● Balance ease of identification & memorization with internal community jargon, which helps to minimize spam initially. ● Capitalization standardization to encourage accessibility best practices through use of CamelCase (i.e. #gyncsm vs. #GynCSM) ● Identify top level concepts and conceptual structures. Attempt to group tags on related concepts under common stem. This facilitates identification of conceptual relationships, portability, and facilitates data analysis derived from the tagged content. Note, this is an ideal, and often not possible. Example: #GynCSM could incorporate ovarian cancer. Ideally, for best practices with stemming, this would take a format such as #GynCSMocsm or #GynCSMovca. For real world practice, the ovarian cancer community is already actively using #OvCa and #OCSM. Figure 1: Tweets & Participants by CTO Hashtag Figure 2a: Stakeholder Mix Figure 2b: Tweet Activity by Type Figure 3: Twitter Use by Stakeholder Type & Hashtag Table 1: Hashtags in the Cancer Tag Ontology Figure 4: Twitter Activity: a) Quarterly b) Monthly Results Conclusions More Information ● For the entire study period, there were a total of 531,765 tweets by 77,454 users [Figure 1] ● The two user-generated tags #bcsm and #btsm had the longest use and most activity with 249,312 and 110,465 tweets, respectively ● The most active new hashtags were those with organized Twitter-based chats: #ayacsm; #gyncsm; #lcsm; #mmsm; and #pancsm. These seven accounted for 93% of new hashtag use. ● In the cohort, 11% were patients, 20% doctors, 3% non-doctor healthcare professional, 32% individual, 30% healthcare organization, 1% other organization, and 3% spam. [Figure 2a] ● The most active top users were patients with a median of 46 tweets. [Figure 2b] ● Differences in user mix for the tags with chats are highlighted in Figure 3. ● Activity using the CTO increased from 13,778 tweets in Q3 2011 to 75,960 tweets in Q3 2014 [Figure 4a] ● For the 23 structured tags, quarterly use increased from 18,098 tweets in Q3 2013 to 39,761 tweets in Q3 2014 [Figure 4b] ● All NIH Comprehensive Cancer Centers use the tag ontology. ● Wide adoption has spawned five new independent tag ontologies, with more in development: cardiology, oncology, pathology, radiology, urology. ● Typical hashtag adoption patterns have shown a reluctance to adopt prescribed hashtags outside of formal events. ● The success of the tag ontology shows the desire for engagement and partnership among the target communities. ● We have demonstrated the feasibility and growth of organized, cancer-specific hashtags on Twitter used by a variety of stakeholders in cancer care. ● Use of the CTO indicates potential value of online interaction. ● Further study is needed to determine whether the CTO has any impact on access, outcomes, information quality, as a model for other areas of medicine, or as a resource for future research. Based upon two de novo hashtags, #bcsm (breast cancer social media) and #btsm (brain tumor social media), an organized system of hashtags was designed in July 2013 for online use. This system is now known as the cancer tag ontology (CTO). Metadata criteria applied included factors such as length, standard formatting, adherence to alphabetical sorting for related subtopics, and similar principles. All tweets were archived in the Symplur Healthcare Hashtag Project for later analysis. We conducted a retrospective study of 25 hashtags used on Twitter April 2011 – September 2014 using data from Symplur, LLC. We classified up to 100 most active users of each hashtag as follows: patient; doctor; non-doctor health care professional (HCP); individual NOS (I); healthcare organization (HCO), other organization (OO); or spam. Tweet activity was analyzed quarterly for all tags. Background ● A majority of patients and health care professionals are now online ● Many cancer patients seek accurate health information online, which isn’t always easy to access or identify ● Robust, active communities emerged on Twitter using hashtags for breast cancer social media (#bcsm) and brain tumor social media (#btsm) in 2011 and 2012, respectively ● Patient advocates started #bcsm and #btsm for advocacy and support, both including doctors with #bcsm involving one author (DJA) as a collaborator ● A disease-specific ontology [structured tags without pre-existing use] was developed by two authors (MSK and PFA) and shared online in July 2013 ● After public commentary and discussion for community engagement, a finalized version was posted online in November 2013 on Symplur.com ● Initially described as a folksonomy (user-generated system), we defined the hashtag sets as an ontology, a structured system designed a priori ● Our hypothesis is that cancer-specific hashtags are a promising way to facilitate access to accurate health information and positive interactions ● Our aim was to retrospectively evaluate Twitter use of the Cancer Tag Ontology (CTO) and the types of users putting these hashtags into tweets ● Symplur: Healthcare Hashtags: Ontologies: <http://www.symplur.com/healthcare-hashtags/ontology/> ● Katz MS, Utengen A, Anderson PF, Thompson MA, Fisch M, Johnston C, Attai DJ, Aase L, Miller RS, Lee T, Dizon DS. Disease specific hashtags for communication about cancer care. ASCO Annual Meeting 2015. <http: //www.slideshare.net/subatomicdoc/disease-specific-hashtags-for-communication-about-cancer-care-48866106> ● Katz MS, Utengen A, Anderson PF, Thompson MA, Attai DJ, Johnston C, Dizon DS. Disease-Specific Hashtags for Online Communication About Cancer Care. JAMA Oncol. 2016 Mar 1;2(3):392-4. doi: 10.1001/jamaoncol. 2015.3960. ● Attai DJ1, Sedrak MS2, Katz MS3, Thompson MA4, Anderson PF5, Kesselheim JC6, Fisch MJ7, Graham DL8, Utengen A9, Johnston C10, Miller RS10, Dizon DS11; Collaboration for Outcomes on Social Media in Oncology (COSMO). Social media in cancer care: highlights, challenges & opportunities. Future Oncol. 2016 Mar 30. #adcsm Adrenal Cancer #lcsm Lung Cancer #ancsm Anal Cancer #leusm Leukemia #ayacsm Adolescent & Young Adult Cancer #lymsm Lymphoma #bcsm Breast Cancer #melsm Melanoma #blcsm Bladder Cancer #mmsm Multiple Myeloma #btsm Brain Tumors #pancsm Pancreatic Cancer #crcsm Colorectal Cancer #pcsm Prostate Cancer #esocsm Esophageal Cancer #pedcsm Pediatric Cancer #gyncsm Gynecologic Cancers #scmsm Sarcoma #hncsm Head & Neck Cancers #stcsm Stomach Cancer #hpbcsm Hepatobiliary Cancers #thmcsm Thymoma & Thymic Carcinoma #kcsm Kidney Cancer #thycsm Thyroid Cancer #tscsm Testicular Cancer Table 2: Classification of the Most Active Users of the Hashtags Patient (P) Doctor (D) Healthcare Professional, Other (HCP) Individual, Other (I) Healthcare Organization (HCO) Organization, Other (OO) Spam (S) 4a: Quarterly Twitter Activity of the CTO, 2011-2014 4a: Monthly Twitter Activity of the Structured Tags, 2013-2014