This document summarizes an online chat discussion between multiple participants. Key discussion points included:
- Interest in how online platforms can effectively connect people and support patient/citizen engagement
- Challenges clinicians face in engaging with online communities due to fears about personal information being exposed and lack of time/IT access
- Importance of using existing familiar platforms like Facebook to build trust and leveraging volunteer sector partners to help establish online communities
- Need to support clinicians to feel they can safely engage online without risking their personal online identities and help transition mindsets from positional authority to experiential credibility
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Edge Talk chat box from 3 June Exploring online health communities, with Paul Hodgkin and Ben Metz
1. fromMark Outhwaite toAll Participants:
Morningall
fromJo HemmingtoAll Participants:
Good morningall
fromMark Outhwaite toAll Participants:
JoiningfromWiltshire
fromMark Outhwaite toAll Participants:
You avoidedmysurname!lol
fromGareth to All Participants:
Morning,Gareth fromLeeds
fromGareth to All Participants:
Good thanks,lookingforwardtothe talk!
fromGareth to All Participants:
Dont be sillyKate,itsthe Northright;)
fromBen Metz to All Participants:
Hi all,douse th echat box to letus knowyourinterestsinthe subjectandwhatspecificallyyouwant
to discusstoday
fromGareth to All Participants:
Lol,yea we hadour fewdaysa fewweeksago:)
fromCarolynChalmerstoAll Participants:
VerymistyanddreichtinOrkney. I feel sorryforthe folkwhohave justarrivedonthe bigcruise
linerinKirkwall bay
fromFionaO'Neill toAll Participants:
I am interestedinthe platformsthatcan connectpeople -whatworks?
fromMark Outhwaite toAll Participants:
My interesttodayisinthe analysisof social networksandonline communitiesandhow these
insightscanbe usedto make evenbetteruse of these networks(whilstminimisingthe riskof
'freezingthembylookingatthem - the Basilisk'sGlare effect)
fromCarolynChalmerstoAll Participants:
2. Interestedtofindouthowwe mighttake advantatge of thisto improve connectivityacrossthe
Northof Scotlandandouterislands
fromSarah Chalmers-Page toAll Participants:
I'm newto the whole area,anddroppinginout of interest. I'mworkingonan STP andthinkthat
technologyhashuge potential tosupportpatientinvolvementbothintheirowncare and infuture
service development,buttodayI'mprobablyaimingtolurkand learn.
fromBen Metz to All Participants:
OK - thanks - useful stuff - wil tryand coverthese inthe conversation
fromCarolynChalmerstoAll Participants:
I like 'Lurkand Learn'Sarah
fromSarah Chalmers-Page toAll Participants:
There'sprobablya managementbookinthere somewhere!
fromÁine Carroll toAll Participants:
I'm responsible for5integratedcare programmesinIrelandandam verykeentosee how we can
fullysupportpatient/citizenengagementinthe developmentof the programmes,self management
supportetc.Going to listenandlearn!
fromJanetto All Participants:
Please tweetusinghashtag#EdgeTalksandthe handle @School4Radicals@theEdgeNHS
fromJanetto All Participants:
Checkout the workwe have done on platformsasa way of engaging:
http://theedge.nhsiq.nhs.uk/wp-content/uploads/2016/04/Platforms-for-Social-Change-Final-
report.pdf onthe NHSEdge.
fromJanetto All Participants:
ThanksPaul.All goingwell!
fromJanetto All Participants:
Couldwe share any on-line platformsthatwe know are effective forsharingpatientstories?
fromBen Metz to All Participants:
www.patientopinion.org.ukisthe platformthatPaul founded
fromAlisonCamerontoAll Participants:
Can't waitnexttime Iam expectedtogive consultancyorspeakasa patientatan expensive health
care eventfornothingtointoruduce themtothe money,valuesandtrusttrilemma!....
3. fromMark Outhwaite toAll Participants:
Alsion- the ineffable JohnPophamhadthe followingquote aboutthat'Everytime youaska
freelancertodosomethingforfree aunicornbreaksitsleg& spearsa kitteninthe eye withitshorn
as it falls'
fromMark Outhwaite toAll Participants:
AlisonImean!Spelling!
fromAlisonCamerontoAll Participants:
That is evenbetter!Iwill quote thatone forsure.
fromSarah Chalmers-Page toAll Participants:
Mark andAlison,Ido love that. I remembertalkingaboutpatientinvolvementata conference in
2010 and people stillbeingastonishedthattheyshouldinvolve the publicatall ("buttheyaren't
trained!"),letalone paythem.
fromKate PoundtoAll Participants:
can you mute himplease?
fromSarah Chalmers-Page toAll Participants:
I wishI'd hadthe unicornline!
fromMark Outhwaite toAll Participants:
Ohh- I like that
fromAlisonCamerontoAll Participants:
Spearingcliniciansinthe eye isafirstforEdge Talks.
fromMark Outhwaite toAll Participants:
Dunbar's Number- the equivalentof '42' hohumm
fromMark Outhwaite toAll Participants:
An example of averyinterestingcommunityliterallyhackinghealthcare is
http://www.nightscout.info
fromTim Mustill toAll Participants:
Is there a avearge %or ratio of active to watchingparticipantsforthese typesof cummunity?
fromEsther FlanagantoAll Participants:
How doyou measure meaningful onlinecommunityengagement?
4. fromTim Mustill toAll Participants:
yep
fromCarolynChalmerstoAll Participants:
Yes
fromMark Outhwaite toAll Participants:
Yes - can hear
fromSarah Chalmers-Page toAll Participants:
yes
fromMichele toAll Participants:
yes,i can hearyou
fromCarolynChalmerstoAll Participants:
Notnow though
fromMark Outhwaite toAll Participants:
No notnowJanet
fromEsther FlanagantoAll Participants:
no
fromBev Matthewsto All Participants:
whatare the keycriteriafor successful self-sustainable online communities
fromAlisonCamerontoAll Participants:
Thisstuff aroundmanagingidentityisreallyinteresting.Iwasall aboutchallengingprofessionalsto
leave theirjobtitle atthe doorbut realisedItoostruggledtoemerge fromthe "patientbox"
fromMark Outhwaite toAll Participants:
Janetyouare muted
fromMark Outhwaite toAll Participants:
yesnow
fromJon Bryant toAll Participants:
Hi Paul and Kate
fromTim Mustill toAll Participants:
5. will there be clusterswithinclustersegtumourtype withinanoncologycommunity?The figure in
the slide implieslimitedoverlap.
fromMark Outhwaite toAll Participants:
It isreallyinterestingwhenyoustarttoactuallygraphicallymapthese networks
fromMark Outhwaite toAll Participants:
Benand paul - youare on mute
fromBen Metz to All Participants:
sorry guys - we have no audio - soundslike underwaterdoctorwho
fromMark Outhwaite toAll Participants:
Ben/Paul couldcome invialandline ormobilephone
fromMark Outhwaite toAll Participants:
Detailsunderaudiomenuitem
fromJanetto All Participants:
it can be reallydifficulttoaligntrust,valuesandmoney - how can we do itin a verycompetitive
environment?
fromEsther Flanaganto All Participants:
We have founditdifficultforNHSstaff toaccess online communitiesdue tolackof time butalso IT
restrictions!Isitbettertouse existingplatformsortry to developnewones?
fromJanetto All Participants:
Baby dragons - love it?Usercentric designinonline communities - zerocostsappealstome
fromTim Mustill toAll Participants:
Can we pickup anythingfromsiteslike this...http://www.fabnhsstuff.net/
fromCarolynChalmerstoAll Participants:
Our Vol sectorpartnershave helpedus(NHS) tosetup a Facebookpage forChronicPain
fromMark Outhwaite toAll Participants:
Dragons,unicornsand kittens - excellentsummaryof manyonline communities!
fromJanetto All Participants:
Please askyourquestionsinthe chatroom andI will tryto get Benand Paul to addressthem.
fromMark Outhwaite toAll Participants:
6. Basilisk'sGlare syndrome
fromMark Outhwaite toAll Participants:
Justlookingatit freezesit
fromJon Bryant toAll Participants:
Thinkusingexistingplatformsbringsalevelof trustwithitthat startinggroundup doesn't
fromMark Outhwaite toAll Participants:
Alsouse existingplatformslike Facebookasitisalreadyfamiliar - alsprememberthatfor
patients/carerstheirconditionisapart of theirlife not'apart fromtheirlife'
fromMark Outhwaite toAll Participants:
For cliniciansdiabetiesissomethingIdoat work.For patientdiabetiesispartof whoI am at workor
at play
fromJanetto All Participants:
Estheris there a questionyouwanttoask?
fromSarah Chalmers-Page toAll Participants:
Mark, do you meanthatin termsof identity(e.g.whenIwaspregnantIidentifiedasapregnant
woman,butwhenI have a migraine Idon't fullyidentifyasa migraine sufferer,so it'scondition
dependent),orjustinthe softersense thatit'sa central part of life,notanepisode?
fromJon Bryant toAll Participants:
I like the opensource mentality/model
fromSarah Chalmers-Page toAll Participants:
I'm justthinkingthe extenttowhichtailoringtoidentitywoulddependonthe condition
fromDerekC Stewartto All Participants:
How dowe reallylearnfromthose whoare doingthisandshare that learning?
fromMark Outhwaite toAll Participants:
The softersense - itsall the overlappingcirclesthatare beingdescribed
fromTim Mustill toAll Participants:
Checkout ImogenCheese forclassicexampleof aninspiredindividual
http://www.melanomapatientconference.co.uk/
fromAlisonCamerontoAll Participants:
7. As forme mine isa verylongtermcondition.Iwasdiagnosedin1998. I ledto lossof careerhome
and yes,identity.SoItotallygetthe identitything.Mydiagnosesbecame mylabelsasthe thingsby
whichI had previouslydefinedmyself were removed.Thisis mightydiffernttojustgoinginto have a
boil lanced.
fromCarolynChalmerstoAll Participants:
I thinksome clinical colleaguesmightbe frightenedaboutexposingthemselveswiththiskindof
interaction
fromMark Outhwaite toAll Participants:
What I am sayingI suppose thatthese communitiesnaturallyoverlapintoareasof widerlifewhlsta
purelyNHSresponse tendstofocusonthe clinical andthose issuesimmediatelyadjacent
fromMark Outhwaite toAll Participants:
So more natural to findlike mindedpeople onFacebook - diabeticswhoalsoenjoyparachuting
fromJanetto All Participants:
I thinkthiswouldreallyappeal tocliniciansgiventhattheyoftendonthave the time forface to face
engagement
fromJanetto All Participants:
One question isthe overlapbetweenidentityandconditionforon-line communities...
fromSarah Chalmers-Page toAll Participants:
ThanksMark, that makessense
fromCarolynChalmerstoAll Participants:
Applysome improvementmethodology?
fromDerekC Stewartto All Participants:
The NHS will enduplike KingCanute - youcannotstop thistide andas you saytheyhave to catch
up.
fromEsther FlanagantoAll Participants:
How can we engage NHSmanagersto geton board withthe use of online communities?
fromMark Outhwaite toAll Participants:
You have to learnto swiminthe sea - not buildyourownswinningpool
fromEsther FlanagantoAll Participants:
I thinkthere isan elementof fear
8. fromMark Outhwaite toAll Participants:
swimming
fromÁine Carroll toAll Participants:
As a clinician,i thinkwe needtobe brave andengage.Ihave learnta huge amount withmylimited
online engagementandI'ma real scaredycat to keepwiththe animal theme!
fromJon Bryant toAll Participants:
Control stops thingstakingtheirnatural state,soperhapshonestbrokermoderatorsare a wayof
goingwiththe flowof a forkingcommunity
fromMark Outhwaite toAll Participants:
The NHS (andindeedpatients) needtodoa lotmore to supportcliniciansandmanagers experiment
and learninthisspace
fromPaul WoodleytoAll Participants:
findingawayto tap intopatientengagementcouldhelpgetaccesstothe increasedaccessto
technologythatwasdiscussedearlier
fromSarah Chalmers-Page toAll Participants:
Certainlyearlierinmycareerwhenwe were firstdiscussingonline engagementthere wasalotof
fearof whatpeople wouldsay,wouldtheybe critical,wouldtheybreachsomeone else's
confidentiality("whenIsawMrs Smithat the doctorsshe said..."). Ihad hopedthatwasfadingbut
I'm assumingnot?
fromMark Outhwaite toAll Participants:
Enormousdissonance betweenNHSmanagementandclinical experience of collaborative
technologysupportingtheirrole internallyandwhatisemergingoutside the NHSamongstthese
communitiesandprivate sector
from@domcushnanto All Participants:
@mark - yep
fromEsther FlanagantoAll Participants:
Fundamentallycliniciansare stilltrainedtocreate boundariesbetweenthemandpatients.Online
communitieschallenge this.
fromMark Outhwaite toAll Participants:
Watch out for the Digital Zorroprojectcomingsoonwhichisdesignedtoaddresshow tosupport
and create more Digital Insurgents
fromMark Outhwaite toAll Participants:
9. in these communitiesfrompositional authoritytoexperientalcredibilityisanimportantmind-set
for effective engagementforclinicians
fromMichele toAll Participants:
WouldBigWhite Wall fall intothe middle ground?
fromJanetto All Participants:
Changingourmindsettojourneynotjustproduct- reallyimportantinservice design.
fromSarah Chalmers-Page toAll Participants:
I thinkthere'salsoa reluctance toexpose personal life. If adoctor joinsanopencommunity,I'mnot
sure theyknowhowto stop people seeingpersonal profilesandsites,whichmightinclude griping
abouthow tiredtheyare,picturesof themonholidayorat a party,theirthoughtson the strike and
so on. AndI thinkthere isa bitof fearaboutbeingtooopenand authenticincase you make a
mistake andthensomeone seesapicture of youwitha glassof champagne froma couple of nights
later. I've met social workerswhowere semi-forbiddenfromevenbeingonFacebook,letalone
joiningcommunitiesrelatedtothe people theywere helping - Idon'tthinkdoctors andnurseshave
everopenlybeenthatheavilycontrolledbutIcan see an emotional needtokeeponlineidentitiesas
a sort of safe space. Doesanyone have anythoughtson how we couldsupporthealthprofessionals
to feel thattheycouldsafelyengage withoutriskingtheirownonline safe space toventandrelax?
fromSarah Chalmers-Page toAll Participants:
Sorry,that turnedintoa bit of an epictangent..
fromDerekC Stewartto All Participants:
The middle isaboutmutality - where we canlearnfromeach other(Patienttopatient;Patientand
professions;InformationandStory) Thisleadstobettershareddecisionmaking
from@domcushnanto All Participants:
Veryinterestingcomment@Sarah
fromEsther FlanagantoAll Participants:
Good questionSarah!
fromEsther FlanagantoAll Participants:
I wouldlike toknowthe answerformyself!
from@domcushnanto All Participants:
@sarah - i thinkpeople have differentpersonasondifferentsocial platforms?
fromkaren toAll Participants:
10. Is itjust healthprofessionalsthatneedthatspace?Anyprofessionalswithfitnesstopractice would
be interested?
from@domcushnanto All Participants:
hmmwouldlike toknowmore aboutthe financing
fromRussell GundrytoAll Participants:
Is the presentationavailable online?Ican't openthe clickon the 'read more'linkswhenIclickon
them!
fromJon Bryant toAll Participants:
by crowdsourcinginvestorsthe tail can'twag the dog?
fromSarah Chalmers-Page toAll Participants:
Karen,yes,Ithinkso. And@domcushnanI thinkthe problemwouldbe if youwere usinganexisting
platform(whichIthinkisgreat). If a diabetesnurse joinedadiabetesgrouponFacebookthey'dbe
usingherpersonal profile,unlesstheyknew how tosetupa "diabetesteamatSt Elsewhere"type
page,and eventhatwouldlinktothemas a person. Sothey'dneedsupportto setprivacysettings
so that,say, theirpolitical activismorthoughtsontheirhaircutwere still possibletohide fromthe
diabetesgroup,if theyfeltunsafesharingthat.
from@domcushnanto All Participants:
@russell itshouldbe yes
from@domcushnanto All Participants:
@sarah yesi thinkthere isconversationaroundonline privacy?Idonthave abig answersorry
fromkaren toAll Participants:
So manysimilaritiestocurrentdiscussionsaroundpeersupport(offline).Thankyou:-)
from@domcushnanto All Participants:
where cani learnmore about Meta Capital :)
fromTim Mustill toAll Participants:
Is there a reference froEnatanglementtheory?
fromMichele toAll Participants:
thankyou Paul and Benreallyveryinterestingandinspiringwork.
fromBen Metz to All Participants:
do sendthe slidesaround - paul wwas goingto do a slideshare
11. fromRussell GundrytoAll Participants:
Thanks, that wouldbe great
fromPaul WoodleytoAll Participants:
The slideswill be made availableandwill be sharedonthe Edge Talkspage after the event
fromhelenbevantoAll Participants:
Thishas beena fantasticsession.We needtotweetthe linkwidely andgetlotsof people watching
this
fromMichele toAll Participants:
Balick'sbookis a greatresource
fromJane Douthwaite toAll Participants:
ThankyouPaul andBen,veryinterestingsession
fromBen Metz to All Participants:
aaron balick - the psychodynamicsof social networks
fromBen Metz to All Participants:
https://www.amazon.co.uk/Psychodynamics-Social-Networking-Instantaneous-Psychoanalysis-
ebook/dp/B00FF739I8/ref=sr_1_1?ie=UTF8&qid=1464946599&sr=8-1&keywords=balick
fromÁine Carroll toAll Participants:
Blockchainasa wayto share data? Fascinating!
fromDerekC Stewartto All Participants:
Thank youso verymuchfor thisenlightenedandinformativeonline discussion.
fromRussell GundrytoAll Participants:
There'sa big questionabouthowthe tippingpointiscreatedinsocial healthcare.The massively
successful techinnovatorstendtohave beendrivenbysimplicityandsingularvisionof an
individual...Inhealthcare we have atendencytoclutterdesignbybeingall thingstoall people.
from@domcushnanto All Participants:
https://www.healthbank.coop/amazingwork
from@domcushnanto All Participants:
i wouldlove toknowyourthoughtsonGoogle DeepmindandIBMWatson on healthcare
fromSarah Chalmers-Page toAll Participants:
12. That looksreallyinteresting
fromSarah Chalmers-Page toAll Participants:
...healthbank,Idon'tknowaboutgoogle deepmind!
fromkaren toAll Participants:
Watson at AlderHey - wouldreallylike toknow parentsandchildren'sviewsonit
fromÁine Carroll toAll Participants:
Thishas beenanexcellentsession.Ihave muchto thinkaboutbutyou have givenme ideaswhere to
start. Nowwheresthatinspiredindividualandhonestbroker...??!
fromkaren toAll Participants:
So muchof whathas beensaideasily appliestooffline peergroups/patientgroups - Is iteasierto
do all thisonline oroffline?
fromAlisonCamerontoAll Participants:
Follow@mjseresforgreatinsightfromapatiententrpreneur.
fromDerekC Stewartto All Participants:
Worth lookingatmanyof the rarer cancer groupsin Europe.
from@domcushnanto All Participants:
@kareni thinkonline allowspeople todothingsatanytime anywhere
fromJon Bryant toAll Participants:
Opensource thinkingcouldcreate aninterface betweensocialmediaplatformslike anAPI
fromSarah Chalmers-Page toAll Participants:
ThanksAlison
fromÁine Carroll toAll Participants:
@karengood question!Dowe knowwhichisbetter?
fromkaren toAll Participants:
@domcushnandoesthatmake it a biggerthreatto systems?Andthereforepotentiallyeasierto
start withoffline groups?
fromMichele toAll Participants:
13. thishas beena greatsession.Thankyou.Ihave to go now but I lookforwardto pickingupthe slides
and resources,anddevelopingmythinkingabout participationinall the onlinecommunitiesthatI
belongto.
from@domcushnanto All Participants:
as technologistIamconflictedasI thinksome conversationsandsupportcanbe done viadigital but
thensome issuesIwantto speakto someone inareal environment.
fromÁine Carroll toAll Participants:
@domcushnanIthinkthat's right.Differentoptionsfordifferentthings.Isuppose itscreatingthe
conditionsforhavingthatchoice?
fromkaren toAll Participants:
@domcushnan I'dbe interestedtoknow whatcan't be done online:evenlocally,onlineeasierfor
anytime support.
from@domcushnanto All Participants:
holdingsomeoneshandandtellingthemitwill be okayisdifferentthansendingaforumor
whatsappmessage
fromkaren toAll Participants:
@Alison- thanksforthe linkto@mjseres - love histwitterbioas'Epatientinresidence' - let'shave
more of them:-)
fromJane Douthwaite toAll Participants:
@domcushnanagree.Some thingsare betterdiscussedinreal environmentratherthandigitally.
fromSarah Chalmers-Page toAll Participants:
Karen,I wonderif some of the McMillanstyle,compasionandpersonal contactstuff,whichhasa
massive impactonpeople,wouldstruggle online. Iam *very* keenformuchmore digital
communityworkbutI can see it's a hard one forthat sort of contact and lonelinessreduction. We
can do compassiononline butwe can'tdotea
fromSarah Chalmers-Page toAll Participants:
That and I've seensome nastyflame warsover"tone of voice"whichishard online!
fromkaren toAll Participants:
@domcushnanholidngsomeone'shandcan onlybe done at a fixedtime - bookedappointmentetc-
whatsappisbrilliantformiddleof the nightvirtual hugsandhandholding
from@domcushnanto All Participants:
14. i thinkwe all agree onthat - usingvideobroadcastinglikeskype/hangoutsisgreatforremovingthat
barrieraroundtone of voice
fromAlisonCamerontoAll Participants:
I thinkpeople likeMichael are sofar removedfromthe traditional view of "patientrep"orwhatever
it iswe tendto getlabelledas.Wascalled"ourlayrep" the otherday byan organisationwithwhom
I workas a paidconsultantinpatientandpublicengagement....face/palm.
fromJane Douthwaite toAll Participants:
eg.for me lookingatdevelopinglisteningservice,supportgroupforlocal birthtrauma witha
midwiferyunit.Thisneedstobe apersonal compassionate contact
fromkaren toAll Participants:
@Sarah I've had loadsof virtual teawithpeople (Iagree there'sa differenceBTW- justtryingto
thinkthroughdifference)
fromSarah Chalmers-Page toAll Participants:
Karen,I agree on the 3am thingcompletely. Ithinkthere'sarole for that, *and* insome casesfor
appointments.
fromSarah Chalmers-Page toAll Participants:
(whatsappisprobablythe onlyreasonIkeptbreastfeeding,onapersonal note!)
from@domcushnanto All Participants:
@Jane you shouldchatto https://twitter.com/ESasaruNHSasI have beenhavingchatsaroundthis
from@domcushnanto All Participants:
local supportgroupson a regularbasisand signpostingthemtoonline communications
fromMark Outhwaite toAll Panelists:
In manycasesTrust IG restrictionspreventaccesstomanytoolsand communities
fromkaren toAll Participants:
@jane I'm hearingof loadsof FB groups forperinatal mental health - new mumscan'tget outto
groups
fromJane Douthwaite toAll Participants:
@domcushnanIhave beenfora while.She'sgreat,and@ghostwrittermumm
fromSarah Chalmers-Page toAll Participants:
ooh,Alison,howannoying.
15. fromJon Bryant toAll Participants:
The face to face is where the on-line seedcanbe planted,?
fromJane Douthwaite toAll Participants:
we have beenlookingata 24 hr telephone service asanalternative forface toface
from@domcushnanto All Participants:
@jonyeahit helpswiththe trustpart too
fromMark Outhwaite toAll Panelists:
Many groupsnow mixingasynchronouschat,synchronousforumsandvideochat(Skype groups,
Airwave andHangoutsetc)
fromMark Outhwaite toAll Panelists:
togetherwith'socials'
fromkaren toAll Participants:
If NHS can't supportsmall local groups,how will itthenmake the leaptosupportinglargeronline
groups?
from@domcushnanto All Participants:
on demandsupportissomethingthatI stronglyfeel people wantandthatswhydigital allowsthat
fromMark Outhwaite toAll Panelists:
Doesthe NHS have to 'support'groups? Perhapsitshouldsupportitsownstaff to engage inexisting
and emergent groupswithconfidence
fromAlisonCamerontoAll Participants:
Hi sarah.Yes it showssuchlimitedconceptof whatishappeningoutthere where "patients"are
actingas educators,entrepreneurs,researchers,advocatesetcetcetc.There isevena Patient
Directorsharingstrategicleadership.Timestheyare achangin.
from@domcushnanto All Participants:
and dependingonthe groupI mightnot interactbutI will lurkandgetmy answersbyotherpeoples
commentsandanwer
fromMark Outhwaite toAll Panelists:
Andget some of these communitiesto supportNHSstaff make the transitionintousingthis
technologymore effectively
fromkaren toAll Participants:
16. @domcushnanThnx - good pointaboutlurkers
fromSarah Chalmers-Page toAll Participants:
Alison,I'mreallygladtohearabout the patientdirector. Ithinkpatientsandmembersof the public
are a massive engine forchange andcommonsense,andit'sgreatto stepbeyondasingle lay
memberorrare forumintomuch more creative approaches.
fromSarah Chalmers-Page toAll Participants:
I think I've justfoundyouon twitter.
fromJon Bryant toAll Participants:
Notsure froman individualsperspective thattheywillwanttoto go to the bigsystem, the intimacy
iskeyto feelingsafe,needstoworklike ahoneycombemaybe?
fromMark Outhwaite toAll Panelists:
follow@davidgilbert43forthe patientdirector
fromCarolynChalmerstoAll Participants:
Thank you
fromÁine Carroll toAll Participants:
Thanksto all!
fromSarah Chalmers-Page toAll Participants:
thankyou verymuch!
fromMark Outhwaite toAll Panelists:
Well done andthanksall
from@domcushnanto All Participants:
@Jon yesyouare rightgoodway of lookingat it
fromGareth to All Participants:
Thanksverymuch guys
fromPaul WoodleytoAll Participants:
Thank you
fromkaren toAll Participants:
Thank you - lotsto thinkabout - lookingforwardtoseeingslides
from@domcushnanto All Participants: